Guest guest Posted May 26, 2003 Report Share Posted May 26, 2003 Dear Judie: I have long heard that Lyme bacteria (well heard since I learned of Lyme in January 2002) is not able to withstand oxygen. I believe that when you exercise to the point of exhaustion, inhaling deep breaths and with profuse perspiration Lyme bacteria is killed. Both the added oxygen in the blood and the higher temperature are extremely bad for the Lyme bacteria. I was unaware I had Lyme disease in 1994, but accidentally did the right things to put myself in remission. I used to work out every day on a treadmill for one hour and my clothes would be wringing wet when I finished my workout. I believe this was very effective in overcoming the bacteria at that time. Sorry to hear of your accident and glad it was no worse than you related. Hope you were not burned too severely!! All my best wishes! Sidney Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2003 Report Share Posted May 26, 2003 Ammonia and bleach cannot be mixed--maybe that was the problem? > Judie > > Curious why the pool helps them better. Is it exercise? > > > [ ] dangerous chemical incident/oxygen treatment > > > > Hi everyone, > > > > I haven't posted in a long time, but have been a member of this group for > > over a year now. My 16-year-old son has had Lyme since July of 1998 and > has been > > very, very sick. > > > > Yesterday, I was stirring up chlorine granules to open our swimming pool. > > Long story short, because my hubby and daughter were using the hose to do > another > > pool opening chore, and because I had run out of the type of pool > treatment > > that can be just added to the water, I came in the house to dissolve the > > granules in a pitcher. I had done two pitchers without incident...when I > stirred up > > the third and last one, it literally blew up. It was almost like lava -- > it > > just kept popping and foaming and it was horrid. (My hunch is that perhaps > the > > water was too warm or the granules too old...I don't really know.) > > > > My son was lying on the couch in the adjacent room -- I hollered to him to > > cover his nose and mouth and get out the front door so he wouldn't have to > come > > near me. I was burned on my arms and legs and face (luckily, somehow, it > > didn't get in my eyes or I would have been blinded). I ran to the pool and > stuck my > > arms in the water, then my legs. I was having trouble breathing and > > immediately felt nauseous. > > > > Four rescue squads came here and they immediately started an I.V. on my > son > > and then me, plus put oxygen on all four of us, then transported all of us > to > > the hospital. > > > > The reason I am writing this to you all is this: my son seemed better > > (instead of worse, as I horridly expected....I was feeling so, so guilty > for putting > > him through this trauma!) last night than he has for weeks on end. Is this > > because of the oxygen? The saline drip? While at the hospital, he had a > sharp > > pain in his stomach and went to the bathroom. He said he had a b.m. that > was very > > green and reeked of chlorine but he immediately felt better after passing > it. > > Maybe I have accidentally found a new neuro-toxin flush? Just kidding.... > > > > Anyone out there had experience with oxygen making them feel better? If > so, > > should we all be begging for it? A fellow Lymie friend told me to expect > my son > > to have a herx, as her daughter had huge herxes after hyperbaric oxygen > > therapy. > > > > Let me tell you this: I have learned a valuable lesson -- never, ever will > > any pool chemicals be brought in to this house for ANY reason. Yikes. I > feel so > > incredibly bad about this. We put in the pool because my children both had > > been diagnosed as having juvenile rheumatoid arthritis (yeah, right...it > was Lyme > > all along) about 4 years ago, and the swimming really does help them both > to > > feel better. > > > > Hope you all are hanging in there and hopefully enjoying this Memorial > Day.... > > > > ~Judie > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2003 Report Share Posted May 26, 2003 I don't know about other, but I do know, that whenever I was on oxygen I felt better. You wish I could be put on one all the time were at least until treatment is finished. [ ] dangerous chemical incident/oxygen treatment Anyone out there had experience with oxygen making them feel better? If so, should we all be begging for it? A fellow Lymie friend told me to expect my son to have a herx, as her daughter had huge herxes after hyperbaric oxygen therapy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2003 Report Share Posted May 26, 2003 This conversation has got me wondering. While I've heard of people using hyperbaric treatments for Lyme, I'm wondering if just plain oxygent that you breathe from those tanks would help? Is this what you all had in the hospital treating the chemical poisoning, breathing in oxygen? Thanks, Bluesky > I don't know about other, but I do know, that whenever I was on oxygen I felt > better. You wish I could be put on one all the time were at least until > treatment is finished. > > ----- Original Message ----- > From: GoodLittleDobee@... >> Anyone out there had experience with oxygen making them feel better? If so, > should we all be begging for it? A fellow Lymie friend told me to expect my > son > to have a herx, as her daughter had huge herxes after hyperbaric oxygen > therapy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2003 Report Share Posted May 26, 2003 Judie Curious why the pool helps them better. Is it exercise? [ ] dangerous chemical incident/oxygen treatment > Hi everyone, > > I haven't posted in a long time, but have been a member of this group for > over a year now. My 16-year-old son has had Lyme since July of 1998 and has been > very, very sick. > > Yesterday, I was stirring up chlorine granules to open our swimming pool. > Long story short, because my hubby and daughter were using the hose to do another > pool opening chore, and because I had run out of the type of pool treatment > that can be just added to the water, I came in the house to dissolve the > granules in a pitcher. I had done two pitchers without incident...when I stirred up > the third and last one, it literally blew up. It was almost like lava -- it > just kept popping and foaming and it was horrid. (My hunch is that perhaps the > water was too warm or the granules too old...I don't really know.) > > My son was lying on the couch in the adjacent room -- I hollered to him to > cover his nose and mouth and get out the front door so he wouldn't have to come > near me. I was burned on my arms and legs and face (luckily, somehow, it > didn't get in my eyes or I would have been blinded). I ran to the pool and stuck my > arms in the water, then my legs. I was having trouble breathing and > immediately felt nauseous. > > Four rescue squads came here and they immediately started an I.V. on my son > and then me, plus put oxygen on all four of us, then transported all of us to > the hospital. > > The reason I am writing this to you all is this: my son seemed better > (instead of worse, as I horridly expected....I was feeling so, so guilty for putting > him through this trauma!) last night than he has for weeks on end. Is this > because of the oxygen? The saline drip? While at the hospital, he had a sharp > pain in his stomach and went to the bathroom. He said he had a b.m. that was very > green and reeked of chlorine but he immediately felt better after passing it. > Maybe I have accidentally found a new neuro-toxin flush? Just kidding.... > > Anyone out there had experience with oxygen making them feel better? If so, > should we all be begging for it? A fellow Lymie friend told me to expect my son > to have a herx, as her daughter had huge herxes after hyperbaric oxygen > therapy. > > Let me tell you this: I have learned a valuable lesson -- never, ever will > any pool chemicals be brought in to this house for ANY reason. Yikes. I feel so > incredibly bad about this. We put in the pool because my children both had > been diagnosed as having juvenile rheumatoid arthritis (yeah, right...it was Lyme > all along) about 4 years ago, and the swimming really does help them both to > feel better. > > Hope you all are hanging in there and hopefully enjoying this Memorial Day.... > > ~Judie > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2003 Report Share Posted May 26, 2003 Judie- HOW HORRIBLE!!!! I am so sorry to hear about your horrible incident!!!! Anything I can do to help? How are you doing??????? I can send you some wonderful stuff for burns if that is the case (it is my gift as well). Oxygen and internal heat are the TWO BEST THINGS a lymie can experience because it is what the spirochetes HATE!!!! (I was in the ER 2 nights ago w/ my 17yr old daughter whom gashed her head open with the car door, 6 stitches later....--anyway, I was using the oxygen while there!!!) EVERYBODY is oxygen deficient, lymie or not. Exercise, an oxygen tank from your local volunteer fire/first aid, hot tubs, hyperbaric O2, etc. are all good. Please let me know if I can help in any way.... sue in nj sue massie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2003 Report Share Posted May 26, 2003 Oxygen is often helpful for people with mycoplasma bacteria which grow in low-oxygen environments. I would not be surprised if lyme was the same. People with mycoplasma also feel crummier when they fly in airplanes due to the lack of oxygen. Is this true of lymies? People wth CFS also have low blood volume and saline drips make them feel better. I don't know if this is true of lyme. Thanks, Doris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2003 Report Share Posted May 26, 2003 Supposedly Lyme thrives in an anaerobic environment, so increasing oxygen levels seems like it would help control it. However, there is a problem with using oxygen on a regular basis. The body controls oxygen levels in the blood by increasing or decreasing the chemical 2,3 DPG. When there is abundant oxygen, the body produces less 2,3 DPG, and the red blood cells are not able to transport and release as much oxygen. But with abundant oxygen, it doesn't need to be as frugal with it, so it lets the levels of 2,3 DPG drop. When oxygen levels are diminished, the body produces more 2,3 DPG, and the red blood cells are able to transport and release more oxygen. This is how the body compensates for less oxygen. People who live in high altitudes have more 2,3 DPG than people who live by the ocean, because there is more oxygen at lower altitudes. The problem with Lyme is that it alters the oxygen levels in the body, and maintains a lower oxygen level, with decreased levels of 2,3 DPG, possibly by producing chemicals that create blockages in the krebs cycle, decreasing the production of carbon dioxide. The decreased levels of 