Guest guest Posted April 3, 2001 Report Share Posted April 3, 2001 I know Jerry. I wonder where everyone is. I hope they are out enjoying a beautiful day. I have been watching the Blue Devils return. There were lots of welcome home parties. I bet the "heels" were not there. LOL Rosemary Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2001 Report Share Posted April 3, 2001 I thought it was just me, sometimes my husband gets in here and deletes things that he shouldn't LOL. Anyway, I'm hoping that everyone is feeling good and enjoying some nice weather for a change. AIH (01/01) IL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2001 Report Share Posted April 3, 2001 hello, I am new to the site, I guess my first message didn't go through for some reason. I just wanted to know if anyone had any experience (good or bad) with mlk thistle they could tell me about. my GI will not say it is good but he will not say it is bad either.he just says that they are not trained to use herbal remedies for treatment. Greg ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2001 Report Share Posted April 3, 2001 Rosemary, you say you've been watching the Blue Devils on a wonderful day. Yesterday I went to the beach (all wrapped up against a fierce wind) and watched what I believe was the Blue Angels. Harper Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2001 Report Share Posted April 3, 2001 I have noticed that too. [ ] anyone > Is anyone out there? I have received only > 6-7 posts in the last 3 days....is it just me or is no one writng? > poor little lonely me > jerry > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2001 Report Share Posted April 3, 2001 Thanks Kari.... I thought there might be something wrong with my service... Jerry (: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2001 Report Share Posted April 3, 2001 Hi Jerry, I'm sorry you feel so lonely. I'll keep you company in cyber world LOL. Nothing much is happening here. Tommy had a doctor appointment yesterday, but we didn't find anything new. He has a blood test scheduled for next Wednesday. They are finding a lot of " borderline abnormalities " so are now testing him for other things as well (he currently has a history of kidney stones and AIH). I'm hoping they don't find anything else. My cousin was just admitted to the hospital. They don't know what is wrong with her, an infection of some kind. She has had diabetes since she was 6. How is your mother doing? How are you doing? What do you do for relaxation besides help us? Since everyone is leaving town, Chicago, Florida, etc. maybe we can have a group discussion about nothing. Hey it worked for Seinfeld. I take it being so quiet as good news. Maybe everyone is finally starting to feel well. Nice chatting with you. Debbie (Tommy's Mom) > [Original Message] > From: <gefox@...> > < > > Date: 4/3/01 6:30:05 PM > Subject: [ ] anyone > > Is anyone out there? I have received only > 6-7 posts in the last 3 days....is it just me or is no one writng? > poor little lonely me > jerry > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2001 Report Share Posted April 3, 2001 Hi Jerry, I thought it was just me too, but I have been in the process of installing a new server...BTW, I had to re-register with groups and that is where I saw how to retrieve archives and noted that the posts in April have been minimal...hope it means the Spring air outside is too enticing to miss!! New email: dagelo@... You're never alone, Jerry!!!!! God bless, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2001 Report Share Posted April 3, 2001 JERRY HEHE ya me too, I was beginning to wonder where everyone disappeared too. Re: [ ] anyone > Thanks Kari.... I thought there might be something wrong with my > service... > Jerry (: > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2001 Report Share Posted April 3, 2001 Hi Jerry, I was at the beach most of last week, and had well over 100 e-mails to catch up on from then. Maybe everyone was just tired out from those. Went to the beach with my sister-in-law and our girls, (12, 11, and 9). Spent 4 days doing nothing but sleep, sit on the beach, and eat way too much. It worked out well for her - I was the designated driver by default. Hopefully everyone else is not on-line for some similar fun reason. > Is anyone out there? I have received only > 6-7 posts in the last 3 days....is it just me or is no one writng? > poor little lonely me > jerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2001 Report Share Posted April 3, 2001 Jerry, I noticed too...kept rereading the same posts cause I thought I had to have missed some since I cant always remember if I read something before or not...I know it just seemed like there were very few posts the last few days. nne > Is anyone out there? I have received only > 6-7 posts in the last 3 days....is it just me or is no one writng? > poor little lonely me > jerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2001 Report Share Posted April 4, 2001 ... I think everone has spring fever.. I wished I were at the beach...oh well.. the cows are always browner on the other side of the fence. How you doing ? my prayers.. Jerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2001 Report Share Posted April 4, 2001 Debbie.... sounds like Tommy`s doing fairly well . I hope nothing else is wrong and I`ll keep him in my prayers. Mom is doing OK I guess. She is quite tired anymore...she used to be so active.. My sister is coming