Guest guest Posted March 12, 2010 Report Share Posted March 12, 2010 Barbara and Pat, Its great to hear how much of your old RA joint stuff has resolved after 10months of LDN. I think Ive rescued my fingers from triggering by my use of LDN even though its now a year and a struggle to dose right, and with ongoing inflammation. Please consider taking this to the rheumatoidarthritis-low dose naltrexone group as well , as it would add to the ongoing debate. By the way can we please be clear….as far as I know it is Dr Berkson, not BIhari who has the significant experience of ALA with LDN and AP. Cheers Nuala From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of Pat Sent: 12 March 2010 22:30 'barbara lochner'; low dose naltrexone Subject: RE: [low dose naltrexone] re joint destruction & Rheumatoid Arthritis Barbara, Even though antibiotics like minocycline or doxycycline have immunolodating properties, I don’t believe they would be considered an immunosuppressing drug such as Enbrel, etc… I also believe Placquenil , an anti-malaria drug has been used for decades to successfully treat RA is also not considered an immunosupressing drug Can anyone else confirm that Placquenil can be used with RA. It seems that antibiotics can since Dr Bahari uses AP with LDN for some of his RA patients where the combo works well. I know some RA folks due well with just LDN and some good herbals Hope this helps Pat From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of barbara lochner Sent: Friday, March 12, 2010 9:11 AM low dose naltrexone Subject: [low dose naltrexone] re joint destruction & Rheumatoid Arthritis After I was dx with RA I began to investigate alternatives to RA meds and never went on them. I was looking for a DR who did the Marshall Protocol - The Road Back Foundation, long term low dose antibiotics - when the DR said lets treat the adrenal first... After I started LDN, my RA began to go away. At that time, my right thumb & index finger were locked, with the joint in my thumb protruding, and my left little finger had doubled in size. Ten months later my thumb and index finger are unlocked. The protrusion is down and so is the size of my little finger. I still have knobs on my wrists but I have lost 8 lbs on LDN and maybe that's why they still look big. If those meds block your immune system you need to get off them. I think only one RA med does not block - and I don't remember what it is. Am sure others know. Barbara Lochner Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2010 Report Share Posted March 12, 2010 After I was dx with RA I began to investigate alternatives to RA meds and never went on them. I was looking for a DR who did the Marshall Protocol - The Road Back Foundation, long term low dose antibiotics - when the DR said lets treat the adrenal first...After I started LDN, my RA began to go away. At that time, my right thumb & index finger were locked, with the joint in my thumb protruding, and my left little finger had doubled in size. Ten months later my thumb and index finger are unlocked. The protrusion is down and so is the size of my little finger. I still have knobs on my wrists but I have lost 8 lbs on LDN and maybe that's why they still look big. If those meds block your immune system you need to get off them. I think only one RA med does not block - and I don't remember what it is. Am sure others know.Barbara Lochner Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2010 Report Share Posted March 12, 2010 Barbara, Even though antibiotics like minocycline or doxycycline have immunolodating properties, I don’t believe they would be considered an immunosuppressing drug such as Enbrel, etc… I also believe Placquenil , an anti-malaria drug has been used for decades to successfully treat RA is also not considered an immunosupressing drug Can anyone else confirm that Placquenil can be used with RA. It seems that antibiotics can since Dr Bahari uses AP with LDN for some of his RA patients where the combo works well. I know some RA folks due well with just LDN and some good herbals Hope this helps Pat From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of barbara lochner Sent: Friday, March 12, 2010 9:11 AM low dose naltrexone Subject: [low dose naltrexone] re joint destruction & Rheumatoid Arthritis After I was dx with RA I began to investigate alternatives to RA meds and never went on them. I was looking for a DR who did the Marshall Protocol - The Road Back Foundation, long term low dose antibiotics - when the DR said lets treat the adrenal first... After I started LDN, my RA began to go away. At that time, my right thumb & index finger were locked, with the joint in my thumb protruding, and my left little finger had doubled in size. Ten months later my thumb and index finger are unlocked. The protrusion is down and so is the size of my little finger. I still have knobs on my wrists but I have lost 8 lbs on LDN and maybe that's why they still look big. If those meds block your immune system you need to get off them. I think only one RA med does not block - and I don't remember what it is. Am sure others know. Barbara Lochner Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2010 