Re: Seeing an Infectious Disease doctor today (Dysautonomia)

[Guest guest]

Selma and all.......

I too have posted perhaps before, on the dysautonomia issues with my

body. These are some difficult symptoms to deal with. I think the

dysautonomia has been coming on for many years as I look back at my

health and reactions, and as lyme and infections progress this area

seems to be more of an issue for many, and sometimes confusing.

When I was in supposed end stage MS and hopsice care back in 1995-96,

my doctor diagnosed me with pure autonomic failure and I barely

squeaked through it. I managed well since then until about two years

ago, and now it seems many of the dysautonomia issues are really much

of what I am having to deal with as a result of this long time

infectious state. Fortunately, treating the infection paves the way

for the nervous system and all of this to heal.

My current symptoms include heart irregularities, blood pressure

fluctuations, blood pooling and edema, gastroparesis, temperature

disregularion, insomnia, anxiety, near fainting, breathing and asthma

difficulties, Raynaud's and circulation dysfunction, muscle

spasms......I'm sure there is more. I also think part of the food and

chemical allergies are more dysautonomia and hypersensitivities as

well as insufficient detoxification pathways and toxic overload.

What helped was to realize what was dysautonomia as opposed to other

issues, especially with digestion. I am currently experiencing

chronic " dumping " syndrome. For me, of course it makes sense to take

probiotics and digestive enzymes however when the motility issues are

dysautonomia related - this brings a different light and approach to

treating it.

Since this is an herb group, I will mention the herbs that seem to be

helping my dysautonomia symptoms.

First off, I find Japanese Knotweed really helpful. Unfortuantely

many infection lowering herbs tend to be " Vata " aggravating and

deranging and depleting to the nervous system even though bitter and

astringent herbs, and cooling overall are great to lower infection.

Japanese Knotweed however seems to be gentle and supportive to the

nervous system and nicely crosses the blood brain area as well. Cat's

Claw is fairly tolerable in this way for me as well, but Andrographis

is more aggravating so I have to watch this herb and currently still

am not taking any.

Ashwagandha has been very helpful for the autonomic nervous system

support, and so has the Chinese herbs Gastrodia and Dong Quai.

I feel so forunate to realize that infection is causing the

dysfunction of the nervous system. It does not seem to me that

allopathic medicine as much success in even managing dysautonomia

effectively and it is often misunderstood in the medical communities

both allopathic and alternative.

Collodial silver has also been something I have tolerated well. I am

also using alpha lipoic acid, selenium, glutathione and acetyl l

carnitine for nervous system support, detox and nerve repair. My

focus is to keep the nervous system calm, reduce inflammation and

infection, and work on repair.

The gastroparesis is especially difficult and has caused some

malabsorbtion issues and weight loss, and with the extensive food

allergies makes my treatment challenging. I do feel I am making good

progress overall.

I am enjoying our new hot tub, and it has been a God send to help

with the temperature problems in my body. I often get as low as 93

degrees and I don't know how I would warm up this winter without the

new hot tub. I am so thankful for this new tool.

Please forgive this lengthy post. I have been really struggling with

and learning much about dysautonomia.

Love,

Jnanda

[Guest guest]

Jnanda

Thanks so much for always sharing as you learn along the way. Never

apologize for the length....I was taking notes.

Love, (Makayla'smom)

On Dec 10, 2007 6:39 PM, jnanda <jnanda@...> wrote:

> Selma and all.......

>

> I too have posted perhaps before, on the dysautonomia issues with my

> body. These are some difficult symptoms to deal with. I think the

> dysautonomia has been coming on for many years as I look back at my

> health and reactions, and as lyme and infections progress this area

> seems to be more of an issue for many, and sometimes confusing.

>

> When I was in supposed end stage MS and hopsice care back in 1995-96,

> my doctor diagnosed me with pure autonomic failure and I barely

> squeaked through it. I managed well since then until about two years

> ago, and now it seems many of the dysautonomia issues are really much

> of what I am having to deal with as a result of this long time

> infectious state. Fortunately, treating the infection paves the way

> for the nervous system and all of this to heal.

