New to LDN

[Guest guest]

Hello everyone,

I have been reading your posts for a few days and I thought I would introduce

myself and see if anyone can offer advice.

Unlike some of you, it was my doctor who introduced me to LDN. I have been on

1.5mg for about 10 days now and haven't noticed any side effects. I have also

been put on 30mg. (to be increased to 60mg. after two weeks)compounded thyroid

for hypothyroid. The TSH, T3 and T4 are within the range but not balanced and I

do show antibodies as well.

Why I have been put on LDN? I have had a series of ailments that seem to be

related to the immune system. Among these are a meningioma in the brain, two

neurofibromas in the cervical spine, fibrocystic disease and now hypothyroid. In

addition I have Retinitis Pigmentosa, a genetic disorder that leads to tunnel

vision and in some cases to total blindness. Some researchers believe that there

is an immune system component to this as well. Do any of you have any of these

disorders?

About LDN and alcohol...I do like to have 2 or 3 glasses of red wine (4 oz. or

less each) 3 or 4 times a week. I have noticed that I get a headache like I

would if I had too much caffeine. I will ask my doctor when I go in this week

and see what he says.

What dietary changes have you made when taking LDN? I am not a dairy person...so

I don't foresee a problem there. What about supplements? are thee any we should

stay away from?

Thanks for having this group and being such great advocates. I have already

given this link to several people suffering from some of ailments listed on the

site.

Marisa

[Guest guest]

Please try to give LDN at LEAST a 6 month trial to know if it`s helping you or

not. If nothing else it cant do you any harm.

It makes no difference to the efficacy of the drug if youre sleeping or awake.

Maybe try to take it later than 9p.m to see if you can stay asleep longer before

you wake up? Or take a sleep aid to get you through the initial sleep

disturbance. Most people find they sleep better than before once that stage is

over.

Good luck!

[Guest guest]

Wow a lot of info there.

First, generally accepted optimal dose for most people and diseases

appears to be 4.5 mg. Some people (like myself) start right at that

does and stick with it. Other start lower and taper up. Many of the

MS folks and those with significant medication sensitivity seem to do

better on the low does taper up method - from my observations in

reading people's posts.

However, that said - if you have yeast/fungus issues you really need

to address those as things like Candida seem to block LDN from doing

its job to the fullest and in some ways may even make yeast issues

more apparent.

The rest I'll let other folks with more experience tackle.

Best to you,

Jaxi

On Tue, May 25, 2010 at 11:39 AM, Darla <tiggerf150@...> wrote:

> Just got my prescription for LDN even though my Dr. is not a fan of it and

says it had little benefit to his patients that have tried it. What dose should

I start at? I don't really care what dose he prescribed. I want to know how much

I should be taking from people who swear by it. I have chronic fatigue,

yeast/fungus issues, low thyroid function, allergies etc. I have vericose and

spider veins. I also just got it for my dad who has stage 4 colon cancer and my

daughter with autism (cream form). Any advice on the cancer dose? What kinds of

symptoms have ya'll seen improvement with? I have memory problems, brain fog,

major fatigue. No real pain though-thank God. My legs are very slightly swollen.

I have skin problems also. Any advice would be appreciated.

>

> Thanks,

> Darla

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