LDN for CFS/Fibro - Anxiety @ 4.5mg

[Guest guest]

read what someone posted in the main group.you might want to stop gluten and milk for 3 weeks and then these disturbances will disappear.

FOLKS, PLEASE READ THIS POST RE LDN & NERVOUSNESS, IT MAY HELP HUNDREDS ON THIS FORUM!Hi,Dr McCandless of "Children With Starving Brains" who moderates the LDN & Autism forum says that 30% of the population have some degree of celiac disease, which is an allergy to gluten.I had exactly the same response to LDN: nervousness, anxiety. She explained to me on the forum that gluten, to one allergic to it, gets only half digested in the gut, the large undigested polypeptide molecules affect the brain as opiods. This means the person is on either a "high" or withdrawal all their life, from wheat, rye and barley products, possibly oats.She suggested trying a gluten free diet (General Mills corn chex and rice chex are gluten free), you can get bread in the health food section made from millet or rice, and there is pasta regularly available from rice. Read labels for starch from wheat (e.g. tomato paste, soups as a thickener). Make potato pancakes (potato and egg in a blender plus salt).I cut out gluten and on the third day I felt great! The naltrexone was interrupting my "high" from gluten opiods and making me nervous. No problem with it now and VERY happy to make these small dietary adjustments. Now I can call it my "happy pill" like all those autistic kids who are taking it, and my "feel great in the morning when I wake up pill" like the adults.Dr JM will not put an autistic child on LDN until they have been on a gluten free and casein free (read: milk products) for a few months. She advocated to me cutting out dairy as well at some point, but I haven't done that and don't feel the need. Gluten was the ticket.Hope this is helpful to many. I've read a lot of posts here over time about nervousness and feeling like having drunk several cups of coffee in response to LDN. I was thrilled to have the help of LDN to discover an underlying problem that was causing mood swings, maybe all my life. BTW, it takes on average 7 years to diagnose Celiac disease (the full blown allergy) because there are so many symptoms that present which point in other various directions.Best,Mike>> Hi,> > I started taking LDN at 3mg for two months and then I upped it to 4.5 12 days ago. The 4.5 was making me too sick, though, so I moved it back to 3 mg last night. Today I'm not feeling sick, but I'm feeling jumpy as if I had too much coffee. Would I be better off to skip a night or two to get me back in balance or should I just keep taking 3mg every night.> > Thanks,> > son>

[Guest guest]

>I really have no idea if the LDN is helping my CFS/Fibro or not. Although

>I will say I am in less pain but I started forcing myself to do some

>exercise and I think maybe that is helping. I am not sure if I should

>continue the LDN or not.

>

KS-- I have fibro and my thought is that if I am able to be motivated, to

capture the energy to exercise, then something is different, something is

improved. Certainly exercise helps, but being able to get past the fibro to

even get exercise is difficult, right?

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~~~ There is no way to peace; peace is the way ~~~~

--A.J. Muste