>

> My current symptoms include heart irregularities, blood pressure

> fluctuations, blood pooling and edema, gastroparesis, temperature

> disregularion, insomnia, anxiety, near fainting, breathing and asthma

> difficulties, Raynaud's and circulation dysfunction, muscle

> spasms......I'm sure there is more. I also think part of the food and

> chemical allergies are more dysautonomia and hypersensitivities as

> well as insufficient detoxification pathways and toxic overload.

>

> What helped was to realize what was dysautonomia as opposed to other

> issues, especially with digestion. I am currently experiencing

> chronic " dumping " syndrome. For me, of course it makes sense to take

> probiotics and digestive enzymes however when the motility issues are

> dysautonomia related - this brings a different light and approach to

> treating it.

>

> Since this is an herb group, I will mention the herbs that seem to be

> helping my dysautonomia symptoms.

>

> First off, I find Japanese Knotweed really helpful. Unfortuantely

> many infection lowering herbs tend to be " Vata " aggravating and

> deranging and depleting to the nervous system even though bitter and

> astringent herbs, and cooling overall are great to lower infection.

> Japanese Knotweed however seems to be gentle and supportive to the

> nervous system and nicely crosses the blood brain area as well. Cat's

> Claw is fairly tolerable in this way for me as well, but Andrographis

> is more aggravating so I have to watch this herb and currently still

> am not taking any.

>

> Ashwagandha has been very helpful for the autonomic nervous system

> support, and so has the Chinese herbs Gastrodia and Dong Quai.

>

> I feel so forunate to realize that infection is causing the

> dysfunction of the nervous system. It does not seem to me that

> allopathic medicine as much success in even managing dysautonomia

> effectively and it is often misunderstood in the medical communities

> both allopathic and alternative.

>

> Collodial silver has also been something I have tolerated well. I am

> also using alpha lipoic acid, selenium, glutathione and acetyl l

> carnitine for nervous system support, detox and nerve repair. My

> focus is to keep the nervous system calm, reduce inflammation and

> infection, and work on repair.

>

> The gastroparesis is especially difficult and has caused some

> malabsorbtion issues and weight loss, and with the extensive food

> allergies makes my treatment challenging. I do feel I am making good

> progress overall.

>

> I am enjoying our new hot tub, and it has been a God send to help

> with the temperature problems in my body. I often get as low as 93

> degrees and I don't know how I would warm up this winter without the

> new hot tub. I am so thankful for this new tool.

>

> Please forgive this lengthy post. I have been really struggling with

> and learning much about dysautonomia.

>

> Love,

> Jnanda

>

>

>

[Guest guest]

Thank you, Jnanda. This is very good information, as well! We were afraid my

sister was experiencing multiple system failure and dying at one time. At the

time, dysautonomia was just beginning to be researched at Vanderbilt and I think

s Hopkins. She was denied participation (and basically treatment) in a Vandy

study because she did not fit their boxed definition when she was desparately

ill (their research has now discovered her symptoms) and she finally gave up on

doctors and is glad she did because she is not on meds for the dys and

controlling it for the most part. Blood pooling in the abdomen is a big problem.

She is having problems with her digestive tract at the moment. I'll share this

info with her. I agree that allopathic and alternative medicine do not yet get

dysautonomia, although I am finding more doctors who are aware enough to have an

idea what of what it is, although I had several want to increase my toprol when

my adrenaline induced tachtycardia was compensati

ng for low blood volume and possible abdominal blood pooling.. therefore, more

meds to decrease a heart rate that is trying its best to keep the blood flow

going to the heart and brain would seem to call for a further increase in

adrenaline and then even more meds. They never got that and I went down on my

own and compensated some with salt drinks. I was fortunate that when I was

seeking new cardiologist that understood dys, I was sent by one to another to

another who sent me to my current LLMD. I appreciate the fact that they admitted

that they didn't know enough to help me and wanted to help me find someone who

did. Thank you for the information. I'm sorry you are experiencing this again.

Sal

--

http://lymeactivist.wordpress.com/. The Take Action! call is presently focusing

on the defense of Dr. .

-------------- Original message --------------

From: " jnanda " <jnanda@...>

Selma and all.......

I too have posted perhaps before, on the dysautonomia issues with my

body. These are some difficult symptoms to deal with. I think the

dysautonomia has been coming on for many years as I look back at my

health and reactions, and as lyme and infections progress this area

seems to be more of an issue for many, and sometimes confusing.

