RE: Seeing an Infectious Disease doctor today

[Guest guest]

I gave you an answer yesterday of sorts.

Jim.

###

Pam Norman <pam_norman@...> wrote:

Ok, I've posted on this before & asked for advice & no one responded

so

I guess I'll have to just see what happens & how it develops. I am

seeing an Infectious Disease doctor in Madison today, one of the tops in

the field from what I hear. I have asked this list I think twice what

are the ethics of letting him know where I am being treated & by whom

(my LLMD) & have not received any advice at all. I don't want to cause

my LLMD any trouble but I do want to get a good second opinion based on

all relevant information. So I guess I will just wing it.

Pam

---------------------------------

Never miss a thing. Make your homepage.

[Guest guest]

Pam, I saw your note and just wanted to let you know that we all care

about you, very much!!!

If you are going to see an infectious Disease Doc, just don't expect too

much. I would advise not to engage in a chronic Lyme discussion with

him if he seems to lack an Open Mind.

Just look at it as an experiment; perhaps you will learn something

useful. If he does any tests, make sure that you ask for copies,

because they are yours and you have a right to have them.

However...if he gets antagonistic, don't fight with him, just leave.

We'll just hope that he is one of the Enlightened IDSA Docs and that he

is helpful in some way.

Let me know how it goes! I'm off to see my LLMD, about 3 hours away, so

it will be a long day.

With All Best Wishes!

[ ] Seeing an Infectious Disease doctor today

Ok, I've posted on this before & asked for advice & no one responded so

I guess I'll have to just see what happens & how it develops. I am

seeing an Infectious Disease doctor in Madison today, one of the tops in

the field from what I hear. I have asked this list I think twice what

are the ethics of letting him know where I am being treated & by whom

(my LLMD) & have not received any advice at all. I don't want to cause

my LLMD any trouble but I do want to get a good second opinion based on

all relevant information. So I guess I will just wing it.

Pam

[Guest guest]

Well, I've done some checking on google & I find that artemisinin can

lead to elevated liver enzymes. Also heart rhythm abnormalities. And not

necessarily at high high doses. I see too that the label on the Allergy

Research bottle that I have specifically says that it should be taken

longer than 30 days only on the advice of a health practictioner & even

then should include monitoring of liver enzymes.

Pam

Kendel wrote:

>

> Pam, I saw your note and just wanted to let you know that we all care

> about you, very much!!!

>

> If you are going to see an infectious Disease Doc, just don't expect too

> much. I would advise not to engage in a chronic Lyme discussion with

> him if he seems to lack an Open Mind.

>

> Just look at it as an experiment; perhaps you will learn something

> useful. If he does any tests, make sure that you ask for copies,

> because they are yours and you have a right to have them.

>

> However...if he gets antagonistic, don't fight with him, just leave.

> We'll just hope that he is one of the Enlightened IDSA Docs and that he

> is helpful in some way.

>

> Let me know how it goes! I'm off to see my LLMD, about 3 hours away, so

> it will be a long day.

>

> With All Best Wishes!

>

>

>

> [ ] Seeing an Infectious Disease doctor today

>

> Ok, I've posted on this before & asked for advice & no one responded so

> I guess I'll have to just see what happens & how it develops. I am

> seeing an Infectious Disease doctor in Madison today, one of the tops in

>

> the field from what I hear. I have asked this list I think twice what

> are the ethics of letting him know where I am being treated & by whom

> (my LLMD) & have not received any advice at all. I don't want to cause

> my LLMD any trouble but I do want to get a good second opinion based on

> all relevant information. So I guess I will just wing it.

>

> Pam

>

>

[Guest guest]

Pam, I saw 3 infectious disease doctors. Got no help from any of

them. For them, I even didn't have lyme. All my symptoms

were 'coincidental' or pshychological.

