Guest guest Posted March 4, 2010 Report Share Posted March 4, 2010 Does anyone know how I can get the most official information from the Penn study by Dr. Jill.....is there a way I could get her to send me info,,,or email my GI,,,,my son is a wonderful example,,,but I had to lie and pretend to give him Asacol for a year,,,,then when the biopsy came back ,,,I cried ,,hugged her and told her...that I had not been giving him it. She wants all the information on it,,,but I am sure she is thinking I am a non-compliant mom and she can never trust me again. So I need as much clout as possible that I am not crazy ! I matter of factly told her about the IV Glutathione for his liver and I think she thought she missed the memo,,,,sooo thinks it is a miracle. I did not tell her,,,,not one other little kid is getting it.... There is a fine line to walk,,,and telling a doctor you lied for a year,,,,not good,,,but I had to to get her to take him ! Also,,,I wondered why she was ordering a KUB ( Kidney X-ray for my son )....well it damages your kidneys and is contraindicated in liver disease,,,,but they still give it ! Any and all advice on how to make her believe in this ,,,,and not bruise her EGO,,,as I have done everything,,,,they like to feel like they did something ! Marna and Wesley PSC/UC since age 1 Also ,,,my LDN doc said,,,get to the triggers through LDA treatments,,,,we start that Monday. www.drshrader.com Quote Link to comment Share on other sites More sharing options...
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