Re: auto-immune AND IVIG'S

March 9, 2010

> The treatment they are all suggesting is called IVIG, which is >pooled blood

from thousands of donors. This treatment is used in >autoimmune diseases, most

notably CIDP

Hi Kate,

Id talk to a few more lymies, experts etc before the IVIG's. I had Lyme for a

long time before diagnosed as well with auto immune reactions..And what was my

first treatment .. 4 IVIG's !!

IVIG's essentially are immune factors from so many different people hoping to

give our immune system a boost. It worked for my x lyme doc whom had/has Lyme,

helped in the sense of symptoms. But, as Ive read mens immune systems are not as

strong/reactionary as females, so it would make sense theyd be less likely to

develop Auto immune disease.

But, it made me worse .. and logically, if a persons immune system is over

reactive, how is bombarding them with all sorts of antigens going to help them.

We Build immunity to things we are exposed to normally and thats what IVIG is ..

except from a large pool of donors. We get those immune responsive. Not to

mention all the things they dont/cant screen for at all levels. Getting

bombared by a hord of immune reactive cells made me very ill. Unless there is

something I dont understand, it doesnt make sense unless a person has not

developed to the stage of Auto Immune Disease.

We all want to trust and think we couldnt possibly get any worse because we

feel soooooooo bad. But, we can and do get worse to the point of being bed

bound, even death from thick blood causing heart attacks etc. I went through

all this since 99 .. and am just trying to control the worst symptoms.

Please get to understand the specific cases IVIG has helped before preceeding.

Again, it made me much worse. Just questioning, I just dont want people to get

sicker through not well thought out treatment.

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