Re: How many people have returned to normal life after Lyme via Buhner protocol or?

[Guest guest]

Hi ,

We looked at the Buhner protocol early on, but my wife decided to use salt/c

and later cs/c and rife instead.

Today she feels she is easily at 90% former health. I don't think there is

really any cure myself, but finding a protocol that is easy on the body and

keeps Lyme in remission is just as good I think!

www.lyme-resource.com

You can lead a person to a fact, but you can't make them think! -

[ ] How many people have returned to normal life

after Lyme via Buhner protocol or?

I am off and on this group. This is such a hard disease to beat and

wondering how many have achieved that milestone? Thanks,

[Guest guest]

Can u tell me what cs/c is?

Sent from my iPod

On Jan 12, 2010, at 6:56 PM, " " <msadams@...> wrote:

> Hi ,

>

> We looked at the Buhner protocol early on, but my wife decided to

> use salt/c

> and later cs/c and rife instead.

>

> Today she feels she is easily at 90% former health. I don't think

> there is

> really any cure myself, but finding a protocol that is easy on the

> body and

> keeps Lyme in remission is just as good I think!

>

>

> www.lyme-resource.com

> You can lead a person to a fact, but you can't make them think! -

>

>

>

> [ ] How many people have returned to normal

> life

> after Lyme via Buhner protocol or?

>

> I am off and on this group. This is such a hard disease to beat and

> wondering how many have achieved that milestone? Thanks,

>

>

[Guest guest]

I still do the Buhner protocol after about 2 years.  I've been at full

-functioning for 2 years , if that's what you mean by normal life.

(ABX for 5 /12 years, felt well enough for a strenouous job after 3 1/2 years. 

Added Buhner to abx after i was on abx for 2 1/2 years.  Now i'm on half-dose

abx every day, Buhner herbs 3x/day, and started rifing.)

  Dr wants me to do colloidal silver--- should i?  I keep taking the Buhner

herbs (as well as other herbs);  I assume they help keep me healthy, but i

don't notice any specific reactions.

--- purpleffoxglove

>

>

> [ ] How many people have returned to normal

> life

> after Lyme via Buhner protocol or?

>

> I am off and on this group. This is such a hard disease to beat and

> wondering how many have achieved that milestone? Thanks,

>

>

[Guest guest]

> I am off and on this group. This is such a hard disease to beat and

> wondering how many have achieved that milestone? Thanks,

Hi,

I think knowing what Actual stage a person has/had progressed to overall is

essential to know along side knowing how they have progressed with any protocol,

dont you ?

[Guest guest]

Has anyone reversed late stage neuro lyme symptoms i.e. muscle jerking, balance,

twiching, extreme cognitive issues ,numbness , coordination etc?

>

> I still do the Buhner protocol after about 2 years.  I've been at full

-functioning for 2 years , if that's what you mean by normal life.

> (ABX for 5 /12 years, felt well enough for a strenouous job after 3 1/2

years.  Added Buhner to abx after i was on abx for 2 1/2 years.  Now i'm on

half-dose abx every day, Buhner herbs 3x/day, and started rifing.)

>

>   Dr wants me to do colloidal silver--- should i?  I keep taking the Buhner

herbs (as well as other herbs);  I assume they help keep me healthy, but i

don't notice any specific reactions.

> --- purpleffoxglove

>

>

> >

>

> >

>

> > [ ] How many people have returned to normal

>

> > life

>

> > after Lyme via Buhner protocol or?

>

> >

>

> > I am off and on this group. This is such a hard disease to beat and

>

> > wondering how many have achieved that milestone? Thanks,

>

> >

>

> >

[Guest guest]

>

> Has anyone reversed late stage neuro lyme symptoms i.e. muscle jerking,

balance, twiching, extreme cognitive issues ,numbness , coordination etc?

for me those problems have improved a lot on the protocol.

I still have some cognitive issues (the problems with spelling/typing on the

keyboard, slow reaction etc., some memory problems). Numbness, tingling and

crawling sensations ('bugs in the skin') are almost completely gone; I think

those are primarily a side effect of deficiencies in B vitamins, Mg etc.

