Guest guest Posted September 23, 2009 Report Share Posted September 23, 2009 > > In trying to figure out my own hair loss with itchy red (can have odor) scalp problem) .. like I dont want to lose all my hair !! Ive learned that most eczema, psoriasis and other skin conditions are auto immune related .. over active immune system most likely due to a pathogen like Lyme or whatever else is activing our immune systems to the point of causing these and so many other problems.. yes, I lost the bulk of my hair due to scalp problems (mostly thinning, so you don't notice from a distance). Also had the strange smell from the scalp for a long time, but that is gone now. My MD says the hair loss is just because of my age, but funny that my twin brother does not have these problems ;( > Ive tried so many things to get rid of it, but the best luck Ive had to even control it is the use of Iodine which you can get at any drug store walmart etc, 10 percent typically, use once or twice a day on effected areas and see if that helps, I put mix it with my shampoo, 2 parts shampoo, one part Iodine. Iodine does effect the thyroid so watch for any odd symptoms.. doesn't Iodine indirectly stimulate the immune system? If the problem is auto-immune or hyperactive immune system, I would guess iodine could make things worse ... because I have some hypothyroid symptoms I started using a bit of kelp every day (drink it with chlorella 1-2 times a day, also for detox). No improvement yet, but it is probably to early for that anyway. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2009 Report Share Posted September 23, 2009 Knotweed- After reading more of your symptoms, I would definitely beef up your liver support. I know that when I do that a lot of my symptoms lessen. They may not go away, but it sure is a sign that my liver is working so very hard to process all that stuff. Some of the things I am doing are: - Unda 243 (a homeopathic remedy) - milk thistle - BioRay LiverLife - Lemon drink (blend up a whole organic lemon with 1 1/2 cups water and 1 tablespoon olive oil, strain and throw out pulp and drink a few time a day-supposed to help with weight gain if you drink before a meal) - Dry Skin Brushing and Chi Machine (this helps a LOT with circulation, especially the inexpensive Chi Machine) Some of it may seem kinda wacky, but after a few years of trying a lot of different things, these seem to make a difference. I just listed to give you some ideas, everyone responds differently. I also had to completely eliminate the gluten and dairy and a few other things that seemed to increase symptoms (corn, nightshade vegetables). I added in Colostrum and Thymic Protein A (a really effective addition). Also use Modifilan. All of this is in addition to the Buhner Core Protocol. It is hard to accept that you have to so completely change things and it took me a while to do it, ESPECIALLY the food part. I also recently added a Whey Protein Isolate in shakes every day to help with weight (I too am way underweight) and boost to glutathione production. Sorry for more info than you probably wanted, but thought I would put this out there anyway. Jane > > > > In trying to figure out my own hair loss with itchy red (can have odor) scalp problem) .. like I dont want to lose all my hair !! Ive learned that most eczema, psoriasis and other skin conditions are auto immune related .. over active immune system most likely due to a pathogen like Lyme or whatever else is activing our immune systems to the point of causing these and so many other problems.. > > yes, I lost the bulk of my hair due to scalp problems (mostly thinning, so you don't notice from a distance). Also had the strange smell from the scalp for a long time, but that is gone now. My MD says the hair loss is just because of my age, but funny that my twin brother does not have these problems ;( > > > > Ive tried so many things to get rid of it, but the best luck Ive had to even control it is the use of Iodine which you can get at any drug store walmart etc, 10 percent typically, use once or twice a day on effected areas and see if that helps, I put mix it with my shampoo, 2 parts shampoo, one part Iodine. Iodine does effect the thyroid so watch for any odd symptoms.. > > > doesn't Iodine indirectly stimulate the immune system? If the problem is auto-immune or hyperactive immune system, I would guess iodine could make things worse ... > > because I have some hypothyroid symptoms I started using a bit of kelp every day (drink it with chlorella 1-2 times a day, also for detox). No improvement yet, but it is probably to early for that anyway. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2009 Report Share Posted September 23, 2009 knot_weed, Just a guess here... your twin was never exposed to CS gas, right? I know this is off topic, but so many of us are brought here by a combination of life experiences that include organophosphate or pesticide exposure - I think it's worth talking about it here. Nerve gases and most insecticides are organophosphates. Organophosphates bind to many structures within the body, not just nervous tissue. For the first week or two, the bonds are reversible, but with acute cases such as yours, the body has no way to create enough of the enzyme acetylcholinesterase (AChE) unbind and remove the toxins. Normally, we create only enough to make the nervous system work. Organophosphates fit exactly where normal muscular and synaptic regulators ordinarily