Need advice/encouragement!!

[Guest guest]

Hi All,

I've been using LDN (4.5mg) since receiving my diagnosis of RRMS last June.

After a brief stint with the Inclined Bed Therapy last December, both feet went

numb. At first, I thought it may be yeast related, so I changed my diet

dramatically. Now 4 days ago, some new symptoms surfaced, causing me to

reevaluate my course of treatment. Both feet now have a pulsing like (constant)

sensation that my Neuro says is Transverse Myelitis and is a sign of disease

activity. He advised me that it indicates the LDN isn't working for me (he

really didn't have much faith in it from the get-go), and that I need to

consider an alternative (CRAB). Argh!! Now what? I have felt sooo much better

since starting LDN, and really have NO desire to start injecting myself with

that stuff. I've been following the CCSVI research and am already signed up for

the next phase of the trial. But what do I do in the meantime? If there's

disease activity, does it make sense to start the injections? I'm at such a loss

and was so hopeful LDN would be my answer....

Jen