I had severe vertigo before starting the protocol, 95% gone now but still have

some problems with balance/nausea from time to time. Also sometimes a strong

'buzzing' all over my body, which feels like all the small muscles and arteries

are vibrating. It comes and goes, mostly have that early in the morning.

[Guest guest]

Can lyme deplete you of Vitamin B-12?

[Guest guest]

knotweed- thanks for the feedback- I'm in a low spot right now. All hell broke

loose after a fungal treatment I decided to try (big mistake) -of

flagyl/diflucan)I've been a really bad state/totally stopped sleeping and major

neuro symptoms and new ones I did not have before like numbness.....

Something similar like this happened to me 2.5 years ago when ramping up quickly

on buhner herbs and it took me 5 months to recover (but did not recover back to

baseline). This is far worse this time.Neuro plus totally not sleeping now....

I know you did abx.. do you think abx was essential to your neuro recover? I

seem to get alot worse with my first experience and new scary symptoms that

aren't going away.

I'm seeing a nurse/naturopath who has lyme herself and treats-she thinks I'm

totally toxic and I don't methylate well/detox. She wants to get me sleeping

,detox me first and the dicuss further treatment. Caught in cycle since

treatment terrifies me based on my experiences thus far. I was able to take

cat's claw, devils claw , sarsparilla after I stabilezed/recover from first huge

flare/neuro explosion. I know I have to take it very carefully.

Other lymers tell me that you will get new scary neuro and they will ater

resolve on abx. You have to feel like your dieing before you get well? I'm not

sure I can take that path. Buhner says follow the wisdom of your body? Where is

the wisdom in that? All so confusing.

> >

> > Has anyone reversed late stage neuro lyme symptoms i.e. muscle jerking,

balance, twiching, extreme cognitive issues ,numbness , coordination etc?

>

> for me those problems have improved a lot on the protocol.

>

> I still have some cognitive issues (the problems with spelling/typing on the

keyboard, slow reaction etc., some memory problems). Numbness, tingling and

crawling sensations ('bugs in the skin') are almost completely gone; I think

those are primarily a side effect of deficiencies in B vitamins, Mg etc.

>

> I had severe vertigo before starting the protocol, 95% gone now but still have

some problems with balance/nausea from time to time. Also sometimes a strong

'buzzing' all over my body, which feels like all the small muscles and arteries

are vibrating. It comes and goes, mostly have that early in the morning.

>

[Guest guest]

>

> I know you did abx.. do you think abx was essential to your neuro recover? I

seem to get alot worse with my first experience and new scary symptoms that

aren't going away.

I think my ABX (mostly the 6 weeks IV rocephin) helped with acute neuro problems

(walking / muscle control problems, severe disorientation etc.). But apart from

that, things were mostly worse after 1 year of ABX. Buhner protocol helped me a

lot; but despite over a year of ABX and 2 years of Buhner protocol, I'm not back

to where I was by a long shot. I still have severe skin (detox?) problems, and

cannot handle a normal job, traveling, stress like noisy/crowded environments

etc.

> I'm seeing a nurse/naturopath who has lyme herself and treats-she thinks I'm

totally toxic and I don't methylate well/detox.

yes, I'm pretty sure detox is a big part of the problem. Even though it is not

clear what we have to detox from ...

> Other lymers tell me that you will get new scary neuro and they will ater

resolve on abx. You have to feel like your dieing before you get well?

scary thought, but I have been there twice; have heard similar near-death

experiences from others who were very ill (often flagyl is the fuse the lights

the fire). But most of my issues resolved on herbs, not on ABX. Some people

'flare' when detoxing ...

I had a scary relapse 2 weeks ago; it seems to be part of a yearly cycle, as I

had similar flareup almost exactly 1 and 2 years ago. I asked 3 months of

Klacid/Plaquenil from my MD, and got a 1 month supply, but now I'm hesitating to

take it. Things are already much more stable today and I'm scared of the damage

the ABX can do.