fit. That's why they work so well as neurotoxins on people and bugs. The sad thing with organophosphates however is that after a couple weeks, the bonds become permanent. In other words, organophosphates have permanently damaged your neurological and other systems. Whole normal pathways of thinking, motor-coordination, remediation and healing have been blocked. If you had been treated with acute remediation therapy within a couple weeks of exposure, you would probably be okay today. There are many out there, however, who suffer from extreme-low-dose chronic exposure to pesticides who will never have that opportunity because their bodies simply don't have the ability to metabolize organophosphates. Insects are entirely incapable of metabolizing them - that's why they work so well as insecticides. Nerve gas _is_ what it is, eh? However, your immune system is a marvel. Even with the damage, you are capable of incredible survival odds. Your continued life is a credit to millions of years of human evolution in that other as-yet-uncompromised systems have attempted to take up the slack and take over where your first-line systems have failed. As you're seeing, however, the body can only cope to a point. Sometimes all it takes is one seemingly tiny thing to tip an already precarious balance. And that one imbalance finally manifests all your previous overloads as obvious and visible damage. The manifestations of skin problems are a perfect example of what happens as kidney, liver and spleen begin to reach the limits of their own resources. There are toxins in the body. If the liver can't filter them, the lymph system can't absorb them, or the kidneys can't wash them out, they attempt to release with sweat through the skin - the biggest, and ironically, most forgotten organ of the body. In other words, your skin is attempting to heal what your other systems could no longer handle. (That's the theory behind sweat lodges or sauna therapy - make the skin hot enough to sweat well and profusely to help it purge toxins.) Just one acute over-exposure may have made your immune system compromised enough that when you got Lyme, it was just another brick removed from the wall of your immune system. Since lyme messes directly with your immunity, what's happening to you makes total sense. Yes, you have a right to be outraged by the use of CS in the late 70's/early 80's. If this had happened in the US, there would likely be a class-action suit you could join. Not being litigious, let me suggest that this is water under the bridge, and that now is the time to look forward to cure. As it is, your government provides (ostensibly) full health care needs for you, so it may just be a case of pin-pointing a remediation therapy for organophosphate poisoning. Don't let the medical 'establishment' tell you there is nothing that can be done. There is. If I were in your position, I would be dosing with a three-roots extract of Yellow dock, burdock and dandelion, in conjunction with milk thistle extract. Religiously. These support the liver, kidney and spleen. I'd also be taking nattokinase to help with the 'sticky blood' thing. The nice thing about all of these herbs is that they are _support_ herbs - not _attack_ herbs, so you should not experience any herx reactions. I would be careful with dosing if I were light in weight for my height. Another consideration might be essiac tea, or one of its generic equivalents. There are attack herbs in essiac, so they may not be for one in your current condition. It might be better to start with the support herbs and work towards a plateau of higher function before going there. And one can easily overdose with essiac, so care is needed with that. While eleuthero is not part of the 'core four' in Buhner's book, I believe he now considers it to be more core than andrographis, and will probably change this in his next edition. I would be taking eleuthero too. I'm not sure I would advocate sauna therapy with such low fat reserves. As with everything I've said here - don't take my word for it. Check with your local doctor and a good local herbalist you trust. I hope this helps. .... > > When I was 19, I was exposed to a huge dose of CS-gas during squatting riots in Amsterdam. CS is a nerve gas that was used as a riot control agent in the Netherlands at the time; it is very dangerous but was used anyway for a long time. > The cops thought I was taking pictures of secret police officers who were molesting civilians (they did that on a massive scale to scare civilians and keep them away from the scenes). They fired five full CS grenades on me, I was dragged away partly unconscious by some bystanders. > > The few years after that I had very serious 'unexplained' skin problems (mostly severe 'peeling') in the exposed areas: face, neck, hands. Later I learned that other people had similar problems after exposure to CS gas. After 5-10 years the problem gradually disappeared. My neurologist for Lyme told me that this special gas damages the nerve endings and can cause all kinds of trouble. The current problems started quickly after the tick byte (5 years ago) and are in roughly the same area. > > Could be coincidence of course ... But maybe the Lyme has caused the 'toxin' problem to reappear? With all the strange things that are going on in Lyme nothing surprises me. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2009 Report Share Posted September 23, 2009 > > Knotweed- After reading more of your symptoms, I would definitely beef up your liver support. I started with milk thistle (silymarin 380 mg daily) a few weeks ago. Maybe I should increase the dose? > - Lemon drink (blend up a whole organic lemon with 1 1/2 cups water and 1 tablespoon olive oil, strain and throw out pulp and drink a few time a day-supposed to help with weight gain if you drink before a meal) thanks, I heard about that before and have started to drink some glasses of strongly diluted lime (sounds nice for Lyme, isn't it) juice a few times a day. With the olive oil it sounds a bit like the 'liver cleanse' protocols. Interesting that it could help gain weight, is that because it helps digestion? Does this mean one lemon a day (use the whole cup in the course of the day) or several lemons a day (would get expensive I guess ...)? > - Dry Skin Brushing and Chi Machine (this helps a LOT with circulation, especially the inexpensive Chi Machine) I'm sure my skin cannot handle that; it is extremely fragile > I also had to completely eliminate the gluten and dairy and a few other things that seemed to increase symptoms (corn, nightshade vegetables). I added in Colostrum and Thymic Protein A (a really effective addition). Also use Modifilan. All of this is in addition to the Buhner Core Protocol. eliminating nightshade vegetables sounds really tough; that's more than half of my veggies > It is hard to accept that you have to so completely change things and it took me a while to do it, ESPECIALLY the food part. yes, accepting is the most difficult part I guess - I think I still don't want to accept it. I think I will start baking my own glutenfree bread (maybe teff bread, still have to check what is available locally and not too expensive). > I also recently added a Whey Protein Isolate in shakes every day to help with weight (I too am way underweight) and boost to glutathione production. yes, I have started with wey protein too some weeks ago, mostly because I have lost too much muscle. I have trouble taking it every day (just like the pills), I probably need a more solid schedule. And exercising makes me feel really bad, so I only do some simple stuff with small dumbbells (major muscle loss in my arms/shoulders/chest). > Sorry for more info than you probably wanted, but thought I would put this out there anyway. thanks a lot! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2009 Report Share Posted September 23, 2009 > > knot_weed, > > Just a guess here... your twin was never exposed to CS gas, right? no definitely not - he was studying in another city > I know this is off topic, but so many of us are brought here by a combination of life experiences that include organophosphate or pesticide exposure - I think it's worth talking about it here. yes, and I don't think it is completely off topic. I have heard such stories so often that it almost seems part of the Lyme disease. Although sometimes it is not 'chemical' stress but probably emotional stress or severe trauma. But many, many times it is not JUST the tick byte. > Nerve gases and most insecticides are organophosphates. I remember some of the story from long ago (about five years after I got hit with the stuff, I had to investigate for the university because there were many questions about it from the public. I don't remember that they had a 'remedy' at that time (eighties) though. > However, your immune system is a marvel. ... As you're seeing, however, the body can only cope to a point. Sometimes all it takes is one seemingly tiny thing to tip an already precarious balance. And that one imbalance finally manifests all your previous overloads as obvious and visible damage. The manifestations of skin problems are a perfect example of what happens as kidney, liver and spleen begin to reach the limits of their own resources. There are toxins in the body. If the liver can't filter them, the lymph system can't absorb them, or the kidneys can't wash them out, they attempt to release with sweat through the skin - the biggest, and ironically, most forgotten organ of the body. In other words, your skin is attempting to heal what your other systems could no longer handle. (That's the theory behind sweat lodges or sauna therapy - make the skin hot enough to sweat well and profusely to help it purge toxins.) yes, that sounds so true ... > Just one acute over-exposure may have made your immune system compromised enough that when you got Lyme, it was just another brick removed from the wall of your immune system. Since lyme messes directly with your immunity, what's happening to you makes total sense. yes; just to be sure, I was probably bitten twice. First in 1999; I did not see the tick, had never heard about them; there was an insect byte that left a permanent 'nodule' under my skin (encapsulated mouth part of a tick?). Mild symptoms started then, but mostly disappeared over the next year or so. Bitten again in 2004 with tick visible and EM shortly after. Two bricks in the wall .. > Yes, you have a right to be outraged by the use of CS in the late 70's/early 80's. If this had happened in the US, there would likely be a class-action suit you could join. Not being litigious, let me suggest that this is water under the bridge, and that now is the time to look forward to cure. As it is, your government provides (ostensibly) full health care needs for you, so it may just be a case of pin-pointing a remediation therapy for organophosphate poisoning. zero chance in lawsuits against