home for a month and my 1st wife is coming back from Fla. soon..when they get here she will have more to do...besides it`s spring and baseball is here... she loves the Cleve. Indians... mabye all that and warm weathher will perk her up. she had some pictures and a CT today because she`s complaining of back pain. She might be too old for angioplasty and/or another bypass. Thanks for your prayers. Mostly what I do is play poker 4 or 5 times a week with some other old ex-drunks. ($4-$5 limit.. it helps keep me in cigars) I go to a AA meeting about every night and fllrt with the women.. sadly to say thats about all I can do. (but I`m good at it. ) Every once in a while i take a small job if I feel I can do it without getting too exhausted .... I`m an electrical contractor. Other than that I spend a lot of time researching things on the `net. I can`t wait till summer.... our condo is right across the street from the pool and I Love the sun .. I get killer tans and try to forget about the possibility of skin cancer. I also love TV .. never saw it much when I was working. I used to be much more active in AA as far as serving as an officer of one sort or another or working on commitees. I still speak quite often. other than that I find myself sleepng a lot cause I Iire easily.Are you sorry you asked? I never saw Seinfeld much when he was on but thanks to re-runs I`ve seen them all 3 times at least. Now if this doesn`t qualify for talking about nothing.. I don`t know what will. I`ll say hello to Newman for you. take care of Tommy Jerry Hi Jerry, I'm sorry you feel so lonely. I'll keep you company in cyber world LOL. Nothing much is happening here. Tommy had a doctor appointment yesterday, but we didn't find anything new. He has a blood test scheduled for next Wednesday. They are finding a lot of " borderline abnormalities " so are now testing him for other things as well (he currently has a history of kidney stones and AIH). I'm hoping they don't find anything else. My cousin was just admitted to the hospital. They don't know what is wrong with her, an infection of some kind. She has had diabetes since she was 6. How is your mother doing? How are you doing? What do you do for relaxation besides help us? Since everyone is leaving town, Chicago, Florida, etc. maybe we can have a group discussion about nothing. Hey it worked for Seinfeld. I take it being so quiet as good news. Maybe everyone is finally starting to feel well. Nice chatting with you. Debbie (Tommy's Mom) > [Original Message] > From: <gefox@...> > < > > Date: 4/3/01 6:30:05 PM > Subject: [ ] anyone > > Is anyone out there? I have received only > 6-7 posts in the last 3 days....is it just me or is no one writng? > poor little lonely me > jerry > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2001 Report Share Posted April 4, 2001 Next year...Rosemary... next year... BTW I hope I could let go of the rope... I felt I did when I had my TX..YOU could too.. My love and prayers for you and Hunt.. Jerry I know Jerry. I wonder where everyone is. I hope they are out enjoying a beautiful day. I have been watching the Blue Devils return. There were lots of welcome home parties. I bet the "heels" were not there. LOL Rosemary Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2001 Report Share Posted April 4, 2001 me too!! [ ] anyone > Is anyone out there? I have received only > 6-7 posts in the last 3 days....is it just me or is no one writng? > poor little lonely me > jerry > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2001 Report Share Posted April 4, 2001 Thanks for asking, Jerry. Actually, I kind of hate to admit it with all of the problems everyone else is having, but I feel great. About 2-1/2 weeks ago lowered my Prednisone from 12.5 to 10 with absolutely no side effects, and all my numbers are still normal. I feel very fortunate that since being diagnosed last August, my numbers have consistently dropped and never once gone back up. No tiredness, no itching, no real pain. My biggest problem now is spring allergies - I think that the higher doses of prednisone kept me from having problems last fall and earlier this year, but I'm not really going to complain. Will just take my Claritin and live with it (like I always do - I live in a valley which is just a pollen trap). The weirdest thing too - I was never really hungry on the Prednisone, but since going to 10 mg have been starving! Seems kind of backwards to me. Take Care, > ... I think everone has spring fever.. I wished I were at the > beach...oh well.. the cows are always browner on the > other side of the fence. > How you doing ? > my prayers.. > Jerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2001 Report Share Posted April 4, 2001 I loved Seinfeld when it was on, hardly ever missed it. Genny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2001 Report Share Posted April 5, 2001 Gerry... Never sorry I asked. Gives you more personality instead of just the " liver guru " . It sounds like you keep yourself pretty busy getting a tan, playing poker, smoking cigars and flirting with women. Who said having a liver transplant stops you from having fun?! If you become the poster child, people will be lining up asking for a transplant LOL. I'm sure your Mom will continue to improve. Changing your lifestyle is the biggest obstacle. I'm still learning how to deal with it. Prozac is helping me from not flipping out. Talk about a mood leveler... Debbie (Tommy's Mom) -- Have a fun