Guest guest Posted August 5, 2000 Report Share Posted August 5, 2000 , My purpose in posting the scientific studies are for the benefit of some of the members on this group who may be still searching for answers on the safety of saline implants. These scientific studies, which are abtracts in terms that most people can understand, show that contrary to what plastic surgeons are telling people today, the dangers of silicone have been known for many years, and that there are associations to autoimmune responses that need to be discussed thoroughly with their patients. Some members may choose not to go to the SBI newsgroup, as there have been many distractors--I, for one, rarely ever go there. However, after hearing of the studies posted, I picked out the ones that I thought were extremely valuable to this group to share, and to have a record of their existence. I am sorry that you don't find these helpful. As for hearing from women who have been healed, as I have told you many times before, they do exist, but they are not here. I know some who are in California, Louisiana, South Carolina, Connecticut, and other places, but for whatever reason, they are not members of this group. There are a total of 21 members on this group so far. It was only started a month ago, so you will have to be patient as it grows and expands and more people share. You also have to be aware that healing takes time. I am 95% better. I am so thankful for that. It has taken me over 2 years to get this far, and I am not done yet. Check with me in 4 years. Maybe I will be 99%! I had hoped that more women would share their stories, but for whatever reason, they aren't. I posted mine, in the hopes that it would encourage others to share theirs. Ladies, if you have some healing info to share with , can you take the time to do it? I will post the steps I have taken to get better in detail for your benefit. Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2000 Report Share Posted August 5, 2000 Dear Patty, Don't get me wrong, I know that some of these posts may be helpful to some. It isn't even really that I cannot understand them, it is out of frustration that i am speaking. I just keep running into walls in this nightmare I am going through. I mean one symptom gets better, another one comes in that is almost just as bad. Lately I am suffering from nausea, it is awful, kinda reminds me of when I was pregnant and had 24 hour a day morning sickness for 3 months. I Know I am not pregnant, but it is a similiar feeling ya know? I am wondering if the ginko is causing it, but the ginko seems to be helping a little with my head so I continue to take it. I find that now if I do weightlifting the nausea is overwhelming. I am just tired of being ill and am searching for answers. I just don't find many. I mean there are all kinds of women with autoimmune diseases that don't have implants, esp in my age group, so how do you really know if it is just a coincidence? How do you know you will ever get better? it goes on and on.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2000 Report Share Posted August 5, 2000 I find the scientific studies very important. We are trying to understand an emerging illness and I think Patty has done an excellent job of educating people. I have answered all questions that I have read on this post. Perhaps you missed the answers. Patty, I also have high levels of arsenic. It would be interesting to see profiles on a large group of women. I have discussed the platinum problem with the doctor who wrote a paper on it in the Jan. 99 issue of Israel J. of Occupational medicine ( or Health). He said his medical license was threatened. No wonder Senator Barbara Boxer told me at her press conference when the silicone bill was introduced that I was very brave for appearing on national TV. Glamour magazine interviewed me for over on hour this week. It will be interesting to see what they have to say about saline implants. They said they had me as the pro on the pro vs con side bar. I'm not sure why. It is very easy to become negative and depressed when you are chronically ill but I can assure you that these negative emotions can be just as toxic as your body's reaction to your breast implants and if you do not monitor this portion of your psyche, you can become very seriously ill. A large part of recovery is taking responsibility for your decisions and incorporating forgiveness into you daily life We are all learning and growing so it is wise to be gentle with your judgments. Kolb M.D.. ----- Original Message ----- From: <carina63@...> < egroups> Sent: Saturday, August 05, 2000 1:22 PM Subject: Question to this group > I am getting so tired of these posts that are scientific stuff I can't > understand, old studies, and repeat stuff from the SBI newsgroups. When > I joined this group I really was hoping to hear more things from women > who had saline implants and were sick, or had them out and what they > were doing to get better. Apparently there aren't really any are there? > I am sad and disappointed by this fact. I have asked DR.Kolb several > times a few questions but she doesn't answer them......I guess she > doesn't know or have the answers either. I would really like to hear > more from women who are getting better without implants, it seems like > maybe some of us are going to be ill forever with or without our > implants. This is something I am working at accepting. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2000 Report Share Posted August 6, 2000 Dr. Kolb, I think there was one question that didn't get answered, and that was about the smooth shelled saline implants vs. the textured. Would a person who has smooth shelled implants be better off replacing them with textured if they are symptomatic? Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2000 Report Share Posted August 6, 2000 > Dr. Kolb, > > I think there was one question that didn't get answered, and that was about > the smooth shelled saline implants vs. the textured. > > Would a person who has smooth shelled implants be better off replacing them > with textured if they are symptomatic? Sorry, I messed that one up--I meant if someone had textured implants would they be better off with smooth shelled, if they are now symptomatic? thanks! Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2000 Report Share Posted August 6, 2000 Yes Dr.Kolb you are right, and I am angry, and I guess maybe that is not good for healing. How does one get past the anger when only a little over a year ago I was so healthy and felt so great and now everyday is spent trying to do things that were once so easy. I apologize to the group, maybe it is my " head " causing me to act this way. As my head is pretty messed up most of the time if not all of the time. Someday when and if I get my implants out, or if I get better I will post to this group so that other women will know there is hope, on a personal level. Not on a scientific level. I feel that there is such a need for this. Thankyou and good bye Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2000 Report Share Posted August 6, 2000 Dear , We will be happy to send you a complimentary copy of " Betrayed " by a Registered Nurse, who had saline implants; and a copy of " The Breast Implant Controversy " by Dr. Vasey. Both are excellent books which will give you a very good understanding of many of the questions you probably have regarding your breast implants. All you need to do is send us your mailing address, and we will have these books in Priority Mail on Monday. I can personally tell you that I was EXTREMELY ILL in June, '94, when I had my implants removed, and it took 3 years of taking 3 steps forward, then 2 steps backward, until I finally learned to 'pace myself', and that's very hard to do when you have been so ill, suddenly going downhill faster that you can grasp -- to the extent, you feel you are going to die before you can even get the explant surgery done. I now count every single day a blessing, even though I still have some really rough days. Having my teeth cleaned sets off the inflammation so badly, it takes a day to recover! Things will get better because, once you change your mind -- you change your life! Most sincerely, Martha Murdock, Director Lawrence, President National Silicone/Saline Implant Foundation Dallas Headquarters -----Original Message----- From: <carina63@...> egroups < egroups> Date: Saturday, August 05, 2000 12:22 PM Subject: Question to this group >I am getting so tired of these posts that are scientific stuff I can't >understand, old studies, and repeat stuff from the SBI newsgroups. When >I joined this group I really was hoping to hear more things from women >who had saline implants and were sick, or had them out and what they >were doing to get better. Apparently there aren't really any are there? >I am sad and disappointed by this fact. I have asked DR.Kolb several >times a few questions but she doesn't answer them......I guess she >doesn't know or have the answers either. I would really like to hear >more from women who are getting better without implants, it seems like >maybe some of us are going to be ill forever with or without our >implants. This is something I am working at accepting. