Babesia

[Guest guest]

My daughters doc in Houston definitely suggests Mepron. She's on IV

Rocephin 4 days alternating with 3 days of Flagyl...and some supportive

stuff. After 4 weeks of that regimin, she takes 2 bottles of Mepron with a

break in between (I think the break between the two is 4 weeks). Docs don't

get Lyme but they do sit up and take notice if you have Babesia. I've

mentioned before that Igenex has a new version of Babesia test that's more

sensitive and specific than things before. Worth testing as it accompanies

Bb more than they used to think.

[ ] Babesia

Hello. Does anyone have experience using Mepron for Babesia?

I was diagnosed with Lymes and Erlichea in May after being very sick

for 5 months. Went on doxycycline which did nothing for me except

tear up my gut. By mid July I could barely walk and the lymes was

going into my brain. My LLMD changed the Doxy to Doryx, and added

Zithromax. Within one week my symptoms improved dramatically;

energy improved, brain fog went away, tingling subsided. It has

been 4 weeks now and I continue to do much better although I still

have off-days and 3-5pm is a really tough time for me. One of the

symptoms I continue to have is shortness of breath. I just

received the test results for Babesia and they came back positive.

My Dr is recommending Mepron. Just curious if anyone has had

experience with treating Babesia with Mepron? I am using the

artemisinin but I am not convinced that that alone will kill the

babesia.

I am a clinical nutritionist and I have been doing a lot of

supportive herbal, nutritional and natural therapies. I believe

this is making a huge difference in my recovery. I've always had a

very clean diet, but now it is pristine. It is absolutely essential

to cut out all white flour and sugar to support your immune system

so you can heal, and of-course, to support your adrenals, blood

sugar, liver, and all other organ systems. I do counseling by phone

now and if anyone feels they need some help, see my website -

www.clinicalnutritioncounseling.com) This experience has been life-

changing in many ways and I believe I am supposed to be working with

people with Lymes and other chronic illnesses.

Healing wishes to all.....

Judy

Questions and/or comments can be directed to the list owner at

-Owner

[Guest guest]

In a message dated 11/20/04 11:25:13 PM Eastern Standard Time,

writes:

have you ever been checked for Babesia. I had horrid fevers and sweats. My

first test for Babesia was negative, but second one highly positive. I now

take Mepron which has helped tremendously. I almost went nuts with those

sweats. Babs can be a sleeper disease and can come out at any time

==============

HELLO, I have only found info that says u can get sick 1 to 12 months after

being exposed, and nothing about long term or dormancy. I was wondering as I

suffer with the night sweats terribly and fevers too high/too low.... etc. But

found nothing saying time was not a factor. THANKS, celia

[Guest guest]

<<<HELLO, I have only found info that says u can get sick 1 to 12 months after

being exposed, and nothing about long term or dormancy. I was wondering as I

suffer with the night sweats terribly and fevers too high/too low.... etc. But

found nothing saying time was not a factor. THANKS, celia>>>>

I too suffer from sweats..........but I think it is premenapausal

symptoms.......how old are you?

Connieknwnj

[Guest guest]

HI,

I had the menopausal sweats along with the babesia, but my babs didn't show

up for a few years. I don't have the site, but did find out that it is a

sleeper illness and can return anytime. I am so much better with treatment. I

drank at least a gallon or more of water a day, my sweats were so bad and would

still end up in ER because of dehydration. With treatment I am better.

Don't let them blame everything on menopause.

Good luck,

Connie, MI

[Guest guest]

My aympros were ungodly sweats.........so bad I would stand in the snow in

my pj/s. Mepron /Zithromax has really helped. Drink lots of

water..........I did and still would become dehydrated due to severe sweats.

Connie, Michigan

[ ] Babesia

>

> Tests indicate that I have borelia and bartonella. My doctor suspects I

might habe babesia but I've forgotten the symptoms upon which he bases that.

Can someone tell me what the symtpoms of babesia are?

> Phil

>

>

[Guest guest]

At 08:08 PM 1/31/2005 -0500, you wrote:

>My aympros were ungodly sweats.........so bad I would stand in the snow in

>my pj/s. Mepron /Zithromax has really helped. Drink lots of

>water..........I did and still would become dehydrated due to severe sweats.

>

>Connie, Michigan

And my B. had rapid heart/skipping heart and tightness in the solar plexus

along with what you both say - also with me, a sense inside my head that I

wasn't really " there " but somewhere outside myself . . this was magnified

by the Mepron, so I had to cut back a bit so I could maintain some sense of

identity.