the government here, and even if they were convicted the fine would not even cover the lawyer costs. I don't think they will provide health care either, because it is too long ago. For the MD's my problems are just 'unexplained' and they don't want to be bothered with it. Over the years I have consulted about a dozen, and none of them were interested except for the first one at the university - who said right away he could not do anything for me, but would be interested to study the phenomenon. And our 'free healthcare system' (with obligatory payment) only covers very basic things, not special therapies - you have to pay those out of your own pocket. Don't believe all the news stories about the good healthcare system in Netherlands!! > Don't let the medical 'establishment' tell you there is nothing that can be done. There is. If I were in your position, I would be dosing with a three-roots extract of Yellow dock, burdock and dandelion, in conjunction with milk thistle extract. is that something available off-the-shelf, of something you have to make your own? Any pointers to more info? > Religiously. These support the liver, kidney and spleen. I'd also be taking nattokinase to help with the 'sticky blood' thing. The nice thing about all of these herbs is that they are _support_ herbs - not _attack_ herbs, so you should not experience any herx reactions. I would be careful with dosing if I were light in weight for my height. I will start with the nattokinase (plus silymarin, lemon juice, eleuthero and resveratrol). Maybe add the three-roots extract after that - I prefer not to change too much at the same time, just in case there are adverse effects. > While eleuthero is not part of the 'core four' in Buhner's book, I believe he now considers it to be more core than andrographis, and will probably change this in his next edition. I would be taking eleuthero too. yes, eleuthero is on my list after hearing a recent Buhner speech. Seems expensive though (I can only get the small bottles from iHerb). I did use andro a lot but never seemed to have effect (except for the bad taste and sometimes smell from the skin); so after my current stock runs out I will stop using it. I'm doubting if I will continue the catsclaw, didn't notice much effect from that either, and I have heard it can be a bit hard on the liver if you take it for a prolonged time. > I'm not sure I would advocate sauna therapy with such low fat reserves. Even a hot bath is uncomfortable, but I try it sometimes anyway. I also think I might have some heart/bp problems (sometimes I nearly faint when I stand up from seating/kneeling position). So because of that sauna could also be dangerous. > As with everything I've said here - don't take my word for it. Check with your local doctor and a good local herbalist you trust. > > I hope this helps. sure it helps, a lot of interesting ideas. And I hope others will recognize some of the problems and suggestions and benefit from it. too bad I don't have any trusted herbalist here, I think they have to work a bit outside the view of the government (who is trying to ban them). I did learn a lot over the last two years, reading a few of s books and some other material on the internet. It is very interesting, also when combining/confronting it with my biochemical universe. What a waste that our governments are trying to ban all this, or at least keep the public uninformed Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2009 Report Share Posted September 23, 2009 > eliminating nightshade vegetables sounds really tough; that's more than half of my veggies > Sorry, knot_weed, but I have to agree with rominick here. Nightshades are poison for the impoverished immune system. It really is best to stop them altogether - tomatoes, potatoes, peppers, paprika, eggplant, tobacco, and any and all condiments made with them as constituents in any quantity. There is a reason people in the 1800's thought tomatoes were poison. They really are for some of us. Many of us with lyme-related problems end up not being able to eat any of the constituents of our favorite things: pizza... lasagna... anything with nightshades, gluten or dairy. Unfortunately that means whole aisles of prepared foods we'll never be able to eat again. However, the good news is that avoiding eating them means we get a huge reprieve from a good number of the harshest symptoms - so long as we keep abstaining. You would be surprised how inventive you can be. Lightly salted cooking cherries taste amazingly similar to tomatoes, except without the bitter nightshade edge. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2009 Report Share Posted September 23, 2009 > > is that something available off-the-shelf, of something you have to make your own? Any pointers to more info? > .... > I will start with the nattokinase (plus silymarin, lemon juice, eleuthero and resveratrol). Maybe add the three-roots extract after that - I prefer not to change too much at the same time, just in case there are adverse effects. > > > yes, eleuthero is on my list after hearing a recent Buhner speech. Seems expensive though (I can only get the small bottles from iHerb). I did use andro a lot but never seemed to have effect (except for the bad taste and sometimes smell from the skin); so after my current stock runs out I will stop using it. I'm doubting if I will continue the catsclaw, didn't notice much effect from that either, and I have heard it can be a bit hard on the liver if you take it for a prolonged time. Most people don't realize how easy it is to make your own extracts. I make my own extracts. If I had the land, I'd grow my own herbs too, but right now we don't. Here's a recipe I have used as an example for a three roots extract: 3 cups by volume - 100-proof vodka - (not from potatoes, please. Meh. Sometimes I buy everclear - 151 proof.) 