When I was in supposed end stage MS and hopsice care back in 1995-96,

my doctor diagnosed me with pure autonomic failure and I barely

squeaked through it. I managed well since then until about two years

ago, and now it seems many of the dysautonomia issues are really much

of what I am having to deal with as a result of this long time

infectious state. Fortunately, treating the infection paves the way

for the nervous system and all of this to heal.

My current symptoms include heart irregularities, blood pressure

fluctuations, blood pooling and edema, gastroparesis, temperature

disregularion, insomnia, anxiety, near fainting, breathing and asthma

difficulties, Raynaud's and circulation dysfunction, muscle

spasms......I'm sure there is more. I also think part of the food and

chemical allergies are more dysautonomia and hypersensitivities as

well as insufficient detoxification pathways and toxic overload.

What helped was to realize what was dysautonomia as opposed to other

issues, especially with digestion. I am currently experiencing

chronic " dumping " syndrome. For me, of course it makes sense to take

probiotics and digestive enzymes however when the motility issues are

dysautonomia related - this brings a different light and approach to

treating it.

Since this is an herb group, I will mention the herbs that seem to be

helping my dysautonomia symptoms.

First off, I find Japanese Knotweed really helpful. Unfortuantely

many infection lowering herbs tend to be " Vata " aggravating and

deranging and depleting to the nervous system even though bitter and

astringent herbs, and cooling overall are great to lower infection.

Japanese Knotweed however seems to be gentle and supportive to the

nervous system and nicely crosses the blood brain area as well. Cat's

Claw is fairly tolerable in this way for me as well, but Andrographis

is more aggravating so I have to watch this herb and currently still

am not taking any.

Ashwagandha has been very helpful for the autonomic nervous system

support, and so has the Chinese herbs Gastrodia and Dong Quai.

I feel so forunate to realize that infection is causing the

dysfunction of the nervous system. It does not seem to me that

allopathic medicine as much success in even managing dysautonomia

effectively and it is often misunderstood in the medical communities

both allopathic and alternative.

Collodial silver has also been something I have tolerated well. I am

also using alpha lipoic acid, selenium, glutathione and acetyl l

carnitine for nervous system support, detox and nerve repair. My

focus is to keep the nervous system calm, reduce inflammation and

infection, and work on repair.

The gastroparesis is especially difficult and has caused some

malabsorbtion issues and weight loss, and with the extensive food

allergies makes my treatment challenging. I do feel I am making good

progress overall.

I am enjoying our new hot tub, and it has been a God send to help

with the temperature problems in my body. I often get as low as 93

degrees and I don't know how I would warm up this winter without the

new hot tub. I am so thankful for this new tool.

Please forgive this lengthy post. I have been really struggling with

and learning much about dysautonomia.

Love,

Jnanda

[Guest guest]

Dear Selma and Jnanda,

I wanted to thank you for your posts. I have just been diagnosed with

Dysautonomia and have been bed ridden since July of this year with it. I

thought I was going to die with it (I am 36). I was told here I had to wait 2

years to see a cardiologist...but made a lengthy trip to Seattle (I live in

Canada) and was diagnosed right away. I have no doctor here at all helping me

or monitoring me.

I too have been using Japanese Knotweed and have increased my intake of

electrolytes. I also added a foam wedge to the head of my bed and sleep on a 15

degree incline, which helps a bit.

I am getting the severe anxiety and did test for high levels of norephinephrine,

I also have the tremors.

I am sorry you are all going through this too but it was very helpful for me to

hear other people dealing with this because I have no one here that understands

it or is helping me at all.

best wishes,

Re: [ ] Re: Seeing an Infectious Disease doctor today

(Dysautonomia)

Thank you, Jnanda. This is very good information, as well! We were afraid my

sister was experiencing multiple system failure and dying at one time. At the

time, dysautonomia was just beginning to be researched at Vanderbilt and I think

s Hopkins. She was denied participation (and basically treatment) in a Vandy

study because she did not fit their boxed definition when she was desparately

ill (their research has now discovered her symptoms) and she finally gave up on

doctors and is glad she did because she is not on meds for the dys and

controlling it for the most part. Blood pooling in the abdomen is a big problem.

