Cold Weather

[Guest guest]

Hi Patti,

For myself...the answer is...no.I will experience pain and swelling in my hands

and fingers even if it is in the middle of the summer. Then again on some days

everything seems fine. I know that many can seemingly "predict" the weather by

what their body "tells" them. Not so with me. Some of my best pain free days

are when the weather is rainy and stormy, or freezing cold. Now, don't get me

wrong here...I don't especailly "like" the cold weather even if it doesn't make

me hurt worse. Those warming gloves sound nice....I'm thinking of looking for

some now too!

Take care...and stay warm,

from Wisconsin

Tricia

p.s. Patti Lynn...that is pretty.

-- cold weather

I know that this has been discussed in the past but does anyone notice any additionaly swelling with cold weather...ever since the snow started falling here my hands have been so sore....Just curious

Patti~Canada

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

[Guest guest]

Hi Patti,

For myself...the answer is...no.I will experience pain and swelling in my hands

and fingers even if it is in the middle of the summer. Then again on some days

everything seems fine. I know that many can seemingly "predict" the weather by

what their body "tells" them. Not so with me. Some of my best pain free days

are when the weather is rainy and stormy, or freezing cold. Now, don't get me

wrong here...I don't especailly "like" the cold weather even if it doesn't make

me hurt worse. Those warming gloves sound nice....I'm thinking of looking for

some now too!

Take care...and stay warm,

from Wisconsin

Tricia

p.s. Patti Lynn...that is pretty.

-- cold weather

I know that this has been discussed in the past but does anyone notice any additionaly swelling with cold weather...ever since the snow started falling here my hands have been so sore....Just curious

Patti~Canada

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

[Guest guest]

Carmen and others, the hand warmers are different from the butane ones. These are little packets that have a charcoal looking substance inside. You only have to open the outer package and shake them a couple times and they warm for up to eight hours. They are brand named Hand Warmers. The hardware store sells them here. Melt

----- Original Message -----

From: pscarmen@...

Pattymelt,

That is such a good idea about the hand warmers. They also make feet warmers but I think those are with batteries.

Good thinking !!!!

Mi. Carmen

[Guest guest]

AH Gee Whiz Tricia.

Some of us old geezers know what Carmen is talking about. It is a

Jone Hand warmer, and runs on lighter fluid (like zippo fluid). I

still have one of these darn thangs that I use once in a while. You

would fill up the dang thang and then light the wick and put the lid

on and when it got to going real good put it in the little red sack.

They almost got too hot sometimes. Those little packett things you

are talking about are a lot more simple, and don't stink. I have

this hand warmer thing that you put in the microwave and nuke it for

a little while, then put it in the cloth thang that holds it. That

thang sure feels good on these old hands and fingers when they get

to aching real bad.

The Old Curmudgeon Dan

> Carmen and others, the hand warmers are different from the

butane ones. These are little packets that have a charcoal looking

substance inside. You only have to open the outer package and shake

them a couple times and they warm for up to eight hours. They are

brand named Hand Warmers. The hardware store sells them here. Melt

> ----- Original Message -----

> From: pscarmen@a...

> > Pattymelt,

> That is such a good idea about the hand warmers. They also make

feet warmers but I think those are with batteries.

> Good thinking !!!!

> Mi. Carmen

[Guest guest]

Thanks Patty for the hand warmer info,..........I shall go and try to locate a couple. They will make nice stocking stuffers.

xxoo

Carmen

[Guest guest]

Thanks Patty for the hand warmer info,..........I shall go and try to locate a couple. They will make nice stocking stuffers.

xxoo

Carmen

[Guest guest]

Yup, Dan.......those are the hand warmers I remember. I'm glad to know that they've made huge strides in improving them. I do remember them smelling now that you mention it.

xxoo,

Carmen

[Guest guest]

Yup, Dan.......those are the hand warmers I remember. I'm glad to know that they've made huge strides in improving them. I do remember them smelling now that you mention it.

xxoo,

Carmen

[Guest guest]