2,3 DPG keep the oxygen transporting abilities of the body low so that the Lyme can thrive. When you use oxygen over time to counteract the anaerobic levels, the body will drop the level of 2,3 DPG even more, decreasing the transport and release of oxygen, and eventually the use of supplemental oxygen will not be sufficient to control the Lyme. In the mean time, you'll become dependent upon supplemental oxygen in order to breath, and continue driving down your 2,3 DPG levels. This is probably one reason why doctors would be reluctant to prescribe supplemental oxygen on a regular basis. You might be able to use a rebreather mask to increase both oxygen and carbon dioxide, but it gets kind of tricky to do. You can increase levels of 2,3 DPG by doing breathing exercises that concentrate carbon dioxide in the blood. Increased carbon dioxide in the blood does several things. It increases the levels of 2,3 DPG over time, It also acidifies the blood, allowing the blood to carry more oxygen. And when oxygen transport is increased, cells produce more carbon dioxide, increasing the cycle. But it takes time to help change the anaerobic body using the breathing methods, and at first they might actually make a person feel worse. One source of this type of breathing is an Wiel method of breathing. My naturopath told me about another kind called something like Bytanco, or something like that, which is used for people with asthma, but I can't remember the exact name. The object of the breathing is to increase carbon dioxide levels in the blood, for short periods of time, but slowly increasing levels of 2,3 DPG in the blood over time so that the body becomes more oxygenated. Doing the breathing exercises several times a day brings about improvement in oxygen levels over several weeks. The advantages are that it is free, doesn't require a lot of energy output for people who suffer with a lot of fatigue, doesn't require a doctor's prescription, and doesn't make a person dependent upon supplemental oxygen. In a way, exercise does the same thing for normal/healthy people. When you work out hard enough to get out of breath, you are using up the oxygen in your body, and increasing output of carbon dioxide. Over time it drives up the levels of 2,3 DPG, decreasing the anaerobic environment of the body. This is one reason why exercise helps most people to increase their energy levels. The downside is that if there are blockages in the krebs cycle, exercise will actually cause more pH problems in the body, causing the body to counteract by making the blood even more alkaline, which decreases oxygen release from the red blood cells. I think this is why exercise can make some people feel worse, rather than better over time. lindaj@... Re: [ ] dangerous chemical incident/oxygen treatment > This conversation has got me wondering. > > While I've heard of people using hyperbaric treatments for Lyme, I'm > wondering if just plain oxygent that you breathe from those tanks would > help? Is this what you all had in the hospital treating the chemical > poisoning, breathing in oxygen? > > Thanks, > Bluesky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2003 Report Share Posted May 26, 2003 Well, don't mix them in the house is probably a good idea - but what went wrong is much more likely to have to do with what you mixed. To begin with, you can't mix many chemicals with products that contain sodium hypochlorite. Such chemicals include acids, and ammonia. You could have made chlorine gas, which would have had an extremely strong, pungent odor, or you might have made an invisible, odorless nerve gas. If you ended up with chemical burns, you must have used or made a strong acid or alkali. What specific chemicals did you mix? What specific chemicals would you be likely to ahve mixed if you accidently put in a wrong ingredient? Ie, what chemicals did you have on the counter? Sometimes a problem can result from a problem with exactly what procedure you follow when you mix two chemicals. I don't know how it would be a problem with pool chemicals, but I might not know. If the instructions say, for instance, to combine chemicals in a certain order, like, add the chemical to the water, or add a little bit and then add more, this can be a clue that if you did it differently, you could generate alot of heat and get an explosion. It isn't clear from what you said that the explosion resulted from heat, though. Production of enough gas, quickly enough, could have acted like an explosion. Yours, Dora [ ] dangerous chemical incident/oxygen treatment Hi everyone, I haven't posted in a long time, but have been a member of this group for over a year now. My 16-year-old son has had Lyme since July of 1998 and has been very, very sick. Yesterday, I was stirring up chlorine granules to open our swimming pool. Long story short, because my hubby and daughter were using the hose to do another pool opening chore, and because I had run out of the type of pool treatment that can be just added to the water, I came in the house to dissolve the granules in a pitcher. I had done two pitchers without incident...when I stirred up the third and last one, it literally blew up. It was almost like lava -- it just kept popping and foaming and it was horrid. (My hunch is that perhaps the water was too warm or the granules too old...I don't really know.) My son was lying on the couch in the adjacent room -- I hollered to him to cover his nose