Glen, New Jersey.

> [ ] Babesia

>

>

> >

> > Tests indicate that I have borelia and bartonella. My doctor suspects I

>might habe babesia but I've forgotten the symptoms upon which he bases that.

>Can someone tell me what the symtpoms of babesia are?

> > Phil

> >

> >

[Guest guest]

> And my B. had rapid heart/skipping heart and tightness in the solar plexus

> along with what you both say - also with me, a sense inside my head that I

> wasn't really " there " but somewhere outside myself . . this was magnified

> by the Mepron, so I had to cut back a bit so I could maintain some sense of

> identity.

> Glen, New Jersey.

Before I knew I had Lyme, I had a spell where I got very depressed, anxious,

couldn't sleep at all. Was severely exhausted, sweating and would just flop

down on my bed.

I'd notice how spacey I felt. Not just brain-fogged. Back then the word

" delirious " came to mind.

When I found out that I had Lyme and babesiosis, and read that the babs was

like malaria, I remembered all those movies I'd seen as a teenager where

people in Africa had malaria, and they were dilerious. Yes, it felt like

that.

In the past few months I have been feeling worse. I think it's the babs,

not the Lyme. An LLMD told me last June that he was surprised, with all the

treatment I'd gotten, that I was still so sick. He said it was the babesia

stopping the healing.

I have tried every herbal and prescription medicine that people use for

babesia and am allergic to all of them.

This is very scarey right now, because I feel as though there's an infection

in my body that is so strong that I am stagnant through and through. Just

not getting rid of it.

Because of the heat in my body, I've kept my home themostat about 4-6

degrees lower than it used to be.

Now, the manifestation is an upper respiratory infection, mucous,

turn-inside-out cough in one spot in my lower throat, very thick mucous in

post-nasal area.

I really want this to be over.

Deanna

[Guest guest]

Have you looked into using Colloidal Silver www.natural-immunogenics.com for the

babesia? Since you can't do the other natural stuff for it. I have been told

that it would also kill the co-infections along with the lyme. Also there is a

new lyme group on called lymestrategies

that may help with the babesia

bluesky <bluesky@...> wrote:

> And my B. had rapid heart/skipping heart and tightness in the solar plexus

> along with what you both say - also with me, a sense inside my head that I

> wasn't really " there " but somewhere outside myself . . this was magnified

> by the Mepron, so I had to cut back a bit so I could maintain some sense of

> identity.

> Glen, New Jersey.

Before I knew I had Lyme, I had a spell where I got very depressed, anxious,

couldn't sleep at all. Was severely exhausted, sweating and would just flop

down on my bed.

I'd notice how spacey I felt. Not just brain-fogged. Back then the word

" delirious " came to mind.

When I found out that I had Lyme and babesiosis, and read that the babs was

like malaria, I remembered all those movies I'd seen as a teenager where

people in Africa had malaria, and they were dilerious. Yes, it felt like

that.

In the past few months I have been feeling worse. I think it's the babs,

not the Lyme. An LLMD told me last June that he was surprised, with all the

treatment I'd gotten, that I was still so sick. He said it was the babesia

stopping the healing.

I have tried every herbal and prescription medicine that people use for

babesia and am allergic to all of them.

This is very scarey right now, because I feel as though there's an infection

in my body that is so strong that I am stagnant through and through. Just

not getting rid of it.

Because of the heat in my body, I've kept my home themostat about 4-6

degrees lower than it used to be.

Now, the manifestation is an upper respiratory infection, mucous,

turn-inside-out cough in one spot in my lower throat, very thick mucous in

post-nasal area.

I really want this to be over.

Deanna

Questions and/or comments can be directed to the list owner at

-Owner

[Guest guest]

Thanks for the replies on babesia. I'm not sure after reading them that I have

it. I occassionaly have had skipped heart beats but figured that could be from

lyme or som other creature or could be a dieoff symptom. In the past have had

night sweats but it's been ages. Never felt delirious. Who knows? Have been

using rife babesia frequencies along with the antibioitcs just in case.

Phil

[ ] Re: Babesia

> And my B. had rapid heart/skipping heart and tightness in the solar plexus

> along with what you both say - also with me, a sense inside my head that I

> wasn't really " there " but somewhere outside myself . . this was magnified

> by the Mepron, so I had to cut back a bit so I could maintain some sense of

> identity.

> Glen, New Jersey.

Before I knew I had Lyme, I had a spell where I got very depressed, anxious,

couldn't sleep at all. Was severely exhausted, sweating and would just flop

down on my bed.

