Re: Not a tick borne infection-Knotweed

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[ ] Re: Not a tick borne infection

>I have used the full Buhner protocol dosage for about three months, after that

about half the dosage for a year. Currenly I don't use anything except maybe two

1-gram knotweed pills daily. I'm planning to use Eleuthero again next month.

I am thinking of beginning the Buhner protocol after 12 months of ABX (including

4 months IV ceftriaxone + Biaxin). I had to discontinue ABX (MD insisted)

because of weight lose and fatigue. Four months later: still can't gain

weight, much less fatigue but neuro symptoms: ear ringing, mild vertigo,

tingling & mood instability are still a problem. I think the ABXs have

destroyed all the beneficial bacteria in my gut and, as you suggested,

probiotics aren't going to be enough to grow them back. My gut is constantly

gurgling (no pain) and full of gas, weekly loose stools. I had lots of deep

itching (especially inner ears & chest, but migrated other places) after about

6 months on ABX and it has taken 3 months of strict candida diet to deal with

it. I still occasionally get itching in my inner ear which leads to fatigue &

neuro symptoms flare up. Possible inflammatory response?

What specific benefits have you gotten from the Buhner herbs? Because my GI

tract is so unsettled, I'm afraid to even try them. I don't have an LLMD or ND

at present.

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--- In , Kim Ovrutsky <KTOvrutsky@...> > I had to

discontinue ABX (MD insisted) because of weight lose and fatigue. Four months

later: still can't gain weight, much less fatigue but neuro symptoms: ear

ringing, mild vertigo, tingling & mood instability are still a problem.

I had similar problems, and all of them started during / after ABX treatment.

Although that doesn't mean that the ABX caused them ...

> I think the ABXs have destroyed all the beneficial bacteria in my gut and, as

you suggested, probiotics aren't going to be enough to grow them back. My gut

is constantly gurgling (no pain) and full of gas, weekly loose stools. I had

lots of deep itching (especially inner ears & chest, but migrated other places)

after about 6 months on ABX and it has taken 3 months of strict candida diet to

deal with it. I still occasionally get itching in my inner ear which leads to

fatigue & neuro symptoms flare up. Possible inflammatory response?

same here, my gut problems improved a bit using low-gluten diet. But even three

years after the last ABX my gut still doesn't work normal (cramping,

gurgling/bloating, irregular stools etc.).I'm not eating glutenfree and carbfree

because it is difficult to stick to such a regimen, and I'm not overly

sensitive. But I eat pretty healthy, compared to the average person.

I have had a coating on the tongue from when I started oral ABX, and have not

been able to get rid of it. Maybe one day I will try the 'diluted bleach'

treatment, but I'm not going to swallow like the MMS people

I also have a strange ear problem that comes and goes and could be an infection.

Vertigo and tinnitus problems that were severe right after ABX are nearly gone,

fortunately (thanks to knotweed, IMHO).

I had very little fatigue problems during ABX treatment (I remember I was about

the only lyme in the hospital without crushing fatigue). for me that started

long after the ABX and months of Buhner protocol.

I plan to battle this problem again soon with Eleuthero.

> What specific benefits have you gotten from the Buhner herbs? Because my GI

tract is so unsettled, I'm afraid to even try them. I don't have an LLMD or ND

at present.

I had severe vertigo (everything was turning around, had to lie on the bed for

hours a day sometime), this disappeared in a few weeks when I started with

knotweed. Most of the other symptoms like joint/muscle pains, nerve tingling,

fevers, bad food-poisoning like episodes etc. have gradually improved on Buhner

protocol but they are not completely gone.

I don't think Buhner protocol had much influence om my gut (or my bladder for

that matter, it still doesn't work like it used to). Maybe there was a little

discomfort in the first days. But I remember some others on the group had

serious gut problems when they started Buhner. Maybe in my case there was

nothing left to destroy ;(

I'm stil underweight (63-64 kg before lyme, 55 kg in my worst Lyme days, now

60-61 kg which is too low for my length. I'm guessing this is because my gut is

still not functioning like it should.

So to sum up, Buhner helped me significantly, but it didn't help with all the

lyme symptoms.