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2000 Report Share Posted August 6, 2000 MARTHA wrote: > > Dear , > > We will be happy to send you a complimentary copy of " Betrayed " by a > Registered Nurse, who had saline implants; and a copy of " The Breast Implant > Controversy " by Dr. Vasey. Both are excellent books which will give > you a very good understanding of many of the questions you probably have > regarding your breast implants. All you need to do is send us your mailing > address, and we will have these books in Priority Mail on Monday. > > I can personally tell you that I was EXTREMELY ILL in June, '94, when I had > my implants removed, and it took 3 years of taking 3 steps forward, then 2 > steps backward, until I finally learned to 'pace myself', and that's very > hard to do when you have been so ill, suddenly going downhill faster that > you can grasp -- to the extent, you feel you are going to die before you can > even get the explant surgery done. > > I now count every single day a blessing, even though I still have some > really rough days. Having my teeth cleaned sets off the inflammation so > badly, it takes a day to recover! > > Things will get better because, once you change your mind -- you change your > life! > > Most sincerely, > Martha Murdock, Director > Lawrence, President > National Silicone/Saline Implant Foundation > Dallas Headquarters > > -----Original Message----- > From: <carina63@...> > egroups < egroups> > Date: Saturday, August 05, 2000 12:22 PM > Subject: Question to this group > > >I am getting so tired of these posts that are scientific stuff I can't > >understand, old studies, and repeat stuff from the SBI newsgroups. When > >I joined this group I really was hoping to hear more things from women > >who had saline implants and were sick, or had them out and what they > >were doing to get better. Apparently there aren't really any are there? > >I am sad and disappointed by this fact. I have asked DR.Kolb several > >times a few questions but she doesn't answer them......I guess she > >doesn't know or have the answers either. I would really like to hear > >more from women who are getting better without implants, it seems like > >maybe some of us are going to be ill forever with or without our > >implants. This is something I am working at accepting. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2000 Report Share Posted August 6, 2000 Does anyone know how I could get a copy of " Betrayed " , by a Registered Nurse and a copy of " The Breast Implant Controversy " by Dr. Vasey? Thank you, Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2000 Report Share Posted August 7, 2000 Dear Patty: In theory, the amount of silicone released into the body is probably less with smooth implants than with textured implants but the study of quantifing the amount of silicone is capsules needs to be done. With silcone gel versus saline the ratio is 1000 to one when researchers looked at the silcone in the capsules. There may be other factors however such as total body toxic load and HLA type that enter into the equation. If a women had textured implants and was sick, I would recommend a silcone sensitivity test and if positive would recommend explant. If the silicone senisvity test was negative I would try the detoxification first then if no improvement, then explant with later reimplant of smooth saline is she was intent on having implants. Kolb. ----- Original Message ----- From: Patty <faussettdp@...> < egroups> Sent: Saturday, August 05, 2000 8:14 PM Subject: Re: Question to this group > > > Dr. Kolb, > > > > I think there was one question that didn't get answered, and that was > about > > the smooth shelled saline implants vs. the textured. > > > > Would a person who has smooth shelled implants be better off replacing > them > > with textured if they are symptomatic? > > Sorry, I messed that one up--I meant if someone had textured implants would > they be better off with smooth shelled, if they are now symptomatic? > > thanks! > Patty > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2000 Report Share Posted August 7, 2000 Dr.Kolb I am curious, does this silicone sensitivity test really prove anything? I have heard that having antibodies to silicone really means nothing, as we are exposed to silicone in so many things in day to day life, that having these antibodies doesn't mean we are sick from it or will get sick from it. Is this true or is this test really conclusive? I am curious, did you have this test done and if so what were your results? I am not trying to argue here, just asking questions as always? Thanks, Love Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2000 Report Share Posted August 7, 2000 Dear Amy, Hi Amy, We have about 6 copies left of each book, and we will be happy to send a complimentary copy of each book to you, if you will please send us a Priority Mail Envelope, self-addressed, with a $3.20 postage stamp on the envelope. Please send this to the following: NSIF (National Silicone Implant Foundation) 4416 Willow Lane Dallas, TX 75244-7537 Most sincerely, Martha Murdock, Director Lawrence, President National Silicone Implant Foundation 4416 Willow Lane Dallas, TX 75244-7537 (972) 490-0800 - Information / Message Line -----Original Message----- From: amybcj@... <amybcj@...> egroups < egroups> Date: Sunday, August 06, 2000 8:29 PM Subject: Re: Question to this group >Does anyone know how I could get a copy of " Betrayed " , by a Registered Nurse >and a copy of " The Breast Implant Controversy " by Dr. Vasey? >Thank you, > >Amy > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2000 Report Share Posted August 7, 2000 Dear Dr. Kolb, Knowing what we now know about saline implants (from the FDA Hearings the first of March, 2000), how can you, or any PS, even suggest a possibility of re-implantation with saline implants? I strongly recommend you and highly respect your opinions regarding breast implants. However, if a woman, such as me and others, has developed such a hypersensitivity to silicone (smooth or textured shell), how could you consider possibly subjecting a woman to anaphylactic shock, toxic shock syndrome, or worse? These situations have indeed happened, and I wonder how do PS's deal with this? It cannot be pleasant! Most sincerely, Martha Murdock, Director National Silicone/Saline Implant Foundation Dallas TX Headquarters -----Original Message----- From: Dr. Kolb <drkolb@...> egroups < egroups> Date: Sunday, August 06, 2000 8:39 PM Subject: Re: Question to this group >Dear Patty: In theory, the amount of silicone released into the body is >probably less with smooth implants than with textured implants but the study >of quantifing the amount of silicone is capsules needs to be done. With >silcone gel versus saline the ratio is 1000 to one when researchers looked >at the silcone in the capsules. There may be other factors however such as >total body toxic load and HLA type that enter into the equation. If a women >had textured implants and was sick, I would recommend a silcone sensitivity >test and if positive would recommend explant. If the silicone senisvity >test was negative I would try the detoxification first then if no >improvement, then explant with later reimplant of smooth saline is she was >intent on having implants. Kolb. >----- Original Message ----- >From: Patty <faussettdp@...> >< egroups> >Sent: Saturday, August 05, 2000 8:14 PM >Subject: Re: Question to this group > > >> >> > Dr. Kolb, >> > >> > I think there was one question that didn't get answered, and that was >> about >> > the smooth shelled saline implants vs. the textured. >> > >> > Would a person who has smooth shelled implants be better off replacing >> them >> > with textured if they are symptomatic? >> >> Sorry, I messed that one up--I meant if someone had textured implants >would >> they be better off with smooth shelled, if they are now symptomatic? >> >> thanks! >> Patty >> >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2000 Report Share Posted August 7, 2000 Thank you Martha and . It is on its way. Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2000 Report Share Posted August 8, 2000 Dear Martha: I have saline implants and have been doing implant surgery for over 18 years so I am well aware of the risks. Many women would not be explanted if we did not put in saline implants and I believe that in most cases the risk of smooth saline is much less than the risk of silicone. I believe I give a complete informed consent about the dangers. Remember that every so often a patient dies from surgery as simple as a tooth extraction, so there is risk associated with all surgeries especially the placement of foreign bodies. Our job should be to study this problem and minimize the risks. We do need something to use for breast augmentation and reconstruction. We need to identify the patients at risk prior to surgery just as we can identify some patients with penicillin allergy before they die of anaphylactic shock. I have a low complication risk because I try to identify patients with depressed immune systems and pretreat them prior to explant. I also educate women re the need to promptly treat infections before they land on the implants. I have no cases of toxic shock or anaphylaxsis. My worst complication in 18 years was when the instruments were not sterilized in the military and my OR nurse had to have her implants removed due to a mild infection. I encourage women to get silicone sensitivity tests prior to being reimplanted if they have evidence of autoimmune disease. My job is to provide informed consent but the ultimate choice is the women's. I do encourage women not to be reimplanted immediately if they have autoimmune disease or severe neurological disease. Kolb M.D. ----- Original Message ----- From: MARTHA <MAM-NSIF@...