I'd notice how spacey I felt. Not just brain-fogged. Back then the word

" delirious " came to mind.

When I found out that I had Lyme and babesiosis, and read that the babs was

like malaria, I remembered all those movies I'd seen as a teenager where

people in Africa had malaria, and they were dilerious. Yes, it felt like

that.

In the past few months I have been feeling worse. I think it's the babs,

not the Lyme. An LLMD told me last June that he was surprised, with all the

treatment I'd gotten, that I was still so sick. He said it was the babesia

stopping the healing.

I have tried every herbal and prescription medicine that people use for

babesia and am allergic to all of them.

This is very scarey right now, because I feel as though there's an infection

in my body that is so strong that I am stagnant through and through. Just

not getting rid of it.

Because of the heat in my body, I've kept my home themostat about 4-6

degrees lower than it used to be.

Now, the manifestation is an upper respiratory infection, mucous,

turn-inside-out cough in one spot in my lower throat, very thick mucous in

post-nasal area.

I really want this to be over.

Deanna

[Guest guest]

,

I have been using colloidal silver more regularly lately because of an upper

respiratory sinus thing that's been going on for weeks. Cannot tell if it's

the weeks-long similar thing everyone around her has gotten or if it's the

Lyme/babesia/mycoplasma/EBV/yeast/whatever.

My goal was to use the silver 4x a day orally, in ears, in eyes, and in

nose. At first this really seemed to help. But, given daily demands, I

often forget to do it this many times.

Anyone have ideas about dosages?

Thanks,

Deanna

> Have you looked into using Colloidal Silver www.natural-immunogenics.com for

> the babesia?

[Guest guest]

Well, , if it's any consolation, they use blood transfusions and

doxycycline on dogs when they get Babesia.

Take care, and I hope you get rid of the critters for good!

Becky

>

> Some of you might be interested in my continuing struggle with this

creepy

> disease, and some of you have been kind enough to send some

suggestions. Thanks,

> I have followed up on all of these.

>

> The current scheme is to switch TX, from azythromycin (which is

making me

> deaf) and Mepron (an anti-malarial) to clindamycin, doxycyclin, and

Mepron.

>

> I am not very pleased about this switch, first because it has little

> precedent. Second, clindamycin is very tough on the GI system, and

third, doxycycline

> is a tetracycline, and you lose your ability to take sun and get

awful burns.

>

> Although my counts are improving (I actually got up to 12 HGB),

everybody

> still thinks that I have the protozoa, and that it would arise if I

stopped TX.

> There are also some other numbers indicating that I'm still hemolyzing.

>

> The docs will absolutely not admit that I may have low grade AIHA,

and insist

> it's the bug....

>

> After more than a YEAR, this is awfully frustrating........

>

> Best to all,

>

[Guest guest]

Hi Becky - I've had plenty of both - but the dogs don't also have CLL :)

[Guest guest]

Tara,

I would definitly suggest having your sed rate checked, and have

an arteriogram done. My husband had a mild heart attack last July

and now is on nitro as needed. It has helped alot. He was diagnosed

with Chronic Lyme and Babesia in 2003. Have you had an MRI or CT

scan done? If so, I was wondering what the results showed. Doctors

stated hubbys were fine although when I got the actual test results

in hand and read them, it showed white hyperintensities. I thank God

that his Cardiologist is LL and has treated many Lyme patients in NY

city.

Good Luck,

Anita

>

> I found Artimisinin, it is extracted from 10 gram of original

herb.

> Can anyone tell how I can figure out the mgs in this?

>

> I have taken Artimisinin for ten days and it caused a horrible

herx. I

> had severe shortness of breath and now heart pain. I stopped

taking it.

> The pressure in my heart continues. It is the first time I really

got

> scared.

>

> I read some where you can have a heart block w/ Babs. Is that true

and

> what is it?

>

> I am going to the doctor and want to make sure my heart is ok. Can

> anyone suggest the heart tests I should have? As well as any blood

> work that would help see what is going on now?

>

> I am going to my new PCP and she is pretty flexible about things.

>

> Thanks,

>

> Tara

>

[Guest guest]

Hi Selma,

No, sometimes I get hot when I drink coffee.

I think it is hormonal.

Yes I should stop drinking coffee, but I love it!

I only drink about 1-2 cups a day.

I mix it with the yoga tea which is really delicious.