The 3 were top level researchers in Belgium. So.... None of them

believed I had babesia. None, two even laughed ( " do you have a

spleen? " I said, 'yes', so they said: 'you can't have babesia'). etc

etc.

They tested me for parastites though, their labs were better than

most 'average' labs. Did they find anything? No. Nothing. So, for

them, I was a 'post lyme disease' patient, meaning: zero

treatment. " Come back in a year " , they said.

These 3 physicians were the last 'normal' physicians I saw. I gave up

on them. Then I found my naturopath and she started treating me for

lyme and babesia. She believed me, as I had all symptoms and she

confirmed with energetic tests (ART). I had seen 17 doctors before

her. She was the only one that said I had lyme disease. After, I

found my lyme doctor, but he's totally alternative too (he too uses

ART to diagnose).

They found loads of active parasites in my GI tract and brain,

viruses, babesia, bartonella, borrelia, plus problems with my

thyroid, heart, heavy metal intoxication, cavitations, problem with

autonomic nervous system (I think it's what people call disautomia),

pshycological blockages, sensitivity to metals, allergies etc.

I really gave up on ducks, for the time being. I hope you'll get more

lucky than I.

Sorry I didn't answer.

Selma

[Guest guest]

can you tell us some of your treatment prorocol for Lyme/babesia?

-- [ ] Re: Seeing an Infectious Disease doctor today

Pam, I saw 3 infectious disease doctors. Got no help from any of

them. For them, I even didn't have lyme. All my symptoms

were 'coincidental' or pshychological.

The 3 were top level researchers in Belgium. So.... None of them

believed I had babesia. None, two even laughed ( " do you have a

spleen? " I said, 'yes', so they said: 'you can't have babesia'). etc

etc.

They tested me for parastites though, their labs were better than

most 'average' labs. Did they find anything? No. Nothing. So, for

them, I was a 'post lyme disease' patient, meaning: zero

treatment. " Come back in a year " , they said.

These 3 physicians were the last 'normal' physicians I saw. I gave up

on them. Then I found my naturopath and she started treating me for

lyme and babesia. She believed me, as I had all symptoms and she

confirmed with energetic tests (ART). I had seen 17 doctors before

her. She was the only one that said I had lyme disease. After, I

found my lyme doctor, but he's totally alternative too (he too uses

ART to diagnose).

They found loads of active parasites in my GI tract and brain,

viruses, babesia, bartonella, borrelia, plus problems with my

thyroid, heart, heavy metal intoxication, cavitations, problem with

autonomic nervous system (I think it's what people call disautomia),

pshycological blockages, sensitivity to metals, allergies etc.

I really gave up on ducks, for the time being. I hope you'll get more

lucky than I.

Sorry I didn't answer.

Selma

[Guest guest]

Selma,

What did you do for the parasites that were not in your intestinal tract?

Here's a link for dysautonomia if anyone is interested:

www.dinet.org

I was diagnosed with that when I really have Lyme and Babesia. I was told the

chills and tremors were adrenaline surges and the tachtycardia was also from

hyperadrenaline/POTS. I was finally sent by a cardiologist to my present LLMD

because he said my case was too difficult for him, and he said the doctor (my

present LLMD) would get to the bottom of my dysautonomia to see if it was a

secondary condition or primary condition. I am wondering if more than TBDs can

be behind dysautonomia such as parasites or candida or biotoxins. We thought it

ran in my family because my sister also has it and possibly my GM had it, as

well as a cousin, that we know of, but now I am questioning everything. Sal

--

http://lymeactivist.wordpress.com/. The Take Action! call is presently focusing

on the defense of Dr. Ray .

--------- [ ] Re: Seeing an Infectious Disease doctor today

Pam, I saw 3 infectious disease doctors. Got no help from any of

them. For them, I even didn't have lyme. All my symptoms

were 'coincidental' or pshychological.

The 3 were top level researchers in Belgium. So.... None of them

believed I had babesia. None, two even laughed ( " do you have a

spleen? " I said, 'yes', so they said: 'you can't have babesia'). etc

etc.

