Guest guest Posted September 7, 2009 Report Share Posted September 7, 2009 Prior to Feb 2002 .. I had the standard Lyme symptoms, spacie most the time, and really bad physical fatigue upon usage of energy at a normal or more level. So, I had energy part of the time. In Feb 2002 I had some form of attack, either Hypercoagulation causing a Metablic Disorder or a Metabolic Disorder itself causing the attack. It killed Any energy except on rare occasion, Huge weight gain in 3 wk period of time with only low to med calory intake. Sixty pounds in 3 weeks. When my neighbors saw me their jaws literally dropped. I craved pepsi .. curious of this, I found that all sodas contain a lot of phosphates and pepsi was the only soda I on occasion drank. In addition to the symptoms above, the attack made my Heart unstable, Brain unstable (scarey stuff), Id end up in the emergency rm often, theyd ck my heart nothing more and send me home. My limbs where very painful but were not swollen. When theyd occur which was almost daily always on the edge of having them...all I could do is take Vistaril, apam and smell/rub Lavendar E.O. on my scalp neck and chest and curl up in a ball waiting for it to subside. I still use these today. All these symptoms continued for years until I had a heart attack in Mar 2006, so with self treatment along with plavix aspirin Im able to for the most part control the newer symptoms of constant heart palpatation .. havent found any med to control high blood pressure though. Id have adverse reactions to all meds and stephenia root which is suppose to lower blood pressure. Oxygen via Oxygen Concentrator is the only thing that bring it down somewhat, not enough though. So, no energy .. weight gain Im thinking some sort of Metabolic Disorder with ?? which controls the usage and storage of energy. I can not loose weight, only gain still today. And Ive always had a high metabolic rate and have been thin most of my life. Could it be just Kreb cycle related or more .. anyone have any clues ?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2009 Report Share Posted September 7, 2009 Chc, I cannot comment on the reasons for your met. syndrome. I have it too. Because i cannot really exercise that works against me. D-Ribose helps me when I am too hungry. It knocks your blood sugar back. Don't use it if you feel low blood sugar, it can make that worse. Doug From: chc166 <cincin166@...> Subject: [ ] Metabolic Disorders caused by Lyme ?? Date: Monday, September 7, 2009, 7:31 PM Prior to Feb 2002 .. I had the standard Lyme symptoms, spacie most the time, and really bad physical fatigue upon usage of energy at a normal or more level. So, I had energy part of the time. In Feb 2002 I had some form of attack, either Hypercoagulation causing a Metablic Disorder or a Metabolic Disorder itself causing the attack. It killed Any energy except on rare occasion, Huge weight gain in 3 wk period of time with only low to med calory intake. Sixty pounds in 3 weeks. When my neighbors saw me their jaws literally dropped. I craved pepsi .. curious of this, I found that all sodas contain a lot of phosphates and pepsi was the only soda I on occasion drank. In addition to the symptoms above, the attack made my Heart unstable, Brain unstable (scarey stuff), Id end up in the emergency rm often, theyd ck my heart nothing more and send me home. My limbs where very painful but were not swollen. When theyd occur which was almost daily always on the edge of having them...all I could do is take Vistaril, apam and smell/rub Lavendar E.O. on my scalp neck and chest and curl up in a ball waiting for it to subside. I still use these today. All these symptoms continued for years until I had a heart attack in Mar 2006, so with self treatment along with plavix aspirin Im able to for the most part control the newer symptoms of constant heart palpatation .. havent found any med to control high blood pressure though. Id have adverse reactions to all meds and stephenia root which is suppose to lower blood pressure. Oxygen via Oxygen Concentrator is the only thing that bring it down somewhat, not enough though. So, no energy .. weight gain Im thinking some sort of Metabolic Disorder with ?? which controls the usage and storage of energy. I can not loose weight, only gain still today. And Ive always had a high metabolic rate and have been thin most of my life. Could it be just Kreb cycle related or more .. anyone have any clues ?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2009 Report Share Posted September 7, 2009 Hi Doug, Did your total lack of energy happen all at once like mine ? or gradual. Now, having enough energy to push through things, but experience negative consequences after at some point is what most ex[eroemce with Lyme. Which best describes your energy or lack of ?? If I have energy to do Anything its every 6-8 weeks, almost feeling normal energy..then back to NO energy. My Weight Gain Had NOTHING to do with food intake or Caloric Intake .. as I described but you seemed to be thinking/emplying through 'dealing with blood sugar when I get to hungry " .. Im seldom hungry in fact. Cyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2009 Report Share Posted September 8, 2009 > So, no energy .. weight gain Im thinking some sort of Metabolic