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  • 5 years later...

i am on my 3rd month of mepron and zithromax and i have seen improvements

recently like reduced pain and sensitivity to light and noise(i had to wear

sunglasses and earplugs all the time before). i also have reduced anxiety,

anger, etc. i have had a few good days here and there and have been riding the

herx up and downs...

DENISE PAPANIKOLAS <denisepap@...> wrote:

Hi- Just exactly how was your babesia treated. My daughter took

mepron for 6 weeks and the vertigo was worse than ever. She had to

stop. Is there something else that we could try?

Thanks,

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I took Zith and Mepreon for two years.........it took forevever, but it was

worth it. my sweats were so bad. I drank 1 gallon of water or more each

day and still would end up in ER dehydrated. hang in there,

Connie,

Re: [ ] babesia treatment

>i am on my 3rd month of mepron and zithromax and i have seen improvements

>recently like reduced pain and sensitivity to light and noise(i had to wear

>sunglasses and earplugs all the time before). i also have reduced anxiety,

>anger, etc. i have had a few good days here and there and have been riding

>the herx up and downs...

>

> DENISE PAPANIKOLAS <denisepap@...> wrote:

> Hi- Just exactly how was your babesia treated. My daughter took

> mepron for 6 weeks and the vertigo was worse than ever. She had to

> stop. Is there something else that we could try?

> Thanks,

>

>

>

> The book, Confronting Lyme Disease: What Patient Stories Teach Us, is

> available through Amazon and Booksurge Bookstores. Please visit the

> official website at http://www.confrontinglyme.com for more information.

>

>

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My wife took the Zithro/Mepron combo for three weeks. The symptoms

resolved without any relapse. I have yet to see any published data

that suggests that treatment beyond the typical 7 days is necessary.

While there is some controversy in the medical literature about the

length of treatment for Lyme, the treatment for Babesia seems to be

pretty uncontroversial. Also, I see no evidence that Babesia

treatments cause Herx reactions.

I have heard it mentioned on the various Lyme lists and discussion

boards that Babesia must be treated until symptoms resolve. This is

contrary to the medical evidence. Studies have shown that symptoms of

Babesia may linger for several months after being effectively treated

with the standard 7 day course.

Here is a link to a short article about the Krause study (the study

that demonstrated the efficacy of the Zithro/Mepron combination.)

http://www.aafp.org/afp/20010601/tips/3.html

I know first hand how frustrating Babesia can be in itself. The side

effects of the treatments are almost as bad.

Haku

Lymeanalysis.zoomshare.com

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haha, that's funny! my insurance only paid for SIX days, not even seven!

....and you better believe that my doctor and i and the insurance company all

found it " controversial " !

shame, a person such as myself who has paid for not just health insurance, but

an $80/month great rx plan...oh, too bad they underwrote not covering

infertility drugs or lyme treatment, unless you were one nail away from a closed

coffin...

lanefist-i don't know what you are talking about with babesia not causing herx.

it's probably because you think that 7 days is sufficient treatment. i didn't

start herxing until following the 4th week. and it has been up and down since,

but the mepron and zith combo is definately helping me to get better.

and may i mention that the article that you give a link to is written by krause,

same guy who is a part of IDSA(aka the anti-lyme guys) and has been a part of a

very one-sided team.

lanefist <hakutsuru@...> wrote: My wife

took the Zithro/Mepron combo for three weeks. The symptoms

resolved without any relapse. I have yet to see any published data

that suggests that treatment beyond the typical 7 days is necessary.

While there is some controversy in the medical literature about the

length of treatment for Lyme, the treatment for Babesia seems to be

pretty uncontroversial. Also, I see no evidence that Babesia

treatments cause Herx reactions.

I have heard it mentioned on the various Lyme lists and discussion

boards that Babesia must be treated until symptoms resolve. This is

contrary to the medical evidence. Studies have shown that symptoms of

Babesia may linger for several months after being effectively treated

with the standard 7 day course.

Here is a link to a short article about the Krause study (the study

that demonstrated the efficacy of the Zithro/Mepron combination.)

http://www.aafp.org/afp/20010601/tips/3.html

I know first hand how frustrating Babesia can be in itself. The side

effects of the treatments are almost as bad.

Haku

Lymeanalysis.zoomshare.com

---------------------------------

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hey pam, i am on month 3 of mepron and zith and i have had nothing but

improvement up and up! i understand that 3 months is kinda the standard and if

you are still not well or recurr after stopping abx, then you may do another 3

months and so on...

Pam <pamlangland@...> wrote: I was treated

for Babesia for only 10 days with Mepron & Zythromax. Has

anyone ever heard of such a short treatment time being effective for

Babeosis. I did improve greatly with the light sensitive/ heat

sensitive issues but still have dizziness when I am not on Lyme

antibiotics.

---------------------------------

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My understanding from a single study done / referenced by the IDSA (that I am

trying to find!) in the treatment of Babesia-Microti was that treatment on

Mepron + Azithro is for 21-days to 1-month.

The issue (to me) that might cause problems is that there are approx.