Hi Trish,

Nope, you're not alone. I prefer the cold to the hot also. When we get our 100 degree plus in Palm Springs, I do not leave the house. When we get our hot and humid weather in Michigan, I don't leave the house here either. Hot weather makes me panicky and nauseous so I look forward to cool days. I enjoy a normal day where I can wear shorts or go swimming but nothing extreme. Maybe I was an Eskimo in my other life........ )

Mi. Carmen

[Guest guest]

Maybe on the oddball on this, but I actually feel much better in the cold weather! I seem to have the most swelling in summer and early fall, and my headaches are worse then too. The summer heat also makes me feel just plain awful, as does being in a room that's too warm. I loved our winter last year here in NE PA - very cold & snowy! We had a few weeks where the high temps were only about 10-15 degrees F, and that is actually when I felt the best. Even when in snowed last year, it was a nice "dry" snow, not that heavy, impossible-to-shovel stuff!

Hope I'm not the only nut who likes the cold weather!

Trish in PA

cold weather

I know that this has been discussed in the past but does anyone notice any additionaly swelling with cold weather...ever since the snow started falling here my hands have been so sore....Just curious

Patti~Canada

[Guest guest]

NO Trisha, I do not think you are a oddball. I actually enjoy

cooler weather much more myself. I do not do heat very well at

all. Maybe that is how come I enjoy Montana so much. BUT when it

gets down to around 20 below zero, I kinda gripe and grumble a

little bit. That is when I like to warm up the mittens a little bit

before I put em on. And snow and ice kind of bother me now days, I

do not know whether it is the walk like a penguin or the Ozzy

shuffle that I have to do to get around. LOL

Dan

> Maybe on the oddball on this, but I actually feel much better in

the cold weather! I seem to have the most swelling in summer and

early fall, and my headaches are worse then too. The summer heat

also makes me feel just plain awful, as does being in a room that's

too warm.

[Guest guest]

NO Trisha, I do not think you are a oddball. I actually enjoy

cooler weather much more myself. I do not do heat very well at

all. Maybe that is how come I enjoy Montana so much. BUT when it

gets down to around 20 below zero, I kinda gripe and grumble a

little bit. That is when I like to warm up the mittens a little bit

before I put em on. And snow and ice kind of bother me now days, I

do not know whether it is the walk like a penguin or the Ozzy

shuffle that I have to do to get around. LOL

Dan

> Maybe on the oddball on this, but I actually feel much better in

the cold weather! I seem to have the most swelling in summer and

early fall, and my headaches are worse then too. The summer heat

also makes me feel just plain awful, as does being in a room that's

too warm.

[Guest guest]

NO Trisha, I do not think you are a oddball. I actually enjoy

cooler weather much more myself. I do not do heat very well at

all. Maybe that is how come I enjoy Montana so much. BUT when it

gets down to around 20 below zero, I kinda gripe and grumble a

little bit. That is when I like to warm up the mittens a little bit

before I put em on. And snow and ice kind of bother me now days, I

do not know whether it is the walk like a penguin or the Ozzy

shuffle that I have to do to get around. LOL

Dan

> Maybe on the oddball on this, but I actually feel much better in

the cold weather! I seem to have the most swelling in summer and

early fall, and my headaches are worse then too. The summer heat

also makes me feel just plain awful, as does being in a room that's

too warm.

[Guest guest]

Hi Trish,

WHere in PA do you live. I am in Collegville, PA

Judy, PA

I loved our winter last year here in NE PA - very cold & snowy! >

Trish in PA

>

> cold weather

>

>

> I know that this has been discussed in the past but does anyone

notice any additionaly swelling with cold weather...ever since the

snow started falling here my hands have been so sore....Just curious

> Patti~Canada

[Guest guest]

Hi Judy,

The closest small town to me is Forest City. It's in northeast PA, in the

general area of Elk Mt. Ski Center (the only real landmark I can give). I

live about 30 miles north of the city of Scranton - what most " city " people

would consider the " boonies " !