and mouth and get out the front door so he wouldn't have to come near me. I was burned on my arms and legs and face (luckily, somehow, it didn't get in my eyes or I would have been blinded). I ran to the pool and stuck my arms in the water, then my legs. I was having trouble breathing and immediately felt nauseous. Four rescue squads came here and they immediately started an I.V. on my son and then me, plus put oxygen on all four of us, then transported all of us to the hospital. The reason I am writing this to you all is this: my son seemed better (instead of worse, as I horridly expected....I was feeling so, so guilty for putting him through this trauma!) last night than he has for weeks on end. Is this because of the oxygen? The saline drip? While at the hospital, he had a sharp pain in his stomach and went to the bathroom. He said he had a b.m. that was very green and reeked of chlorine but he immediately felt better after passing it. Maybe I have accidentally found a new neuro-toxin flush? Just kidding.... Anyone out there had experience with oxygen making them feel better? If so, should we all be begging for it? A fellow Lymie friend told me to expect my son to have a herx, as her daughter had huge herxes after hyperbaric oxygen therapy. Let me tell you this: I have learned a valuable lesson -- never, ever will any pool chemicals be brought in to this house for ANY reason. Yikes. I feel so incredibly bad about this. We put in the pool because my children both had been diagnosed as having juvenile rheumatoid arthritis (yeah, right...it was Lyme all along) about 4 years ago, and the swimming really does help them both to feel better. Hope you all are hanging in there and hopefully enjoying this Memorial Day.... ~Judie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2003 Report Share Posted May 26, 2003 I think that's for carbon monoxide poisoning. Re: [ ] dangerous chemical incident/oxygen treatment This conversation has got me wondering. While I've heard of people using hyperbaric treatments for Lyme, I'm wondering if just plain oxygent that you breathe from those tanks would help? Is this what you all had in the hospital treating the chemical poisoning, breathing in oxygen? Thanks, Bluesky > I don't know about other, but I do know, that whenever I was on oxygen I felt > better. You wish I could be put on one all the time were at least until > treatment is finished. > > ----- Original Message ----- > From: GoodLittleDobee@... >> Anyone out there had experience with oxygen making them feel better? If so, > should we all be begging for it? A fellow Lymie friend told me to expect my > son > to have a herx, as her daughter had huge herxes after hyperbaric oxygen > therapy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2003 Report Share Posted May 26, 2003 This is so bizarrely interesting, I printed it out but can't decide what to make of the whole theory. Why would hyperbaric oxygen help so much in lyme? It is also interesting because i've heard of people who say that exercise cured their lyme--or kept it at bay. But when I tried, early on, to " exercise " it away I got really sick. But hyperbaric helped me. > Supposedly Lyme thrives in an anaerobic environment, so increasing oxygen > levels seems like it would help control it. However, there is a problem with > using oxygen on a regular basis. The body controls oxygen levels in the > blood by increasing or decreasing the chemical 2,3 DPG. When there is > abundant oxygen, the body produces less 2,3 DPG, and the red blood cells are > not able to transport and release as much oxygen. But with abundant oxygen, > it doesn't need to be as frugal with it, so it lets the levels of 2,3 DPG > drop. When oxygen levels are diminished, the body produces more 2,3 DPG, and > the red blood cells are able to transport and release more oxygen. This is > how the body compensates for less oxygen. People who live in high altitudes > have more 2,3 DPG than people who live by the ocean, because there is more > oxygen at lower altitudes. > > The problem with Lyme is that it alters the oxygen levels in the body, and > maintains a lower oxygen level, with decreased levels of 2,3 DPG, possibly > by producing chemicals that create blockages in the krebs cycle, decreasing > the production of carbon dioxide. The decreased levels of 2,3 DPG keep the > oxygen transporting abilities of the body low so that the Lyme can thrive. > When you use oxygen over time to counteract the anaerobic levels, the body > will drop the level of 2,3 DPG even more, decreasing the transport and > release of oxygen, and eventually the use of supplemental oxygen will not be > sufficient to control the Lyme. In the mean time, you'll become dependent > upon supplemental oxygen in order to breath, and continue driving down your > 2,3 DPG levels. This is probably one reason why doctors would be reluctant > to prescribe supplemental oxygen on a regular basis. You might be able to > use a rebreather mask to increase both oxygen and carbon dioxide, but it > gets kind of tricky to do. > > You can increase levels of 2,3 DPG by doing breathing exercises that > concentrate carbon dioxide in the blood. Increased carbon dioxide in the > blood does several things. It increases the levels of 2,3 DPG over time, It > also acidifies the blood, allowing the blood to carry more oxygen. And when > oxygen transport is increased, cells produce more carbon dioxide, increasing > the