Re: LDN for Stiff Person Syndrome

[Guest guest]

Stiff person syndrome is what some people with PLS (primary lateral

sclerosis) as I have, are initially misdiagnosed with. Most people

with PLS find LDN to be very beneficial, so it will most likely help

SPS too.

Cheers,

Judy wrote:

I talked my local Doctor into giving me LDN for SPS and have been on it over a month at 3mg. The Specialist at Universtiy of Michigan Hospital would not approve of an off label prescription. Does anyone know of someone who tried this for Stiff Person Syndrome and had results?

[Guest guest]

Hi Judy,

The main reason for using LDN is to hopefully slow or stop disease

progression, so you may not find any improvement in symptoms. If you do

you it's a bonus.

Cheers,

Judy wrote:

> I have asked this before because I want to know if anyone else has any

experience with LDN and Stiff Person Syndrome (an autoimmune disease). If you

have had experience with a simular autoimmune disease and know how long it takes

to expect a change if there will be one. It has been over a month since I

started 3mg of LDN.

>

>