They tested me for parastites though, their labs were better than

most 'average' labs. Did they find anything? No. Nothing. So, for

them, I was a 'post lyme disease' patient, meaning: zero

treatment. " Come back in a year " , they said.

These 3 physicians were the last 'normal' physicians I saw. I gave up

on them. Then I found my naturopath and she started treating me for

lyme and babesia. She believed me, as I had all symptoms and she

confirmed with energetic tests (ART). I had seen 17 doctors before

her. She was the only one that said I had lyme disease. After, I

found my lyme doctor, but he's totally alternative too (he too uses

ART to diagnose).

They found loads of active parasites in my GI tract and brain,

viruses, babesia, bartonella, borrelia, plus problems with my

thyroid, heart, heavy metal intoxication, cavitations, problem with

autonomic nervous system (I think it's what people call disautomia),

pshycological blockages, sensitivity to metals, allergies etc.

I really gave up on ducks, for the time being. I hope you'll get more

lucky than I.

Sorry I didn't answer.

Selma

[Guest guest]

Hey Sal,

I was just reading your post. Did you feel like you had tons of

adrenaline in your body? That is one of my worse symptoms and just wanting

so badly to get rid of it. Did you find something that helped? Thanks,

_____

From:

[mailto: ] On Behalf Of

creekhopper@...

Sent: Sunday, December 09, 2007 12:48 PM

Subject: Re: [ ] Re: Seeing an Infectious Disease doctor today

Selma,

What did you do for the parasites that were not in your intestinal tract?

Here's a link for dysautonomia if anyone is interested:

www.dinet.org

I was diagnosed with that when I really have Lyme and Babesia. I was told

the chills and tremors were adrenaline surges and the tachtycardia was also

from hyperadrenaline/POTS. I was finally sent by a cardiologist to my

present LLMD because he said my case was too difficult for him, and he said

the doctor (my present LLMD) would get to the bottom of my dysautonomia to

see if it was a secondary condition or primary condition. I am wondering if

more than TBDs can be behind dysautonomia such as parasites or candida or

biotoxins. We thought it ran in my family because my sister also has it and

possibly my GM had it, as well as a cousin, that we know of, but now I am

questioning everything. Sal

--

http://lymeactivist <http://lymeactivist.wordpress.com/> .wordpress.com/.

The Take Action! call is presently focusing on the defense of Dr.

Ray .

--------- [ ] Re: Seeing an Infectious Disease doctor today

Pam, I saw 3 infectious disease doctors. Got no help from any of

them. For them, I even didn't have lyme. All my symptoms

were 'coincidental' or pshychological.

The 3 were top level researchers in Belgium. So.... None of them

believed I had babesia. None, two even laughed ( " do you have a

spleen? " I said, 'yes', so they said: 'you can't have babesia'). etc

etc.

They tested me for parastites though, their labs were better than

most 'average' labs. Did they find anything? No. Nothing. So, for

them, I was a 'post lyme disease' patient, meaning: zero

treatment. " Come back in a year " , they said.

These 3 physicians were the last 'normal' physicians I saw. I gave up

on them. Then I found my naturopath and she started treating me for

lyme and babesia. She believed me, as I had all symptoms and she

confirmed with energetic tests (ART). I had seen 17 doctors before

her. She was the only one that said I had lyme disease. After, I

found my lyme doctor, but he's totally alternative too (he too uses

ART to diagnose).

They found loads of active parasites in my GI tract and brain,

viruses, babesia, bartonella, borrelia, plus problems with my

thyroid, heart, heavy metal intoxication, cavitations, problem with

autonomic nervous system (I think it's what people call disautomia),

pshycological blockages, sensitivity to metals, allergies etc.

I really gave up on ducks, for the time being. I hope you'll get more

lucky than I.

Sorry I didn't answer.

Selma

[Guest guest]

Yes!

