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Living in CT, I have either seen or know of most of the LLMD " luminaries " . Dr.

Donta is a very nice guy.....emailed & called me even though I was not a

patient...but mainly it was Biaxin/Plaquenil for a year & then " we'll see "

I went to see about 5 of top MD's & was always upset by the low % in waiting

rooms that were making progress back in 2003 area.Not judging them, but just

mentioning.

That's why so many folks try CS, Coiling etc.

Jazzman

[ ] Re: New to Forum - Chronic Bartonella Relapse Issues

,

Thank you for the response - I jsut want to clarify tho, that you aren't meaning

to suggest the " A-Bab " product for Bartonella ?...and that you indeed are

speaking of a person who has been dealing with a relapsing or chronic Bartonella

infection? Because, I can see on the website you linked to that there is also a

seperate product which appears to be specialized for Bartonella.

I'll take a look at all of this - but do have some initial concerns -given that

I have a lot of sensitivities, and this a product that has a bit of a " shotgun "

approach with so many active ingredients, and without any quantitative info or

proportions that I can see ?

I think tho - that i'll look over each listed ingredient, and will probably do

some searching for clinical studies supporting the ingredients as active against

Bartonella (and/or for down-regulating " Vascular Endothelial Growth Factor " [see

VEGF - pg 200, Healing Lyme] -my VEGF diagnostics have been thru-the-ceiling,

abnormally-high for multiple and consectutive months now - it, frankly worries

me from time to time that the Bartonella could just be part of the story with

this).

Within this " Bart-A " product - I do know that Grapefuit Seed Extract can be

particularly brutal on gut flora. It literally kills EVERYTHING !

Grape seed " alcohol " is new to me - but I do know that grapefruit seed " extract "

does help with down-regulating VEGF. (in fact I have a list of foods and

supplements which down-regulate VEGF from some cancer research publications,

which I should post on the forum here for the benefit of anyone else who might

be struggling with Bart. - i'll dig it up and post it)

I guess the remaining balance of ingredients if not specific for " Bartonellae,

et. al. " pathogen might be for Lymph support ?(but please note: another one of

the contents listed for this " A-Bart " product - called Pokeweed (or Poke " root " )

as indicated on the link can also be a dangerous herb - FOSTER/DUKE state that

it " can damage chromosomes " , and that " all parts are poisonous " - and I suspect

specifically recommends Red Root for lymph support instead for some good

reasons). Probably the remaining balance of ingredients are generally designed

for common symptoms ?

The wonderful thing about 's book (I feel) - is that there are individual

herbs, and recommended dosages which allow a person to try one at a time - to

test for reactions, plus there also are 34 pages of referenced supporting

studies in the back of the book. ---- as opposed to experimenting with a sort of

" black box " proprietary formula ?

That said - I have not looked at some of these ingeredients individually before

as potentially helpful things, and I certainly appreciate the tip ~ I'll look at

it closely and let you know what I conclude.

Probably should have joined this forum a long time ago.

-

> >

> > Hi - my name is , and I live in Southern NJ.

> >

> > I am a huge fan of Buhner and have owned many

> > of his books (in addition to the Healing Lyme book) for

> > a few years now.

> >

> > I just started the specific protocol for Bartonella outlined in the book,

after having gone thru a full year of convention medical treatment, which

consisted of 12 months of antibiotics (8 mo's of which

> > was via IV).

> >

> > This treatment was stopped only when tests turned negative - and then a

period of no treatment ensued for roughly 6 months (although symptoms had hardly

improved).

> >

> > However - just about 3 weeks ago I tested positive again via an Igenix

Bartonella-FISH test (which is only a newly available test, but is stated to be

a direct detection of the rod shaped organisms via a blood smear, but is non

specific in term of which of 4 types of Bartonella species I could have).

> >

> > Needless to say - after 10 montsh of antibiotic treatment - the new positive

test was rather devastating news to receive, but at the same time now does give

me something to re-focus treatment on to deal with all of these symptoms.

> >

> > Additionally - I have blood currently being cultured at the Intracellular

Pathogens Research Lab - NC State University; College

> > of Veterinary Medicine, which should yield results in early December.

> >

> > Since beginning the Buhner protocol roughly 3 weeks ago I am really happy to

report that certain nagging symptoms have improved - specifically chronic IBS

wich has plagued me for the past 5 years.

> > I am working my way up dosage and am roughly at 1/2 dose - with the

whole-herb Knotweed, Red Root, and Boneset. - I have never used these herbs

before this.

> >

> > It is not entirely clear that I obtained the infection from

> > a tick - but I suspect so.

> >

> > However - if the above is not enough on it's own - about 10 days ago I found

a fully engorged male Lonestar Tick embedded near my ankle. This tick is

currently being analyzed - and we are awaiting results (upon finding this I

immediately proceeded with the " early bite " protocol from the Buhner text) and

as a preventative am now also taking 150mg of Doryx 2x/day.

> >

> > My interest in joining the forum here has to do with that I would be

especially appreciate input if anyone has dealt with chronic or relapsing

Bartonella with any success ??? - and also if there are additional herbs that

have been helpful beyond the core protocol in the book.

> >

> > I suspect I will probably be maintaining the protocol, and also resuming

with a new anti-biotic (which my LLMD is researching for me) for the Bartonella,

the current Doryx is simply for preventative reasons for this recent Lonestar

tick bite, considering that I am already immuno-suppressed, and can't afford to

be taking any risks.

> > I am freankly terrified at the prospects of Bartonella infecting my heart

vavles if I were to become even more ill with any new TBI's.

> >

> > Thanks much for reading all of this - and I hope I can add some positive

things, become an asset to what appears to be a really wonderful forum here.

> >

> > Regards

> >

> >

>

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