personal support

[Guest guest]

Jeannie,

That has got to be my fav - " but you don't look sick " .

Sounds like you have done what we all must do at some point - realize WE are

the ones who support us and actually know how sick we feel on that day.

Today is a good day I've tried to say as much as I can. People wonder why I

collapse on the couch at the end of my work day - when really I'm greatful I

can still make a living. Some scoff at the fact I have to go to sleep before

8:30 when I've been on my feet all day at a fund raiser in town - when

really I'm greatful I made it as long as I did.

Only we know how we feel and I have had to learn to put my body first. I

have to remain open to new ideas, keep eating more vegetables (doesn't that

seem to be the answer to everything), make organic juice, remember all my

supplements, detox and exercise - sheesh - some even think I'm boring or

overly anal - but I have to be; cause only I know how I feel and what will

work and what doesn't.

I have to trust my body to tell me what it needs (and ignore the chocolate

cravings - well most of the time) because the other side of this, for me, is

I've realized life is shorter than I thought - so

Life's short, eat dessert first - ain't such a bad slogan after all.....

Be well my friends,

_____

From:

[mailto: ] On Behalf Of Jeannie

Sent: Thursday, August 19, 2010 7:53 AM

Subject: Re: [ ]OT: Ticks carrying bart

Good morning everyone. I got bit in 1992 (had bull's eye rash) cleaning out

a trailer that the family used when we went camping in Northern California.

I was treated for SIX months of abx. Had an emergency hysterectomy (1994)

and it reawakened and activated my Lyme. From 1994 to 5/2010 all the doctors

I saw said it was Chronic Fatigue and Fibromyalgia always even when I

mentioned being bit.

Last month I found out I had Late stage Lyme. I'm angry at what I have lost

in my life, my career, my marriage, my home. I lived alone for a few years

until I felt like I was slowly dying. I have been through first abx

treatment and nothing. Now doing a CD57 to see the numbers there. What I

wanted to say is I got bit not by an adult tick but a Nymph and that tick

was not on a deer, because he was too small for a deer or the deer to big,

but that tick and others in that trailer were on Deer Mice!!! You just never

know.

As for being alone, I have three grown kids in their late 20's and parents,

what little friends remain - but none believe me that I'm sick. " You are too

pretty to be sick " WHAT!?? " You don't look sick at all " . You can have people

around you and still feel all alone and lonely. I'm taking it one day at a

time.

Just my two cents worth... Gotta get ready, another doctor appt. the Lyme or

co-infections is trying to take my hearing away... So I'm fighting that too.

Sorry for going off and venting. I hope that if any of you need someone to

talk to... Let me know and I'll give you my number and support. I know how

lonely this illness really is.

((Hugs))

Jeannie

Have a good day!

[ ] Re: Being Alone

Sent by:

<mailto: %40>

>

> I am also pretty sure that I have Bartonella. I tried to sell

> that to an infectious disease doctor but she actually laughed. " Ticks

> do not carry Bartonella! " she cried. When I got home I googled; Ticks

> - Bartonella - CDC and sure enough they said that ticks DO CARRY

> Bartonella.

Ticks carry Bartonella, but some scientists/medics doubt that you can get

Bart from a tick byte. Apparently that has never been proven, although

there is lots of indirect evidence that it happens (e.g. from lymies with

coinfections). In my country (Netherlands) many docs also claim that you

can't get Bart from a tick byte.

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