The drugs I was prescribed have helped:

Toprol XL 25 mg (this is the lowest dose and it is usually all I need)

Clonezepam (1/4 mg.. again, a very low dose)

How that translates into herbs and or supplements, I do not know, and would love

to. That was my treatment for the POTS and still is for the hyperadrenaline and

tremors. Do you gray out when you change positions from sitting to standing or

from lying down to standing? My BP drops and my pulse rises. For some people,

their BP drops and the pulse does not rise.

My last cardiologist, the one who recommened by LLMD, told me that I am

dehydrating myself with too much water. He suggested that I drink electrolyte

drinks with salt. This may translate into trace minerals and salt? I would love

to know! I currently use Gookinaide Hydrolyte because it has the least amount of

additives in it. I put about 1/4 cup juice with water to make 16 oz and add 1/4

tsp salt. I found that twice a day was good, but lately while on medication for

babesia and lyme, I've found less of a need for the drinks.

See Dinet for What Helps:

http://www.dinet.org/what_helps.htm

I tried the support hose, and they made things worse.

Research points to over dilation of blood vessels or lessened ability to

constrict to push blood flow back to the brain, the hypothalamus, the adrenal

and kidneys (specifically renin and aldosterone) for low blood volume among

other things. Dysautonomia is finally beginning to be taken seriously and the

research is increasing. You can also find that on the Dinet site. I can see how

lyme and babesia could contribute or cause.

This mildly kicked in when I was a teenager (I would gray out when getting out

of my desk at school) and I did not need meds until I had my " attack " which I

think was really the Babesia.. chills, shaking, tremors, racing heart.. and

mostly at night, which my first " dsy " doc said was adrenaline surges. He said

that adrenaline is its highest at about 3 am because it dilates the blood

vessels to clean out the muscles...???? I really don't know it the actual POTs

is the main problem here or if the babesia/lyme is all of it or a contributing

factor to making it worse

The adrenaline also kicks in to raise the BP that has fallen. I've had tilt

table and other tests for dys and that is a fact for me. I think the thinking is

that the adrenaline become hyper activated or that some of us are more sensitive

to adrenaline than others. My cortisol levels are low last time we tested and I

wonder if adrenaline kicks in for cortisol.

I have to stay away from medicines (and I imagine herbs) that are adrenaline

stimulants.

I hope this helps.

--

http://lymeactivist.wordpress.com/. The Take Action! call is presently focusing

on the defense of Dr. .

--------- [ ] Re: Seeing an Infectious Disease doctor today

Pam, I saw 3 infectious disease doctors. Got no help from any of

them. For them, I even didn't have lyme. All my symptoms

were 'coincidental' or pshychological.

The 3 were top level researchers in Belgium. So.... None of them

believed I had babesia. None, two even laughed ( " do you have a

spleen? " I said, 'yes', so they said: 'you can't have babesia'). etc

etc.

They tested me for parastites though, their labs were better than

most 'average' labs. Did they find anything? No. Nothing. So, for

them, I was a 'post lyme disease' patient, meaning: zero

treatment. " Come back in a year " , they said.

These 3 physicians were the last 'normal' physicians I saw. I gave up

on them. Then I found my naturopath and she started treating me for

lyme and babesia. She believed me, as I had all symptoms and she

confirmed with energetic tests (ART). I had seen 17 doctors before

her. She was the only one that said I had lyme disease. After, I

found my lyme doctor, but he's totally alternative too (he too uses

ART to diagnose).

They found loads of active parasites in my GI tract and brain,

viruses, babesia, bartonella, borrelia, plus problems with my

thyroid, heart, heavy metal intoxication, cavitations, problem with

autonomic nervous system (I think it's what people call disautomia),

pshycological blockages, sensitivity to metals, allergies etc.

I really gave up on ducks, for the time being. I hope you'll get more

lucky than I.

Sorry I didn't answer.