She is having problems with her digestive tract at the moment. I'll share this

info with her. I agree that allopathic and alternative medicine do not yet get

dysautonomia, although I am finding more doctors who are aware enough to have an

idea what of what it is, although I had several want to increase my toprol when

my adrenaline induced tachtycardia was compensati

ng for low blood volume and possible abdominal blood pooling.. therefore, more

meds to decrease a heart rate that is trying its best to keep the blood flow

going to the heart and brain would seem to call for a further increase in

adrenaline and then even more meds. They never got that and I went down on my

own and compensated some with salt drinks. I was fortunate that when I was

seeking new cardiologist that understood dys, I was sent by one to another to

another who sent me to my current LLMD. I appreciate the fact that they admitted

that they didn't know enough to help me and wanted to help me find someone who

did. Thank you for the information. I'm sorry you are experiencing this again.

Sal

--

http://lymeactivist.wordpress.com/. The Take Action! call is presently

focusing on the defense of Dr. .

[Guest guest]

Jnanda, thanks a lot for your answer!!

In my case, I think that dysautonomia symptoms, if I think well, came

much before lyme entered in play, but I was not 'aware'. Like the

standing up/ laying problem of heart beat (not changing fast), I know

now I had that for long but didn't think of it as a problem as it was

not something evident (I only know now by 'comparison', when I am

horizontal, my heart rate falls immediately or almost immediately and

it's a very relaxing feeling).

Like the face blushing when we enter from cold to warm place, almost

no one has that except for smalll kids. Our bodies, I believe, lose

the abilities to do that, and I also believe it's a malfunction of

the ANS. For most people then.

When lyme comes into play, dysautonomia symptoms come to the

foreground then! I wonder what are the exact causes for that, if the

infections themselves or toxins, for example, or side-consequences of

a weak immune system, or messing up with hormones or whatever....

I also feel, like you, that treating infections is a good way

to 'start' dealing with these symptoms as they really go with lower

rate of infections. At least for me. The half chilly body thing

slowly disappeared, chilly attacks too (except when I was back to

andrographis that is extremely chilling!!).

Edema, you mention it... I've been having swellings on my fingers/

toes in the last weeks... Sorry you have so many symptoms, still

Jnanda.

Also for the breathing problem, besides babesia, I find there is much

more for possible causes. Mine were linked to heavy metal

intoxication too, yes, heavy metals in the lungs. Plus some symptoms

must come from dysautonomia, I guess! Also, many people herx in the

lungs, somehow I believe there's some sort of toxin concentration

there??

Anxiety, the same. Besides dysautonomia, there can be many causes for

it. Even lack of minerals can cause it... INfections, certainly.

Herxes, certainly. It's a maze...

Where I know I certainly had (have?) dysautonomia is because of

temperature problem... I guess MOST lyme sufferers have then

dysautonomia!!

What are 'dumping' symptoms??

Agree with you with the Jap Knotweed thing. It does help

neurologically for me too.

Andro has been always like a hammer to me. It worked wonderfully, but

I was CHILLY the whole time I was on it. Cats claw less, but it's

chilly too. You are saying these may disrupt the ANS??

> Ashwagandha has been very helpful for the autonomic nervous system

> support, and so has the Chinese herbs Gastrodia and Dong Quai.

I took notes, thanks!

Thanks a lot for all the very interesting information!

I gotta go, my daughter is calling !!!

Selma

[Guest guest]

I had this before lyme as well as it began to act up when I was a teenager.

Thank you both so much for the information.

I have a few questions:

How do you herx from your lungs? Before my babesia diagnosis, I had an MRI that

showed minimal diffuse septal wall thickening in my lungs. My rheumatologist

said that it didn't look like schleroderma, which my pulmonist was concerned

about given a positive/low ANA. I had a spell last or the year before? where I

had really bad coughing, unproductive and remember being actually glad to have a

cough hoping something would come up.

Does a regular detox take care of the lungs?

What is KMT that was mentioned earlier in regard to brain parasites?

Thanks so much!

--

NEW UPDATE! YOU ARE NEEDED! Find out what you can do and why you should do it:

http://lymeactivist.wordpress.com/. The Take Action! call is presently focusing

on the defense of Dr. .

-------------- Original message --------------

From: " selmanaka " <hardynaka@...>

Jnanda, thanks a lot for your answer!!

