Weaning from narcotics to begin LDN

January 1, 2010

Hello everybody. I have a question for you all. Kristie has been on heavy

narcotics for about the past 2-3 years. She has had an intrathecal pain pump

with dilaudid, bupivicaine, and baclafen running for the past year and a half or

so. Just recently here at the Cleveland clinic, (about 2 or 3 months ago) she

was completely weaned of the pump with no major withdrawals, thank God. She was

put on methadone to fill the void of the dilaudid because she was still in

tremendous pain. It was a great downgrade from meds to now only being on Lyrica,

Valium, Zanaflex and the Methadone. Then we met an angel who is a part of this

support group for LDN. She informed us all about it and shared her story with

us and now we are on the way to giving it a chance. From the wonderful things

I've read, I pray this could actually save Kristie's life. We weaned her off of

the methadone but now she cannot handle it. Her pain is intensified and she has

tried to cope but just can't. We were told the LDN might not start to work for

weeks to months and she can't live with the horrible pain she is feeling right

now. She can't even walk again. Our Dr.s said all they could give her was

tylenol for arthritis and celebrex. Have any of you had to experience this or

know anyone that has? She wants to try this more than anything but cant

function without being on narcotics.

Thank You, any replies or advice will be greatly appreciated.

Sincerely,

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