Re: Longest on LDN?

[Guest guest]

http://www.larrygc.com/mystory Started 4/17/2003

There weren't many in this group back then who was on it already, I can only

think of four people on it longer than me. Jeannie Z (01 or 02?), Carol (before

10/02) & P (10/02, who I heard about it from) and Dr. Bihari's daughter's

friend (85/86?).

When I first started journaling on the above site, was on ezboard then, I was

pretty much alone on other sites talking about LDN, being told to create the

above journal and post about my experiences. Some others started the same month

as me and after.

Between April 2003 and November I was banned from many many sites.

I started getting emails from around the world a month or two after I started

those posts on ezboard, now yuku and always http://www.larrygc.com/mystory will

take you there.

It snowballed from then on....

>

> Hi all

> I keep being asked whether I ever read messages by the people who have been on

LDN the longest. Can anybody help me on that line? The longest I seem to be

quoting are the ones of about 5 or 6 years on LDN, and I believe Dr. Lawrence

has been on it for about 8, I guess the longest in the UK. But as LDN has been

in use since about 1984 in the States(these numbers seem to change, too) where

are those people who went on it then and whose disease progression has hopefully

stopped then? Are there collections of longterm dates/people/stories? What's

the longest we can quote?

> Lucretia

>

[Guest guest]

To answer your question, some people with MS on our Histamine/LDN Message Board

will be celebrating their 10th year on LDN next month.

http://disc.yourwebapps.com/Indices/148285.html

Until 2000 Dr. Bihari concentrated on LDN for HIV but had successfully treated

the MS of his daughter's friend with LDN in the late 1990s. In January a lady

with MS named Judy Lannigan came on a Message Board and announced she had

started LDN after a visit to Dr. Bihari's Office. People on our Message Board

figured if it worked on HIV immune system problems, why not try it for MS. By

the end of February 2000 at least 6 of us had figured out a way to get

Naltrexone and were on LDN. By the end of that Summer about 40 of us were using

it. Dr. Lawrence used to come on our Board and critisize us but by October of

2000 I believe he started taking it himself and by the end of 2000 Dr. Bihari

was treating MS and many other conditions with LDN. At least 100 people with MS

were on LDN by the end of 2000 and the numbers have obviously grown to the

thousands ever since.

Dr. B

>

> Hi all

> I keep being asked whether I ever read messages by the people who have been on

LDN the longest. Can anybody help me on that line? The longest I seem to be

quoting are the ones of about 5 or 6 years on LDN, and I believe Dr. Lawrence

has been on it for about 8, I guess the longest in the UK. But as LDN has been

in use since about 1984 in the States(these numbers seem to change, too) where

are those people who went on it then and whose disease progression has hopefully

stopped then? Are there collections of longterm dates/people/stories? What's

the longest we can quote?

> Lucretia

>

[Guest guest]

Thanks very much for that.

I have my own personal LDN anniversary today too, one year on LDN. And feeling

very lucky to have found it before a big deterioration in my abilities, which

means I haven't gotten worse in a year and better in many ways. Symptom relief

a bonus! Thank you LDN.

And what a way to celebrate my one year anniversary! I signed the petition to

the EU parliament. And I've noticed many of you did, too. That's fantastic and

anybody who is thinking about it, go on and sign. Anybody can and while you're

there read all the fabulous comments. And encourage your friends to do the

same.

Here's the address again:

http://www.ipetitions.com/petition/ldnnow/

Lucretia (or Silvia, with PPMS)

>

> To answer your question, some people with MS on our Histamine/LDN Message

Board will be celebrating their 10th year on LDN next month.

>

> http://disc.yourwebapps.com/Indices/148285.html

>