i am new to group

[Guest guest]

hi everyone

i have spms the disease progression is now head to feet with severee burning of

muscles/nerves, severe numbness, stiffness, weakness, and vibration throughtout

body .over last week upper torso extremities, neck and facemore involved .have

lesions on c4,5,6 and t4/MRI indicatres no ne activity, but neuro says old

lesions are the culprit, indication inflamationof the degenerating knd. even my

ribsm, front torso, and inside mouth experience these sensation, sometimes

difficult to swallow, sems to be getting worse daily.

my question is there any of you who have spms and have had positive result from

ldn, amd how long did it take for any positive results to be experienced,all

info appreciatiated. like many have been on many conventional MS teatmentsto

include iv prednisone, CRAB drugs, chemo. IVIG, and IV Vitamons, even one trial

with stem cell (which i now believe was from a bogus sopurce, not because it did

not work, but because source of tx was suspicious, a man represetning himself

working for a stem cell facility ,later found out he was ruuning the business

from his home and was working with the dr i saw in mexico who supposedly had his

own clinic, upon arriving found he was working independently. probably was

working on stem cells independently.was a bad experience and financially cost

usa alot of money). was beginning beee venom ttreatmnet and ldn, but got scared

with worsening symptoms and ran back to conventional tx one month ago started

Tysabri, would now results, and my doc gave me 3 days (at 1000mg) of iv

steriods, no resction. i will be returnining back to comventinal tx soon as

tysabri washout period . found out from Tysabri nurse that neuro could have put

me in jeopardy by giving me steriods with Tysabri, increasing my chances for

PML.

All suggestions and input appreciated.neuro says no more conventional options

left for me, and worsening symtoms of mobiltiy and dexterity issues advancing

Thanks,

Deborah Copeland

PS and yes i am a smoker struggling to qutiot dow to ten cigarettes daily