In my case, I think that dysautonomia symptoms, if I think well, came

much before lyme entered in play, but I was not 'aware'. Like the

standing up/ laying problem of heart beat (not changing fast), I know

now I had that for long but didn't think of it as a problem as it was

not something evident (I only know now by 'comparison', when I am

horizontal, my heart rate falls immediately or almost immediately and

it's a very relaxing feeling).

Like the face blushing when we enter from cold to warm place, almost

no one has that except for smalll kids. Our bodies, I believe, lose

the abilities to do that, and I also believe it's a malfunction of

the ANS. For most people then.

When lyme comes into play, dysautonomia symptoms come to the

foreground then! I wonder what are the exact causes for that, if the

infections themselves or toxins, for example, or side-consequences of

a weak immune system, or messing up with hormones or whatever....

I also feel, like you, that treating infections is a good way

to 'start' dealing with these symptoms as they really go with lower

rate of infections. At least for me. The half chilly body thing

slowly disappeared, chilly attacks too (except when I was back to

andrographis that is extremely chilling!!).

Edema, you mention it... I've been having swellings on my fingers/

toes in the last weeks... Sorry you have so many symptoms, still

Jnanda.

Also for the breathing problem, besides babesia, I find there is much

more for possible causes. Mine were linked to heavy metal

intoxication too, yes, heavy metals in the lungs. Plus some symptoms

must come from dysautonomia, I guess! Also, many people herx in the

lungs, somehow I believe there's some sort of toxin concentration

there??

Anxiety, the same. Besides dysautonomia, there can be many causes for

it. Even lack of minerals can cause it... INfections, certainly.

Herxes, certainly. It's a maze...

Where I know I certainly had (have?) dysautonomia is because of

temperature problem... I guess MOST lyme sufferers have then

dysautonomia!!

What are 'dumping' symptoms??

Agree with you with the Jap Knotweed thing. It does help

neurologically for me too.

Andro has been always like a hammer to me. It worked wonderfully, but

I was CHILLY the whole time I was on it. Cats claw less, but it's

chilly too. You are saying these may disrupt the ANS??

> Ashwagandha has been very helpful for the autonomic nervous system

> support, and so has the Chinese herbs Gastrodia and Dong Quai.

I took notes, thanks!

Thanks a lot for all the very interesting information!

I gotta go, my daughter is calling !!!

Selma

[Guest guest]

I don't know what is your real problem, but I'm sure I herxed in the

lungs. It's like you take a killer, and you feel pressure in your

chest, difficulty to breathe, then after a while, the feeling either

goes out or diminishes to come back again after a new dose of killers.

That happened in my case many times. Specially the chest pressure

feeling.

I read other people feeling the same, that's how I know it's not my

imagination.

But previous to that, I had real air hunger attacks. For me, these

attakcs were related to babesial infection AND to heavy metal

intoxication IN the lungs. I had NEVER had lung problems before I

caught babesia, no asthma, nothing. ONce I caught babesia, I started

killing it, I had terrible air hunger attacks (I believe many of my air

hunger attacks started as a herx reaction).

Somehow, many people with babesia suffer from these bouts of air hunger

attacks or CONSTANT air hunger (which I also had for weeks/ months).

Awful stuff. Once I got no more babesia, and once I treated my heavy

metals in the lungs (lead, in my case) with specific treatment (dr. K's

protocol in my case), I never got air hunger attacks anymore.

But I continued to herx in my lungs, lightly, what I call " chest

pressure " feeling. That's why I BELIEVE there's some sort of reaction

of toxins either going to the lungs or affecting the feeling air is

entering our lungs.

I have no idea, but such a symptom is SOOOOO common to lyme sufferers

that I keep wondering its real causes. I've read so many explanations,

so far NONE is convincing for me. Specially the one that babesia eats

your red blood cells that's why you get air hunger. I don't buy this at

all, as my iron counts could be normal and I would still get to

emergency with air hunger.

And hyperventilating some times, so nothing to do with real danger of

lack of red blood cells. Maybe another dysautonomia symptom???

Selma

How do you herx from your lungs? Before my babesia diagnosis, I had an

MRI that showed minimal diffuse septal wall thickening in my lungs. My

rheumatologist said that it didn't look like schleroderma, which my

pulmonist was concerned about given a positive/low ANA. I had a spell

last or the year before? where I had really bad coughing, unproductive

and remember being actually glad to have a cough hoping something would

come up.

