LYME DISEASE GUIDELINES ALERT!

[Guest guest]

> LYME DISEASE GUIDELINES ALERT!

> Dear friends,

>

> I just received word of a news bulletin regarding the IDSA

> (Infectious Disease

> Society of America) violations of the antitrust trust voting

> procedures in the review of their 2006 Lyme guidelines. Below is a

> letter to the

> Attorney General Cuomo encouraging him to support CT

> Attorney General

> Blumenthal in holding the IDSA to the anti-trust

> settlement. The letter

> borrows phrases from the web site and you are welcome to

> use it as a template for your own letter. This is a link to the CALDA

> (California Lyme Disease Association) website which has more detailed

> information: www.lymepolicywonk.org. Please write a letter today! Your

> future health and the health of your children may depend on the

> guidelines review process.

>

> Office of the Attorney General

> State of NY

> Health Care Bureau

> The Capital

> Albany NY 12224

>

> Dear Attorney General Cuomo,

>

> I am a long-term resident of NY State. My child (13) has

> been sick with neurological Lyme disease and another tick-born

> co-infection babesiosis since April of 2009. She has been unable to

> attend school since becoming ill and suffers from constant fatigue,

> unrelenting headaches, low-grade fevers, and sensitivity to sound and

> light. My daughter would not be diagnosed or treated under the 2006

> IDSA (Infectious Disease Society of America) Lyme guidelines. We have

> to travel over two hours to find a physician willing to follow the

> ILADS (International Lyme and Associated Diseases Society) guidelines

> for tick-born diseases. Insurance denials, based in IDSA guidelines

> have prevented many New Yorkers with chronic Lyme from getting the

> treatment they need to restore their health.

>

> I am writing because an injustice is being done to Lyme patients

> throughout the country and you are in a position to rectify this

> wrong. The Attorney General of Connecticut Blumenthal reached

> an anti-trust settlement agreement the Infectious Disease Society of

> America, based on conflicts of interest of its authors and exclusion

> of alternate points of view and scientific evidence in the writing of

> its 2006 Lyme disease guidelines. Now we find that the IDSA is

> manipulating the voting process to favor no change in the guidelines

> in violation of the antitrust agreement.

>

> Attorney General Blumenthal has sent the IDSA a letter requesting that

> the IDSA redo the vote in compliance with the agreement. Please show

> your public support for enforcement of the antitrust settlement

> agreement and contact AG Blumenthal to help keep the IDSA honest and

> non-biased in their review of their Lyme disease guidelines.

>

[Guest guest]

Dear friends,

Here's an email contact for the Attorney General if you would prefer

to be in touch that way.

Go to: http://www.ag.ny.gov/online_forms/email_ag.jsp and send your

message through the form.

Please also spread the word in New York State.

Best,

http://www.ag.ny.gov/contact.html

On Feb 5, 2010, at 6:10 PM, Manno wrote:

>> LYME DISEASE GUIDELINES ALERT!

>> Dear friends,

>>

>> I just received word of a news bulletin regarding the IDSA

>> (Infectious Disease

>> Society of America) violations of the antitrust trust voting

>> procedures in the review of their 2006 Lyme guidelines. Below is a

>> letter to the

>> Attorney General Cuomo encouraging him to support CT

>> Attorney General

>> Blumenthal in holding the IDSA to the anti-trust

>> settlement. The letter

>> borrows phrases from the web site and you are welcome to

>> use it as a template for your own letter. This is a link to the CALDA

>> (California Lyme Disease Association) website which has more detailed

>> information: www.lymepolicywonk.org. Please write a letter today!

>> Your

>> future health and the health of your children may depend on the

>> guidelines review process.

>>

>> Office of the Attorney General

>> State of NY

>> Health Care Bureau

>> The Capital

>> Albany NY 12224

>>

>> Dear Attorney General Cuomo,

>>

>> I am a long-term resident of NY State. My child (13) has

>> been sick with neurological Lyme disease and another tick-born

>> co-infection babesiosis since April of 2009. She has been unable to

>> attend school since becoming ill and suffers from constant fatigue,

>> unrelenting headaches, low-grade fevers, and sensitivity to sound and

>> light. My daughter would not be diagnosed or treated under the 2006

>> IDSA (Infectious Disease Society of America) Lyme guidelines. We have

>> to travel over two hours to find a physician willing to follow the

>> ILADS (International Lyme and Associated Diseases Society) guidelines

>> for tick-born diseases. Insurance denials, based in IDSA guidelines

>> have prevented many New Yorkers with chronic Lyme from getting the

>> treatment they need to restore their health.

>>

>> I am writing because an injustice is being done to Lyme patients

>> throughout the country and you are in a position to rectify this

>> wrong. The Attorney General of Connecticut Blumenthal reached

>> an anti-trust settlement agreement the Infectious Disease Society of

>> America, based on conflicts of interest of its authors and exclusion

>> of alternate points of view and scientific evidence in the writing of

>> its 2006 Lyme disease guidelines. Now we find that the IDSA is

>> manipulating the voting process to favor no change in the guidelines

>> in violation of the antitrust agreement.

>>

>> Attorney General Blumenthal has sent the IDSA a letter requesting

>> that

>> the IDSA redo the vote in compliance with the agreement. Please show

>> your public support for enforcement of the antitrust settlement

>> agreement and contact AG Blumenthal to help keep the IDSA honest and

>> non-biased in their review of their Lyme disease guidelines.

>>

>