Need Help from MS/lyme folks

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I need help! My history is fibro 1998, optic neuritis 2006 with vision loss,

increasing neuro symptoms since 2006 (eye pain, bad brain fog, jerking,

twitching, foot scuffing when walking,). Went Lyme route (igenex positive 2

bands, 31, 41).Zhang herbs for 8 months no improvement/added buhner -had neuro

explosion that last4 months -new symptoms jerking/twitching at night,insomnia,

burning, problems speaking, lose breath at night, gait, numbness but could

shake it off, extreme brain fog, jerky movements, spatial off , weak shaky

etc.-felt like I had MS). I improved- found my way out of it. started LDN 2.25

(could n't go to 4.5 for sleep issues). I didn't recover until I started

sleeping again. I did not recover back to baseline from neuro explosion

Was stable on LDN for year 2008. Heavy periods/uterine polyp decided to go off.

Bad Brain fog persisted, eye pain went away, shaky on left side (from neuro

explosion), weaker on left side (from neuro explosion), some jerking.

2009 started to go down hill in Fall- brain fog got worse, got weaker, more

jerking, more foot scuffing, felt weak.

Did Dr. McCandless flagy/Diflcan fungal treatement . Started in late November.

Got extreme brain fog to point of being non functional by day 8, tongue turend

yellow, lost all taste, smell- stopped flagyl but contined diflucan for full 3

weeks. By end felt pretty ill, shaky in brain, lots of twitching all over.

Through in lyme tea continued to go down hill-- massive jerking/twitching, total

insomnia ,etc. By end of December housebound and non functional. Started LOA at

work march 1st. Every week I get a new scary symptoms. I have head jerking,

weak neck , dizzy, both eyes hurt/major pressure, shaky feeling in brain, body

weak, legs weak, permanent numbness on left side began 1 month ago, right side

becoming numb, problems speaking , swallowing, burning that began with drugs on

back now has spread, some night sweats with the burning, gait off, spatial aware

ness off, still on 3 hours of sleep with medication, nervous system in

overdrive, can't relax or lay down due to head /neck pressure- can't sleep-in

agony basically 7X24 since mid december and spiraling downward ! So I went from

functional and not well- to totally non functional=can't drive etc.

I have appointment with top aggressive LLMD in NY early May (1st available) BUT

I AM SCARED TO DEATH of treatment since treatment has put me into almost an MS

flare 2 X/this time I can't seem to get out of it and spiraling downward. Given

I'm chemially sensitive not sure if my body can handle it. My herx's are more

like MS flares to me.

If this is an MS flare-how do I stop it? I know I need to get sleeping again-

I've lost 18 lbs in 3 months following an MS type diet. My diet has always been

excellent-tried no grains fora few days and did not make adifference . Started

back on LDN 1.1 Mgi in early february since sleep is already so bad- and 2

weeks later numbness started and is spreading. So far MRI's from 2006 and 2008

were clear. Have appointment with NEuro next week for another evaluation. I

know my case is not typical MS (I don't have fatigue).

I'm terrified right now and need advice-- scared about which path to take in

terms of lyme (since so far treatment sets me into downward spirals) and also

terrified of MS treatments since I'm chemically senstive. Genomic liver panel

shows I do not detox phase II medications well. I also test positive for EBV

(have not tested yet for myco, herpes, cpn etc).

Right now I just need to stop the downward spiral and get sleeping again.

Help!