Re: Anyone with neuropathy to

[Guest guest]

Hi ,

Thanks for the info. I'm on an IV antibiotic right now for a month. I have

pretty much had the burning consistently since mid-September. It comes & goes.

I have heard of IVIG therapy. I will speak to my neurologist about it -- in the

meantime, I'm hoping to get through this therapy and have things subside and go

onto Buhner's protocol.

I don't have buzzing & tingling, it's just this darned burning that is nearly

the last prevailing symptom.

Thanks so much!

Kate

Re: [ ] Anyone with neuropathy

Kate,

Burning, buzzing and tingling in skin/extremities is very common with Lyme.

Antibiotics can actually make the sensation worse because you are experiencing a

herx reaction as the spirochetes die off and release the toxins that exacerbate

your symptoms. If you had Lyme for some time before diagnosis then you can

expect to be in treatment for months or possibly years before your symptoms are

gone. If the peripheral neuropathy is severe and you continue to experience it

after more in depth treatment you can explore IVIG therapy (IV ImmunoGlobulin)

as an option. My LLMD has published research that shows it to be effective for

the burning sensations - he says it doesn't work as well for the tingling/buzing

but very well for the burning sensations. It is very expensive though.... You

may be able to get some relief with neuroprotective supplements. Can't remember

which ones are best at this but I know vitamin E is one and maybe zinc?

I had lots of the buzzing (there must be a cell phone ringing in my pocket

somewhere!!!) sensations, and mild burning ones and although I'm still having

lots of other symptoms those have been gone for a while. I'm on bicillin

2x/week, take lots of supplements and am on the core Buhner protocol plus Smilax

minus andrographis.

-

[ ] Anyone with neuropathy

Hi, was diagnosed in October with lyme [misdiagnosed for several months prior to

that]. I believe I've had this since last spring, but not entirely sure. I'm

currently on abx treatment but have ordered Buhner's core protocol to begin as

well.

One of the symptoms lyme has brought into my life is neuropathy. Since

September, I have had a burning feeling on my skin. My doctor says it's

neuropathy and since antibiotic treatments have not touched this problem, he

says this may be a lingering symptom. I don't like this idea and trying to find

alternatives to help with this.

Has anyone had this symptom, or currently does? And what can be done? There must

be something.

Thanks,

Kate