Re: i am new to group (Carolyn)

[Guest guest]

Dear Carolyn,

I read your post, and wanted to share my experience with the underlying cause being mis-diagnosed Lyme disease. I have had progressive co-infections for years, and i just knew that there had to be a connection somewhere but no doctor ever mentioned Lyme, and I knew nothing about it then, so I was getting scared since this past year, i became bed bound, and am dealing with mold as well.....so when my new wonderful, LDN doctor / nutritionist began to suspect Lyme , mold or both, I had the testing done and even by CDC standards, i am positive,,,,and the way it stands, by the time one meets the CDC standards, you are chronic or darn close. It was a scary diagnosis after i learned about it, but at least I know now and can take the right steps towards regaining a good quality of life again.....its important, when you can, get the tests....but my hats off to you since you already added Samento....Samento wont hurt

you...but if you are chronic Lyme, herxing can be quite difficult. Are you reacting well to Samento or are you herxing? You are doing the right things,,,test when you can though so you can be sure of what the cause is.

Best Wishes,

Terri

From: Carolyn Sell <cvaughansell@...>Subject: Re: [low dose naltrexone] i am new to grouplow dose naltrexone Date: Thursday, January 7, 2010, 12:17 AM

Thanks Ron.I actually was told by another member of this group that Lyme could be the culprit. I started Samento but am out of it now and have to order more. I'm going to try another antimicrobial (Cumanda or Quina) in addition to the Samento. Unfortunately, I can't afford the Lyme test right now. I am one of the unlucky uninsured of this country who lost health insurance when my former employer went out of business (no more COBRA). I am receiving Social Security Disability, but there is a mandatory 2 year waiting period for Medicare from receipt of your 1st disability payment. I have another year and a half before Medicare kicks in.I have also just started the Gold Coast Cure diet which is designed as an anti-inflammatory diet for people with MS and other diseases. It is pro whole grains and good fats, rather than

white flour, saturated fats and trans fats. Though the diet still allows whole wheat, low-fat dairy, and good sugars, I am consciously eliminating those things from my diet in case yeast is an issue. (I never overindulged in those thing to begin with.)I live in an upstairs apartment in Austin, TX. Mold isn't an issue for me now, though has been a problem for me in the past.I am still going to take the LDN because it isn't harming me as far as I can tell, and with luck may be of benefit to me in the future.Thanks again,Carolyn

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[Guest guest]

Terri,I became nauseated when I first tried Samento but eventually worked my way up to 25 drops a day, until I ran out of the product. I felt that I very slightly improved on the Samento, though the result did not last long.I have been tested twice for Lyme in the last 3 years (the CDC approved test) and had negative results. I'm still not ruling it out though. I still intend to take the more thorough test when I can afford it.Does LDN reverse any symptoms of Lyme, or do you rely on anti-microbials to do the job? If LDN works for Lyme, and I have Lyme, I'm wondering why I haven't improved in the 6 months that I've taken LDN. Thanks for your

input.CarolynFrom: Terri <slogul3000@...>low dose naltrexone ; Carolyn Sell <cvaughansell@...>Sent: Wed, January 6, 2010 7:44:29 PMSubject: Re: [low dose naltrexone] i am new to group (Carolyn)Dear Carolyn,

I read your post, and wanted to share my experience with the underlying cause being mis-diagnosed Lyme disease. I have had progressive co-infections for years, and i just knew that there had to be a connection somewhere but no doctor ever mentioned Lyme, and I knew nothing about it then, so I was getting scared since this past year, i became bed bound, and am dealing with mold as well.....so when my new wonderful, LDN doctor / nutritionist began to suspect Lyme , mold or both, I had the testing done and even by CDC standards, i am positive,,,,and the way it stands, by the time one meets the CDC standards, you are chronic or darn close. It was a scary diagnosis after i learned about it, but at least I know now and can take the right steps towards regaining a good quality of life again.....its important, when you can, get the tests....but my hats off to you since you already added Samento....Samento wont hurt

you...but if you are chronic Lyme, herxing can be quite difficult. Are you reacting well to Samento or are you herxing? You are doing the right things,,,test when you can though so you can be sure of what the cause is.

Best Wishes,

Terri