Re: what to do? pls advise

[Guest guest]

Candida is one distinct possibility. You can pretty much stop LDN one

night and start steroids next day, but to be safe give it an extra

day. It's the other way around that is more a problem. It's usually

recommended to be off steroids for 10 - 14 days before starting on LDN.

flower.child2112 wrote:

Hi ! I have been on LDN 2.5 mg for MS every other night for a year and been completely fine. But for the last two months i am experiencing symptoms return. According to Dr Zagon, LDN is staying in my body for too long and is not letting endorphins react therefore I have tried leaving 2,3,4,5 days between doses but its not helped. So, as per his advise now I should cut down the dose to half i.e 1.25 mg every other night. The problem is my symptoms have become strong and my left leg has become pretty weak , i can barely walk a few steps now.I am wondering what i should do - Take steriods to stabilize my condition then start with a readuced dose like 1.25 mg every other night or start taking 1.25 mg every other night and see if I improve? Any advise, thoughts are welcome. How long do I have to be off LDN to take steriods ?

Also , has anyone here experienced something like this ?.What could be possible reasons this kind of resistance ..?

Thanks

[Guest guest]

I'm new here, so I'm just asking a question, not claiming knowledge. Dr

Bihari believes LDN should be taken every night. Is it possible that the

problem is that it needs to be increased, not decreased? --

>I have been on LDN 2.5 mg for MS every other night for a year and been

>completely fine. But for the last two months i am experiencing symptoms

>return. According to Dr Zagon, LDN is staying in my body for too long and

>is not letting endorphins react therefore I have tried leaving 2,3,4,5

>days between doses but its not helped. So, as per his advise now I should

>cut down the dose to half i.e 1.25 mg every other night.

>

>The problem is my symptoms have become strong and my left leg has become

>pretty weak , i can barely walk a few steps now.I am wondering what i

>should do -

>Take steriods to stabilize my condition then start with a readuced dose

>like 1.25 mg every other night or start taking 1.25 mg every other night

>and see if I improve? Any advise, thoughts are welcome.

>

>How long do I have to be off LDN to take steriods ?

>

>Also , has anyone here experienced something like this ?.What could be

>possible reasons this kind of resistance ..?

