Triple Whammy

[Guest guest]

Hi, all...

I'm new to the group and am wondering if

anyone else out there has experience with the triple whammy:

Lyme +

mycotoxicosis (toxic mold poisoning) + MCS

I also have Bartonella

and ES (electrical sensitivity), but who's counting?  Before this,

I was a healthy yoga teacher for 15 years in San Francisco, VT, Miami

and greater Philadelphia (where I got sick).

After nearly dying on

several occasions, trying various famous docs, and moving 6 times in 3

states in the last two years in search of a mold-free home (each time

they've developed leaks), I have finally found a couple lyme/mold/EI

docs willing to try to help me within the framework of my extreme

sensitivities, which includes being unable to tolerate abx.

I am

a little stronger, having gained back 20 pounds after 2 years (at 5'6 " ,

I went from

130 to 100 in the first 9 weeks of this medical journey and was told

there was nothing

wrong with me), but still have reactions to most all foods, most all

airbornes, and most all chemicals; however, I can now tolerate some

supplements and IV nutrients.  And I can use a computer again

(except during fungal flares which make my EMF sensitivity

soar).

One of my docs describes me as the " perfect storm, " and is

kind enough to do our consults outside because I can't tolerate the

offgassing in his office even with a NIOSH/carbon mask.

I'm

beginning to experiment with Cumanda/Samento, and I've tried some pretty

far-out things in the past 2 years, but I'm still open to more, so I'd

be grateful for any suggestions/support.  In particular, if anyone

has enough biochemistry knowledge to figure a way to increase the enzyme

acetaldehyde dehydrogenase in the body, that would be

great.

Healing wishes to

all,

arlene

[Guest guest]

Arlene:

Yes, I had severe MCS. I think what has helped me the most is Turmeric and

ginger root. Samento helps as well. Anything and everything I do for liver

support helps. I like to use supplements made from foods; you can find

broccoli sprouts and artichoke in herbal capsules. I also use milk thistle.

Cod

liver oil helps. I usually herx off of most things, but only at first.

Fortunately, I do not react to organic foods, just the unorganic foods.

Carpeting is the worst, especially if it is new. I wear a mask (from home

depot) if

I have to go to the garage or use glues or something that smells. Fresh air

or airing out the house does wonders for me. I am getting better slowly. I

hear MCS is from the liver being over-whelmed with too much toxin build-up

from all the pathogen wastes. All the pathogens keep the body too busy to

have any reserves left for toxins in the environment. I am using Grapefruit

seed extract right now as a basic pathogen-killer. I am still on Samento as

well as the other things I mentioned, plus some more here and there. I had

luck

with Resveratrol. I just am not on it right now due to it being on the

expensive side and trying other things. As much as I felt Cumanda did help

with

my Bartonella some, it didn't sit well with me. I think it's ok short term,

but I did not like it long term. I did well on Smilax.

Love and prayers,

Heidi N

Hi, all...

I'm new to the group and am wondering if

anyone else out there has experience with the triple whammy:

Lyme +

mycotoxicosis (toxic mold poisoning) + MCS

I also have Bartonella

and ES (electrical sensitivity)and ES (electrical Before this,

I was a healthy yoga teacher for 15 years in San Francisco, VT, Miami

and greater Philadelphia (where I got sick).

After nearly dying on

several occasions, trying various famous docs, and moving 6 times in 3

states in the last two years in search of a mold-free home (each time

they've developed leaks), I have finally found a couple lyme/mold/EI

docs willing to try to help me within the framework of my extreme

sensitivities, which includes being unable to tolerate abx.

I am

a little stronger, having gained back 20 pounds after 2 years (at 5'6 " , I

went from

130 to 100 in the first 9 weeks of this medical journey and was told there

was nothing

wrong with me), but still have reactions to most all foods, most all

airbornes, and most all chemicals; however, I can now tolerate some

supplements and IV nutrients. And I can use a computer again

(except during fungal flares which make my EMF sensitivity

soar).

One of my docs describes me as the " perfect storm, " and is

kind enough to do our consults outside because I can't tolerate the

offgassing in his office even with a NIOSH/carbon mask.

I'm

beginning to experiment with Cumanda/Samento, and I've tried some pretty

far-out things in the past 2 years, but I'm still open to more, so I'd

be grateful for any suggestions/be grate In particular, if anyone

has enough biochemistry knowledge to figure a way to increase the enzyme

acetaldehyde dehydrogenase in the body, that would be

great.

Healing wishes to

all,

arlene

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[Guest guest]

arlene,

i'm no chemist but,

have u tried the substrates for the enzyme?: NAC, CoA, and NADH

and perhaps a try at a low phenol diet? (Test your Tyrosine levels first):

http://www.kirkmanlabs.com/ViewProductDetails@Product_ID94 (DOT) aspx

https://www.houston-enzymes.com/store/product.php?p=7 & c=1

http://www.enzymestuff.com/nofenolfile.htm

http://www.talkaboutcuringautism.org/gfcf-diet/phenols-salicylates-additives.htm

http://www.danasview.net/phenol.htm

or perhaps trying chelation?

may u find joy,

~zeph

http://www.genome.jp/dbget-bin/www_bget?enzyme+1.2.1.10

" It is the final enzyme in the meta-cleavage pathway for the degradation of

phenols

cresols and catechol, converting the acetaldehyde produced by EC

4.1.3.39 into acetyl-CoA [3]. NADP+ can replace NAD+ but the rate of

reaction is much slower [3]. "

>

> Hi, all...