1 oz. by weight dried burdock root cut, dried, sifted 1 oz. by weight dried yellow dock root cut, dried, sifted 1 oz. by weight dried dandelion root, cut, dried, sifted I usually mix the three oz. of herbs with a large, coarse mortar and pestle to try and offer some fresher open surfaces on the dried herb to the alcohol. I then put all my ingredients in a bottle and shake. Put it in a dark, room-temperature cupboard. Every day, two times a day for the next two weeks give the bottle a good shake. After two weeks, strain the liquid through a filter or a very fine-meshed tea strainer into dropper bottles. Done. Depending on my herb source, I would now have a reliable three roots extract. Eleuthero is the same way: 1 oz dried in a cup of 100 proof. It really is easy. I know many people trust 1stchineseherbs.com Frontier Herbs distributes to many local food co-ops and natural food stores in the States. I think you can buy from them directly, too. frontiercoop.com > Even a hot bath is uncomfortable, but I try it sometimes anyway. I also think I might have some heart/bp problems (sometimes I nearly faint when I stand up from seating/kneeling position). So because of that sauna could also be dangerous. Most lyme-related compromise seems to mean hot baths and steamy situations feel uncomfortable. Have you considered body-bulking supplements? They aren't just for weight trainers. They can help anyone put on weight. Rice-protein-based would probably be better absorbed than soy or whey, though it may not taste as good. I would also consider spirulina. A smoothie is a good way to drink these things. Add a banana and blueberries. Of course it all depends on what your body can handle. I would start slowly with small amounts, just like I do with any supplement. > > > As with everything I've said here - don't take my word for it. Check with your local doctor and a good local herbalist you trust. > > > sure it helps, a lot of interesting ideas. And I hope others will recognize some of the problems and suggestions and benefit from it. > Still applies here too. Not a doctor - just slinging ideas around. Thanks. > What a waste that our governments are trying to ban all this, or at least keep the public uninformed > I suspect it's less about good government officials and more about corporate lobbyists paying off crooked government officials to pass bad legislation because 'grandma' needs a hip replacement right now. Then they put a spin on it and tell us they're 'green' or 'wholesome' or 'improved'. Yeah, whatever. They'll ban books next. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2009 Report Share Posted September 24, 2009 > There is a reason people in the 1800's thought tomatoes were poison. AFAIK that was simply because most of the nightshade plants contain significant amounts of cyanide part of the season (which has been removed mostly by cultivating them). But I will consider this option, seems really tough Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2009 Report Share Posted September 24, 2009 see below.... > > > > Knotweed- After reading more of your symptoms, I would definitely beef up your liver support. > > I started with milk thistle (silymarin 380 mg daily) a few weeks ago. Maybe I should increase the dose? I would just add in another type of support. The Unda 243 is also good with digestion and I have found this one to be a good one and lasts a while. > > > > - Lemon drink (blend up a whole organic lemon with 1 1/2 cups water and 1 tablespoon olive oil, strain and throw out pulp and drink a few time a day-supposed to help with weight gain if you drink before a meal) > > thanks, I heard about that before and have started to drink some glasses of strongly diluted lime (sounds nice for Lyme, isn't it) juice a few times a day. With the olive oil it sounds a bit like the 'liver cleanse' protocols. Interesting that it could help gain weight, is that because it helps digestion? > Does this mean one lemon a day (use the whole cup in the course of the day) or several lemons a day (would get expensive I guess ...)? > I have heard/read (from a doctor) the Lime juice (1 lime a day) helps to stabilize blood sugar, but can also cause a big drop in blood sugar. So just watch that one. The lemon drink is one that I spread over a day and a half or 2 days (1 lemon) and only do about twice a month. Some may do more. I just forget to do it at times and that is what it works out to be. It is like a very mild liver cleanse without the epsom salts, etc. > > > - Dry Skin Brushing and Chi Machine (this helps a LOT with circulation, especially the inexpensive Chi Machine) > > I'm sure my skin cannot handle that; it is extremely fragile I had a hard time at first with the dry skin brushing (I have fair skin) and had to work up to it (natural bristles), but can handle it pretty well now. I started with a very light brushing. Even if you don't do this, the Chi Machine is pretty effective and also good for when you can't exercise. I can't even lift any weights due to my wrists being so weak and my finger joints. > > > > I also had