Selma

[Guest guest]

Selma,

At least this doctor agrees I have Lyme. He had no doubt about that. As

he said, " the germ is in you. " He seems to feel that the risks

inherent in Lyme are more serious that those in a Cdiff relapse. I'm not

sure there is much difference.

Pam

selmanaka wrote:

>

> Pam, I saw 3 infectious disease doctors. Got no help from any of

> them. For them, I even didn't have lyme. All my symptoms

> were 'coincidental' or pshychological.

>

> The 3 were top level researchers in Belgium. So.... None of them

> believed I had babesia. None, two even laughed ( " do you have a

> spleen? " I said, 'yes', so they said: 'you can't have babesia'). etc

> etc.

>

> They tested me for parastites though, their labs were better than

> most 'average' labs. Did they find anything? No. Nothing. So, for

> them, I was a 'post lyme disease' patient, meaning: zero

> treatment. " Come back in a year " , they said.

>

> These 3 physicians were the last 'normal' physicians I saw. I gave up

> on them. Then I found my naturopath and she started treating me for

> lyme and babesia. She believed me, as I had all symptoms and she

> confirmed with energetic tests (ART). I had seen 17 doctors before

> her. She was the only one that said I had lyme disease. After, I

> found my lyme doctor, but he's totally alternative too (he too uses

> ART to diagnose).

>

> They found loads of active parasites in my GI tract and brain,

> viruses, babesia, bartonella, borrelia, plus problems with my

> thyroid, heart, heavy metal intoxication, cavitations, problem with

> autonomic nervous system (I think it's what people call disautomia),

> pshycological blockages, sensitivity to metals, allergies etc.

>

> I really gave up on ducks, for the time being. I hope you'll get more

> lucky than I.

>

> Sorry I didn't answer.

>

> Selma

>

>

[Guest guest]

Well, Thankyou for that website. I found it very helpful. I also take

metoporol when it gets bad and xanax which helps me get some sleep. I think

it is the lyme that causes all of this because every time I took antibiotics

and had a good herx this symptom would get better. It wouldn't go away but

I could tell a difference.

Thanks,

_____

From:

[mailto: ] On Behalf Of

creekhopper@...

Sent: Sunday, December 09, 2007 2:10 PM

Subject: [Norton AntiSpam] RE: [ ] Re: Seeing an Infectious

Disease doctor today

Yes!

The drugs I was prescribed have helped:

Toprol XL 25 mg (this is the lowest dose and it is usually all I need)

Clonezepam (1/4 mg.. again, a very low dose)

How that translates into herbs and or supplements, I do not know, and would

love to. That was my treatment for the POTS and still is for the

hyperadrenaline and tremors. Do you gray out when you change positions from

sitting to standing or from lying down to standing? My BP drops and my pulse

rises. For some people, their BP drops and the pulse does not rise.

My last cardiologist, the one who recommened by LLMD, told me that I am

dehydrating myself with too much water. He suggested that I drink

electrolyte drinks with salt. This may translate into trace minerals and

salt? I would love to know! I currently use Gookinaide Hydrolyte because it

has the least amount of additives in it. I put about 1/4 cup juice with

water to make 16 oz and add 1/4 tsp salt. I found that twice a day was good,

but lately while on medication for babesia and lyme, I've found less of a

need for the drinks.

See Dinet for What Helps:

http://www.dinet. <http://www.dinet.org/what_helps.htm> org/what_helps.htm

I tried the support hose, and they made things worse.

Research points to over dilation of blood vessels or lessened ability to

constrict to push blood flow back to the brain, the hypothalamus, the

adrenal and kidneys (specifically renin and aldosterone) for low blood

volume among other things. Dysautonomia is finally beginning to be taken

seriously and the research is increasing. You can also find that on the

Dinet site. I can see how lyme and babesia could contribute or cause.