>

>Thanks

~~~ There is no way to peace; peace is the way ~~~~

--A.J. Muste

[Guest guest]

What do I do if I need steroids from Dr. Lawrence

http://preview.tinyurl.com/cfr7um

--

>

> Hi !

>

> I have been on LDN 2.5 mg for MS every other night for a year and been

completely fine. But for the last two months i am experiencing symptoms return.

According to Dr Zagon, LDN is staying in my body for too long and is not letting

endorphins react therefore I have tried leaving 2,3,4,5 days between doses but

its not helped. So, as per his advise now I should cut down the dose to half i.e

1.25 mg every other night.

>

> The problem is my symptoms have become strong and my left leg has become

pretty weak , i can barely walk a few steps now.I am wondering what i should do

-

> Take steriods to stabilize my condition then start with a readuced dose like

1.25 mg every other night or start taking 1.25 mg every other night and see if I

improve? Any advise, thoughts are welcome.

>

> How long do I have to be off LDN to take steriods ?

>

> Also , has anyone here experienced something like this ?.What could be

possible reasons this kind of resistance ..?

>

> Thanks

>

[Guest guest]

Any help or suggestions much appreciated. My granddaughter Bonnie is 22 years old and has been suffering a great deal. RG

I'd like to see how long this has been used for Crohn's. Unfortunately, the Crohn's is not Bonnie's problem right now. (She'd been controlling flare-ups pretty well by strict diet.) The interstitial cystitis is really bad right now. She went in Monday for an instillation (where a drug "cocktail" is introduced into the bladder via catheter) and was in such severe pain an hour later that she went back to the hospital where they flushed everything out. That's the second thing they've tried that has been unsuccessful. She went in again yesterday, and she is currently on just oral meds. She isn't saying much, but I know she's very uncomfortable, and I'm wondering how in the world she's going to get through this semester (which starts today). I pray they'll find something that will work for her. It seems to be a lot of trial and error with this condition, and I truly don't see how she's getting through this. If you've ever dealt with the symptoms of a bladder infection, you'll know what I mean.--I'll keep you all posted on her progress as she's going in frequently right now. Adrienne

"Men sleep peacefully in their beds at night because rough men stand ready to do violence on their behalf."anon.

[Guest guest]

for interstitial cystitis you must make the the body alkali(not acidic).

http://www.icnsales.com/acid-reducers/

[Guest guest]

>You can pretty much stop LDN one night and start steroids next day, but to be

safe give it >an extra day. It's the other way around that is more a problem.

It's usually recommended >to be off steroids for 10 - 14 days before starting on

LDN.

Hi ,

I was not aware of this second issue, about being off of steroids for 10-14 days

before

starting on LDN.

Does something happen if you go on or back on LDN directly after stopping

steroids?

I thought you could take LDN - while weaning from steroids and down to a very

low dose of those steroids?

Mara

[Guest guest]

it all depends how much predinsone.up to 10 mg predinsone can be taken together with ldn

[Guest guest]

Yes, if you wean off steroids (eg. less than 10mg prednisone I think it

is) then that's OK.

Mara S wrote:

You can pretty much stop LDN one night and start steroids next day, but to be safe give it >an extra day. It's the other way around that is more a problem. It's usually recommended >to be off steroids for 10 - 14 days before starting on LDN.

Hi ,

I was not aware of this second issue, about being off of steroids for 10-14 days before

starting on LDN.

Does something happen if you go on or back on LDN directly after stopping steroids?

I thought you could take LDN - while weaning from steroids and down to a very low dose of those steroids?

Mara

[Guest guest]

>

> Hi !

>

> I have been on LDN 2.5 mg for MS every other night for a year and been

completely fine. But for the last two months i am experiencing symptoms return.

According to Dr Zagon, LDN is staying in my body for too long and is not letting

endorphins react therefore I have tried leaving 2,3,4,5 days between doses but

its not helped. So, as per his advise now I should cut down the dose to half i.e

1.25 mg every other night.

>

> The problem is my symptoms have become strong and my left leg has become

pretty weak , i can barely walk a few steps now.I am wondering what i should do

-

> Take steriods to stabilize my condition then start with a readuced dose like

1.25 mg every other night or start taking 1.25 mg every other night and see if I

improve? Any advise, thoughts are welcome.

>

> How long do I have to be off LDN to take steriods ?

>

> Also , has anyone here experienced something like this ?.What could be

possible reasons this kind of resistance ..?

>

> Thanks

>==============

Flower child,

Dr. Bihari's advice and mine too would be to get on 3mg to 4.5mg LDN nightly

before you wind up in a full-blown exacerbation and possibly have permanent

