Re: Correct Internet Contact for Lyme Disease letter

[Guest guest]

Hi again!

Sorry, but I am not certain the link I just gave you is correct.

Below is the link to the Attorney General's office. You can take it

from there to find your way to using the right form. I am going to

send a hard copy to make sure it gets to him. Thanks. Have a great

weekend!



On Feb 6, 2010, at 9:18 AM, Manno wrote:

> Dear friends,

>

> Here's an email contact for the Attorney General if you would

> prefer to be in touch that way.

> Go to: http://www.ag.ny.gov/online_forms/email_ag.jsp and send your

> message through the form.

> Please also spread the word in New York State.

>

> Best,

>

>

>

> http://www.ag.ny.gov/contact.html

>

> On Feb 5, 2010, at 6:10 PM, Manno wrote:

>

>>> LYME DISEASE GUIDELINES ALERT!

>>> Dear friends,

>>>

>>> I just received word of a news bulletin regarding the IDSA

>>> (Infectious Disease

>>> Society of America) violations of the antitrust trust voting

>>> procedures in the review of their 2006 Lyme guidelines. Below is

>>> a letter to the

>>> Attorney General Cuomo encouraging him to support CT

>>> Attorney General

>>> Blumenthal in holding the IDSA to the anti-trust

>>> settlement. The letter

>>> borrows phrases from the web site and you are welcome to

>>> use it as a template for your own letter. This is a link to the

>>> CALDA

>>> (California Lyme Disease Association) website which has more

>>> detailed

>>> information: www.lymepolicywonk.org. Please write a letter today!

>>> Your

>>> future health and the health of your children may depend on the

>>> guidelines review process.

>>>

>>> Office of the Attorney General

>>> State of NY

>>> Health Care Bureau

>>> The Capital

>>> Albany NY 12224

>>>

>>> Dear Attorney General Cuomo,

>>>

>>> I am a long-term resident of NY State. My child (13) has

>>> been sick with neurological Lyme disease and another tick-born

>>> co-infection babesiosis since April of 2009. She has been unable to

>>> attend school since becoming ill and suffers from constant fatigue,

>>> unrelenting headaches, low-grade fevers, and sensitivity to sound

>>> and

>>> light. My daughter would not be diagnosed or treated under the 2006

>>> IDSA (Infectious Disease Society of America) Lyme guidelines. We

>>> have

>>> to travel over two hours to find a physician willing to follow the

>>> ILADS (International Lyme and Associated Diseases Society)

>>> guidelines

>>> for tick-born diseases. Insurance denials, based in IDSA guidelines

>>> have prevented many New Yorkers with chronic Lyme from getting the

>>> treatment they need to restore their health.

>>>

>>> I am writing because an injustice is being done to Lyme patients

>>> throughout the country and you are in a position to rectify this

>>> wrong. The Attorney General of Connecticut Blumenthal

>>> reached

>>> an anti-trust settlement agreement the Infectious Disease Society of

>>> America, based on conflicts of interest of its authors and exclusion

>>> of alternate points of view and scientific evidence in the

>>> writing of

>>> its 2006 Lyme disease guidelines. Now we find that the IDSA is

>>> manipulating the voting process to favor no change in the guidelines

>>> in violation of the antitrust agreement.

>>>

>>> Attorney General Blumenthal has sent the IDSA a letter requesting

>>> that

>>> the IDSA redo the vote in compliance with the agreement. Please show

>>> your public support for enforcement of the antitrust settlement

>>> agreement and contact AG Blumenthal to help keep the IDSA honest and

>>> non-biased in their review of their Lyme disease guidelines.

>>>

>>

>