I didn't take red root, I took the boneset tea. No, I no longer take

anything for the babesia. I only took the tea while I was suffering.

best,

ellen

-- In , " selmanaka " <hardynaka@...> wrote:

>

> Funny Ellen! Maybe you should stop drinking coffee? So you get cold

> with coffee, if I understood well?

>

> So you possibly really got rid of babesia with the combo artemisinin +

> red root!!! Are you on red root still?

>

> Selma

>

> >

>

[Guest guest]

Hi Selma,

Just want to set the record straight (smile).

I took artemisin plus boneset tea for babesia, not red root.

best,

ellen

[Guest guest]

Bridget, you also need to be aware of possible tendon problems especially the

achilles tendon. Doug

From: bridget <blueyes7648@...>

Subject: [ ] babesia

Date: Wednesday, December 23, 2009, 10:24 AM

 

I just saw my LLMD and he thinks I have babesia along with lyme, he

prescribed some Leviquin for it, but said I might have weird brain things and

shouldn't be alone, I am scared! Anyone heard or been through this???? Bridget

[Guest guest]

I was treated for Babesia with malarone (and a bunch of other abx for

lyme). I was never warned about weird brain things, and never really

had any side effects.

Hope this helps.

Don

bridget wrote:

> I just saw my LLMD and he thinks I have babesia along with lyme, he prescribed

some Leviquin for it, but said I might have weird brain things and shouldn't be

alone, I am scared! Anyone heard or been through this???? Bridget

>

>

>

>

>

[Guest guest]

I'm in lower Michigan. I was treated for babesia in September with Mepron and

Zithro. My first lab 6 weeks after treatment was negative but my latest is

positive again.

I'm negative for lyme disease, however, and haven't been treated for that yet.

I was bit by a tick while strawberry picking and got the bulls eye rash (small

one) on my leg. That was over 18 months ago. It took a long time to get anyone

to treat me. My general practitioner thinks I'm a nut case.

I now have autoimmune things going on too. About 3 months ago I got a lump on

the knuckle of my pinky finger - was told it's suspicious for rheumatoid

arthritis but those tests came back negative. Don't know what in the world it

is yet. My RBC is low. ANA is positive though.

My ID doctor isn't back in the office until January now so don't know if they'll

start treatment again for babesia or what the next step is.....I'm just so TIRED

of waiting for......a diagnosis and treatment.

[Guest guest]

Thanks Doug, yup, I am aware of it, as of right now the doc isn't too concerned

since I am not very mobile right now, made sure I was aware of it, and told me

not to be out running or anything.

Bridget

>

> From: bridget <blueyes7648@...>

> Subject: [ ] babesia

>

> Date: Wednesday, December 23, 2009, 10:24 AM

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> I just saw my LLMD and he thinks I have babesia along with lyme, he

prescribed some Leviquin for it, but said I might have weird brain things and

shouldn't be alone, I am scared! Anyone heard or been through this???? Bridget

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[Guest guest]

very hard to eradicate...affects red blood cells and is a protozoa and behaves

like malaria.  Dr. Schaller has a free downloadable book on babesia. 

Dr. Phuli Cohan has a web site and she discusses all the meds she took to get

rid of babesia..People have used Riamet in Europe and Z and Mepron in the US and

Lariam has been used also for babesia.  Night sweats are one of the many

symptoms of babesia.  Hope some of this is useful...Dolores

From: bridget <blueyes7648@...>

Subject: [ ] babesia

Date: Friday, May 7, 2010, 3:47 AM

 

So is babs like lyme in that it has cycles, or is it pretty much taken care of

with a couple months of abx?

Thank you

Bridget

[Guest guest]

Babesia is no fun at all! I have it, along with Lyme and Bartonella. I am on

the following for all three: Mepron (for babesia, started at 1 tsp 2 x per day

and am up to 2 tsp 2 x per day), pulsing with zithromax (3 days taking it 3 days

off), bactrim, plaquinil, cefdinir, artemisia (herb, for babesia). I just

started teh bactrim and zithromax last wednesday and had a very had herx on

thursday but was a lot better by friday. I think this new combo is working. I

was previoulsy on biaxin instead of bactrim and zithromax. I started treatment

Dec 15 and until late last week i had no subsidence of my babesia symptoms (i

get horrible drenching night sweats, every night). I noticed over the weekend

that they were slightly better. Good luck and I hope you find the combo that

works for you!