> < egroups> Sent: Monday, August 07, 2000 12:36 AM Subject: Re: Question to this group > Dear Dr. Kolb, > > Knowing what we now know about saline implants (from the FDA Hearings the > first of March, 2000), how can you, or any PS, even suggest a possibility of > re-implantation with saline implants? I strongly recommend you and highly > respect your opinions regarding breast implants. However, if a woman, such > as me and others, has developed such a hypersensitivity to silicone (smooth > or textured shell), how could you consider possibly subjecting a woman to > anaphylactic shock, toxic shock syndrome, or worse? These situations have > indeed happened, and I wonder how do PS's deal with this? It cannot be > pleasant! > > Most sincerely, > Martha Murdock, Director > National Silicone/Saline Implant Foundation > Dallas TX Headquarters > > -----Original Message----- > From: Dr. Kolb <drkolb@...> > egroups < egroups> > Date: Sunday, August 06, 2000 8:39 PM > Subject: Re: Question to this group > > > >Dear Patty: In theory, the amount of silicone released into the body is > >probably less with smooth implants than with textured implants but the > study > >of quantifing the amount of silicone is capsules needs to be done. With > >silcone gel versus saline the ratio is 1000 to one when researchers looked > >at the silcone in the capsules. There may be other factors however such as > >total body toxic load and HLA type that enter into the equation. If a > women > >had textured implants and was sick, I would recommend a silcone sensitivity > >test and if positive would recommend explant. If the silicone senisvity > >test was negative I would try the detoxification first then if no > >improvement, then explant with later reimplant of smooth saline is she was > >intent on having implants. Kolb. > >----- Original Message ----- > >From: Patty <faussettdp@...> > >< egroups> > >Sent: Saturday, August 05, 2000 8:14 PM > >Subject: Re: Question to this group > > > > > >> > >> > Dr. Kolb, > >> > > >> > I think there was one question that didn't get answered, and that was > >> about > >> > the smooth shelled saline implants vs. the textured. > >> > > >> > Would a person who has smooth shelled implants be better off replacing > >> them > >> > with textured if they are symptomatic? > >> > >> Sorry, I messed that one up--I meant if someone had textured implants > >would > >> they be better off with smooth shelled, if they are now symptomatic? > >> > >> thanks! > >> Patty > >> > >> > >> > >> > >> > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2000 Report Share Posted August 8, 2000 : The silicone sensivity test tests the reactivity of your T cells to silicone. This is on a different side of the immune system than the antibodies. . ----- Original Message ----- From: <carina63@...> < egroups> Sent: Sunday, August 06, 2000 11:27 PM Subject: Re: Question to this group > Dr.Kolb > > > I am curious, does this silicone sensitivity test really prove anything? > I have heard that having antibodies to silicone really means nothing, as > we are exposed to silicone in so many things in day to day life, that > having these antibodies doesn't mean we are sick from it or will get > sick from it. Is this true or is this test really conclusive? I am > curious, did you have this test done and if so what were your results? I > am not trying to argue here, just asking questions as always? > Thanks, Love > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2000 Report Share Posted August 8, 2000 Dear Dr. Kolb, Thank you for your response. Now, I would like to ask if you have had any experience in getting insurance companies to pay for any forms of tram flap or microvascular surgery for mastectomy women ? Most sincerely, Martha Murdock NSIF -----Original Message----- From: Dr. Kolb <drkolb@...> egroups < egroups> Date: Monday, August 07, 2000 10:20 PM Subject: Re: Question to this group >Dear Martha: I have saline implants and have been doing implant surgery for >over 18 years so I am well aware of the risks. Many women would not be >explanted if we did not put in saline implants and I believe that in most >cases the risk of smooth saline is much less than the risk of silicone. I >believe I give a complete informed consent about the dangers. Remember that >every so often a patient dies from surgery as simple as a tooth extraction, >so there is risk associated with all surgeries especially the placement of >foreign bodies. Our job should be to study this problem and minimize the >risks. We do need something to use for breast augmentation and >reconstruction. We need to identify the patients at risk prior to surgery >just as we can identify some patients with penicillin allergy before they >die of anaphylactic shock. I have a low complication risk because I try to >identify patients with depressed immune systems and pretreat them prior to >explant. I also educate women re the need to promptly treat infections >before they land on the implants. I have no cases of toxic shock or >anaphylaxsis. My worst complication in 18 years was when the instruments >were not sterilized in the military and my OR nurse had to have her implants >removed due to a mild infection. I encourage women to get silicone >sensitivity tests prior to being reimplanted if they have evidence of >autoimmune disease. My job is to provide informed consent but the ultimate >choice is the women's. I do encourage women not to be reimplanted >immediately if they have autoimmune disease or severe neurological disease. > Kolb M.D. >----- Original Message ----- >From: MARTHA <MAM-NSIF@...> >< egroups> >Sent: Monday, August 07, 2000 12:36 AM >Subject: Re: Question to this group > > >> Dear Dr. Kolb, >> >> Knowing what we now know about saline implants (from the FDA Hearings the >> first of March, 2000), how can you, or any PS, even suggest a possibility >of >> re-implantation with saline implants? I strongly recommend you and highly >> respect your opinions regarding breast implants. However, if a woman, >such >> as me and others, has developed such a hypersensitivity to silicone >(smooth >> or textured shell), how could you consider possibly subjecting a woman to >> anaphylactic shock, toxic shock syndrome, or worse? These situations have >> indeed happened, and I wonder how do PS's deal with this? It cannot be >> pleasant! >> >> Most sincerely, >> Martha Murdock, Director >> National Silicone/Saline Implant Foundation >> Dallas TX Headquarters >> >> -----Original Message----- >> From: Dr. Kolb <drkolb@...> >> egroups < egroups> >> Date: Sunday, August 06, 2000 8:39 PM >> Subject: Re: Question to this group >> >> >> >Dear Patty: In theory, the amount of silicone released into the body is >> >probably less with smooth implants than with textured implants but the >> study >> >of quantifing the amount of silicone is capsules needs to be done. With >> >silcone gel versus saline the ratio is 1000 to one when researchers >looked >> >at the silcone in the capsules. There may be other factors however such >as >> >total body toxic load and HLA type that enter into the equation. If a >> women >> >had textured implants and was sick, I would recommend a silcone >sensitivity >> >test and if positive would recommend explant. If the silicone senisvity >> >test was negative I would try the detoxification first then if no >> >improvement, then explant with later reimplant of smooth saline is she >was >> >intent on having implants. Kolb. >> >----- Original Message ----- >> >From: Patty <faussettdp@...> >> >< egroups> >> >Sent: Saturday, August 05, 2000 8:14 PM >> >Subject: Re: Question to this group >> > >> > >> >> >> >> > Dr. Kolb, >> >> > >> >> > I think there was one question that didn't get answered, and that was >> >> about >> >> > the smooth shelled saline implants vs. the textured. >> >> > >> >> > Would a person who has smooth shelled implants be better off >replacing >> >> them >> >> > with textured if they are symptomatic? >> >> >> >> Sorry, I messed that one up--I meant if someone had textured implants >> >would >> >> they be better off with smooth shelled, if they are now symptomatic? >> >> >> >> thanks! >> >> Patty >> >> >> >> >> >> >> >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2000 Report Share Posted August 8, 2000 Dr Kolb, How can you claim to have a low complication rate when you yourself claim to have been sickened by breast implants? Obviously you did not do your own surgery so I guess you don't have to count that in your surgical statistics, but shouldn't you consider your own illness before using this support forum to air your " pro " viewpoint? While I'm sure your medical expertise is valued here by those who ask questions, I would take it with a grain of salt since you do earn part of your income by implanting women. You are not unbiased. And yes, I have recommended you to women seeking explantation. Eileen --- In egroups, " Dr. Kolb " <drkolb@m...