Re: New member quick intro and child question

[Guest guest]

Has your daughter been to a good internist/ infectious disease

physician? It seems to me

such complicated cases may indicate the existence of coinfections and

other conditions that

guesswork can render dangerous. I am all for herbal and alternative

medicine but sometimes

it's important to bite the bullet and go to a specialist in

allopathic medicine. I am doing so myself

now and it turns out I have other things going on besides Lyme. I

could never have figured this

out on my own. Thanks,

On Feb 24, 2010, at 9:26 PM, Aviva Gerson wrote:

> Hello all,

>

> My 11 yr old daughter has been on various ab's for 1 year now, being

> treated by Dr. J. in New Haven. She has mostly improved but has been

> kind of stagnating. She's had a headache non-stop and muscle pain all

> over for over 1 1/2 years. The intensity of her pain is better than

> before

> she started ab's and she has recovered her energy. She developed a

> really bad case of asthma last September and has been on Flovent ever

> since (never had asthma before). She now has constant pressure on/in

> her chest and we don't know if it's Lyme or lungs(asthma). She

> sometimes gets weird symptoms when she gets sick with a cold (numb

> face, clicking in her ears that I can hear).

>

> Here's my most pressing question. I strongly feel that we should be

> using alternative/herbal remedies in conjunction with the ab's, as

> support and to add extra power to her treatment. We are in NYC and

> have I looked into naturopaths at " Innersource " or getting a

> telephone consult with an herbalist in Vermont (Buhner protocol). I

> like the idea of someone close to home taking control of her

> treatment in a holistic way, but I also think that the Buhner

> protocol has been somewhat tried and proven. Does anyone have any

> experience with either for their children? I currently have a

> telephone consult appointment for Friday morning with an herbalist in

> Vermont (Buhner).

>

> Sorry for the brusque introduction, but I feel that we're at a

> crossroads (as we often are) and something has to change...

>

> Thank you,

>

> Aviva

>

>

[Guest guest]

Hi Aviva,

Thanks for letting me know. I may have something in store like

that for myself. I have been on the Buhner herbs for almost 10

months now and have started seeing regular doctors because

I am still not well.

They've already found other complications so I am hoping this

is the beginning of the end of my journey with illness.

I hope all goes well with the new herbalist. Is it Tim ?

Take care,

On Feb 25, 2010, at 10:09 PM, Aviva Gerson wrote:

> Hi ,

>

> First, thank you so much for responding to my email, I really

> appreciate it!

>

> Yes, she's currently being treated by a LLMD with antibiotics

> (various combinations x 1yr) and has tested positive for bartonella

> also. Prior to finding her latest doctor she bounced around 2

> infectious disease doctors, a neurologist and a rheumatologist with

> multiple appointments each. They all basically said " post viral/lyme

> syndrome, she's been adequately treated for lyme, she has no active

> infection " . They were all very kind, but it was kind of our problem

> since they couldn't find anything. She's had every test in the book

> and an MRI of her brain. Her lyme titers were positive(but they

> always repeated that she'd already been treated for that). So here we

> are, and although she improved on the antibiotics,sh's plateaued and

> I think we need a broader treatment than just the drugs. Also, I

> fully appreciate that herbs, although natural, are also very powerful

> and can be harmful if not administered properly.

>

> So, I think I will go ahead with the phone consult tomorrow morning.

> I will definitely press the herbalist (Well respected in Vermont)

> regarding safety for children and his experience.

>

> Thank you again for taking the time to respond,

> Aviva

> On Feb 25, 2010, at 8:30 PM, Manno wrote:

>

> > Has your daughter been to a good internist/ infectious disease

> > physician? It seems to me

> > such complicated cases may indicate the existence of coinfections

> and

> > other conditions that

> > guesswork can render dangerous. I am all for herbal and alternative

> > medicine but sometimes

> > it's important to bite the bullet and go to a specialist in

> > allopathic medicine. I am doing so myself

> > now and it turns out I have other things going on besides Lyme. I

> > could never have figured this

> > out on my own. Thanks,

> >

> >

> > On Feb 24, 2010, at 9:26 PM, Aviva Gerson wrote:

> >

> >> Hello all,

> >>

> >> My 11 yr old daughter has been on various ab's for 1 year now,

> being

> >> treated by Dr. J. in New Haven. She has mostly improved but has

> been

> >> kind of stagnating. She's had a headache non-stop and muscle

> pain all

> >> over for over 1 1/2 years. The intensity of her pain is better than

> >> before

> >> she started ab's and she has recovered her energy. She developed a

> >> really bad case of asthma last September and has been on Flovent

> ever

> >> since (never had asthma before). She now has constant pressure

> on/in

> >> her chest and we don't know if it's Lyme or lungs(asthma). She

> >> sometimes gets weird symptoms when she gets sick with a cold (numb

> >> face, clicking in her ears that I can hear).

> >>

> >> Here's my most pressing question. I strongly feel that we should be

> >> using alternative/herbal remedies in conjunction with the ab's, as

> >> support and to add extra power to her treatment. We are in NYC and

> >> have I looked into naturopaths at " Innersource " or getting a

> >> telephone consult with an herbalist in Vermont (Buhner protocol). I

> >> like the idea of someone close to home taking control of her

> >> treatment in a holistic way, but I also think that the Buhner

> >> protocol has been somewhat tried and proven. Does anyone have any

> >> experience with either for their children? I currently have a

> >> telephone consult appointment for Friday morning with an

> herbalist in

> >> Vermont (Buhner).

> >>

> >> Sorry for the brusque introduction, but I feel that we're at a

> >> crossroads (as we often are) and something has to change...

> >>

> >> Thank you,

> >>

> >> Aviva

> >>

> >>

[Guest guest]

On Feb 26, 2010, at 7:26 AM, Manno wrote:

,

Yes, it is Tim . Do you have any personal experience with him?

I think it's quite common to have other problems along with Lyme,

kind of a chicken or the egg type thing (one makes you more

susceptible to the other). We were limited by the fact that

specialists won't touch a child unless they're pediatric specialists.

Best,

Aviva

> Hi Aviva,

>

> Thanks for letting me know. I may have something in store like

> that for myself. I have been on the Buhner herbs for almost 10

> months now and have started seeing regular doctors because

> I am still not well.

>

> They've already found other complications so I am hoping this

> is the beginning of the end of my journey with illness.

>

> I hope all goes well with the new herbalist. Is it Tim ?

>

> Take care,

>

>

>

>

[Guest guest]

Could this be symptoms of a co-infection? Headache could be due to bartonella

and/or babesia.

deb

>

> Hello all,

>

> My 11 yr old daughter has been on various ab's for 1 year now, being

> treated by Dr. J. in New Haven. She has mostly improved but has been

> kind of stagnating. She's had a headache non-stop and muscle pain all

> over for over 1 1/2 years. The intensity of her pain is better than

> before

> she started ab's and she has recovered her energy. She developed a

> really bad case of asthma last September and has been on Flovent ever

> since (never had asthma before). She now has constant pressure on/in

> her chest and we don't know if it's Lyme or lungs(asthma). She

> sometimes gets weird symptoms when she gets sick with a cold (numb

> face, clicking in her ears that I can hear).

>

> Here's my most pressing question. I strongly feel that we should be

> using alternative/herbal remedies in conjunction with the ab's, as

> support and to add extra power to her treatment. We are in NYC and

> have I looked into naturopaths at " Innersource " or getting a

> telephone consult with an herbalist in Vermont (Buhner protocol). I

> like the idea of someone close to home taking control of her

> treatment in a holistic way, but I also think that the Buhner

> protocol has been somewhat tried and proven. Does anyone have any

> experience with either for their children? I currently have a

> telephone consult appointment for Friday morning with an herbalist in

> Vermont (Buhner).

>

> Sorry for the brusque introduction, but I feel that we're at a

> crossroads (as we often are) and something has to change...

>

> Thank you,

>

> Aviva

>

>

[Guest guest]

Tim was able to send me the core protocol of Buhner.

He ran out of it a while back but I think he should have it again soon.