>

> I just received word Friday that i am positive for Babesia. This is freeking

me out. What's the treatment of choice. My LLMD in South Carolina has only

seen one other patient with babesia, since it is so uncommon there. Is babesia a

chronic thing too? I was bit on the shoreline of connecticut but now live in

georgia so i have baffled many many docs. (you guys know the drill)

>

> I am so angry on how I have been treated this past year by non LLMD

docs!!!!How can i try to educate these bozos. I really feel like once i get on

my feet I want to do something for us lymies to ensure early recognition of this

blasted disease to prevent others from going through this sh@#! sorry, had to

vent. any words of wisdom would be appreciated. hope everyone is having a pain

free day. Blessings,

> terry in georgia

>

[Guest guest]

Babesia is no fun at all! I have it, along with Lyme and Bartonella. I am on

the following for all three: Mepron (for babesia, started at 1 tsp 2 x per day

and am up to 2 tsp 2 x per day), pulsing with zithromax (3 days taking it 3 days

off), bactrim, plaquinil, cefdinir, artemisia (herb, for babesia). I just

started teh bactrim and zithromax last wednesday and had a very had herx on

thursday but was a lot better by friday. I think this new combo is working. I

was previoulsy on biaxin instead of bactrim and zithromax. I started treatment

Dec 15 and until late last week i had no subsidence of my babesia symptoms (i

get horrible drenching night sweats, every night). I noticed over the weekend

that they were slightly better. Good luck and I hope you find the combo that

works for you!

>

> I just received word Friday that i am positive for Babesia. This is freeking

me out. What's the treatment of choice. My LLMD in South Carolina has only

seen one other patient with babesia, since it is so uncommon there. Is babesia a

chronic thing too? I was bit on the shoreline of connecticut but now live in

georgia so i have baffled many many docs. (you guys know the drill)

>

> I am so angry on how I have been treated this past year by non LLMD

docs!!!!How can i try to educate these bozos. I really feel like once i get on

my feet I want to do something for us lymies to ensure early recognition of this

blasted disease to prevent others from going through this sh@#! sorry, had to

vent. any words of wisdom would be appreciated. hope everyone is having a pain

free day. Blessings,

> terry in georgia

>

[Guest guest]

Go slow and drink plenty of fluids. You just stop when to sick w/abx and then

start up again when better or worse, per my LLMD. Armesian I can only guess it

is the same thing. I would pulse. It doesn't matter how u get whatever it is u

are suppose too.

[ ] babesia

So I posted awhile ago about babesia, I got so very very sick on plaquenil,

mepron and now on arteminisin, one person I talked to said I have to just push

through it and be sick, and another person that is doing naturals said I can

take arteminisin pulsed and go slow because being so sick and toxic is bad for

me. I am so confused, waiting to hear back from my LLMD, but figured I'd get

some advice, I cannot be that sick, I have a 4 year old that just got diagnosed

with lyme and I can't be so out of it for so long....

Thank you!

Bridget

[Guest guest]

Question: & nbsp;how do you know what co infection uhave?

-- Sent from my Palm Pre

On Jun 23, 2010 16:02, fsmfarms & lt;fsmfarms@... & gt; wrote:

& nbsp;

Go slow and drink plenty of fluids. You just stop when to sick w/abx and then

start up again when better or worse, per my LLMD. Armesian I can only guess it

is the same thing. I would pulse. It doesn't matter how u get whatever it is u

are suppose too.

[ ] babesia

So I posted awhile ago about babesia, I got so very very sick on plaquenil,

mepron and now on arteminisin, one person I talked to said I have to just push

through it and be sick, and another person that is doing naturals said I can

take arteminisin pulsed and go slow because being so sick and toxic is bad for

me. I am so confused, waiting to hear back from my LLMD, but figured I'd get

some advice, I cannot be that sick, I have a 4 year old that just got diagnosed

with lyme and I can't be so out of it for so long....

Thank you!

Bridget

[Guest guest]

I'm assuming that your severe symptoms are a herx reaction. Herx's are

good, in that they mean bacteria are being killed. If your herx is too

severe maybe you can just decrease the dose of the meds you are on for a

while.

Hope you feel better.

Don

On 6/23/2010 3:48 PM, bridget wrote:

> So I posted awhile ago about babesia, I got so very very sick on plaquenil,

mepron and now on arteminisin, one person I talked to said I have to just push

through it and be sick, and another person that is doing naturals said I can

take arteminisin pulsed and go slow because being so sick and toxic is bad for

me. I am so confused, waiting to hear back from my LLMD, but figured I'd get

some advice, I cannot be that sick, I have a 4 year old that just got diagnosed

with lyme and I can't be so out of it for so long....

> Thank you!

> Bridget

>

>

>