day! --- debbiehenry@... --- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2001 Report Share Posted April 7, 2001 Hi Jerry, You are not alone...I've been so busy with school, work and doctors appointments that I can hardly stay focused on anything else. I would much rather be reading all my e-mails...Unfortunately for me, now I have over 250 to read and my eyes are beginning to get sore : ( HEHE! I did have some good news. My LFT's are actually normal!!! I guess this lovely medicine is really working!!! I am so happy. My blurred vision is slowly getting better too. Now I am just on the verge of getting a cold. I am trying to fight it, hopefully I will win this battle too! I've got to stay positive! Well, I'm gonna let you go so I can read the rest of my e-mails. Have a great weekend! Pam in CT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2001 Report Share Posted April 8, 2001 I just read your e-mail about blurred vision I also have this problem is it something with PBC or what? I just learn more and more every time I read my e-mails. Debbie in Louisville Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2001 Report Share Posted April 8, 2001 I was told by my optometrist that the blurred vision is a side-effect of prednisone. I have it too. Debbie/FL > I just read your e-mail about blurred vision I also have this problem is it > something with PBC or what? I just learn more and more every time I read my > e-mails. > Debbie in Louisville Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2004 Report Share Posted August 24, 2004 , that other paperwork you may be taking about is called the "Power of Attorney" here in Australia. It basically gives someone the power to make legal decisions on your behalf. That and a will mostly has nothing whatsoever to do with your health care wishes. You need to have a heart to heart with your primary doctor and your liver specialist and make sure they note in your records your specific wishes regarding your hospital/health care. I've just had to deal with all these issues over the last year but remember, my knowledge is based on Australia and Australian law. But let me reassure you, you're doing the right thing having all your affairs in order. When Daryl was on life support last year, there was a real chance he would die intestate (no will) and honestly, it would have been a real nightmare. Please everyone, make sure you have a legal and binding will and specify exactly what you want. Believe me, it saves an enormous amount of heartache after you're gone. Good luck anne [ ] ANYONE Hi Gang Here is a touchy subject I have to go to the notary to have my will done and also the paper for when we can no longer decide for ourselves when we are sick brain fog I can't remember what it is called what I was wondering is can we specify to what degree of non resuscitation we want. I am stage 4 PBC and I have AIH and it is only a matter till I will qualify for a tx my meld score is only 12 so it is too early but I want to be prepared. If anyone has any experience in this please let me know. I don't want to be resuscitated if there is no hope but I don't want them to pull the plug for nothing either (hee,hee) my executor is my brother and I don't want to tempt him. LOL Thanks All in Montreal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2004 Report Share Posted August 24, 2004 Hi , When I was aware of the severity of my disease, and I am a widow, I had my attorney attach a note that " I have an end-stage condition, defined by Section 765.101(4)....However, nothwithstanding the foregoing, if I have a liver condition which is terminal, but a liver transplant can be effectuated with reasonable medical probability of recovery, I direct life prolong procedures be administered". This is a scary , but necessary part of our life's work to have this paperwork completed. My husband died with no will and my children and I got nothing (long story). Ask you for more questions if you wish and good luck. [ ] ANYONE Hi Gang Here is a touchy subject I have to go to the notary to have my will done and also the paper for when we can no longer decide for ourselves when we are sick brain fog I can't remember what it is called what I was wondering is can we specify to what degree of non resuscitation we want. I am stage 4 PBC and I have AIH and it is only a matter till I will qualify for a tx my meld score is only 12 so it is too early but I want to be prepared. If anyone has any experience in this please let me know. I don't want to be resuscitated if there is no hope but I don't want them to pull the plug for nothing either (hee,hee) my executor is my brother and I don't want to tempt him. LOL Thanks All in Montreal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2010 Report Share Posted September 20, 2010 , I would like to hear about your experience with the MP. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2010 Report Share Posted September 20, 2010 As would I! I have a large section on my free lyme resource CD about the Marshal protocol. Pros and cons from people. See the folder: \1 - Lyme_Resources\Treatments\Marshal Protocol I would be happy to add more information as folks want to share. www.lyme-resource.com You can lead a person to a fact, but you can't make them think! - > [ ] anyone > > > I would like to hear about your experience with the MP. > > > [ Quote Link to comment Share on other sites More sharing options...
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