>

> Does a regular detox take care of the lungs?

>

> What is KMT that was mentioned earlier in regard to brain parasites?

>

> Thanks so much!

>

>

[Guest guest]

heavy metals can depress thyroid functions. Air hunger can be a symptom of

low thyroid functions and low ferritin levels (which usually accompanies low

thyroid). Elememtal iron may help and the babesia is likely taking out red

blood cells contributing to the problem. So in addition to killing the

babesia, you could consider trying a thyroid booster or maybe some iodine.

-- [ ] Re: Seeing an Infectious Disease doctor today

(Dysautonomia)

I don't know what is your real problem, but I'm sure I herxed in the

lungs. It's like you take a killer, and you feel pressure in your

chest, difficulty to breathe, then after a while, the feeling either

goes out or diminishes to come back again after a new dose of killers.

That happened in my case many times. Specially the chest pressure

feeling.

I read other people feeling the same, that's how I know it's not my

imagination.

But previous to that, I had real air hunger attacks. For me, these

attakcs were related to babesial infection AND to heavy metal

intoxication IN the lungs. I had NEVER had lung problems before I

caught babesia, no asthma, nothing. ONce I caught babesia, I started

killing it, I had terrible air hunger attacks (I believe many of my air

hunger attacks started as a herx reaction).

Somehow, many people with babesia suffer from these bouts of air hunger

attacks or CONSTANT air hunger (which I also had for weeks/ months).

Awful stuff. Once I got no more babesia, and once I treated my heavy

metals in the lungs (lead, in my case) with specific treatment (dr. K's

protocol in my case), I never got air hunger attacks anymore.

But I continued to herx in my lungs, lightly, what I call " chest

pressure " feeling. That's why I BELIEVE there's some sort of reaction

of toxins either going to the lungs or affecting the feeling air is

entering our lungs.

I have no idea, but such a symptom is SOOOOO common to lyme sufferers

that I keep wondering its real causes. I've read so many explanations,

so far NONE is convincing for me. Specially the one that babesia eats

your red blood cells that's why you get air hunger. I don't buy this at

all, as my iron counts could be normal and I would still get to

emergency with air hunger.

And hyperventilating some times, so nothing to do with real danger of

lack of red blood cells. Maybe another dysautonomia symptom???

Selma

How do you herx from your lungs? Before my babesia diagnosis, I had an

MRI that showed minimal diffuse septal wall thickening in my lungs. My

rheumatologist said that it didn't look like schleroderma, which my

pulmonist was concerned about given a positive/low ANA. I had a spell

last or the year before? where I had really bad coughing, unproductive

and remember being actually glad to have a cough hoping something would

come up.

>

> Does a regular detox take care of the lungs?

>

> What is KMT that was mentioned earlier in regard to brain parasites?

>

> Thanks so much!

>

>

[Guest guest]

OK. Well, maybe I am herxing some when I feel the pressure.. or I'm getting

worse.. I am on Mepron and Biaxin and am here to learn, esp now that my dh

tested postive on two bands for lyme and my children are to be tested in Jan.

I'm worried for us all. Anyway...

I'll look up Dr. K's (Klindhardt?) protocol. I am currently takin Burbur and

Pinella and to start Chlorella. I'm to start adrenal support with a product

called adrenoguard. Hope to do a GI cleanse after this treatment and get my

mercury fillings removed and detox for that. We'll see how it all works out.

Then we go from there.

My dysautonomia is no worse so far. My sister is starting to have BP problems,

so passing all this info to her.

My iron counts are normal as well. I've read the red blood cells get distorted

and sticky? My sister who is an intuitive healer picked up on sticky blood but

didn't know why. She kept saying it, and it does fit babesia, it seems? I'm

taking fish oil, flax oil and borage oil. Read esp the fish oil helps the

platelets not stick to each other. As far as other explanations for air hunger..

could be the fibrin in the smaller capillaries? Sludging of blood? Vasculitis?

Vasoconstriction? Of course I have no clue. And I don't know how to otherwise

address, thus I am here!

--

NEW UPDATE! YOU ARE NEEDED! Find out what you can do and why you should do it:

http://lymeactivist.wordpress.com/. The Take Action! call is presently focusing

on the defense of Dr. .