> wrote: > Dear Martha: I have saline implants and have been doing implant surgery for > over 18 years so I am well aware of the risks. Many women would not be > explanted if we did not put in saline implants and I believe that in most > cases the risk of smooth saline is much less than the risk of silicone. I > believe I give a complete informed consent about the dangers. Remember that > every so often a patient dies from surgery as simple as a tooth extraction, > so there is risk associated with all surgeries especially the placement of > foreign bodies. Our job should be to study this problem and minimize the > risks. We do need something to use for breast augmentation and > reconstruction. We need to identify the patients at risk prior to surgery > just as we can identify some patients with penicillin allergy before they > die of anaphylactic shock. I have a low complication risk because I try to > identify patients with depressed immune systems and pretreat them prior to > explant. I also educate women re the need to promptly treat infections > before they land on the implants. I have no cases of toxic shock or > anaphylaxsis. My worst complication in 18 years was when the instruments > were not sterilized in the military and my OR nurse had to have her implants > removed due to a mild infection. I encourage women to get silicone > sensitivity tests prior to being reimplanted if they have evidence of > autoimmune disease. My job is to provide informed consent but the ultimate > choice is the women's. I do encourage women not to be reimplanted > immediately if they have autoimmune disease or severe neurological disease. > Kolb M.D. > ----- Original Message ----- > From: MARTHA <MAM-NSIF@P...> > < egroups> > Sent: Monday, August 07, 2000 12:36 AM > Subject: Re: Question to this group > > > > Dear Dr. Kolb, > > > > Knowing what we now know about saline implants (from the FDA Hearings the > > first of March, 2000), how can you, or any PS, even suggest a possibility > of > > re-implantation with saline implants? I strongly recommend you and highly > > respect your opinions regarding breast implants. However, if a woman, > such > > as me and others, has developed such a hypersensitivity to silicone > (smooth > > or textured shell), how could you consider possibly subjecting a woman to > > anaphylactic shock, toxic shock syndrome, or worse? These situations have > > indeed happened, and I wonder how do PS's deal with this? It cannot be > > pleasant! > > > > Most sincerely, > > Martha Murdock, Director > > National Silicone/Saline Implant Foundation > > Dallas TX Headquarters > > > > -----Original Message----- > > From: Dr. Kolb <drkolb@m...> > > egroups < egroups> > > Date: Sunday, August 06, 2000 8:39 PM > > Subject: Re: Question to this group > > > > > > >Dear Patty: In theory, the amount of silicone released into the body is > > >probably less with smooth implants than with textured implants but the > > study > > >of quantifing the amount of silicone is capsules needs to be done. With > > >silcone gel versus saline the ratio is 1000 to one when researchers > looked > > >at the silcone in the capsules. There may be other factors however such > as > > >total body toxic load and HLA type that enter into the equation. If a > > women > > >had textured implants and was sick, I would recommend a silcone > sensitivity > > >test and if positive would recommend explant. If the silicone senisvity > > >test was negative I would try the detoxification first then if no > > >improvement, then explant with later reimplant of smooth saline is she > was > > >intent on having implants. Kolb. > > >----- Original Message ----- > > >From: Patty <faussettdp@m...> > > >< egroups> > > >Sent: Saturday, August 05, 2000 8:14 PM > > >Subject: Re: Question to this group > > > > > > > > >> > > >> > Dr. Kolb, > > >> > > > >> > I think there was one question that didn't get answered, and that was > > >> about > > >> > the smooth shelled saline implants vs. the textured. > > >> > > > >> > Would a person who has smooth shelled implants be better off > replacing > > >> them > > >> > with textured if they are symptomatic? > > >> > > >> Sorry, I messed that one up--I meant if someone had textured implants > > >would > > >> they be better off with smooth shelled, if they are now symptomatic? > > >> > > >> thanks! > > >> Patty > > >> > > >> > > >> > > >> > > >> > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2000 Report Share Posted August 9, 2000 Dear Eileen: I suggest you pay attention to the questions prior to writing emails. I became ill when my silicone implants leaked at 8 years. The question I was responding to had to do with complications of saline implants, not silicone implants. I am very unbiased Eileen as I understand both viewpoints as a surgeon and as a patient. I am not using this forum to air a pro viewpoint. I am answering specific questions. Again, please read the emails so you do not become confused. Perhaps you should simple not open my comments so you do not become offended by what I write. Kolb. ----- Original Message ----- From: Eileen <sosalines@...> < egroups> Sent: Tuesday, August 08, 2000 12:44 AM Subject: Re: Question to this group > Dr Kolb, > > How can you claim to have a low complication rate when you yourself > claim to have been sickened by breast implants? Obviously you did > not do your own surgery so I guess you don't have to count that in > your surgical statistics, but shouldn't you consider your own illness > before using this support forum to air your " pro " viewpoint? > > While I'm sure your medical expertise is valued here by those who ask > questions, I would take it with a grain of salt since you do earn > part of your income by implanting women. You are not unbiased. > > And yes, I have recommended you to women seeking explantation. > > Eileen > > > > Dear Martha: I have saline implants and have been doing implant > surgery for > > over 18 years so I am well aware of the risks. Many women would > not be > > explanted if we did not put in saline implants and I believe that > in most > > cases the risk of smooth saline is much less than the risk of > silicone. I > > believe I give a complete informed consent about the dangers. > Remember that > > every so often a patient dies from surgery as simple as a tooth > extraction, > > so there is risk associated with all surgeries especially the > placement of > > foreign bodies. Our job should be to study this problem and > minimize the > > risks. We do need something to use for breast augmentation and > > reconstruction. We need to identify the patients at risk prior to > surgery > > just as we can identify some patients with penicillin allergy > before they > > die of anaphylactic shock. I have a low complication risk because I > try to > > identify patients with depressed immune systems and pretreat them > prior to > > explant. I also educate women re the need to promptly treat > infections > > before they land on the implants. I have no cases of toxic shock or > > anaphylaxsis. My worst complication in 18 years was when the > instruments > > were not sterilized in the military and my OR nurse had to have her > implants > > removed due to a mild infection. I encourage women to get silicone > > sensitivity tests prior to being reimplanted if they have evidence > of > > autoimmune disease. My job is to provide informed consent but the > ultimate > > choice is the women's. I do encourage women not to be reimplanted > > immediately if they have autoimmune disease or severe neurological > disease. > > Kolb M.D. > > ----- Original Message ----- > > From: MARTHA <MAM-NSIF@P...> > > < egroups> > > Sent: Monday, August 07, 2000 12:36 AM > > Subject: Re: Question to this group > > > > > > > Dear Dr. Kolb, > > > > > > Knowing what we now know about saline implants (from the FDA > Hearings the > > > first of March, 2000), how can you, or any PS, even suggest a > possibility > > of > > > re-implantation with saline implants? I strongly recommend you > and highly > > > respect your opinions regarding breast implants. However, if a > woman, > > such > > > as me and others, has developed such a hypersensitivity to > silicone > > (smooth > > > or textured shell), how could you consider possibly subjecting a > woman to > > > anaphylactic shock, toxic shock syndrome, or worse? These > situations have > > > indeed happened, and I wonder how do PS's deal with this? It > cannot be > > > pleasant! > > > > > > Most sincerely, > > > Martha Murdock, Director > > > National Silicone/Saline Implant Foundation > > > Dallas TX Headquarters > > > > > > -----Original Message----- > > > From: Dr. Kolb <drkolb@m...> > > > egroups < egroups> > > > Date: Sunday, August 06, 2000 8:39 PM > > > Subject: Re: Question to this group > > > > > > > > > >Dear Patty: In theory, the amount of silicone released into the > body is > > > >probably less with smooth implants than with textured implants > but the > > > study > > > >of quantifing the amount of silicone is capsules needs to be > done. With > > > >silcone gel versus saline the ratio is 1000 to one when > researchers > > looked > > > >at the silcone in the capsules. There may be other factors > however such > > as > > > >total body toxic load and HLA type that enter into the > equation. If a > > > women > > > >had textured implants and was sick, I would recommend a silcone > > sensitivity > > > >test and if positive would recommend explant. If the silicone > senisvity > > > >test was negative I would try the detoxification first then if no > > > >improvement, then explant with later reimplant of smooth saline > is she > > was > > > >intent on having implants. Kolb. > > > >----- Original Message ----- > > > >From: Patty <faussettdp@m...