I have never met him but spoke to him a few times on the phone when

we decided it would work for me to be on the protocol.

Hope this helps.

On Feb 26, 2010, at 8:48 AM, Aviva Gerson wrote:

>

> On Feb 26, 2010, at 7:26 AM, Manno wrote:

> ,

>

> Yes, it is Tim . Do you have any personal experience with him?

>

> I think it's quite common to have other problems along with Lyme,

> kind of a chicken or the egg type thing (one makes you more

> susceptible to the other). We were limited by the fact that

> specialists won't touch a child unless they're pediatric specialists.

>

> Best,

> Aviva

> > Hi Aviva,

> >

> > Thanks for letting me know. I may have something in store like

> > that for myself. I have been on the Buhner herbs for almost 10

> > months now and have started seeing regular doctors because

> > I am still not well.

> >

> > They've already found other complications so I am hoping this

> > is the beginning of the end of my journey with illness.

> >

> > I hope all goes well with the new herbalist. Is it Tim ?

> >

> > Take care,

> >

> >

> >

> >

>

>

>

[Guest guest]

,

Did the herbs help at all? Did your symptoms imrprove, did they plateau or did

they worsen? I'm thinking that multiple approaches at a time or in series is a

good idea. How did you find out about him. Tim was recommended by a friend

of a friend who had been completely debilitated for years and improved with

Buhner protocol.

I greatly appreciate all your input and am grateful for this forum.

Thank you,

Be well,

Aviva

> ,

>

> Yes, it is Tim . Do you have any personal experience with him?

>

> I think it's quite common to have other problems along with Lyme,

> kind of a chicken or the egg type thing (one makes you more

> susceptible to the other). We were limited by the fact that

> specialists won't touch a child unless they're pediatric specialists.

>

> Best,

> Aviva

> > Hi Aviva,

> >

> > Thanks for letting me know. I may have something in store like

> > that for myself. I have been on the Buhner herbs for almost 10

> > months now and have started seeing regular doctors because

> > I am still not well.

> >

> > They've already found other complications so I am hoping this

> > is the beginning of the end of my journey with illness.

> >

> > I hope all goes well with the new herbalist. Is it Tim ?

> >

> > Take care,

> >

> >

> >

> >

>

>

>

[Guest guest]

Hi Aviva,

I read 's book Healing Lyme. Tim was listed in the back as one

of a handful of practitioners who are familiar with his protocol.

My symptoms improved around Thanksgiving, but I have to say I have

also been taking a ton of supplements. I don't know what finally

helped but then I had a set back a month or so later when Tim ran out

of the combined protocol and I was without the herbs for a few days.

Depending on what I find about my total condition (I'm getting tested

for a bunch of other things) I may start IV antibiotics.

Thanks,

On Feb 28, 2010, at 1:57 PM, AVIVA GERSON wrote:

> ,

> Did the herbs help at all? Did your symptoms imrprove, did they

> plateau or did they worsen? I'm thinking that multiple approaches

> at a time or in series is a good idea. How did you find out about

> him. Tim was recommended by a friend of a friend who had been

> completely debilitated for years and improved with Buhner protocol.

> I greatly appreciate all your input and am grateful for this forum.

> Thank you,

> Be well,

> Aviva

>

>

> > ,

> >

> > Yes, it is Tim . Do you have any personal experience with him?

> >

> > I think it's quite common to have other problems along with Lyme,

> > kind of a chicken or the egg type thing (one makes you more

> > susceptible to the other). We were limited by the fact that

> > specialists won't touch a child unless they're pediatric

> specialists.

> >

> > Best,

> > Aviva

> > > Hi Aviva,

> > >

> > > Thanks for letting me know. I may have something in store like

> > > that for myself. I have been on the Buhner herbs for almost 10

> > > months now and have started seeing regular doctors because

> > > I am still not well.

> > >

> > > They've already found other complications so I am hoping this

> > > is the beginning of the end of my journey with illness.

> > >

> > > I hope all goes well with the new herbalist. Is it Tim ?

> > >

> > > Take care,

> > >

> > >

> > >

> > >

> >

> >

> >

>

>