cycle. But it takes time to help change the anaerobic body using the > breathing methods, and at first they might actually make a person feel > worse. > > One source of this type of breathing is an Wiel method of breathing. > My naturopath told me about another kind called something like Bytanco, or > something like that, which is used for people with asthma, but I can't > remember the exact name. The object of the breathing is to increase carbon > dioxide levels in the blood, for short periods of time, but slowly > increasing levels of 2,3 DPG in the blood over time so that the body becomes > more oxygenated. Doing the breathing exercises several times a day brings > about improvement in oxygen levels over several weeks. The advantages are > that it is free, doesn't require a lot of energy output for people who > suffer with a lot of fatigue, doesn't require a doctor's prescription, and > doesn't make a person dependent upon supplemental oxygen. > > In a way, exercise does the same thing for normal/healthy people. When you > work out hard enough to get out of breath, you are using up the oxygen in > your body, and increasing output of carbon dioxide. Over time it drives up > the levels of 2,3 DPG, decreasing the anaerobic environment of the body. > This is one reason why exercise helps most people to increase their energy > levels. The downside is that if there are blockages in the krebs cycle, > exercise will actually cause more pH problems in the body, causing the body > to counteract by making the blood even more alkaline, which decreases oxygen > release from the red blood cells. I think this is why exercise can make some > people feel worse, rather than better over time. > > > lindaj@h... > > Re: [ ] dangerous chemical incident/oxygen treatment > > > > This conversation has got me wondering. > > > > While I've heard of people using hyperbaric treatments for Lyme, I'm > > wondering if just plain oxygent that you breathe from those tanks would > > help? Is this what you all had in the hospital treating the chemical > > poisoning, breathing in oxygen? > > > > Thanks, > > Bluesky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2003 Report Share Posted May 26, 2003 I decided to shut up about dysautonomia, because it turned out that some symptoms that can be dysautonomia, like rapid or irregular hearbeats, are actually the lyme bacteria themselves. But there is such a problem, and neurological lyme upsets everything else in the nervous system, it could easily interfere with its ability to regulate itself, which is essentially what dysautonomia is. Symptoms can be vague; they can also include chronic fatigue syndrome. They include irritable bowel syndrome, spastic bladder, asthma, irregular heartbeats, migraines, orthostatic low blood pressure, anxiety and depression. Problem has been found to respond to ideas as goofy as plenty of exercise and drinking alot of fluid - and a good diet and enough sleep. This will not, of course, cure a disease - but if dysautonomia is part of advanced lyme, it may help that group of symptoms. One thing, though, just making sure noone has lost track - I really don't think oxygen levels in her bloodstream had much to do with the pool chemical incident. She mixed some chemicals that shouldn't have gone together, and got both burned, and poisoned. They gave her oxygen because she couldn't breathe! Yours, Dora [ ] dangerous chemical incident/oxygen treatment There is a guy by the name of Bell who is a CFS doctor in NY state. He was advocating the idea of low blood level causing some of the symptoms, including orthostatic intolerance. He was actually using IV saline drips to boost blood volume and relieve symptoms temporarily. Since many of his patients probably have lyme, in spite of his claim to the contrary, it's probably true of us as well. I use gookinaid, now known as electralyte. It is an electrolyte replacement drink used for the same purpose. It comes in a powdered form in big cans and isn't junky and sweet like gatorade etc... It only has a little bit of glucose to help rapid absorbtion. The makers claim that it will absorb within minutes on an empty stomach and boost blood volume. I can't say that I'm sure it helped me much when I was really sick, but I got hooked on the stuff and still use it. If I take a sauna, or sweat a lot, or even if it's just a real hot day I drink it. Anyhow, theres some thing to mull over. Chlorine is nasty stuff, and it's forcefed to us in municipal water supplies. Better cleaner options are available, but I guess it's more important to have enough nukes to blow up the world 100 times over. Actually, with the privatization of water infrastructures, quality is likely to go down, and prices up. You might want to look into ozone water treatment. E. >The reason I am writing this to you all is this: my son seemed better >(instead of worse, as I horridly expected....I was feeling so, so >guilty for putting >him through this trauma!) last night than he has for weeks on end. Is this >because of the oxygen? The saline drip? While at the hospital, he had a sharp >pain in his stomach and went to the bathroom. He said he had a b.m. >that was very >green and reeked of chlorine but he immediately felt better after passing it. >Maybe I have accidentally found a new neuro-toxin flush? Just kidding.... Quote Link to comment Share on other sites More sharing options...
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