Re: Question for moderator and group members

[Guest guest]

Hi. I am one of these newly diagnosed people who is on the Buhner

Protocol and though some of the emails don't

apply to me directly, I am very thankful for the eye opening

experience of reading the lengths people have gone to

to get well. I'd hate to be on a number of lists-- I'd never get

anything done but empty out my mailbox.

Maybe the answer is to clearly label the Subject so you can just

delete if it's not of interest to you. I have learned about

supplemental therapies through people who are using the Buhner

protocol on this list and there's no way to completely separate them.

Thanks.

On Feb 14, 2010, at 9:59 AM, rasheedaas wrote:

> Hi,

> I've been a member of this group since its inception [which happily

> for me coincided with my Lyme diagnosis].

>

> Description of group from home page: " Lyme Aid Buhner is a support

> group designed for discussing the alternative treatment ideas

> Buhner talks about in his book Healing Lyme...Discussion

> will focus on individual experiences with this protocol. "

>

> I am concerned that in recent years, sometimes the discussion

> diverges from this widely. If you look back randomly, you can see

> that sometimes dozens of posts will in response to salt, or Rife,

> or any of a multitude of other alternative treatments or

> suggestions or questions. Sometimes a particular topic, which has

> nothing to do with Buhner, will go on for days or weeks.

>

> My problem with this is-

> I refer many people to this blog, anyone I meet with Lyme I tell

> them about the book, and my experience, and I refer them to this blog.

> But sometimes I check in here, and I think-

> the person must think I referred them to the wrong group, because

> there can be pages and pages of posts which have nothing to do with

> Buhner.

>

> I am not suggesting anybody police this group for relevance - but I

> would like to ask that if people go off topic, they keep it brief.

> There are other groups that discuss alternative treatments.

> Why not go there instead?

> Think about some person newly-diagnosed with Lyme, who may be using

> Buhner's book, following his protocol. Remember how when you

> started, it may have been confusing or overwhelming. [i know it was

> for me, and this group was a lifesaver for me.]

>

> It is not my intention to offend anyone.

> I do not at all disparage other methods which may be very valuable.

> Just to remind everyone of the mission of the group.

> And I'd very much like to ensure that no one who joins this group

> looking for help, misses out on the promise of this group.

>

> Thank you

>

> ellen

>

>

>