13-strains of Babesia, of which the European infections have been found to be

more severe... however I have not to date been able to find any journals or

published research on the treatment of European strains of Babesia.

http://www.springerlink.com/content/8t0j4ja0xdu6thqf/

Babesia microti Infection in Europe

Abstract: The majority of babesia infections in Europe are life-threatening

and caused by Babesia divergens and B. bovis. Although Babesia microti has been

detected in ticks from Switzerland, few if any cases of babesiosis have been

caused by B. microti. This first reported case, diagnosed by serology, DNA

detection, and microscopy, is additionally interesting because there appears to

be coinfection with the Lyme disease organism, Borrelia burgdorferi.

Lastly, I would also wonder about any 'new' strains or cross-over infection

similar to Babeisa that is carried by migratory birds. This is an area of

research that is (finally) gaining publication to show that 'standard'

infections may not be the case of what was considered a 'local' infection.

---------------------------------

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Haku,

Your post is interesting and I am glad that your wife was 'successfully'

treated with such a short doseage.

In my case with a European infecton... I have been re-tested for Babesia every

3-4 months since last April and my blood tests support my log of on-going

symptoms. They have lessened while on Mepron + Azithro... but they are still

there. Whether it is the other batch of 'co-infections' and/or additional

infectioins that I seem to have picked up that is causing a need for prolonged

treatment, I cannot say NOR has there been any research done / published on Lyme

infected patients who are (eventually) found to have other infections that are

delaying and/or causing problems with 'standard' treatment protocaul.

---------------------------------

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with the All-new

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I was treated for nearly 2 years.........that is how long it took to get rid

of those awful sweats that would dehydrate me even drinking a gallon or

more of water a day.

I don't regret the treatment....my basbs only acts up occ and the sweats are

so minimal. not everyone is the same.

Connie, Michigan

Re: [ ] babesia treatment

> hey pam, i am on month 3 of mepron and zith and i have had nothing but

> improvement up and up! i understand that 3 months is kinda the standard

> and if you are still not well or recurr after stopping abx, then you may

> do another 3 months and so on...

>

> Pam <pamlangland@...> wrote: I was

> treated for Babesia for only 10 days with Mepron & Zythromax. Has

> anyone ever heard of such a short treatment time being effective for

> Babeosis. I did improve greatly with the light sensitive/ heat

> sensitive issues but still have dizziness when I am not on Lyme

> antibiotics.

>

>

>

>

>

>

>

>

> ---------------------------------

> Be a better friend, newshound, and know-it-all with Mobile. Try it

> now.

>

>

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I have been on Mepron Zith for the past 3 months, and for the first

month I had little to no herx or any negative reactions, in fact I

felt better than I had in a long time. My LLMD added Artemesia and

ever since I have been in herx hell. I can't get any kind of relief

from the headaches, and my noise and light sensitivity has gone

through the roof.

I feel like I did when I was initially infected back in Oct 2006. I'm

hoping this is all working, but right now I'm not feeling great.

Hoping you all the best of health.

Joe

>

> Haku,

>

> Your post is interesting and I am glad that your wife was

'successfully' treated with such a short doseage.

>

> In my case with a European infecton... I have been re-tested for

Babesia every 3-4 months since last April and my blood tests support

my log of on-going symptoms. They have lessened while on Mepron +

Azithro... but they are still there. Whether it is the other batch of

'co-infections' and/or additional infectioins that I seem to have

picked up that is causing a need for prolonged treatment, I cannot say

NOR has there been any research done / published on Lyme infected

patients who are (eventually) found to have other infections that are

delaying and/or causing problems with 'standard' treatment protocaul.

>

>

>

> ---------------------------------

> Be smarter than spam. See how smart SpamGuard is at giving junk

email the boot with the All-new

>

>

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i think the reason why supposedly it is fatal in 90% of patients in europe is

because many of them are asplenic. same goes for those in the 10% fatality in

the US-they are typically asplenic.

Charolette <iamcharolette@...> wrote: My

understanding from a single study done / referenced by the IDSA (that I am

trying to find!) in the treatment of Babesia-Microti was that treatment on

Mepron + Azithro is for 21-days to 1-month.

The issue (to me) that might cause problems is that there are approx.

13-strains of Babesia, of which the European infections have been found to be

more severe... however I have not to date been able to find any journals or

published research on the treatment of European strains of Babesia.

http://www.springerlink.com/content/8t0j4ja0xdu6thqf/

Babesia microti Infection in Europe

Abstract: The majority of babesia infections in Europe are life-threatening

and caused by Babesia divergens and B. bovis. Although Babesia microti has been

detected in ticks from Switzerland, few if any cases of babesiosis have been

caused by B. microti. This first reported case, diagnosed by serology, DNA

detection, and microscopy, is additionally interesting because there appears to

be coinfection with the Lyme disease organism, Borrelia burgdorferi.

Lastly, I would also wonder about any 'new' strains or cross-over infection

similar to Babeisa that is carried by migratory birds. This is an area of

research that is (finally) gaining publication to show that 'standard'

infections may not be the case of what was considered a 'local' infection.

---------------------------------

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  • 1 year later...

I have starated a new babesia herbal available locally. My LLMD wants me to try

it; the theory is that if I herx, it means I still have babesia. The problem I

have is that I have a hard time distinguishing between a 'herx' and just the

normal variation in this constellation of illnesses. This morning I feel like I

was run over by a truck! Have had more sweats, but that seems to come in spells

anyway. Any hints?? jo

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