This mildly kicked in when I was a teenager (I would gray out when getting

out of my desk at school) and I did not need meds until I had my " attack "

which I think was really the Babesia.. chills, shaking, tremors, racing

heart.. and mostly at night, which my first " dsy " doc said was adrenaline

surges. He said that adrenaline is its highest at about 3 am because it

dilates the blood vessels to clean out the muscles...???? I really don't

know it the actual POTs is the main problem here or if the babesia/lyme is

all of it or a contributing factor to making it worse

The adrenaline also kicks in to raise the BP that has fallen. I've had tilt

table and other tests for dys and that is a fact for me. I think the

thinking is that the adrenaline become hyper activated or that some of us

are more sensitive to adrenaline than others. My cortisol levels are low

last time we tested and I wonder if adrenaline kicks in for cortisol.

I have to stay away from medicines (and I imagine herbs) that are adrenaline

stimulants.

I hope this helps.

--

http://lymeactivist <http://lymeactivist.wordpress.com/> .wordpress.com/.

The Take Action! call is presently focusing on the defense of Dr.

.

--------- [ ] Re: Seeing an Infectious Disease doctor today

Pam, I saw 3 infectious disease doctors. Got no help from any of

them. For them, I even didn't have lyme. All my symptoms

were 'coincidental' or pshychological.

The 3 were top level researchers in Belgium. So.... None of them

believed I had babesia. None, two even laughed ( " do you have a

spleen? " I said, 'yes', so they said: 'you can't have babesia'). etc

etc.

They tested me for parastites though, their labs were better than

most 'average' labs. Did they find anything? No. Nothing. So, for

them, I was a 'post lyme disease' patient, meaning: zero

treatment. " Come back in a year " , they said.

These 3 physicians were the last 'normal' physicians I saw. I gave up

on them. Then I found my naturopath and she started treating me for

lyme and babesia. She believed me, as I had all symptoms and she

confirmed with energetic tests (ART). I had seen 17 doctors before

her. She was the only one that said I had lyme disease. After, I

found my lyme doctor, but he's totally alternative too (he too uses

ART to diagnose).

They found loads of active parasites in my GI tract and brain,

viruses, babesia, bartonella, borrelia, plus problems with my

thyroid, heart, heavy metal intoxication, cavitations, problem with

autonomic nervous system (I think it's what people call disautomia),

pshycological blockages, sensitivity to metals, allergies etc.

I really gave up on ducks, for the time being. I hope you'll get more

lucky than I.

Sorry I didn't answer.

Selma

[Guest guest]

I wrote it here some time ago.

Babesia: please search for babesia alternative herbs or babesia

protocol. If you don't find, you can search in lymenet.org, I did a

thread called " babesia alternative herbs " .

Borrelia: Buhner's herbs worked well for me, plus some cyst busters in

the end. I'm back on treatment as I got a small relapse. I also used

the KMT machine (micro current), but I guess, herbs were what worked

most.

Selma

>

> can you tell us some of your treatment prorocol for Lyme/babesia?

>

>

[Guest guest]

Dina, thanks for the link to dysautonomia.

Yes, I got it then (chills, temperature crazy thing, half of the body

warm/ half cold, then problem to have my heart beat 'correct' when

standing/ lying)....

I believe they're gone though, but only time will tell. I treated

heavy metal intoxication (mercury and lead specially), but in my case

there was more to the malfunction of the ANS:

1- heavy metal intoxication

2- 2 cavitations

3- one scar that looked bad and was blocking my ANS according to my

naturopath (cesarean scar), plus my belly button itself (treated with

procaine injections)

4- TBI infections blocked the ANS (I guess, toxins blocked my ANS)

5- metals (my metalic bed, keys in my pockets etc)

6- allergic foods

I truly believe toxins of any type (even sometimes a 'sick mental

state') can cause ANS malfunction.

CERTAINLY eletromagnetic waves cause this for me (computer is number

one, but also wireless telephones, geopathic stress etc). I got very

chilly if I stayed about 30 minutes or more in front of my computer.