Trish in PA

Re: cold weather

> Hi Trish,

> WHere in PA do you live. I am in Collegville, PA

>

> Judy, PA

> I loved our winter last year here in NE PA - very cold & snowy! >

> Trish in PA

>

[Guest guest]

I don't know how ya'll can stand the cold weather! Here in New Orleans, it was

in the 70's today. I sat outside on the hammock for a couple hours, and

yesterday bought a new bike with handlebars custom-made so it'll be a

comfortable position for my neck.

On the days when we did have cold, I hurt so much more. I feel sorry for

ya'll who have to put up with those cold induced spasms. Although a fireplace

does sound nice for many reasons!

Thinking of ya'll up North ( anywhere north of Louisiana we call North)

Dee

---------------------------------

Want to start your own business? Learn how on Small Business.

[Guest guest]

Hi, Donna:

I agree...the car seat heater is fantastic, I can't wait to get into

my car after walking out in the cold. I have found that the pain

from the cold seems to be worse later in the day - not sure if it's

b/c I'm tired or b/c I've been indoors all day.

Anyway, let me know if you find any solutions that work for you and

stay warm!

> > > >

> > > > ,

> > > >

> > > > This first year after surgery is a long one. You are

probably

> in

> > > that

> > > > endless period where you just can't believe you are not

back

> to

> > > 100%,

> > > > and frankly it is depressing. I hope you speak with DrRand

or

> > > > Priscilla if you have any concern that the uptick in pain

> seems

> > > out

> > > > of proportion to whatever activites or events are going on

in

> > your

> > > > life.

> > > >

> > > > I know that it was after my 6 month check up (actually at

7

> > > months)

> > > > that DrRand let me begin a very small land based PT

> program...and

> > > I

> > > > also began additional aquatic therapy. While neither of

those

> > > > activites brought on more acute pain...I did realize there

> were

> > > some

> > > > parts of my body that hadn't been used in some time! I

also

> > > realized

> > > > how short and stiff most of my muscles and ligmaments had

> become

> > > and

> > > > was able to begin the slow process of restoring some of

that

> > > > function. (That still goes on to this day, by the way).

> > > >

> > > > So, with regard to your question about still having bad

days

> 7

> > > months

> > > > out...I think you will find that most of us will

> > > say " yes " ....either

> > > > mentally or physically (or both) and that the timeline

that I

> am

> > > sure

> > > > that DrRand gave you of 12-18 months of healing will be as

> true

> > > for

> > > > you as it is for most of us. Even coming up on 4 years I

have

> > > > definitely noticed a stronger more able bodied " me " ...we

are

> a

> > lot

> > > > older than when we first had scoli surgery...and so it

will

> take

> > a

> > > > long while for your body to adjust to your new " you " . What

> are

> > you

> > > > doing to strengthen yourself?

> > > >

> > > > I don't believe that the cold bothers me much...at least

not

> in

> > > the

> > > > way you describe but others have definitely expressed the

> same

> > > > feeling. My favorite post swim activity is to lay and

stretch

> in

> > > the

> > > > sauna...and that heats me right up. If you havne't started

a

> > water

> > > > based rehab, and if DrRand permits it, perhaps you can

find a

> > club

> > > > that has a warm water therapy pool to float around in for

> > > starters.

> > > > That would be lovely AND warm!

> > > >

> > > > Also,I am not sure where in New England you are...but down

> this

> > > way

> > > > there is a virus going around that seems to be hitting

> everyone

> > > with

> > > > that tired and achy joint feeling..I am just getting over

> > it...but

> > > > the first few days before I realized it was a bug my

joints

> were

> > > all

> > > > aching like the dickens and I was worried it was Lymes or

> > > > something...now its subsiding. Could that be it? I think a

> lot of

> > > us

> > > > experience this at the beginning of an illness.

> > > >

> > > > Can't help you on the stylish shoe thing.I am tall..and

> always

> > > have

> > > > worn flat shoes, which I would recommend anyone stick with

at

> > your

> > > > stage in recovery. Heels would tilt me forward in a way

that

> > would

> > > > way overload my spinal muscles and I would be exhausted

> trying to

> > > > hold myslef up (a la the old flatback pose). I

particularly

> love

> > > > Merrills as they fit my feet well....but they tend to be

more

> > > casual.