damage that cannot be reversed. I am a chronic progressive MS'er who's been on

LDN 6 1/2 years at 4.5mg nightly, have not had 1 exacerbation until I switched

for a short duration to try Dr. Zagon's advice and started worsening big time

again so went back to the Bihari dosing protocol and have had no problems, in

remission of chronic progressive MS 6 years. Take LDN via the Bihari dosing

protocol and you most likely will do fine. Be sure you are not colonized with

candida yeast overgrowth, this could cause you problems on LDN. I keep candida

yeast overgrowth down to a minimum. I only had one problem while on LDN and

that was from my own stupidity and getting off the Bihari dosing protocol. Read

the LDN website and even read the Further Q and A page there too.

http://www.ldninfo.org Do not take LDN before 9pm off Daylight Saving Time and

no earlier than 10pm on DST.

, LDN user 4.5mg for 6 1/2 years for progressive MS, in remission 6 years.

My LDN info. center and forum http://ldn.proboards.com/index.cgi

[Guest guest]

Look at all options. Consider that 2.5mg might be too small and your body has adjusted to this level and the body is not putting more endorphins into your body.The reverse of too much

Also, yeast,body PH, and other problems like lyme or Babesia.

From: low dose naltrexone on behalf of bren_ldnSent: Thu 1/14/2010 12:15 PMlow dose naltrexone Subject: [low dose naltrexone] Re: what to do? pls advise

>> Hi ! > > I have been on LDN 2.5 mg for MS every other night for a year and been completely fine. But for the last two months i am experiencing symptoms return. According to Dr Zagon, LDN is staying in my body for too long and is not letting endorphins react therefore I have tried leaving 2,3,4,5 days between doses but its not helped. So, as per his advise now I should cut down the dose to half i.e 1.25 mg every other night. > > The problem is my symptoms have become strong and my left leg has become pretty weak , i can barely walk a few steps now.I am wondering what i should do - > Take steriods to stabilize my condition then start with a readuced dose like 1.25 mg every other night or start taking 1.25 mg every other night and see if I improve? Any advise, thoughts are welcome. > > How long do I have to be off LDN to take steriods ?> > Also , has anyone here experienced something like this ?.What could be possible reasons this kind of resistance ..?> > Thanks>==============Flower child,Dr. Bihari's advice and mine too would be to get on 3mg to 4.5mg LDN nightly before you wind up in a full-blown exacerbation and possibly have permanent damage that cannot be reversed. I am a chronic progressive MS'er who's been on LDN 6 1/2 years at 4.5mg nightly, have not had 1 exacerbation until I switched for a short duration to try Dr. Zagon's advice and started worsening big time again so went back to the Bihari dosing protocol and have had no problems, in remission of chronic progressive MS 6 years. Take LDN via the Bihari dosing protocol and you most likely will do fine. Be sure you are not colonized with candida yeast overgrowth, this could cause you problems on LDN. I keep candida yeast overgrowth down to a minimum. I only had one problem while on LDN and that was from my own stupidity and getting off the Bihari dosing protocol. Read the LDN website and even read the Further Q and A page there too. http://www.ldninfo.org Do not take LDN before 9pm off Daylight Saving Time and no earlier than 10pm on DST., LDN user 4.5mg for 6 1/2 years for progressive MS, in remission 6 years. My LDN info. center and forum http://ldn.proboards.com/index.cgi

[Guest guest]

Here's a link discussing d-mannose use for interstitial cystitis (I and

many I've known have used it to wipe out UTIs):

http://www.d-mannose-uk.com/cystitis-treatment-method.htm#interstitialcystitis

excerpt:

>Interstitial Cystitis - a way forward

>

>Our experience has shown us that Waterfall D-Mannose is not effective

>against every type of interstitial cystitis. However, it does seem to work

>for some people. Interstitial cystitis can have many causes, one of which

>is related to previous infections, and although the urine can be clear,

>there can be remnants of E.coli bio-molecularly attached, though dead, to

>cells of the bladder, or buried in the walls of the bladder.

>

>Originally, we were very doubtful whether the product would work for

>interstitial cystitis at all but the results the product is achieving have

>helped change our minds on this subject. ....

>Any help or suggestions much appreciated. My granddaughter Bonnie is 22

>years old and has been suffering a great deal. RG

> I'd like to see how long this has been used for Crohn's. Unfortunately,

> the Crohn's is not Bonnie's problem right now. (She'd been controlling

> flare-ups pretty well by strict diet.) The interstitial cystitis is

> really bad right now.

~~~ There is no way to peace; peace is the way ~~~~

--A.J. Muste

[Guest guest]

I had an overactive bladder and frequent urinary tract infections.

Dr. Blaivis, a urologist in Manhattan prescribed Methenamine and 500mg

of Vitamin C twice a day and I've been fine since.