Re: MS and Lyme Differences?

January 5, 2010

Lyme disease does have brain and spinal lesions indicated by MRIs. See the post

with the many videos on Lyme just a few posts up from this one.

My sickness started in Apr 2000 with optic neuritis. In a six day period my

left eye went from 20/15 to 20/400+. Shortly after my optic neuritis I had my

family doc check me for Lyme disease. As I had not been to one of two specific

areas on the east coast, and had not had a bulls-eye rash, I was told I could

not have Lyme disease. I persisted and got the Lyme blood test, which indicated

I did not have Lyme disease. Mentally, this freed me to pursue an MS diagnosis.

In April 2004 I was diagnosed with MS, based on MRIs and blood tests and started

Rebif. the Rebif made me measureably weaker, so I switched to Copaxone. After

10 months on Copaxone, I began to fear each injection. I was really beginning

to question how worth while the CRAB drugs were.

Next I broke away from the MS-industrial-complex-MS-cult and moved to LDN. It

was so good not having those NASTY side effects! Next I moved to the German MS

drug calcium ethyl amino phosphate (EAP).

In August 2007 my right hand quit working. Now I was very seriously questioning

my MS diagnosis, and went on a four month quest for my Lyme Literate Medical

Doctor (LLMD).

In March 2008 I was diagnosed with Lyme disease and several coinfections. My

MRIs still indicated lesions in my brain. The MRI report now says " a

demylinating condition like Lyme Disease " instead of the earlier reports that

say " a demylinating condition like multiple sclerosis "

This is really more of a switch in disease models. Model #1 assumes that our

immune system is confused and is attacking our CNS. We take expensive toxic

drugs to slow down our immune system. Model #2 (Lyme disease) says that we have

an infection attacking our CNS.

I don't spend much time on the LDN board. If you have questions, send a note to

wake me up.

>

> Hi all,

>

> Does anyone know if you can still have the scars/lesions associated with

multiple sclerosis, but have lyme disease (not actual MS)?

>

> Any advice is appreciated!

> Thanks -

>

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