-------------- Original message --------------

From: " selmanaka " <hardynaka@...>

I don't know what is your real problem, but I'm sure I herxed in the

lungs. It's like you take a killer, and you feel pressure in your

chest, difficulty to breathe, then after a while, the feeling either

goes out or diminishes to come back again after a new dose of killers.

That happened in my case many times. Specially the chest pressure

feeling.

I read other people feeling the same, that's how I know it's not my

imagination.

But previous to that, I had real air hunger attacks. For me, these

attakcs were related to babesial infection AND to heavy metal

intoxication IN the lungs. I had NEVER had lung problems before I

caught babesia, no asthma, nothing. ONce I caught babesia, I started

killing it, I had terrible air hunger attacks (I believe many of my air

hunger attacks started as a herx reaction).

Somehow, many people with babesia suffer from these bouts of air hunger

attacks or CONSTANT air hunger (which I also had for weeks/ months).

Awful stuff. Once I got no more babesia, and once I treated my heavy

metals in the lungs (lead, in my case) with specific treatment (dr. K's

protocol in my case), I never got air hunger attacks anymore.

But I continued to herx in my lungs, lightly, what I call " chest

pressure " feeling. That's why I BELIEVE there's some sort of reaction

of toxins either going to the lungs or affecting the feeling air is

entering our lungs.

I have no idea, but such a symptom is SOOOOO common to lyme sufferers

that I keep wondering its real causes. I've read so many explanations,

so far NONE is convincing for me. Specially the one that babesia eats

your red blood cells that's why you get air hunger. I don't buy this at

all, as my iron counts could be normal and I would still get to

emergency with air hunger.

And hyperventilating some times, so nothing to do with real danger of

lack of red blood cells. Maybe another dysautonomia symptom???

Selma

How do you herx from your lungs? Before my babesia diagnosis, I had an

MRI that showed minimal diffuse septal wall thickening in my lungs. My

rheumatologist said that it didn't look like schleroderma, which my

pulmonist was concerned about given a positive/low ANA. I had a spell

last or the year before? where I had really bad coughing, unproductive

and remember being actually glad to have a cough hoping something would

come up.

>

> Does a regular detox take care of the lungs?

>

> What is KMT that was mentioned earlier in regard to brain parasites?

>

> Thanks so much!

>

>

[Guest guest]

I agree 100% with . Babesia for me meant ALWAYS low thyroid

levels + low ferritin levels, so I always needed supplementation. My

need for it happened in a matter of days in the second infection!!!

In the first infection, I felt sooo weak, and when I realized what

was missing, it was a bit late, so it took much longer to 'fix'

things.

Until babesia disappeared I had to keep supplementing these two

things, since then I'm on zero of these two supplements (except for

iron because it's in my mineral pill combo).

Selma

>

> heavy metals can depress thyroid functions. Air hunger can be a

symptom of

> low thyroid functions and low ferritin levels (which usually

accompanies low

> thyroid). Elememtal iron may help and the babesia is likely taking

out red

> blood cells contributing to the problem. So in addition to killing

the

> babesia, you could consider trying a thyroid booster or maybe some

iodine.

>

[Guest guest]

And I have never tested positive for Babs but my LLMD thinks I have it, I

have tested positive for Lyme, but of course, not according to CDC standards

I had multiple positive Ig antibodies.

-- [ ] Re: Seeing an Infectious Disease doctor today

(Dysautonomia)

I agree 100% with . Babesia for me meant ALWAYS low thyroid

levels + low ferritin levels, so I always needed supplementation. My

need for it happened in a matter of days in the second infection!!!

In the first infection, I felt sooo weak, and when I realized what

was missing, it was a bit late, so it took much longer to 'fix'

things.

Until babesia disappeared I had to keep supplementing these two

things, since then I'm on zero of these two supplements (except for

iron because it's in my mineral pill combo).

Selma

>

> heavy metals can depress thyroid functions. Air hunger can be a

symptom of

> low thyroid functions and low ferritin levels (which usually

accompanies low

> thyroid). Elememtal iron may help and the babesia is likely taking

out red

> blood cells contributing to the problem. So in addition to killing

the

> babesia, you could consider trying a thyroid booster or maybe some

iodine.

>