I noticed that Buhner says on the Planet Health site that a large percentage of

people sees full recovery. Really? Just like with ABX, these full recoveries

seem to be the exception to the rule to me. I don't believe all those upbeat

stories from ILADS docs either. A lot of people improve with Buhner protocol

over time, just like many do on ABX or whatever other strange treatment ...

[Guest guest]

thanks for the input!

Similar to me- 2 " herx from hell " - with buhner herbs/combined with Zhang and

now after my first experience with abx/diflucan and did a potent herbal

decoction from local herbalist(plus sauna... maybe that made things worse ) not

sure. It doesn't seem like a herx should notcreate such new and alarming neuro

symptoms and take 5 months to recover (first time with buhner/zhang) and now

with 1 week flagyl/diflcan. It seems treatment makes me so much worse! almost a

" flare " versus a herx. The extreme neuro symptoms (coordination, even when

trying t type, swallowing, talking problems, jerking , extreme fog, weakness,

twitching, total insominia-are very frightening. All I can do is sit at home.

And no sleep so no escape!

If anyone has any tips for sleeping? I Was sleeping, although badly this fall

but was sleeping. Now totally not sleeping -never took meds before for sleeping

... can get 2-3 hours with ambien. LL nurse pract. presribed . Trazodone- was up

the entire night! It's not working either. Herbs calm me down but don't allow me

to sleep. Trying to meditate to relax brain. melatonin and 5 htp notworking

either.

Don't feel I can even begin to recover until I start sleeping again!

I was working up to now (mostly from home- same company 26 years)... now have to

ask for LOB. Can't even work from home I feel so bad! Sorry for the negativity.

This is so scary (the neuro symptoms).

> > >

> > > Has anyone reversed late stage neuro lyme symptoms i.e. muscle jerking,

balance, twiching, extreme cognitive issues ,numbness , coordination etc?

> >

> > for me those problems have improved a lot on the protocol.

> >

> > I still have some cognitive issues (the problems with spelling/typing on the

keyboard, slow reaction etc., some memory problems). Numbness, tingling and

crawling sensations ('bugs in the skin') are almost completely gone; I think

those are primarily a side effect of deficiencies in B vitamins, Mg etc.

> >

> > I had severe vertigo before starting the protocol, 95% gone now but still

have some problems with balance/nausea from time to time. Also sometimes a

strong 'buzzing' all over my body, which feels like all the small muscles and

arteries are vibrating. It comes and goes, mostly have that early in the

morning.

> >

>

>

>

>

>

>

>

>

>

>

[Guest guest]

,

I am responding to your comment about eye issues. I have noticed some of the

same things, particularly eye strain and floaters. I started using a 95%

colloidal silver/5% DMSO solution to spray in my eyes several times a day. This

seems to help a lot.

deb

> > >

> > > Has anyone reversed late stage neuro lyme symptoms i.e. muscle

> jerking, balance, twiching, extreme cognitive issues ,numbness ,

> coordination etc?

> >

> > for me those problems have improved a lot on the protocol.

> >

> > I still have some cognitive issues (the problems with spelling/typing on

> the keyboard, slow reaction etc., some memory problems). Numbness,

> tingling and crawling sensations ('bugs in the skin') are almost

> completely gone; I think those are primarily a side effect of deficiencies

> in B vitamins, Mg etc.

> >

> > I had severe vertigo before starting the protocol, 95% gone now but

> still have some problems with balance/nausea from time to time. Also

> sometimes a strong 'buzzing' all over my body, which feels like all the

> small muscles and arteries are vibrating. It comes and goes, mostly have

> that early in the morning.

> >

>

>

[Guest guest]

Colloidal Silver is CS. She takes 4 ounces, three times a day. The C is

vitamin C and she takes aporx 6g a day with meals.

There is a lot of information on these and other protocols on my free lyme

resource cd.

www.lyme-resource.com

You can lead a person to a fact, but you can't make them think! -

[ ] How many people have returned to normal

> life after Lyme via Buhner protocol or?

>

> I am off and on this group. This is such a hard disease to beat and

> wondering how many have achieved that milestone? Thanks,

>

>