Are there any famous people that have chronic lyme?

[Guest guest]

I would like to find someone that is famous that has Chronic Lyme, someone

that didn't immediately discover they were bitten, then get antibiotics and

get cured. Would like to know if there is a link or story out there that

parallels the many, many people that aren't diagnosed right away, and really

struggle. It seems as if many people are under the illusion you go to your

local

doc and get a pill or a course of antibiotics and you are finished with Lyme

forever. Would like to direct a few people I know to something that parallels

reality. Thanks,

[Guest guest]

Doesn't Darrell Oats have chronic Lyme?

Jim.

###

WitherspoonK@... wrote:

I would like to find someone that is famous that has Chronic Lyme,

someone

that didn't immediately discover they were bitten, then get antibiotics and

get cured. Would like to know if there is a link or story out there that

parallels the many, many people that aren't diagnosed right away, and really

struggle. It seems as if many people are under the illusion you go to your local

doc and get a pill or a course of antibiotics and you are finished with Lyme

forever. Would like to direct a few people I know to something that parallels

reality. Thanks,

---------------------------------

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[Guest guest]

Hi ,

You may want to read Amy Tan's story. She's a novelist who was misdiagnosed

for a very long time, and struggled with severe symptoms including brain

seizures and hallucinations.

Suzanne

On Dec 13, 2007 12:15 AM, <WitherspoonK@...> wrote:

> I would like to find someone that is famous that has Chronic Lyme,

> someone

> that didn't immediately discover they were bitten, then get antibiotics

> and

> get cured. Would like to know if there is a link or story out there that

> parallels the many, many people that aren't diagnosed right away, and

> really

> struggle. It seems as if many people are under the illusion you go to your

> local

> doc and get a pill or a course of antibiotics and you are finished with

> Lyme

> forever. Would like to direct a few people I know to something that

> parallels

> reality. Thanks,

>

>

--

All good wishes,

Suzanne Arthur, M.A.

Founder & Editor

Lyme Disease Research Database

ldrd.support@...

http://www.lyme-disease-research-database.com

[Guest guest]

Here's a link to a press release regarding Amy's story:

http://www.igenex.com/release_tan.htm

On Dec 13, 2007 11:37 AM, LDRD Support <ldrd.support@...> wrote:

> Hi ,

>

> You may want to read Amy Tan's story. She's a novelist who was

> misdiagnosed for a very long time, and struggled with severe symptoms

> including brain seizures and hallucinations.

>

> Suzanne

>

>

[Guest guest]

, I haven't researched these folks' stories, but here are some

names of well-known people who have had Lyme: GW Bush, Gov Pataki, Gov

Bredesen(TN), Gov Whitman(NJ), Rep Schumer(NY), Gere, Fox,

Kristie

Brinkley, Darryl Hall, Pete Seeger, Wells, Alice ,

Landau(San Diego news anchor), Tim Simpson(golfer) -- that's for starters -- I'm

sure

there's many more, unfortunately. -- Robin

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[Guest guest]

I wonder how many of them have chronic lyme and know it and those that do... why

don't they use their media clout to get together and make a statement of some

sort?

--

Every time you share your story, you are a Lyme Activist. What more can you do?

Visit Lyme Activist http://lymeactivist.wordpress.com/. The Take Action! call is

presently focusing on the defense of Dr. .

-------------- Original message --------------

From: sfrobink@...

, I haven't researched these folks' stories, but here are some

names of well-known people who have had Lyme: GW Bush, Gov Pataki, Gov

Bredesen(TN), Gov Whitman(NJ), Rep Schumer(NY), Gere, Fox,

Kristie

Brinkley, Darryl Hall, Pete Seeger, Wells, Alice ,

Landau(San Diego news anchor), Tim Simpson(golfer) -- that's for starters -- I'm

sure

there's many more, unfortunately. -- Robin

**************************************See AOL's top rated recipes

(http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004)

[Guest guest]

I think Amy Tan, the writer has been dealing with Lyme Disease....

i'm not so up on famous people, yet seem to remember hearing this.

Peace to you,

yarrow

>

> I wonder how many of them have chronic lyme and know it and those that do...

why

don't they use their media clout to get together and make a statement of some

sort?

>

> --

> Every time you share your story, you are a Lyme Activist. What more can you

do? Visit

Lyme Activist http://lymeactivist.wordpress.com/. The Take Action! call is

presently

focusing on the defense of Dr. .

>

> -------------- Original message --------------

> From: sfrobink@...

> , I haven't researched these folks' stories, but here are some

> names of well-known people who have had Lyme: GW Bush, Gov Pataki, Gov

> Bredesen(TN), Gov Whitman(NJ), Rep Schumer(NY), Gere, Fox,

Kristie

> Brinkley, Darryl Hall, Pete Seeger, Wells, Alice ,

> Landau(San Diego news anchor), Tim Simpson(golfer) -- that's for starters --

I'm sure

> there's many more, unfortunately. -- Robin

>

> **************************************See AOL's top rated recipes

> (http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004)

>

>

[Guest guest]

My sense is some news anchors have been great about reporting their own

story. And I think some reps are helping, like Rep Schumer is a co-sponsor of

the

federal bill. And then others might be a bit beholden to moneyed interests,

unfortunately. Or they might have had gold standard treatment in order to save

themselves and are not publicly announcing as such because then the public

would ask why they too can't get such treatment. Now what we need are

well-known people who don't feel beholden. Amy Tan is doing a lot of good work,

including supporting kids' access to care.

BTW. some famous people are making a movie, I believe called " Lymelife " , to

come out next year. Scorcese directing, Hutton in it, and

others.

**************************************See AOL's top rated recipes

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