Re: Anyone with neuropathy - B12?

[Guest guest]

Hi,

I was reading in this thread that someone suggested B12. Is this a sublingual

B12? I've read that B12 does not absorb. My LLMD provides syringes of B12 to

patients to self-inject. I have been considering this. Has anyone tried it?

deb

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> Hi ,

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> Thanks for the info. I'm on an IV antibiotic right now for a month. I have

pretty much had the burning consistently since mid-September. It comes & goes.

I have heard of IVIG therapy. I will speak to my neurologist about it -- in the

meantime, I'm hoping to get through this therapy and have things subside and go

onto Buhner's protocol.

>

> I don't have buzzing & tingling, it's just this darned burning that is nearly

the last prevailing symptom.

>

> Thanks so much!

>

> Kate

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> Re: [ ] Anyone with neuropathy

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> Kate,

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> Burning, buzzing and tingling in skin/extremities is very common with Lyme.

Antibiotics can actually make the sensation worse because you are experiencing a

herx reaction as the spirochetes die off and release the toxins that exacerbate

your symptoms. If you had Lyme for some time before diagnosis then you can

expect to be in treatment for months or possibly years before your symptoms are

gone. If the peripheral neuropathy is severe and you continue to experience it

after more in depth treatment you can explore IVIG therapy (IV ImmunoGlobulin)

as an option. My LLMD has published research that shows it to be effective for

the burning sensations - he says it doesn't work as well for the tingling/buzing

but very well for the burning sensations. It is very expensive though.... You

may be able to get some relief with neuroprotective supplements. Can't remember

which ones are best at this but I know vitamin E is one and maybe zinc?

> I had lots of the buzzing (there must be a cell phone ringing in my pocket

somewhere!!!) sensations, and mild burning ones and although I'm still having

lots of other symptoms those have been gone for a while. I'm on bicillin

2x/week, take lots of supplements and am on the core Buhner protocol plus Smilax

minus andrographis.

>

> -

> [ ] Anyone with neuropathy

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> Hi, was diagnosed in October with lyme [misdiagnosed for several months prior

to that]. I believe I've had this since last spring, but not entirely sure. I'm

currently on abx treatment but have ordered Buhner's core protocol to begin as

well.

>

> One of the symptoms lyme has brought into my life is neuropathy. Since

September, I have had a burning feeling on my skin. My doctor says it's

neuropathy and since antibiotic treatments have not touched this problem, he

says this may be a lingering symptom. I don't like this idea and trying to find

alternatives to help with this.

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> Has anyone had this symptom, or currently does? And what can be done? There

must be something.

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> Thanks,

> Kate

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[Guest guest]

>

> Hi,

>

> I was reading in this thread that someone suggested B12. Is this a sublingual

B12? I've read that B12 does not absorb. My LLMD provides syringes of B12 to

patients to self-inject. I have been considering this. Has anyone tried it?

I think it depends on what is causing your B12 deficiency. There are many

possible causes, e.g. insufficient stomach acid, problems with B12 reabsorption

(most of our B12 is stored/recycled in normal conditions, if this no longer

works your internal stock will run out).

Injections are the most reliable solution, but also most expensive and less

convenient. In theory you can get your B12 from sublingual pills. Difficult to

say how effective it is, the pills usually have a huge overdose so even if just

a few % of it is absorbed, it may be enough. Even with the pills absorption can

depend on several factors, e.g. the type of B12 that is used (there are several

versions on the market).

[Guest guest]

B12 injections yes have been helpful. If you dont have intrinsic factor or have

pernacious anemia then I think you need the shots.

The shots at 1000mcg of hydroxo B12 3 times a week have been helpful.

Sublingual, I may not have taken enough. I am hearing dosing throughout the day

and I only did/do twice a day

I want to be tested for pernacious anemia (I dont think one always has to be

anemic to have this): antibodies to intrinsic factor, paretial cells and gastrin

are recommended tests by the author of Could It Be B12.

Robin

> >

> > Hi,

> >

> > I was reading in this thread that someone suggested B12. Is this a

sublingual B12? I've read that B12 does not absorb. My LLMD provides syringes

of B12 to patients to self-inject. I have been considering this. Has anyone

tried it?

>

>

> I think it depends on what is causing your B12 deficiency. There are many

possible causes, e.g. insufficient stomach acid, problems with B12 reabsorption

(most of our B12 is stored/recycled in normal conditions, if this no longer

works your internal stock will run out).

>

> Injections are the most reliable solution, but also most expensive and less

convenient. In theory you can get your B12 from sublingual pills. Difficult to

say how effective it is, the pills usually have a huge overdose so even if just

a few % of it is absorbed, it may be enough. Even with the pills absorption can

depend on several factors, e.g. the type of B12 that is used (there are several

versions on the market).

>