> > > > I agree completly that on line shoe stores are a great

source

> for

> > > > shopping since you don't have to spend the day

> shopping...they

> > > just

> > > > ship and you can see for yourself if they work.

> > > >

> > > > Don't be a stranger to the group! You are in a recovery

stage

> > that

> > > is

> > > > a difficult as the first 6 weeks, in some ways.

> > > >

> > > > Take Care, Cam

> > > >

> > >

> >

>

[Guest guest]

This change of season issue is very common in the MS population. There was a product that we compounded several years ago for MS patients. There was always a problem during the spring and fall with it not working anymore. It was like clock work. One of our patients, who was stable and being helped by the product had the same problems every year. The benefits of the drug was greatly reduced and we would play with dosing for a couple of weeks, and voila we would get back to the drug working, usually at the pre-problem dose.

Dr.Skip.

[Guest guest]

when you are too cold ,it is also a form of stress on the body.

[Guest guest]

Well, many people can't get great SUN year round and it takes more than 15 min if your Vit D tank is empty. Mine was in 2006 in spite of living in So. Cal. I just don't take SUN like I did all the years prior to my early 50's. I'm now 71 and take 5K of D3 daily and my energy and depressive issues are pretty much gone. When I was tested for Vit D, I was very deficient.

In my SUN years, I would spend hours on the beach and just sucking in the SUN, but I don't do that anymore. Vit D deficiency is epidemic in our population. Old people sitting around dying could be so helped with supplementation. I'm convinced of this.

And even here in So. Cal. my joints hurt more when it's colder and less sun shining in my apt.

RE: [low dose naltrexone] Cold Weather

LDN, is not a stand alone treatment. It helps balance the immune syste. Good diet, and controling yeast, mold exposure and insuring lyme is ruled out by actual tests from Igenex. Even Igenex id only 85-90% effective.Some negatives becomes possitves later on. Positives are postive and you have lyme. Also, interpretation per CDC is not appropriate. Lyme and MS symptoms can be identical.

Also, vitamin D is iportant, but NOT supplements. 10-15 mins a day, real sun exposure is all that is needed. NO chemical D, in my opinion.

From: low dose naltrexone on behalf of pjtaylor150Sent: Thu 1/7/2010 11:09 AMlow dose naltrexone Subject: [low dose naltrexone] Cold Weather

My husband has been on LDN for a few years and has done great. He had drop foot on his right foot. He got the Walkaide and was doing great. He was walking with little problems. Then around two weeks ago his legs became stiff and his feet became very numb. At that time the weather became very cold so we were wondering if anyone has ever experience the cold weather making them worst. And if so what did you do? We were really trying to figure out what could have cause him to have a set-back. Does anyone have any thoughts on this? And by the way I was the first person to have Medicare pay for the walkaide for MS. It is a great device and it re-educates the nerve.

No virus found in this incoming message.Checked by AVG - www.avg.com Version: 9.0.725 / Virus Database: 270.14.129/2605 - Release Date: 01/06/10 23:35:00

[Guest guest]

Even then, sunlight isn't complete; the recent " surfer dude " study (Low vitamin

D status despite abundant sun exposure, J Clin Endocrinol Metab. 2007

Jun;92(6):2130-5. Epub 2007 Apr 10) showed that even with an average sunlight

exposure of 28.9 hours per week in Hawaii, 51% of the study group had under 30

ng/mL vitamin D which would be considered clinically deficient.

In short, if a bunch of surfer/skater dudes in Hawaii getting 28.9 hours of

sunlight per week can't maintain minimal 25(OH)D levels, what hope is there for

the rest of us?

There has been some suggestion that bathing and showering removes vitamin D such

that it does not have enough time to migrate through the skin and into the

bloodstream. Dietary supplementation may be required for those of us that shower

more than once every 48 hours.

-AJ

>

> Well, many people can't get great SUN year round and it takes more than 15 min

if your Vit D tank is empty. Mine was in 2006 in spite of living in So. Cal. I

just don't take SUN like I did all the years prior to my early 50's. I'm now 71

and take 5K of D3 daily and my energy and depressive issues are pretty much

gone. When I was tested for Vit D, I was very deficient.