Report Share Posted March 12, 2010 Sorry correction to my email below- my question was Can plaquenil be used with LDN? From: Pat [mailto:patinsall@...] Sent: Friday, March 12, 2010 5:30 PM 'barbara lochner'; 'low dose naltrexone ' Subject: RE: [low dose naltrexone] re joint destruction & Rheumatoid Arthritis Barbara, Even though antibiotics like minocycline or doxycycline have immunolodating properties, I don’t believe they would be considered an immunosuppressing drug such as Enbrel, etc… I also believe Placquenil , an anti-malaria drug has been used for decades to successfully treat RA is also not considered an immunosupressing drug Can anyone else confirm that Placquenil can be used with RA. It seems that antibiotics can since Dr Bahari uses AP with LDN for some of his RA patients where the combo works well. I know some RA folks due well with just LDN and some good herbals Hope this helps Pat From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of barbara lochner Sent: Friday, March 12, 2010 9:11 AM low dose naltrexone Subject: [low dose naltrexone] re joint destruction & Rheumatoid Arthritis After I was dx with RA I began to investigate alternatives to RA meds and never went on them. I was looking for a DR who did the Marshall Protocol - The Road Back Foundation, long term low dose antibiotics - when the DR said lets treat the adrenal first... After I started LDN, my RA began to go away. At that time, my right thumb & index finger were locked, with the joint in my thumb protruding, and my left little finger had doubled in size. Ten months later my thumb and index finger are unlocked. The protrusion is down and so is the size of my little finger. I still have knobs on my wrists but I have lost 8 lbs on LDN and maybe that's why they still look big. If those meds block your immune system you need to get off them. I think only one RA med does not block - and I don't remember what it is. Am sure others know. Barbara Lochner Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2010 Report Share Posted March 13, 2010 My LDN doctor has me on both so i guess it must be fine. terri From: Pat <patinsall@...>Subject: RE: [low dose naltrexone] re joint destruction & Rheumatoid Arthritis"'barbara lochner'" <blochner2001@...>, low dose naltrexone Date: Friday, March 12, 2010, 10:30 PM Barbara, Even though antibiotics like minocycline or doxycycline have immunolodating properties, I don’t believe they would be considered an immunosuppressing drug such as Enbrel, etc… I also believe Placquenil , an anti-malaria drug has been used for decades to successfully treat RA is also not considered an immunosupressing drug Can anyone else confirm that Placquenil can be used with RA. It seems that antibiotics can since Dr Bahari uses AP with LDN for some of his RA patients where the combo works well. I know some RA folks due well with just LDN and some good herbals Hope this helps Pat From: low dose naltrexone [mailto:lowdosenalt rexone@grou ps.com] On Behalf Of barbara lochnerSent: Friday, March 12, 2010 9:11 AMlow dose naltrexoneSubject: [low dose naltrexone] re joint destruction & Rheumatoid Arthritis After I was dx with RA I began to investigate alternatives to RA meds and never went on them. I was looking for a DR who did the Marshall Protocol - The Road Back Foundation, long term low dose antibiotics - when the DR said lets treat the adrenal first... After I started LDN, my RA began to go away. At that time, my right thumb & index finger were locked, with the joint in my thumb protruding, and my left little finger had doubled in size. Ten months later my thumb and index finger are unlocked. The protrusion is down and so is the size of my little finger. I still have knobs on my wrists but I have lost 8 lbs on LDN and maybe that's why they still look big. If those meds block your immune system you need to get off them. I think only one RA med does not block - and I don't remember what it is. Am sure others know.Barbara Lochner Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2010 Report Share Posted March 13, 2010 Please be sure to do your own research on the side effects of Plaquenil. Eye problems are listed as a rare side effect, but it happened to my brother - even with the routine visits to an ophthalmologist. I know if he had it to do over, he never would have stayed on Plaq for so long. Steve > > Sorry correction to my email below- my question was Can plaquenil be used > with LDN? > > > > > > From: Pat [mailto:patinsall@...] > Sent: Friday, March 12, 2010 5:30 PM > 'barbara lochner'; 'low dose naltrexone ' > Subject: RE: [low dose naltrexone] re joint destruction & Rheumatoid Arthritis > > > > Barbara, > > Even though antibiotics like minocycline or doxycycline have immunolodating > properties, I don't believe they would be considered an immunosuppressing > drug such as Enbrel, etc. > > I also believe Placquenil , an anti-malaria drug has been used for decades > to successfully treat RA is also not considered an immunosupressing drug > > Can anyone else confirm that Placquenil can be used with RA. It seems that > antibiotics can since Dr Bahari uses AP with LDN for some of his RA > patients where the combo works