I believe, each person's got a limit of what I call 'toxins' (better

to call 'disturbances' or so?). Once lyme comes in, any little bit

more than TBI is 'excessive', if you see what I mean. At least, if

was for me.

My lyme treatment was to try to minimize each item I found was

putting some weight on the 'bad' side of my balance. So I:

1- cut allergic foods

2- cut the circuit breaker when I slept

3- changed from my metal bed to wooden bed (now I'm back though to

metal bed with a 'device' to test it) and went away from a spot I

believe there's geopathic stress

4- did a long term metal detoxification (still am on it)

5- took amalgams off

6- took cavitations off with holistic dentist/ doctor

7- treated scars that kept blocking me

8- treated any infection that I could (tick born, viral, parasitic):

herbs, frozen garlic, probiotics, enzymes, KMT

9- tried to eat as alkaline as possible and zero junk food, zero

alcohol, next to zero sugar.

10- treated mental blockages, psychological 'garbage' etc

So far, that's (was) my treatment.

Now I'm going into a next phase, is trying to AVOID being so sick

again. I still have 2 canal roots (recent ones that I lost with lyme

disease) to 'treat' = these two teeth have to go one day.

I am concentrating in having my personal life back and healthy again

(there are traumas that went to husband and daughter, and even to my

parents due to my disease) and I'm trying to promise myself not to

sleep less than 6 hours a day. Because that's what I believe caused

my last lyme relapse (fortunately under control now).

For parasites, I believe frozen garlic worked well for me, plus the

KMT as I branched it to my brain too and kept getting so many awful

night sweats on the parasite programs!!

I got these bouts twice (about once a year, I need to treat

parasites), and my main treatment for parasites was the KMT. But I

don't believe I was FULLY infested as I was not sick with lyme for

very long (since 2005 only). So I have no idea if this light

treatment KMT + frozen garlic would work for all. I heard about dr.

Natura's cleanse, and other plants, but I can't remember them...

Selma

>

> Selma,

>

> What did you do for the parasites that were not in your intestinal

tract?

>

> Here's a link for dysautonomia if anyone is interested:

>

> www.dinet.org

>

> I was diagnosed with that when I really have Lyme and Babesia. I

was told the chills and tremors were adrenaline surges and the

tachtycardia was also from hyperadrenaline/POTS. I was finally sent

by a cardiologist to my present LLMD because he said my case was too

difficult for him, and he said the doctor (my present LLMD) would get

to the bottom of my dysautonomia to see if it was a secondary

condition or primary condition. I am wondering if more than TBDs can

be behind dysautonomia such as parasites or candida or biotoxins. We

thought it ran in my family because my sister also has it and

possibly my GM had it, as well as a cousin, that we know of, but now

I am questioning everything. Sal

>

> --

> http://lymeactivist.wordpress.com/. The Take Action! call is

presently focusing on the defense of Dr. Ray .

>

> --------- [ ] Re: Seeing an Infectious Disease doctor

today

>

> Pam, I saw 3 infectious disease doctors. Got no help from any of

> them. For them, I even didn't have lyme. All my symptoms

> were 'coincidental' or pshychological.

>

> The 3 were top level researchers in Belgium. So.... None of them

> believed I had babesia. None, two even laughed ( " do you have a

> spleen? " I said, 'yes', so they said: 'you can't have babesia').

etc

> etc.

>

> They tested me for parastites though, their labs were better than

> most 'average' labs. Did they find anything? No. Nothing. So, for

> them, I was a 'post lyme disease' patient, meaning: zero

> treatment. " Come back in a year " , they said.

>

> These 3 physicians were the last 'normal' physicians I saw. I gave

up

> on them. Then I found my naturopath and she started treating me for

> lyme and babesia. She believed me, as I had all symptoms and she

> confirmed with energetic tests (ART). I had seen 17 doctors before

> her. She was the only one that said I had lyme disease. After, I

> found my lyme doctor, but he's totally alternative too (he too uses

> ART to diagnose).

