Guest guest Posted July 28, 2003 Report Share Posted July 28, 2003 Quoting jayne boehler <jandj64152@...>: > , my nerve was also cut in order to get all of the crud out of my > ear!! I know how you feel about not tasting, It is a very funny > feeling!! Let me know if you find anything out!! My doc said that the > other side will pick up the taste that the left side can't but it just is > not the same!!! > > Jayne Mine too, almost five years ago. Sensation hasn't come back, but I hope everyone else's does. I still have a " sour " taste on that side of my mouth. Annoys me because my surgeon glossed it over, but he does that a lot. Eternal optimist and all that, but I am one of those that wants all of the possible side effects MYSELF! I used to like Diet Pepsi and now can barely drink it, which is better for me anyway. Still, I used to like to cook elaborate meals and choose nice wines to go with them, but now it's just a bother. We all want to be c-toma free, but I wish I knew that I'd have a hard time making lemonade out of the lemon I taste on the left! Still in remission and glad. -- Diane Brunet http://www.sassysuds.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2004 Report Share Posted November 30, 2004 I have not had that problem, everything tastes the same. I do crave a lot of sugar and my sense of smell is incredible. > > Hi group:) has anyone experienced loss of taste and hence appetitie > due to the lex? just wondering. alison Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2004 Report Share Posted December 1, 2004 thanks for answering. I too am craving sugar but that is mainly because it is the only thing I CAN taste. and sugar is not good for anxiety UGH what is one to do? So you think your sense of smell got better with the lex or was it always outstanding? alison On Wed, 01 Dec 2004 04:41:56 -0000 " acrwi1 " <acrwi1@...> writes: > > > > I have not had that problem, everything tastes the same. I do crave > > a lot of sugar and my sense of smell is incredible. > > > > > > > > > > > Hi group:) has anyone experienced loss of taste and hence > appetitie > > due to the lex? just wondering. alison > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2004 Report Share Posted December 1, 2004 I wish! No, Lex gave me my appetite back. Darn! lol Kathy R. > > Hi group:) has anyone experienced loss of taste and hence appetitie > due to the lex? just wondering. alison Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2004 Report Share Posted December 1, 2004 I always had a good sense of smell but now it seems more exaggerated, maybe it just seems that way. I think the sugar craving might have something to do with low energy, but I have no idea. I take metformin for insulin resistance, so I am not supposed to be eating sugar but I have been loading up on it in the past month. And once I start eating sugar I have a hard time stopping. > > > > > > Hi group:) has anyone experienced loss of taste and hence > > appetitie > > > due to the lex? just wondering. alison > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2005 Report Share Posted February 9, 2005 That's pretty much it - loss of taste or a metallic taste is common. I had it the loss of taste on one side and a metallic taste on the other for quite some time after my CWD. It takes less time for some to get their buds back. It's a bummer but I believe it almost always corrects itself. margaretmayfield <margaretmayfield@...> wrote: Hi everyone. Last week I had a cwd and so far, so good with the healing. The one major problem I'm having is that I can hardly taste anything. I've got an appt with my dr. tomorrow but was wondering what problems anyone else has had with this. I know there is a nerve that runs through the ear that can change the taste sensations if it gets cut or stretched during surgery and am assuming that's what happened. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2005 Report Share Posted February 9, 2005 Hi Margaret It can take a while to come back - a few weeks for some people, six months or more for others. I think there's only one person in the group who never got taste back. Phil Hi everyone. Last week I had a cwd and so far, so good with the healing. The one major problem I'm having is that I can hardly taste anything. I've got an appt with my dr. tomorrow but was wondering what problems anyone else has had with this. I know there is a nerve that runs through the ear that can change the taste sensations if it gets cut or stretched during surgery and am assuming that's what happened. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2005 Report Share Posted February 10, 2005 I also had loss of taste and metallic taste for several days post- op. I can't tell you how long it lasted exactly because it kind of just faded away. I asked my surgeon about it and he said it was normal. > > > Hi everyone. Last week I had a cwd and so far, so good with the > healing. The one major problem I'm having is that I can hardly > taste anything. I've got an appt with my dr. tomorrow but was > wondering what problems anyone else has had with this. I know > there is a nerve that runs through the ear that can change the > taste sensations if it gets cut or stretched during surgery and am > assuming that's what happened. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2005 Report Share Posted February 10, 2005 Phil said: Message: 3 Date: Wed, 9 Feb 2005 21:59:17 -0000 From: " Phil " <psmorris@...> Subject: Re: loss of taste Hi Margaret It can take a while to come back - a few weeks for some people, six months or more for others. I think there's only one person in the group who never got taste back. Phil Yeah, me :-( Fortunately, I'm the exception to the rule. My nerve wasn't just stretched or disturbed--it was removed as it was totally engulfed with c-toma. The surgeon couldn't dissect the growth away, so it had to come out. This is a very rare exception. -- Diane Chidgey Brunet http://www.sassysuds.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2010 Report Share Posted January 6, 2010 Hi, I also experienced this while on the core protocol. I wrote Buhner and asked him about it. He believed it was the Resveratrol (knotweed) and not the Andrographis. So I stopped the Resveratrol, but not the Andrographis or Cat's Claw. Lose of taste continued. So he advised me to stop everything and see if it returned. It did, after about a week or so. I was only up to 4 pills 3x/day not the full dose of 4 4x/day, but I think it started very gradually where I didn't realize until it was really bad. He said it was very rare to have a reaction to the Andrographis, and I could sub Stephania ?sp for the Andrographis. I started back up on the Resveratrol, but can't tolerate it alone, (diarrhea). Hope this helps. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2010 Report Share Posted January 6, 2010 Hi Anne, Here is a past Buhner column on this subject: http://planetthrive.com/2009/02/loss-of-taste-with-protocol/ Best of luck, > > After three weeks of using andrographis, I have experienced a loss of taste - makes eating strange. Has anyone had this and will it come back if I stop the herb? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2010 Report Share Posted January 7, 2010 Wonderful! I am in the 1% that loses taste I am using stephania, but my LLDM wanted me on andrographis, too. I really think it is the culprit because I stopped it and started it again and noticed the change. Thanks for the replies, folks. > > > > After three weeks of using andrographis, I have experienced a loss of taste - makes eating strange. Has anyone had this and will it come back if I stop the herb? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2010 Report Share Posted January 7, 2010 My experience with andrographis was not a lack of taste, but a 'yukky' taste to everything. I cannot think of any other word to describe it! It made everything I ate taste like that! It lasted a while, but I did not abandon the andrographis because of it; I felt that it was an important part of my protocol. Normal taste did return eventually. This was 3 years ago, when I was first on the protocol. I remember having this discussion with others; no one had the same experience as I had, but others did have the loss of taste. For me, as long as I felt the protocol was working, I was willing to accept the taste issue. Eventually (many months) I had to abandon the andrographis because it started causing a rash (I tend to get allergic after time on certain substances); but I still believe it was an important part of the early months of treatment. jo jo > > > > After three weeks of using andrographis, I have experienced a loss of taste - makes eating strange. Has anyone had this and will it come back if I stop the herb? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2010 Report Share Posted January 7, 2010 Hi. I know several Lyme patients who were on the core protocol and had that same experience, and it was due to the Andrographis. They all eventually got their taste back, but for some it took several months. The prescription drug Biaxin/Clarithromycin, which is commonly used to treat Lyme & Babesia, can affect taste, also. I know of one man who totally lost his taste for months after stopping the Biaxin. For others,it causes a metallic taste in the mouth - which can be quite bad. I had to stop that medication for that reason. The Andrographis just made me feel bad in general at the max dose, but the other Buhner herbs were easy for me and my husband to tolerate. Good luck. > > After three weeks of using andrographis, I have experienced a loss of taste - makes eating strange. Has anyone had this and will it come back if I stop the herb? > > Also, can knotweed do this, too? > > Thanks! > Quote Link to comment Share on other sites More sharing options...
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