to completely eliminate the gluten and dairy and a few other things that seemed to increase symptoms (corn, nightshade vegetables). I added in Colostrum and Thymic Protein A (a really effective addition). Also use Modifilan. All of this is in addition to the Buhner Core Protocol. > > eliminating nightshade vegetables sounds really tough; that's more than half of my veggies This was very hard for me as well. You may not need to. For me, there was an obvious reaction with my hands hurting afterward. Every now and then I will have a tomato, but usually pay a price still. I hope that this will change as some healing (wishful) takes place. > > It is hard to accept that you have to so completely change things and it took me a while to do it, ESPECIALLY the food part. > > yes, accepting is the most difficult part I guess - I think I still don't want to accept it. I think I will start baking my own glutenfree bread (maybe teff bread, still have to check what is available locally and not too expensive). > > > I also recently added a Whey Protein Isolate in shakes every day to help with weight (I too am way underweight) and boost to glutathione production. > > yes, I have started with wey protein too some weeks ago, mostly because I have lost too much muscle. I have trouble taking it every day (just like the pills), I probably need a more solid schedule. And exercising makes me feel really bad, so I only do some simple stuff with small dumbbells (major muscle loss in my arms/shoulders/chest). I am using the Now Whey Protein Isolate and this has been better for me. Others gave me trouble. So maybe experiment with different brands. > > > Sorry for more info than you probably wanted, but thought I would put this out there anyway. > > thanks a lot! > Hope things improve for you soon! Jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2009 Report Share Posted September 24, 2009 Good info, thanks for posting this. I will have to try the cherry thing! Jane > > > Sorry, knot_weed, but I have to agree with rominick here. Nightshades are poison for the impoverished immune system. It really is best to stop them altogether - tomatoes, potatoes, peppers, paprika, eggplant, tobacco, and any and all condiments made with them as constituents in any quantity. There is a reason people in the 1800's thought tomatoes were poison. They really are for some of us. Many of us with lyme-related problems end up not being able to eat any of the constituents of our favorite things: pizza... lasagna... anything with nightshades, gluten or dairy. Unfortunately that means whole aisles of prepared foods we'll never be able to eat again. However, the good news is that avoiding eating them means we get a huge reprieve from a good number of the harshest symptoms - so long as we keep abstaining. You would be surprised how inventive you can be. Lightly salted cooking cherries taste amazingly similar to tomatoes, except without the bitter nightshade edge. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2009 Report Share Posted September 24, 2009 It can be tough at times. I just had to take my oldest son (age 12) off of tomatoes as well due to a true allergy. He is so angry and for the last 3 weeks has been trying to talk me into letting him have just a little. I remember there being a lot of recipes for tomato-less sauces. Will have to look on the Internet for them again. I will say this, once you give it up and some time has gone by, you don't miss it quite as much. Especially if you have symptom relief as a result. Jane > > > There is a reason people in the 1800's thought tomatoes were poison. > > AFAIK that was simply because most of the nightshade plants contain significant amounts of cyanide part of the season (which has been removed mostly by cultivating them). > > But I will consider this option, seems really tough > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2009 Report Share Posted September 24, 2009 > > I would just add in another type of support. The Unda 243 is also good with digestion and I have found this one to be a good one and lasts a while. have to check where I can get that; apprently iHerb doesn't have it (I buy there mostly because they are cheap and fast with shipping to Europe ...). > I had a hard time at first with the dry skin brushing (I have fair skin) and had to work up to it (natural bristles), but can handle it pretty well now. I started with a very light brushing. Even if you don't do this, the Chi Machine is pretty effective and also good for when you can't exercise. I can't even lift any weights due to my wrists being so weak and my finger joints. my skin condition is really bad, very flaky, small cracks everywhere and dry (but the dermatologist calls it 'greasy'). Lots of overactive sebacious glands etc. It gets damaged very easily. I can handle 1 kg weights, not much more because of the problems with my 'pads'. With higher weight I risk bruising my hands (have the same problem when working too long with my DSLR camera ...). So I don't get a real workout this way. I'm still thinking about some kind of exercising machine that would work for me, without stressing the pads on my hand and feet too much. Maybe a rowing machine or something in that direction. Too bad that all this equipment is pretty expensive, and you can't tell if it works for you with just a quick try in the store or at a health centre A Chi Machine seems quite expensive here (around 500 euros) but maybe I have to check Ebay