Disorder with ?? which controls the usage and storage of energy. I can not loose weight, only gain still today. And Ive always had a high metabolic rate and have been thin most of my life. > > Could it be just Kreb cycle related or more .. anyone have any clues ?? You can't gain serious weight if you are not eating enough. So maybe your metabolic rate has changed, that could make a huge difference - probably a hormonal issue. If you don't have any energy left in the body you can't gain weight either, because adding weight costs energy. Regarding the Krebs cycle: there are thousands of reactions going on in energy metabolism. One of the few things that is known is that in Lyme the mitochondria (our power plants) are often messed up, probably because Bb used parts of them (like certain lipids) for its own maintenance. Maybe they also produce toxins that jam our metabolism, although nothing like that is proven fact AFAIK. In such a condition you start getting anaerobic metabolism, which is very inefficient. Think of what you get after too much excercise (painful muscles from lactic acid, heavy sweating, trembling, almost no power etc.) I developed severe weight loss after the Lyme started, and nowdays I am also very low on energy. I went from 63 kg (male, 171 cm length - so that is very low weight) to about 55 kg, a little more again nowadays. I have high metabolic rate, normally I don't gain weight even if I eat a lot, but after the Lyme I have to pay attention, otherwise I keep losing weight. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2009 Report Share Posted September 8, 2009 Chc, my lack of energy is mostly babesia. My lyme proprer is dormant somewhere. My metabolic syndrome was happening before I got chronic lyme 2 & 1/2 years ago. I am not sure if my big appetite is due to my metabolic syndrome, or my candida or both. Most times I feel I could outeat a football player. I think ever since my babesia really settled in my lack of energy is sort of chronic. I can do things, just not as intensely. Doug From: chc166 <cincin166@...> Subject: [ ] Re: Metabolic Disorders caused by Lyme ?? Date: Monday, September 7, 2009, 11:17 PM Hi Doug, Did your total lack of energy happen all at once like mine ? or gradual. Now, having enough energy to push through things, but experience negative consequences after at some point is what most ex[eroemce with Lyme. Which best describes your energy or lack of ?? If I have energy to do Anything its every 6-8 weeks, almost feeling normal energy..then back to NO energy. My Weight Gain Had NOTHING to do with food intake or Caloric Intake .. as I described but you seemed to be thinking/emplying through 'dealing with blood sugar when I get to hungry " .. Im seldom hungry in fact. Cyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2009 Report Share Posted September 8, 2009 It was the same way for approx 3 yrs, when Lyme Decided to come on strong. I lost a lot of weight and could eat anything, though I didnt except the first year or so when I could still travel. Many days Id forget to eat .. so spacie ... wierd .. I understand every body process takes some energy..Main point in my situation was it was Over Night thing, a result of some kind HUGE attack that took me out of the game totally, effecting heart, nuero, limb pain without it showing in tests when Id go to the doc's..but Id be crawling to the doctors or by way of ambulance. In theory, could Hypercoagulation create A Sudden Onset of this sort that continued to last for years ? The hypercoagulation I think is at the source of a lot of Lyme symptoms, letting no nutrients etc in our bodies .. and no waste out. Thats why I stress it being such a biggie on here. But, in sudden onset .. what would most likely be effected in that fashion to cause those symptoms that was not already effected by having hypercoagulation for years prior ? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2009 Report Share Posted September 8, 2009 > In theory, could Hypercoagulation create A Sudden Onset of this sort that continued to last for years ? The hypercoagulation I think is at the source of a lot of Lyme symptoms, letting no nutrients etc in our bodies .. and no waste out. Thats why I stress it being such a biggie on here. I would say it is more likely to cause weight loss, because of insufficient absorption in the gut. And possibly all kinds of blood problems because of all the 'junk' that gets into the blood while it shouldn't be there, causing 'thick' blood, stacking of red cells, insufficient oxygen in the blood etc (causing loss of energy, maybe more parasites because of the low-oxygen environment that they prefer, etc.). > But, in sudden onset .. what would most likely be effected in that fashion to cause those symptoms that was not already effected by having hypercoagulation for years prior ? Something that can change quickly is hormones; could change overnight I guess. Lyme changes the pituary gland etc., and that affects many other glands - although I don't know how quickly those changes occur in Lyme. My guess is that changes in the gut or changes due to higher load of parasites develop much more slowly. Quote Link to comment Share on other sites More sharing options...
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