>

> They found loads of active parasites in my GI tract and brain,

> viruses, babesia, bartonella, borrelia, plus problems with my

> thyroid, heart, heavy metal intoxication, cavitations, problem with

> autonomic nervous system (I think it's what people call

disautomia),

> pshycological blockages, sensitivity to metals, allergies etc.

>

> I really gave up on ducks, for the time being. I hope you'll get

more

> lucky than I.

>

> Sorry I didn't answer.

>

> Selma

>

>

>

>

>

>

[Guest guest]

Thank you, Selma. This is great information! My sister who had this very badly

(wildly swinging BP and neuropathy among other things...She lost the use of a

leg, was bedridden, developed " narcolepsy " . She had a stroke. She developed

Hashimotos which either cleared itself or she cleared it with her therapy. She

was tested for various conditions that would come back positive and then

negative on retest. It was all very strange. She was in her twenties when all

this happened. She was treated like many lyme patients (and I am wondering if

she is or if it is all the other things you listed) are by many docs who blew

her off and she had no choice but to rely on herself and her spirituality to

heal. She worked on some detox (not near as extensive) and on energy pathways

with Reiki and though trigger point therapy. She did some herbs from the

healthfood store. In fact, her face broke out many times from toxin release and

she has scars from this. She learned to treat herself with the trigge

r point therapy and massage to release muscles and scar tissue. She also had a

swelling at the base of her brain that she worked on with massage, accupressure

and Reiki. She is better. Not 100%. I will share this information with her.

Thanks!! Sal

--

http://lymeactivist.wordpress.com/. The Take Action! call is presently focusing

on the defense of Dr. .

--------- [ ] Re: Seeing an Infectious Disease doctor

today

>

> Pam, I saw 3 infectious disease doctors. Got no help from any of

> them. For them, I even didn't have lyme. All my symptoms

> were 'coincidental' or pshychological.

>

> The 3 were top level researchers in Belgium. So.... None of them

> believed I had babesia. None, two even laughed ( " do you have a

> spleen? " I said, 'yes', so they said: 'you can't have babesia').

etc

> etc.

>

> They tested me for parastites though, their labs were better than

> most 'average' labs. Did they find anything? No. Nothing. So, for

> them, I was a 'post lyme disease' patient, meaning: zero

> treatment. " Come back in a year " , they said.

>

> These 3 physicians were the last 'normal' physicians I saw. I gave

up

> on them. Then I found my naturopath and she started treating me for

> lyme and babesia. She believed me, as I had all symptoms and she

> confirmed with energetic tests (ART). I had seen 17 doctors before

> her. She was the only one that said I had lyme disease. After, I

> found my lyme doctor, but he's totally alternative too (he too uses

> ART to diagnose).

>

> They found loads of active parasites in my GI tract and brain,

> viruses, babesia, bartonella, borrelia, plus problems with my

> thyroid, heart, heavy metal intoxication, cavitations, problem with

> autonomic nervous system (I think it's what people call

disautomia),

> pshycological blockages, sensitivity to metals, allergies etc.

>

> I really gave up on ducks, for the time being. I hope you'll get

more

> lucky than I.

>

> Sorry I didn't answer.

>

> Selma

>

>

>

>

>

>

[Guest guest]

I couldn't find your link on lyme-net; can you help me more. I am trying to

put together a babesia protocol to kill mine.

Heidi N

" I wrote it here some time ago.

Babesia: please search for babesia alternative herbs or babesia

protocol. If you don't find, you can search in lymenet.org, I did a

thread called " babesia alternative herbs " .

Borrelia: Buhner's herbs worked well for me, plus some cyst busters in

the end. I'm back on treatment as I got a small relapse. I also used

the KMT machine (micro current), but I guess, herbs were what worked

most.

Selma "

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