> > > > >< egroups> > > > >Sent: Saturday, August 05, 2000 8:14 PM > > > >Subject: Re: Question to this group > > > > > > > > > > > >> > > > >> > Dr. Kolb, > > > >> > > > > >> > I think there was one question that didn't get answered, and > that was > > > >> about > > > >> > the smooth shelled saline implants vs. the textured. > > > >> > > > > >> > Would a person who has smooth shelled implants be better off > > replacing > > > >> them > > > >> > with textured if they are symptomatic? > > > >> > > > >> Sorry, I messed that one up--I meant if someone had textured > implants > > > >would > > > >> they be better off with smooth shelled, if they are now > symptomatic? > > > >> > > > >> thanks! > > > >> Patty > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2000 Report Share Posted August 9, 2000 OR.....perhaps others feel the same way Dr. Kolb, as I too am under the impression that, " patient " or not, you appear to be " airing " a " Pro " view as regards Saline implants, and also are suggesting that women should be implanted with the " smooth shell " Saline implants.....so if Eileen is confused, then perhaps others and myself are also....as I thought the exact same thing. The door does not swing both ways Dr. Kolb, either you think implants have great risks, and have not been proven safe, or you don't. If you do not have a " pro " view, then why would you, of all people, advocate and continue to implant women? The last time I checked, choosing a failed medical device, such as an implant contained in a silicone envelope was not healthy for women. Sue On Wed, 9 Aug 2000 00:36:49 -0400, Dr. Kolb wrote: >Dear Eileen: I suggest you pay attention to the questions prior to writing >emails. I became ill when my silicone implants leaked at 8 years. The >question I was responding to had to do with complications of saline >implants, not silicone implants. I am very unbiased Eileen as I understand >both viewpoints as a surgeon and as a patient. I am not using this forum to >air a pro viewpoint. I am answering specific questions. Again, please read >the emails so you do not become confused. Perhaps you should simple not open >my comments so you do not become offended by what I write. Kolb. >----- Original Message ----- >From: Eileen <sosalines@...> >< egroups> >Sent: Tuesday, August 08, 2000 12:44 AM >Subject: Re: Question to this group > > >> Dr Kolb, >> >> How can you claim to have a low complication rate when you yourself >> claim to have been sickened by breast implants? Obviously you did >> not do your own surgery so I guess you don't have to count that in >> your surgical statistics, but shouldn't you consider your own illness >> before using this support forum to air your " pro " viewpoint? >> >> While I'm sure your medical expertise is valued here by those who ask >> questions, I would take it with a grain of salt since you do earn >> part of your income by implanting women. You are not unbiased. >> >> And yes, I have recommended you to women seeking explantation. >> >> Eileen >> >> >> > Dear Martha: I have saline implants and have been doing implant >> surgery for >> > over 18 years so I am well aware of the risks. Many women would >> not be >> > explanted if we did not put in saline implants and I believe that >> in most >> > cases the risk of smooth saline is much less than the risk of >> silicone. I >> > believe I give a complete informed consent about the dangers. >> Remember that >> > every so often a patient dies from surgery as simple as a tooth >> extraction, >> > so there is risk associated with all surgeries especially the >> placement of >> > foreign bodies. Our job should be to study this problem and >> minimize the >> > risks. We do need something to use for breast augmentation and >> > reconstruction. We need to identify the patients at risk prior to >> surgery >> > just as we can identify some patients with penicillin allergy >> before they >> > die of anaphylactic shock. I have a low complication risk because I >> try to >> > identify patients with depressed immune systems and pretreat them >> prior to >> > explant. I also educate women re the need to promptly treat >> infections >> > before they land on the implants. I have no cases of toxic shock or >> > anaphylaxsis. My worst complication in 18 years was when the >> instruments >> > were not sterilized in the military and my OR nurse had to have her >> implants >> > removed due to a mild infection. I encourage women to get silicone >> > sensitivity tests prior to being reimplanted if they have evidence >> of >> > autoimmune disease. My job is to provide informed consent but the >> ultimate >> > choice is the women's. I do encourage women not to be reimplanted >> > immediately if they have autoimmune disease or severe neurological >> disease. >> > Kolb M.D. >> > ----- Original Message ----- >> > From: MARTHA <MAM-NSIF@P...> >> > < egroups> >> > Sent: Monday, August 07, 2000 12:36 AM >> > Subject: Re: Question to this group >> > >> > >> > > Dear Dr. Kolb, >> > > >> > > Knowing what we now know about saline implants (from the FDA >> Hearings the >> > > first of March, 2000), how can you, or any PS, even suggest a >> possibility >> > of >> > > re-implantation with saline implants? I strongly recommend you >> and highly >> > > respect your opinions regarding breast implants. However, if a >> woman, >> > such >> > > as me and others, has developed such a hypersensitivity to >> silicone >> > (smooth >> > > or textured shell), how could you consider possibly subjecting a >> woman to >> > > anaphylactic shock, toxic shock syndrome, or worse? These >> situations have >> > > indeed happened, and I wonder how do PS's deal with this? It >> cannot be >> > > pleasant! >> > > >> > > Most sincerely, >> > > Martha Murdock, Director >> > > National Silicone/Saline Implant Foundation >> > > Dallas TX Headquarters >> > > >> > > -----Original Message----- >> > > From: Dr. Kolb <drkolb@m...> >> > > egroups < egroups> >> > > Date: Sunday, August 06, 2000 8:39 PM >> > > Subject: Re: Question to this group >> > > >> > > >> > > >Dear Patty: In theory, the amount of silicone released into the >> body is >> > > >probably less with smooth implants than with textured implants >> but the >> > > study >> > > >of quantifing the amount of silicone is capsules needs to be >> done. With >> > > >silcone gel versus saline the ratio is 1000 to one when >> researchers >> > looked >> > > >at the silcone in the capsules. There may be other factors >> however such >> > as >> > > >total body toxic load and HLA type that enter into the >> equation. If a >> > > women >> > > >had textured implants and was sick, I would recommend a silcone >> > sensitivity >> > > >test and if positive would recommend explant. If the silicone >> senisvity >> > > >test was negative I would try the detoxification first then if no >> > > >improvement, then explant with later reimplant of smooth saline >> is she >> > was >> > > >intent on having implants. Kolb. >> > > >----- Original Message ----- >> > > >From: Patty <faussettdp@m...> >> > > >< egroups> >> > > >Sent: Saturday, August 05, 2000 8:14 PM >> > > >Subject: Re: Question to this group >> > > > >> > > > >> > > >> >> > > >> > Dr. Kolb, >> > > >> > >> > > >> > I think there was one question that didn't get answered, and >> that was >> > > >> about >> > > >> > the smooth shelled saline implants vs. the textured. >> > > >> > >> > > >> > Would a person who has smooth shelled implants be better off >> > replacing >> > > >> them >> > > >> > with textured if they are symptomatic? >> > > >> >> > > >> Sorry, I messed that one up--I meant if someone had textured >> implants >> > > >would >> > > >> they be better off with smooth shelled, if they are now >> symptomatic? >> > > >> >> > > >> thanks! >> > > >> Patty >> > > >> >> > > >> >> > > >> >> > > >> >> > > >> >> > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2000 Report Share Posted August 9, 2000 Dear Martha: It is usually not difficult to get insurance coverage for TRAM flap breast reconstruction for mastectomy patients. I have even gotton coverage for TRAM flap breast reconstruction after explantation if a deformity was present due to the explantation. This is usually only in patients with indemnity insurance. I have also been able on many occasions to get insurance coverage for saline explantation provided that local chest wall symptoms are present. We have been fortuanate that so many insurance companies still cover explantation in view of the recent press claiming that silicone implants do not cause systemic disease. Kolb. ----- Original Message ----- From: MARTHA <MAM-NSIF@...> < egroups> Sent: Monday, August 07, 2000 11:43 PM Subject: Re: Question to this group > Dear Dr. Kolb, > > Thank you for your response. Now, I would like to ask if you have had any > experience in getting insurance companies to pay for any forms of tram flap > or microvascular surgery for mastectomy women ? > > Most sincerely, > Martha Murdock > NSIF > > -----Original Message----- > From: Dr. Kolb <drkolb@...