>

> In my SUN years, I would spend hours on the beach and just sucking in the SUN,

but I don't do that anymore. Vit D deficiency is epidemic in our population.

Old people sitting around dying could be so helped with supplementation. I'm

convinced of this.

>

> And even here in So. Cal. my joints hurt more when it's colder and less sun

shining in my apt.

>

>

> [low dose naltrexone] Cold Weather

>

>

>

> My husband has been on LDN for a few years and has done great. He had drop

foot on his right foot. He got the Walkaide and was doing great. He was walking

with little problems. Then around two weeks ago his legs became stiff and his

feet became very numb. At that time the weather became very cold so we were

wondering if anyone has ever experience the cold weather making them worst. And

if so what did you do? We were really trying to figure out what could have cause

him to have a set-back. Does anyone have any thoughts on this? And by the way I

was the first person to have Medicare pay for the walkaide for MS. It is a great

device and it re-educates the nerve.

>

>

>

>

>

>

>

>

> ------------------------------------------------------------------------------

>

>

>

> No virus found in this incoming message.

> Checked by AVG - www.avg.com

> Version: 9.0.725 / Virus Database: 270.14.129/2605 - Release Date: 01/06/10

23:35:00

>

[Guest guest]

The problem with these studies is they only show one D metabolite. To see if you have a D problem You should get the complete D Metabolite test for both D levels. Because on turns into the other,so the ratio between them is important.I went through this years ago.If you go yo the marshall Protocal site it will give the D metabolite tests to do,and how to interperate. I did this 5 years ago, and after being cured of lyme, my D's are fine,most importantly the ratio is fine.

From: low dose naltrexone on behalf of ahicks51Sent: Thu 1/7/2010 7:58 PMlow dose naltrexone Subject: [low dose naltrexone] Re: Cold Weather

Even then, sunlight isn't complete; the recent "surfer dude" study (Low vitamin D status despite abundant sun exposure, J Clin Endocrinol Metab. 2007 Jun;92(6):2130-5. Epub 2007 Apr 10) showed that even with an average sunlight exposure of 28.9 hours per week in Hawaii, 51% of the study group had under 30 ng/mL vitamin D which would be considered clinically deficient.In short, if a bunch of surfer/skater dudes in Hawaii getting 28.9 hours of sunlight per week can't maintain minimal 25(OH)D levels, what hope is there for the rest of us?There has been some suggestion that bathing and showering removes vitamin D such that it does not have enough time to migrate through the skin and into the bloodstream. Dietary supplementation may be required for those of us that shower more than once every 48 hours.-AJ>> Well, many people can't get great SUN year round and it takes more than 15 min if your Vit D tank is empty. Mine was in 2006 in spite of living in So. Cal. I just don't take SUN like I did all the years prior to my early 50's. I'm now 71 and take 5K of D3 daily and my energy and depressive issues are pretty much gone. When I was tested for Vit D, I was very deficient. > > In my SUN years, I would spend hours on the beach and just sucking in the SUN, but I don't do that anymore. Vit D deficiency is epidemic in our population. Old people sitting around dying could be so helped with supplementation. I'm convinced of this. > > And even here in So. Cal. my joints hurt more when it's colder and less sun shining in my apt. > > > [low dose naltrexone] Cold Weather> > > > My husband has been on LDN for a few years and has done great. He had drop foot on his right foot. He got the Walkaide and was doing great. He was walking with little problems. Then around two weeks ago his legs became stiff and his feet became very numb. At that time the weather became very cold so we were wondering if anyone has ever experience the cold weather making them worst. And if so what did you do? We were really trying to figure out what could have cause him to have a set-back. Does anyone have any thoughts on this? And by the way I was the first person to have Medicare pay for the walkaide for MS. It is a great device and it re-educates the nerve.> > > > > > > > > ----------------------------------------------------------> > > > No virus found in this incoming message.> Checked by AVG - www.avg.com > Version: 9.0.725 / Virus Database: 270.14.129/2605 - Release Date: 01/06/10 23:35:00>