Guest guest Posted February 14, 2010 Report Share Posted February 14, 2010 Does any one have experience using LDN with Parkinson's? My wife was diagnosed about 3 years ago and I have noticed some deterioration in her condition in the last 6 mos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2010 Report Share Posted February 14, 2010 Please Join us in our fight for recovery from PD. We discuss all therapies that can help heal Parkinsons. This includes medications, both on and off label usages like LDN or Low Dose Naltrexone, therapies such as; Hyperbaric Oxygen Therapy,Stem Cells, Massage, Acupuncture, Light, BPM, STS, Excercise, Swimming, Treadmill,Bicycling, Physical, Music, Speech, surgical options such as; deep brain stimulation (DBS)and important basic good health practices such as nutrition and supplements, hydration and sufficient rest and sleep. The focus of this group is on recovery. Our goal is to share what is working, what isn't, and why. Things to watch out for like side effects and drug interactions. When we know what is working we can share it with others with PD and maybe even help fund therapies that we discover are working. healingparkinsons/ > > Does any one have experience using LDN with Parkinson's? My wife was diagnosed about 3 years ago and I have noticed some deterioration in her condition in the last 6 mos. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 I have had a diagnosis of Parkinson's, coming on gradually for several years, and my doc suggested LDN. I argued for 6 mo since it has been 44 years since I took more than one dose of any Rx drugs, they make me deathly ill. Finally I said ok because the strict nutritional approach wasn't working as I thought it should. He is nutrition minded so I have had a lot of support. I started with half a milligram, at night, as the most important thing to find out was could I take it at all without a huge reaction. Since December 9, 09, I have worked up to now 2 mg and will stay on that dose till March 1, then increase to 2.5. 4.5 mg is the goal but I am not in a hurry. I have had improvement in gait. reduction in tremor, more staying power, less pain, ability to sleep more hours, less rigidity and spasming. I have definitely stopped getting worse. I had very "loud" dreams at first but that is less now. Sometimes I will sleep 10 hrs one day and 6 the next. Since I am retired that is not a problem. I feel better with more sleep. I have 4 mg caps from Skip's. I make it up in water, 2 ml of water per milligram of LDN, and I only make up a week's worth at a time, keep it in frig. At my present dose, I take 4 ml of the solution to give me 2 mg of LDN. I use one of those baby droppers that are marked in ml to measure it. I take a lot of supplements too including phosphatidyl choline and Iodoral (iodine), vitamin C, systemic enzymes and other stuff. I use my rebounder a little each day as able and have started sprouting again. I'm very happy with LDN and plan to stay on it forever. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 Excellent reply, just what boosts us all. Good on you and good luck forever. I will stay on LDN forever, too, as I love what it does to me, the improvements it's given me already and the hope that I will never get worse. Silvia > > I have had a diagnosis of Parkinson's, coming on gradually for several > years, and my doc suggested LDN. I argued for 6 mo since it has been 44 years > since I took more than one dose of any Rx drugs, they make me deathly ill. > Finally I said ok because the strict nutritional approach wasn't working as > I thought it should. He is nutrition minded so I have had a lot of support. > > I started with half a milligram, at night, as the most important thing to > find out was could I take it at all without a huge reaction. Since December > 9, 09, I have worked up to now 2 mg and will stay on that dose till March > 1, then increase to 2.5. 4.5 mg is the goal but I am not in a hurry. > > I have had improvement in gait. reduction in tremor, more staying power, > less pain, ability to sleep more hours, less rigidity and spasming. I have > definitely stopped getting worse. I had very " loud " dreams at first but that > is less now. Sometimes I will sleep 10 hrs one day and 6 the next. Since I > am retired that is not a problem. I feel better with more sleep. > > I have 4 mg caps from Skip's. I make it up in water, 2 ml of water per > milligram of LDN, and I only make up a week's worth at a time, keep it in frig. > At my present dose, I take 4 ml of the solution to give me 2 mg of LDN. I > use one of those baby droppers that are marked in ml to measure it. > > I take a lot of supplements too including phosphatidyl choline and Iodoral > (iodine), vitamin C, systemic enzymes and other stuff. I use my rebounder a > little each day as able and have started sprouting again. > > I'm very happy with LDN and plan to stay on it forever. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2010 Report Share Posted February 16, 2010 Two very strong correlations for Parkinson’s are high iron levels and low vitamin D levels. For vitamin D, get the blood test 25(OH)D. Test levels should be up toward 80ng/mL (200 mmol/L). If low, vitamin D3 capsules are very inexpensive. Most people need around 5000 IU daily to attain that level. For iron, check ferritin, hemoglobin, serum iron and iron binding capacity. Iron saturation % is calculated as serum iron divided by iron binding capacity (expressed as a percentage), and should be between 25 and 35%. Ferritin should be less than 100. Gene Quote Link to comment Share on other sites More sharing options...
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