> > egroups < egroups> > Date: Monday, August 07, 2000 10:20 PM > Subject: Re: Question to this group > > > >Dear Martha: I have saline implants and have been doing implant surgery > for > >over 18 years so I am well aware of the risks. Many women would not be > >explanted if we did not put in saline implants and I believe that in most > >cases the risk of smooth saline is much less than the risk of silicone. I > >believe I give a complete informed consent about the dangers. Remember > that > >every so often a patient dies from surgery as simple as a tooth extraction, > >so there is risk associated with all surgeries especially the placement of > >foreign bodies. Our job should be to study this problem and minimize the > >risks. We do need something to use for breast augmentation and > >reconstruction. We need to identify the patients at risk prior to surgery > >just as we can identify some patients with penicillin allergy before they > >die of anaphylactic shock. I have a low complication risk because I try to > >identify patients with depressed immune systems and pretreat them prior to > >explant. I also educate women re the need to promptly treat infections > >before they land on the implants. I have no cases of toxic shock or > >anaphylaxsis. My worst complication in 18 years was when the instruments > >were not sterilized in the military and my OR nurse had to have her > implants > >removed due to a mild infection. I encourage women to get silicone > >sensitivity tests prior to being reimplanted if they have evidence of > >autoimmune disease. My job is to provide informed consent but the ultimate > >choice is the women's. I do encourage women not to be reimplanted > >immediately if they have autoimmune disease or severe neurological disease. > > Kolb M.D. > >----- Original Message ----- > >From: MARTHA <MAM-NSIF@...> > >< egroups> > >Sent: Monday, August 07, 2000 12:36 AM > >Subject: Re: Question to this group > > > > > >> Dear Dr. Kolb, > >> > >> Knowing what we now know about saline implants (from the FDA Hearings the > >> first of March, 2000), how can you, or any PS, even suggest a possibility > >of > >> re-implantation with saline implants? I strongly recommend you and > highly > >> respect your opinions regarding breast implants. However, if a woman, > >such > >> as me and others, has developed such a hypersensitivity to silicone > >(smooth > >> or textured shell), how could you consider possibly subjecting a woman to > >> anaphylactic shock, toxic shock syndrome, or worse? These situations > have > >> indeed happened, and I wonder how do PS's deal with this? It cannot be > >> pleasant! > >> > >> Most sincerely, > >> Martha Murdock, Director > >> National Silicone/Saline Implant Foundation > >> Dallas TX Headquarters > >> > >> -----Original Message----- > >> From: Dr. Kolb <drkolb@...> > >> egroups < egroups> > >> Date: Sunday, August 06, 2000 8:39 PM > >> Subject: Re: Question to this group > >> > >> > >> >Dear Patty: In theory, the amount of silicone released into the body is > >> >probably less with smooth implants than with textured implants but the > >> study > >> >of quantifing the amount of silicone is capsules needs to be done. With > >> >silcone gel versus saline the ratio is 1000 to one when researchers > >looked > >> >at the silcone in the capsules. There may be other factors however such > >as > >> >total body toxic load and HLA type that enter into the equation. If a > >> women > >> >had textured implants and was sick, I would recommend a silcone > >sensitivity > >> >test and if positive would recommend explant. If the silicone senisvity > >> >test was negative I would try the detoxification first then if no > >> >improvement, then explant with later reimplant of smooth saline is she > >was > >> >intent on having implants. Kolb. > >> >----- Original Message ----- > >> >From: Patty <faussettdp@...> > >> >< egroups> > >> >Sent: Saturday, August 05, 2000 8:14 PM > >> >Subject: Re: Question to this group > >> > > >> > > >> >> > >> >> > Dr. Kolb, > >> >> > > >> >> > I think there was one question that didn't get answered, and that > was > >> >> about > >> >> > the smooth shelled saline implants vs. the textured. > >> >> > > >> >> > Would a person who has smooth shelled implants be better off > >replacing > >> >> them > >> >> > with textured if they are symptomatic? > >> >> > >> >> Sorry, I messed that one up--I meant if someone had textured implants > >> >would > >> >> they be better off with smooth shelled, if they are now symptomatic? > >> >> > >> >> thanks! > >> >> Patty > >> >> > >> >> > >> >> > >> >> > >> >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2000 Report Share Posted August 9, 2000 Dear Dr. Kolb, Thank you again for your response to my questions re insurance coverage. I continue to get more & more calls from mastectomy patients whose insurance refuses to pay for anything other than implants for reconstruction. I get many of these calls because I have been a Certified Employee Benefit Consultant for nearly 20 years, with a background in actuarial science, individual & group underwriting, and contract analyst. One of the most recent contacts I had from a new mastectomy patient could never get her insurance carrier to agree to pay for microvascular reconstructive surgery, as she was not a candidate for any form of tram flap surgery. The real mystery of this particular one is that her husband is a powerful attorney informed on ERISA Law & Health Insurance Law. I've only been researching this particular problem for a couple of weeks now, however, I have yet to find a major insurance carrier or reinsurer that agrees to pay for these forms of reconstructive breast surgery. Thanks again for your help, Martha Murdock -----Original Message----- From: Dr. Kolb <drkolb@...> egroups < egroups> Date: Tuesday, August 08, 2000 11:50 PM Subject: Re: Question to this group >Dear Martha: It is usually not difficult to get insurance coverage for TRAM >flap breast reconstruction for mastectomy patients. I have even gotton >coverage for TRAM flap breast reconstruction after explantation if a >deformity was present due to the explantation. This is usually only in >patients with indemnity insurance. I have also been able on many occasions >to get insurance coverage for saline explantation provided that local chest >wall symptoms are present. We have been fortuanate that so many insurance >companies still cover explantation in view of the recent press claiming that >silicone implants do not cause systemic disease. Kolb. >----- Original Message ----- >From: MARTHA <MAM-NSIF@...> >< egroups> >Sent: Monday, August 07, 2000 11:43 PM >Subject: Re: Question to this group > > >> Dear Dr. Kolb, >> >> Thank you for your response. Now, I would like to ask if you have had any >> experience in getting insurance companies to pay for any forms of tram >flap >> or microvascular surgery for mastectomy women ? >> >> Most sincerely, >> Martha Murdock >> NSIF >> >> -----Original Message----- >> From: Dr. Kolb <drkolb@...> >> egroups < egroups> >> Date: Monday, August 07, 2000 10:20 PM >> Subject: Re: Question to this group >> >> >> >Dear Martha: I have saline implants and have been doing implant surgery >> for >> >over 18 years so I am well aware of the risks. Many women would not be >> >explanted if we did not put in saline implants and I believe that in most >> >cases the risk of smooth saline is much less than the risk of silicone. >I >> >believe I give a complete informed consent about the dangers. Remember >> that >> >every so often a patient dies from surgery as simple as a tooth >extraction, >> >so there is risk associated with all surgeries especially the placement >of >> >foreign bodies. Our job should be to study this problem and minimize the >> >risks. We do need something to use for breast augmentation and >> >reconstruction. We need to identify the patients at risk prior to >surgery >> >just as we can identify some patients with penicillin allergy before they >> >die of anaphylactic shock. I have a low complication risk because I try >to >> >identify patients with depressed immune systems and pretreat them prior >to >> >explant. I also educate women re the need to promptly treat infections >> >before they land on the implants. I have no cases of toxic shock or >> >anaphylaxsis. My worst complication in 18 years was when the instruments >> >were not sterilized in the military and my OR nurse had to have her >> implants >> >removed due to a mild infection. I encourage women to get silicone >> >sensitivity tests prior to being reimplanted if they have evidence of >> >autoimmune disease. My job is to provide informed consent but the >ultimate >> >choice is the women's. I do encourage women not to be reimplanted >> >immediately if they have autoimmune disease or severe neurological >disease. >> > Kolb M.D. >> >----- Original Message ----- >> >From: MARTHA <MAM-NSIF@...> >> >< egroups> >> >Sent: Monday, August 07, 2000 12:36 AM >> >Subject: Re: Question to this group >> > >> > >> >> Dear Dr. Kolb, >> >> >> >> Knowing what we now know about saline implants (from the FDA Hearings >the >> >> first of March, 2000), how can you, or any PS, even suggest a >possibility >> >of >> >> re-implantation with saline implants? I strongly recommend you and >> highly >> >> respect your opinions regarding breast implants. However, if a woman, >> >such >> >> as me and others, has developed such a hypersensitivity to silicone >> >(smooth >> >> or textured shell), how could you consider possibly subjecting a woman >to >> >> anaphylactic shock, toxic shock syndrome, or worse? These situations >> have >> >> indeed happened, and I wonder how do PS's deal with this? It cannot be >> >> pleasant! >> >> >> >> Most sincerely, >> >> Martha Murdock, Director >> >> National Silicone/Saline Implant Foundation >> >> Dallas TX Headquarters >> >> >> >> -----Original Message----- >> >> From: Dr. Kolb <drkolb@...