well. I know some RA folks due well with just > LDN and some good herbals > > Hope this helps > > Pat > > > > From: low dose naltrexone > [mailto:low dose naltrexone ] On Behalf Of barbara lochner > Sent: Friday, March 12, 2010 9:11 AM > low dose naltrexone > Subject: [low dose naltrexone] re joint destruction & Rheumatoid Arthritis > > > > > > > > > After I was dx with RA I began to investigate alternatives to RA meds and > never went on them. I was looking for a DR who did the Marshall Protocol - > The Road Back Foundation, long term low dose antibiotics - when the DR said > lets treat the adrenal first... > > After I started LDN, my RA began to go away. At that time, my right thumb & > index finger were locked, with the joint in my thumb protruding, and my > left little finger had doubled in size. Ten months later my thumb and index > finger are unlocked. The protrusion is down and so is the size of my little > finger. I still have knobs on my wrists but I have lost 8 lbs on LDN and > maybe that's why they still look big. > > > > If those meds block your immune system you need to get off them. I think > only one RA med does not block - and I don't remember what it is. Am sure > others know. > > Barbara Lochner > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2010 Report Share Posted March 13, 2010 I ditto that on Plaquenil. I am hoping if the LDN starts working for me, I won’t have to go on Plaquenil. The antibiotic therapy on doxycycline for 2 months now just doesn’t seem to be working, actually making flaring worse. I am also going to add high dose fish oil to my supps. I am also up to almost 5000 IU Vit D3 From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of even1 Sent: Friday, March 12, 2010 11:48 PM low dose naltrexone Subject: Re: FW: [low dose naltrexone] re joint destruction & Rheumatoid Arthritis Please be sure to do your own research on the side effects of Plaquenil. Eye problems are listed as a rare side effect, but it happened to my brother - even with the routine visits to an ophthalmologist. I know if he had it to do over, he never would have stayed on Plaq for so long. Steve > > Sorry correction to my email below- my question was Can plaquenil be used > with LDN? > > > > > > From: Pat [mailto:patinsall@...] > Sent: Friday, March 12, 2010 5:30 PM > 'barbara lochner'; 'low dose naltrexone ' > Subject: RE: [low dose naltrexone] re joint destruction & Rheumatoid Arthritis > > > > Barbara, > > Even though antibiotics like minocycline or doxycycline have immunolodating > properties, I don't believe they would be considered an immunosuppressing > drug such as Enbrel, etc. > > I also believe Placquenil , an anti-malaria drug has been used for decades > to successfully treat RA is also not considered an immunosupressing drug > > Can anyone else confirm that Placquenil can be used with RA. It seems that > antibiotics can since Dr Bahari uses AP with LDN for some of his RA > patients where the combo works well. I know some RA folks due well with just > LDN and some good herbals > > Hope this helps > > Pat > > > > From: low dose naltrexone > [mailto:low dose naltrexone ] On Behalf Of barbara lochner > Sent: Friday, March 12, 2010 9:11 AM > low dose naltrexone > Subject: [low dose naltrexone] re joint destruction & Rheumatoid Arthritis > > > > > > > > > After I was dx with RA I began to investigate alternatives to RA meds and > never went on them. I was looking for a DR who did the Marshall Protocol - > The Road Back Foundation, long term low dose antibiotics - when the DR said > lets treat the adrenal first... > > After I started LDN, my RA began to go away. At that time, my right thumb & > index finger were locked, with the joint in my thumb protruding, and my > left little finger had doubled in size. Ten months later my thumb and index > finger are unlocked. The protrusion is down and so is the size of my little > finger. I still have knobs on my wrists but I have lost 8 lbs on LDN and > maybe that's why they still look big. > > > > If those meds block your immune system you need to get off them. I think > only one RA med does not block - and I don't remember what it is. Am sure > others know. > > Barbara Lochner > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2010 Report Share Posted March 13, 2010 Barbara LochnerFrom: paul battle <paulbatt@...>Subject: Re:re joint destruction & Rheumatoid Arthritisblochner2001@...Date: Saturday, March 13, 2010, 7:46 AMYou should investigate Trevor Marshall before you put any credence in what he says. He is not a scientist he is an engineer. Just google him and research him. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2010 Report Share Posted March 16, 2010 I believe the answer is yes. Based on what I've read on here, Plaquenil, sulfasalazine, and low-dose prednisone (10 mg or less per day) can all be used with LDN. Which is good, because it means one can wait for the LDN to start working before trying to taper off of them. Phil > > Sorry correction to my email below- my question was Can plaquenil be used > with LDN? > Quote Link to comment Share on other sites More sharing options...
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