New member quick intro and child question

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Hi ,

First, thank you so much for responding to my email, I really

appreciate it!

Yes, she's currently being treated by a LLMD with antibiotics

(various combinations x 1yr) and has tested positive for bartonella

also. Prior to finding her latest doctor she bounced around 2

infectious disease doctors, a neurologist and a rheumatologist with

multiple appointments each. They all basically said " post viral/lyme

syndrome, she's been adequately treated for lyme, she has no active

infection " . They were all very kind, but it was kind of our problem

since they couldn't find anything. She's had every test in the book

and an MRI of her brain. Her lyme titers were positive(but they

always repeated that she'd already been treated for that). So here we

are, and although she improved on the antibiotics,sh's plateaued and

I think we need a broader treatment than just the drugs. Also, I

fully appreciate that herbs, although natural, are also very powerful

and can be harmful if not administered properly.

So, I think I will go ahead with the phone consult tomorrow morning.

I will definitely press the herbalist (Well respected in Vermont)

regarding safety for children and his experience.

Thank you again for taking the time to respond,

Aviva

On Feb 25, 2010, at 8:30 PM, Manno wrote:

> Has your daughter been to a good internist/ infectious disease

> physician? It seems to me

> such complicated cases may indicate the existence of coinfections and

> other conditions that

> guesswork can render dangerous. I am all for herbal and alternative

> medicine but sometimes

> it's important to bite the bullet and go to a specialist in

> allopathic medicine. I am doing so myself

> now and it turns out I have other things going on besides Lyme. I

> could never have figured this

> out on my own. Thanks,

>

>

> On Feb 24, 2010, at 9:26 PM, Aviva Gerson wrote:

>

>> Hello all,

>>

>> My 11 yr old daughter has been on various ab's for 1 year now, being

>> treated by Dr. J. in New Haven. She has mostly improved but has been

>> kind of stagnating. She's had a headache non-stop and muscle pain all

>> over for over 1 1/2 years. The intensity of her pain is better than

>> before

>> she started ab's and she has recovered her energy. She developed a

>> really bad case of asthma last September and has been on Flovent ever

>> since (never had asthma before). She now has constant pressure on/in

>> her chest and we don't know if it's Lyme or lungs(asthma). She

>> sometimes gets weird symptoms when she gets sick with a cold (numb

>> face, clicking in her ears that I can hear).

>>

>> Here's my most pressing question. I strongly feel that we should be

>> using alternative/herbal remedies in conjunction with the ab's, as

>> support and to add extra power to her treatment. We are in NYC and

>> have I looked into naturopaths at " Innersource " or getting a

>> telephone consult with an herbalist in Vermont (Buhner protocol). I

>> like the idea of someone close to home taking control of her

>> treatment in a holistic way, but I also think that the Buhner

>> protocol has been somewhat tried and proven. Does anyone have any

>> experience with either for their children? I currently have a

>> telephone consult appointment for Friday morning with an herbalist in

>> Vermont (Buhner).

>>

>> Sorry for the brusque introduction, but I feel that we're at a

>> crossroads (as we often are) and something has to change...

>>

>> Thank you,

>>

>> Aviva

>>

>>