Dosage and other questions

[Guest guest]

Hi LDNers, here are some pretty basic questions I hope

somebody can answer. I have been to ldninfo.org.

I was able to get LDN to try it. But I don't like the dose.

It is 30 2.5mg capsules. It is not time-released. The

filler is " inactivated acidophilus " . It cost around 30USD

or so. I doubt they will take it back, of course.

Most people seem to do something like 1.5mg for 2 weeks,

then 3mg for 2 weeks, then 4.5mg, which would be easily

achieved with 1.5mg capsules. Is that right?

With the 2.5mg capsules, I'm not sure how do do the dosing.

Splitting the capsules is difficult to get right. Any ideas?

Also, if anybody cares to comment, here are some questions I had.

1) Has anybody with severe ME as defined by Canadian 2003

or Lyme tried it for a long time, such as a year?

2) Is this likely to be good or bad for people with

serious hyperalgesia? Will it increase or decrease

sensitivity to opioids? e.g. for surgery. I am told

it has no effect.

3) When you stop LDN, do you remain better? I am told no.

4) Is the immune improvement good for bacterial and mold

infections? One site said that it would not work if

you have candida. I have severe mold sensitivity that

is not sufficiently controlled by oral terbinafine,

Nystatin, and caprylic acid.

5) Could it be bad for you? For example, does not having

opioid stimulation during the night cause any problems

because the body wanted those for something?

6) How exactly does it affect the immune system? Does it

cause B cells and T cells to replicate? Does it cause

NK cells to split?

7) Will you be marked as suspect in some way in the USA if

you use it, for whatever reason, such as because

addicts use it, because it sounds vaguely like opioids,

because it's unusual, or because it removes market

share from other pharmaceuticals?

Thanks.

--

Q: How many CDC " scientists " does it take to change a lightbulb?

A: " You only think it's dark. " [CDC has denied ME/ " CFS " for 25 years]

==========

Retrovirus: http://www.wpinstitute.org/xmrv/index.html

[Guest guest]

I was misdiagnosed for decades. I was finally properly diagnosed with Lyme disease, Bartonella, Mycoplasma pneumoniae, HHV6, Hypothyroidism, relapsing Mono, and eventually MS.

I started on 3mg LDN in late August 2009, and have stayed on 3 mg. It is filled with acidophilus. The LDN is a great adjunct therapy, but it is no match for a complex stealth pathogen....it does not cure Lyme, but it helps. Biggest improvement for me is energy, brain energy, and it possibly helped my relapsing Epstein Barr (Mono)...when I relapse, my number is usually over 1000...this time it is well below 1000. I think it has helped my muscle spasms, too.

I have to note that when I went on LDN I was doing very well. I have been on oral antibiotics for 8 years...it was a very LONG journey, and I was disabled for almost two years (walker/wheelchair). I am completely ambulatory and do not limp. I am still challenged with neuropathy of the bladder. I am also a Lyme patient advocate and up until last spring I worked for a Lyme 501c3 for 3 years.

I hope sharing my experience will help answer some of your questions.

I wish you good health-

Hi LDNers, here are some pretty basic questions I hopesomebody can answer. I have been to ldninfo.org.I was able to get LDN to try it. But I don't like the dose.It is 30 2.5mg capsules. It is not time-released. Thefiller is "inactivated acidophilus". It cost around 30USDor so. I doubt they will take it back, of course.Most people seem to do something like 1.5mg for 2 weeks,then 3mg for 2 weeks, then 4.5mg, which would be easilyachieved with 1.5mg capsules. Is that right?With the 2.5mg capsules, I'm not sure how do do the dosing.Splitting the capsules is difficult to get right. Any ideas?Also, if anybody cares to comment, here are some questions I had.1) Has anybody with severe ME as defined by Canadian 2003or Lyme tried it for a long time, such as a year?2) Is this likely to be good or bad for people withserious hyperalgesia? Will it increase or decreasesensitivity to opioids? e.g. for surgery. I am toldit has no effect.3) When you stop LDN, do you remain better? I am told no.4) Is the immune improvement good for bacterial and moldinfections? One site said that it would not work ifyou have candida. I have severe mold sensitivity thatis not sufficiently controlled by oral terbinafine,Nystatin, and caprylic acid.5) Could it be bad for you? For example, does not havingopioid stimulation during the night cause any problemsbecause the body wanted those for something?6) How exactly does it affect the immune system? Does itcause B cells and T cells to replicate? Does it causeNK cells to split?7) Will you be marked as suspect in some way in the USA ifyou use it, for whatever reason, such as becauseaddicts use it, because it sounds vaguely like opioids,because it's unusual, or because it removes marketshare from other pharmaceuticals?