etc. Talking about 'Chi', I just read an interesting thread about Tai Chi and QiGong (probably wrong spelling, but you get the idea). I'm going to try that; have read some fascinating research about it. > This was very hard for me as well. You may not need to. For me, there was an obvious reaction with my hands hurting afterward. Every now and then I will have a tomato, but usually pay a price still. I hope that this will change as some healing (wishful) takes place. I have no immediate reactions to any food - tough to tell if there is a longterm influence. I will try removing the nightshade veggies. Fortunately it seems that courgette (zucchini in english?) is not nightshade, but strangely many Dutch websites say people with gluten / nightshade allergy shouldn't use it. It's my favorite veggie ... And I found that the sweet potatoes which I discovered last week in the health food shop are also allowed. > I am using the Now Whey Protein Isolate and this has been better for me. Others gave me trouble. So maybe experiment with different brands. currently have the Jarrow Formulas Whey protein, seems OK. (No new problems, but you never know ...). thanks again!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2009 Report Share Posted September 24, 2009 Knotweed - If you ever need help getting supplements, just let me know. I run a not for profit supplement co-op for autism families and only order high quality supplements. I can get the Unda for you at less than retail and ship it to you at cost. I have shipped internationally before so know the drill for most countries. Just PM me at greenecobean at cox.net. I have a website that you can look at. It is a private co-op, but it's purpose is to help those of us struggling and not just with autism. The Chi Machine is worth getting if you can. I can tell the days when I have missed it. The one I got was 93.00 USD at Amazon. It is a Supentown brand and I have seen them used as well. Good luck finding one if you can. Jane > > > > I would just add in another type of support. The Unda 243 is also good with digestion and I have found this one to be a good one and lasts a while. > > have to check where I can get that; apprently iHerb doesn't have it (I buy there mostly because they are cheap and fast with shipping to Europe ...). > > > > I had a hard time at first with the dry skin brushing (I have fair skin) and had to work up to it (natural bristles), but can handle it pretty well now. I started with a very light brushing. Even if you don't do this, the Chi Machine is pretty effective and also good for when you can't exercise. I can't even lift any weights due to my wrists being so weak and my finger joints. > > my skin condition is really bad, very flaky, small cracks everywhere and dry (but the dermatologist calls it 'greasy'). Lots of overactive sebacious glands etc. It gets damaged very easily. > > I can handle 1 kg weights, not much more because of the problems with my 'pads'. With higher weight I risk bruising my hands (have the same problem when working too long with my DSLR camera ...). So I don't get a real workout this way. > > I'm still thinking about some kind of exercising machine that would work for me, without stressing the pads on my hand and feet too much. Maybe a rowing machine or something in that direction. Too bad that all this equipment is pretty expensive, and you can't tell if it works for you with just a quick try in the store or at a health centre > > A Chi Machine seems quite expensive here (around 500 euros) but maybe I have to check Ebay etc. Talking about 'Chi', I just read an interesting thread about Tai Chi and QiGong (probably wrong spelling, but you get the idea). I'm going to try that; have read some fascinating research about it. > > > > This was very hard for me as well. You may not need to. For me, there was an obvious reaction with my hands hurting afterward. Every now and then I will have a tomato, but usually pay a price still. I hope that this will change as some healing (wishful) takes place. > > I have no immediate reactions to any food - tough to tell if there is a longterm influence. I will try removing the nightshade veggies. > Fortunately it seems that courgette (zucchini in english?) is not nightshade, but strangely many Dutch websites say people with gluten / nightshade allergy shouldn't use it. It's my favorite veggie ... And I found that the sweet potatoes which I discovered last week in the health food shop are also allowed. > > > > I am using the Now Whey Protein Isolate and this has been better for me. Others gave me trouble. So maybe experiment with different brands. > > currently have the Jarrow Formulas Whey protein, seems OK. (No new problems, but you never know ...). > > thanks again!