> >> >> egroups < egroups> >> >> Date: Sunday, August 06, 2000 8:39 PM >> >> Subject: Re: Question to this group >> >> >> >> >> >> >Dear Patty: In theory, the amount of silicone released into the body >is >> >> >probably less with smooth implants than with textured implants but the >> >> study >> >> >of quantifing the amount of silicone is capsules needs to be done. >With >> >> >silcone gel versus saline the ratio is 1000 to one when researchers >> >looked >> >> >at the silcone in the capsules. There may be other factors however >such >> >as >> >> >total body toxic load and HLA type that enter into the equation. If a >> >> women >> >> >had textured implants and was sick, I would recommend a silcone >> >sensitivity >> >> >test and if positive would recommend explant. If the silicone >senisvity >> >> >test was negative I would try the detoxification first then if no >> >> >improvement, then explant with later reimplant of smooth saline is she >> >was >> >> >intent on having implants. Kolb. >> >> >----- Original Message ----- >> >> >From: Patty <faussettdp@...> >> >> >< egroups> >> >> >Sent: Saturday, August 05, 2000 8:14 PM >> >> >Subject: Re: Question to this group >> >> > >> >> > >> >> >> >> >> >> > Dr. Kolb, >> >> >> > >> >> >> > I think there was one question that didn't get answered, and that >> was >> >> >> about >> >> >> > the smooth shelled saline implants vs. the textured. >> >> >> > >> >> >> > Would a person who has smooth shelled implants be better off >> >replacing >> >> >> them >> >> >> > with textured if they are symptomatic? >> >> >> >> >> >> Sorry, I messed that one up--I meant if someone had textured >implants >> >> >would >> >> >> they be better off with smooth shelled, if they are now symptomatic? >> >> >> >> >> >> thanks! >> >> >> Patty >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2000 Report Share Posted August 9, 2000 I am not a bit confused, Dr. Kolb. (I would be happy to find your posts and quote them for you.. I believe one of them is below). You stated that you have saline implants. (I had previously read that you were an explantee, but if you have saline replacements, you are not explanted. You still have silicone in your body). If you felt salines were dangerous, you would not likely have them. You also stated that you provided the commentary for the " pro " part of the " point/counterpoint " sidebar for the Glamour magazine saline implant article. This IS a forum for women who have been sickened by saline implants, and for those who may be considering them. I became ill from saline implants only. I never had silicone gel in my body. Nearly half the women in my support group can say the same thing. You are NOT unbiased if you derive a portion of your income from implanting women. Please do not insult me or the women of this group by stating that you are unbiased. If women are being helped by healing tips they receive from you here, I am all for it. However, I would urge them very strongly to seek the advice of a physician who will examine them and run tests as well. But I do not feel you should, as a doctor who derives income from implanting women, air your pro-saline-implant viewpoints on this particular forum. My opinion, but also that of others who have written to me about this. I will still recommend you as an explanting surgeon, because one women who received your name from me and was explanted by you wrote back to me and is very happy with the results. I don't have a problem with you, only the conflict of interest that results when you express pro-implant views to a group of women who are sick from them. I am sure you would not want to appear to be advertising. Eileen Swanson Survivors of Salines www.homestead.com/sosalines/sos.html > > > Dear Martha: I have saline implants and have been doing implant > > surgery for > > > over 18 years so I am well aware of the risks. Many women would > > not be > > > explanted if we did not put in saline implants and I believe that > > in most > > > cases the risk of smooth saline is much less than the risk of > > silicone. I > > > believe I give a complete informed consent about the dangers. > > Remember that > > > every so often a patient dies from surgery as simple as a tooth > > extraction, > > > so there is risk associated with all surgeries especially the > > placement of > > > foreign bodies. Our job should be to study this problem and > > minimize the > > > risks. We do need something to use for breast augmentation and > > > reconstruction. We need to identify the patients at risk prior to > > surgery > > > just as we can identify some patients with penicillin allergy > > before they > > > die of anaphylactic shock. I have a low complication risk because I > > try to > > > identify patients with depressed immune systems and pretreat them > > prior to > > > explant. I also educate women re the need to promptly treat > > infections > > > before they land on the implants. I have no cases of toxic shock or > > > anaphylaxsis. My worst complication in 18 years was when the > > instruments > > > were not sterilized in the military and my OR nurse had to have her > > implants > > > removed due to a mild infection. I encourage women to get silicone > > > sensitivity tests prior to being reimplanted if they have evidence > > of > > > autoimmune disease. My job is to provide informed consent but the > > ultimate > > > choice is the women's. I do encourage women not to be reimplanted > > > immediately if they have autoimmune disease or severe neurological > > disease. > > > Kolb M.D. > > > ----- Original Message ----- > > > From: MARTHA <MAM-NSIF@P...> > > > < egroups> > > > Sent: Monday, August 07, 2000 12:36 AM > > > Subject: Re: Question to this group > > > > > > > > > > Dear Dr. Kolb, > > > > > > > > Knowing what we now know about saline implants (from the FDA > > Hearings the > > > > first of March, 2000), how can you, or any PS, even suggest a > > possibility > > > of > > > > re-implantation with saline implants? I strongly recommend you > > and highly > > > > respect your opinions regarding breast implants. However, if a > > woman, > > > such > > > > as me and others, has developed such a hypersensitivity to > > silicone > > > (smooth > > > > or textured shell), how could you consider possibly subjecting a > > woman to > > > > anaphylactic shock, toxic shock syndrome, or worse? These > > situations have > > > > indeed happened, and I wonder how do PS's deal with this? It > > cannot be > > > > pleasant! > > > > > > > > Most sincerely, > > > > Martha Murdock, Director > > > > National Silicone/Saline Implant Foundation > > > > Dallas TX Headquarters > > > > > > > > -----Original Message----- > > > > From: Dr. Kolb <drkolb@m...> > > > > egroups < egroups> > > > > Date: Sunday, August 06, 2000 8:39 PM > > > > Subject: Re: Question to this group > > > > > > > > > > > > >Dear Patty: In theory, the amount of silicone released into the > > body is > > > > >probably less with smooth implants than with textured implants > > but the > > > > study > > > > >of quantifing the amount of silicone is capsules needs to be > > done. With > > > > >silcone gel versus saline the ratio is 1000 to one when > > researchers > > > looked > > > > >at the silcone in the capsules. There may be other factors > > however such > > > as > > > > >total body toxic load and HLA type that enter into the > > equation. If a > > > > women > > > > >had textured implants and was sick, I would recommend a silcone > > > sensitivity > > > > >test and if positive would recommend explant. If the silicone > > senisvity > > > > >test was negative I would try the detoxification first then if no > > > > >improvement, then explant with later reimplant of smooth saline > > is she > > > was > > > > >intent on having implants. Kolb. > > > > >----- Original Message ----- > > > > >From: Patty <faussettdp@m...> > > > > >< egroups> > > > > >Sent: Saturday, August 05, 2000 8:14 PM > > > > >Subject: Re: Question to this group > > > > > > > > > > > > > > >> > > > > >> > Dr. Kolb, > > > > >> > > > > > >> > I think there was one question that didn't get answered, and > > that was > > > > >> about > > > > >> > the smooth shelled saline implants vs. the textured. > > > > >> > > > > > >> > Would a person who has smooth shelled implants be better off > > > replacing > > > > >> them > > > > >> > with textured if they are symptomatic? > > > > >> > > > > >> Sorry, I messed that one up--I meant if someone had textured > > implants > > > > >would > > > > >> they be better off with smooth shelled, if they are now > > symptomatic? > > > > >> > > > > >> thanks! > > > > >> Patty > > > > >> > > > > >> > > > > >> > > > > >> > > > > >> > > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2000 Report Share Posted August 10, 2000 I've been sitting back just watching this debate between Dr. Kolb and others. I also don't understand why she would keep the implants but that is her option to keep them. I knew that this was going to happen if people continue to ask questions about why she keeps them in and keeps implanting women. She's one of the few doctors that will help us and volunteer her time online to answer question when we need help. I don't think this should be an issue of why people do certain things. We are all here to help each other and listen to each other, not to debate issues. It's good to have someone like her around. Thanks to Patty, Eileen, Dr. Kolb and all the others that I've spoke with for helping me. I'm not close to a full recovery from those stupid bags that I had in my chest but I feel I will get there someday. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2000 Report Share Posted August 10, 2000 Eileen: Please reread the questions that I was answering in the post that you chose to attack me on. Your comments are the first that I have ever had to deal with in over three years of communicating with women with problems with implants. Martha asked her questions in an appropriate manner and I answered them and she thanked me for responding in the next post. This is the type of correspondance that I am used to. Please contact Ilena Rose and asked her how I have helped many women who have nowhere else to turn. One such women who was homeless from her silicone disease is now living in my house until she can recovery enough to hold down a full time job. You are confused in how you interpreted my answers and I do not appreciated being verbally attacked. You know very little about me, my practice, or my motives but before you judge me, you would be wise to gather information from other support group leaders. You misintrepreted my post about the Glamour magazine article in that they had designated me as the pro in the pro versus con on the article but after an hour the reporter wondered why they had done so. Again you should carefully reread the post to see how your bias against me has influenced your perception. This is why I say you are confused. Ask Patty why I got saline implants. She may be able to explain to you why I have been given the role in this issue. I believe she understands and hopefully can explain it to you. Directing you anger at me is not likely to serve you . I will no longer be available to help with the issues on this forum as your anger and prejudice are more important than finding the solution to the adjuvant disease caused by implants which is what I have been guided to research so that people such as are on this forum may be helped. Kolb. ----- Original Message ----- From: Eileen <sosalines@...> < egroups> Sent: Wednesday, August 09, 2000 2:47 PM Subject: Re: Question to this group > I am not a bit confused, Dr. Kolb. (I would be happy to find your > posts and quote them for you.. I believe one of them is below). You > stated that you have saline implants. (I had previously read that > you were an explantee, but if you have saline replacements, you are > not explanted. You still have silicone in your body). If you felt > salines were dangerous, you would not likely have them. You also > stated that you provided the commentary for the " pro " part of > the " point/counterpoint " sidebar for the Glamour magazine saline > implant article. > > This IS a forum for women who have been sickened by saline implants, > and for those who may be considering them. > > I became ill from saline implants only. I never had silicone gel in > my body. Nearly half the women in my support group can say the same > thing. > > You are NOT unbiased if you derive a portion of your income from > implanting women. Please do not insult me or the women of this group > by stating that you are unbiased. > > If women are being helped by healing tips they receive from you here, > I am all for it. However, I would urge them very strongly to seek > the advice of a physician who will examine them and run tests as well. > > But I do not feel you should, as a doctor who derives income from > implanting women, air your pro-saline-implant viewpoints on this > particular forum. My opinion, but also that of others who have > written to me about this. > > I will still recommend you as an explanting surgeon, because one > women who received your name from me and was explanted by you wrote > back to me and is very happy with the results. I don't have a > problem with you, only the conflict of interest that results when you > express pro-implant views to a group of women who are sick from > them. I am sure you would not want to appear to be advertising. > > Eileen Swanson > Survivors of Salines > www.homestead.com/sosalines/sos.html > > > > > > > Dear Martha: I have saline implants and have been doing implant > > > surgery for > > > > over 18 years so I am well aware of the risks. Many women would > > > not be > > > > explanted if we did not put in saline implants and I believe > that > > > in most > > > > cases the risk of smooth saline is much less than the risk of > > > silicone. I > > > > believe I give a complete informed consent about the dangers. > > > Remember that > > > > every so often a patient dies from surgery as simple as a tooth > > > extraction, > > > > so there is risk associated with all surgeries especially the > > > placement of > > > > foreign bodies. Our job should be to study this problem and > > > minimize the > > > > risks. We do need something to use for breast augmentation and > > > > reconstruction. We need to identify the patients at risk prior > to > > > surgery > > > > just as we can identify some patients with penicillin allergy > > > before they > > > > die of anaphylactic shock. I have a low complication risk > because I > > > try to > > > > identify patients with depressed immune systems and pretreat > them > > > prior to > > > > explant. I also educate women re the need to promptly treat > > > infections > > > > before they land on the implants. I have no cases of toxic > shock or > > > > anaphylaxsis. My worst complication in 18 years was when the > > > instruments > > > > were not sterilized in the military and my OR nurse had to have > her > > > implants > > > > removed due to a mild infection. I encourage women to get > silicone > > > > sensitivity tests prior to being reimplanted if they have > evidence > > > of > > > > autoimmune disease. My job is to provide informed consent but > the > > > ultimate > > > > choice is the women's. I do encourage women not to be > reimplanted > > > > immediately if they have autoimmune disease or severe > neurological > > > disease. > > > > Kolb M.D. > > > > ----- Original Message ----- > > > > From: MARTHA <MAM-NSIF@P...> > > > > < egroups> > > > > Sent: Monday, August 07, 2000 12:36 AM > > > > Subject: Re: Question to this group > > > > > > > > > > > > > Dear Dr. Kolb, > > > > > > > > > > Knowing what we now know about saline implants (from the FDA > > > Hearings the > > > > > first of March, 2000), how can you, or any PS, even suggest a > > > possibility > > > > of > > > > > re-implantation with saline implants? I strongly recommend > you > > > and highly > > > > > respect your opinions regarding breast implants. However, if > a > > > woman, > > > > such > > > > > as me and others, has developed such a hypersensitivity to > > > silicone > > > > (smooth > > > > > or textured shell), how could you consider possibly > subjecting a > > > woman to > > > > > anaphylactic shock, toxic shock syndrome, or worse? These > > > situations have > > > > > indeed happened, and I wonder how do PS's deal with this? It > > > cannot be > > > > > pleasant! > > > > > > > > > > Most sincerely, > > > > > Martha Murdock, Director > > > > > National Silicone/Saline Implant Foundation > > > > > Dallas TX Headquarters > > > > > > > > > > -----Original Message----- > > > > > From: Dr. Kolb <drkolb@m...> > > > > > egroups < egroups> > > > > > Date: Sunday, August 06, 2000 8:39 PM > > > > > Subject: Re: Question to this group > > > > > > > > > > > > > > > >Dear Patty: In theory, the amount of silicone released into > the > > > body is > > > > > >probably less with smooth implants than with textured > implants > > > but the > > > > > study > > > > > >of quantifing the amount of silicone is capsules needs to be > > > done. With > > > > > >silcone gel versus saline the ratio is 1000 to one when > > > researchers > > > > looked > > > > > >at the silcone in the capsules. There may be other factors > > > however such > > > > as > > > > > >total body toxic load and HLA type that enter into the > > > equation. If a > > > > > women > > > > > >had textured implants and was sick, I would recommend a > silcone > > > > sensitivity > > > > > >test and if positive would recommend explant. If the > silicone > > > senisvity > > > > > >test was negative I would try the detoxification first then > if no > > > > > >improvement, then explant with later reimplant of smooth > saline > > > is she > > > > was > > > > > >intent on having implants. Kolb. > > > > > >----- Original Message ----- > > > > > >From: Patty <faussettdp@m...> > > > > > >< egroups> > > > > > >Sent: Saturday, August 05, 2000 8:14 PM > > > > > >Subject: Re: Question to this group > > > > > > > > > > > > > > > > > >> > > > > > >> > Dr. Kolb, > > > > > >> > > > > > > >> > I think there was one question that didn't get answered, > and > > > that was > > > > > >> about > > > > > >> > the smooth shelled saline implants vs. the textured. > > > > > >> > > > > > > >> > Would a person who has smooth shelled implants be better > off > > > > replacing > > > > > >> them > > > > > >> > with textured if they are symptomatic? > > > > > >> > > > > > >> Sorry, I messed that one up--I meant if someone had > textured > > > implants > > > > > >would > > > > > >> they be better off with smooth shelled, if they are now > > > symptomatic? > > > > > >> > > > > > >> thanks! > > > > > >> Patty > > > > > >> > > > > > >> > > > > > >> > > > > > >> > > > > > >> > > > > > >> Quote Link to comment Share on other sites More sharing options...
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