> I'm new to the group and am wondering

> if anyone

> has enough biochemistry knowledge to figure a way to increase the

enzyme

> acetaldehyde dehydrogenase in the body, that would be

> great.

>

> Healing wishes to

> all,

> arlene

>

>

[Guest guest]

Hi Arlene:

Yes, I also have the triple problem....my ES is quite severe, I have lymes

and don't know if I have any co-infections but I suspect I do - however, I

have dental infections (old cavitation sites and root canals which have been

surgically cleared but will take some time to get all the infection out) and

mold infections throughout my body which I'm workking hard to get rid of.

I've made progress with herbs I'm about 50% better from those symptoms but

my ES soars....I can't go into grocery stores or any wi-fi type

environments....I think the ES is a symptom of the body and immune system

having difficulty coping with other " challenges " , which in my case are the

lymes and very persistent bowel and jaw infections. I'm working hard to

clear up all my problems with help from a naturopath....I am not taking any

drugs...

I am hopeful that my ES will reduce as I make more progress on the other

issues and lymes. Also...for ES, having your house inspected for large

sources of emf's and then fixing those, especially in sleeping areas is

helpful for me. Stay off the computer as much as possible, I'm here once a

week and only briefly..... If you are in Ontario, Canada I can give you

the name of someone to consult with who specializes in helping people cope

with ES.

Please keep in touch on your successes with all of these it is quite a

challenge to have ES and lymes together, I'm finding it totally life

altering and very challenging as you have to keep track of your symptoms

and can't always be sure if it's ES or lymes that is acting up....I'm

determined to beat this and get my former good health back. Email me

privately if you have more detailed questions about ES. Also, anyone else

who is dealing with ES and lymes - it would be great if we could all

brainstorm and work on this together....so let's compare notes and research

Happy New Year. .

Donna

[Guest guest]

Hi - was going through some of the emails tonite and saw this - question for

any of you - do any of you react to touching fabric? I am reacting with

itching and hives. Have any of you rehabbed yourself back from this? Lyme here,

no co's. - Robin

In a message dated 12/30/2008 7:57:58 A.M. Pacific Standard Time,

Ambitionn01@... writes:

Arlene:

Yes, I had severe MCS. I think what has helped me the most is Turmeric and

ginger root. Samento helps as well. Anything and everything I do for liver

support helps. I like to use supplements made from foods; you can find

broccoli sprouts and artichoke in herbal capsules. I also use milk thistle.

Cod

liver oil helps. I usually herx off of most things, but only at first.

Fortunately, I do not react to organic foods, just the unorganic foods.

Carpeting is the worst, especially if it is new. I wear a mask (from home

depot) if

I have to go to the garage or use glues or something that smells. Fresh air

or airing out the house does wonders for me. I am getting better slowly. I

hear MCS is from the liver being over-whelmed with too much toxin build-up

from all the pathogen wastes. All the pathogens keep the body too busy to

have any reserves left for toxins in the environment. I am using Grapefruit

seed extract right now as a basic pathogen-killer. I am still on Samento as

well as the other things I mentioned, plus some more here and there. I had

luck

with Resveratrol. I just am not on it right now due to it being on the

expensive side and trying other things. As much as I felt Cumanda did help

with

my Bartonella some, it didn't sit well with me. I think it's ok short term,

but I did not like it long term. I did well on Smilax.

Love and prayers,

Heidi N

Hi, all...

I'm new to the group and am wondering if

anyone else out there has experience with the triple whammy:

Lyme +

mycotoxicosis (toxic mold poisoning) + MCS

I also have Bartonella

and ES (electrical sensitivity)and ES (electrical sensitivity)<WBR>

I was a healthy yoga teacher for 15 years in San Francisco, VT, Miami

and greater Philadelphia (where I got sick).

After nearly dying on

several occasions, trying various famous docs, and moving 6 times in 3

states in the last two years in search of a mold-free home (each time

they've developed leaks), I have finally found a couple lyme/mold/EI

docs willing to try to help me within the framework of my extreme

sensitivities, which includes being unable to tolerate abx.

I am

a little stronger, having gained back 20 pounds after 2 years (at 5'6 " , I

went from

130 to 100 in the first 9 weeks of this medical journey and was told there

was nothing

wrong with me), but still have reactions to most all foods, most all

airbornes, and most all chemicals; however, I can now tolerate some

supplements and IV nutrients. And I can use a computer again

(except during fungal flares which make my EMF sensitivity

soar).

One of my docs describes me as the " perfect storm, " and is

kind enough to do our consults outside because I can't tolerate the

offgassing in his office even with a NIOSH/carbon mask.

I'm

beginning to experiment with Cumanda/Samento, and I've tried some pretty

far-out things in the past 2 years, but I'm still open to more, so I'd

be grateful for any suggestions/be grateful for any suggestions/<WBR>b

has enough biochemistry knowledge to figure a way to increase the enzyme

acetaldehyde dehydrogenase in the body, that would be

great.

Healing wishes to

all,

arlene

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