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2009 Report Share Posted September 25, 2009 Jane, knot_weed is very underweight. The homeopathic remedy Unda #243 is billed as being used " For the relief of symptoms associated with overindulgence in food and alcohol " . Are you sure this would really help him? > > Knotweed - If you ever need help getting supplements, just let me know. I run a not for profit supplement co-op for autism families and only order high quality supplements. I can get the Unda for you at less than retail and ship it to you at cost. I have shipped internationally before so know the drill for most countries. Just PM me at greenecobean at cox.net. I have a website that you can look at. It is a private co-op, but it's purpose is to help those of us struggling and not just with autism. > > The Chi Machine is worth getting if you can. I can tell the days when I have missed it. The one I got was 93.00 USD at Amazon. It is a Supentown brand and I have seen them used as well. Good luck finding one if you can. > > Jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2009 Report Share Posted September 25, 2009 I had the same concern, since I am also quite a bit below my ideal weight. I even didn't use it for a time because of what it said, but then was having major issues and tried it. It really seems to help the liver and so I stuck with it. I have not lost any more weight as a result of using it. Klinghardt's protocol talks about it and recommends it (http://www.klinghardtneurobiology.com/LymeKPUprotocol.pdf), so reading that also helped me to decide. I also thought that maybe they are saying that on the label as it relates to the stress on the liver that overindulgence in food and alcohol can cause. I am only throwing suggestions out there. I definitely think everyone needs to do their own research and choose for themselves. I took the Unda 243 on a recommendation from several people that use it for their kids as well as themselves. Jane > > Jane, > > knot_weed is very underweight. The homeopathic remedy Unda #243 is billed as being used " For the relief of symptoms associated with overindulgence in food and alcohol " . Are you sure this would really help him? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2009 Report Share Posted September 25, 2009 Jane, Â could any doctor do this for you. Dr. Klling. would not be that much help with this by phone contact. Doug From: rominick2 <GreenEcoBean@...> Subject: [ ] Re: skin problems Date: Friday, September 25, 2009, 9:20 AM Â I had the same concern, since I am also quite a bit below my ideal weight. I even didn't use it for a time because of what it said, but then was having major issues and tried it. It really seems to help the liver and so I stuck with it. I have not lost any more weight as a result of using it. Klinghardt's protocol talks about it and recommends it (http://www.klinghar dtneurobiology. com/LymeKPUproto col.pdf), so reading that also helped me to decide. I also thought that maybe they are saying that on the label as it relates to the stress on the liver that overindulgence in food and alcohol can cause. I am only throwing suggestions out there. I definitely think everyone needs to do their own research and choose for themselves. I took the Unda 243 on a recommendation from several people that use it for their kids as well as themselves. Jane > > Jane, > > knot_weed is very underweight. The homeopathic remedy Unda #243 is billed as being used " For the relief of symptoms associated with overindulgence in food and alcohol " . Are you sure this would really help him? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2009 Report Share Posted September 25, 2009 thanks for additional info. Yes, I'm seriously underweight and I don't drink alcohol. But probably many products are billed as suitable for people who are 'overweight' or have an alcohol problem, because that is a huge target audience (especially in the US). I would hope it works a bit like the catsclaw etc. in 'modulating' the system, instead of just stimulating or inhibiting something. My impression is that a lot of lymies develop overweight, and a much smaller proportion get significantly underweight. Maybe they are both sides of the same problem (hormonal disturbance, digestion/absorption/liver problems, circulation issues ?). I will read up a bit on the subject, don't want to start all the new suggestions from this thread right away. The nattokinase, more lime drinks and some elimination of potential diet problems (gluten and nightshade veggies) is first. Plus the Eleuthero for the fatigue problems. I already started silymarin for liver support, I will give that a few more weeks before judging the result. P.S.: I heard from a friend that in Eastern Europe many tough infections are cured by a lemon/lime fasting diet (out of necessity, as people don't have access to all the diagnostics and treatments we have here - but it seems to work quite well). > I had the same concern, since I am also quite a bit below my ideal weight. I even didn't use it for a time because of what it said, but then was having major issues and tried it. It really seems to help the liver and so I stuck with it. I have not lost any more weight as a result of using it. Klinghardt's protocol talks about it and recommends it (http://www.klinghardtneurobiology.com/LymeKPUprotocol.pdf), so reading that also helped me to decide. I also thought that maybe they are saying that on the label as it relates to the stress on the liver that overindulgence in food and alcohol can cause. > > I am only throwing suggestions out there. I definitely think everyone needs to do their own research and choose for themselves. I took the Unda 243 on a recommendation from several people that use it for their kids as well as themselves. > > Jane > > > > > > > > Jane, > > > > knot_weed is very underweight. The homeopathic remedy Unda #243 is billed as being used " For the relief of symptoms associated with overindulgence in food and alcohol " . Are you sure this would really help him? > > > Quote Link to comment Share on other sites More sharing options...
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