Guest guest Posted November 28, 2010 Report Share Posted November 28, 2010 Living in CT, I have either seen or know of most of the LLMD " luminaries " . Dr. Donta is a very nice guy.....emailed & called me even though I was not a patient...but mainly it was Biaxin/Plaquenil for a year & then " we'll see " I went to see about 5 of top MD's & was always upset by the low % in waiting rooms that were making progress back in 2003 area.Not judging them, but just mentioning. That's why so many folks try CS, Coiling etc. Jazzman [ ] Re: New to Forum - Chronic Bartonella Relapse Issues , Thank you for the response - I jsut want to clarify tho, that you aren't meaning to suggest the " A-Bab " product for Bartonella ?...and that you indeed are speaking of a person who has been dealing with a relapsing or chronic Bartonella infection? Because, I can see on the website you linked to that there is also a seperate product which appears to be specialized for Bartonella. I'll take a look at all of this - but do have some initial concerns -given that I have a lot of sensitivities, and this a product that has a bit of a " shotgun " approach with so many active ingredients, and without any quantitative info or proportions that I can see ? I think tho - that i'll look over each listed ingredient, and will probably do some searching for clinical studies supporting the ingredients as active against Bartonella (and/or for down-regulating " Vascular Endothelial Growth Factor " [see VEGF - pg 200, Healing Lyme] -my VEGF diagnostics have been thru-the-ceiling, abnormally-high for multiple and consectutive months now - it, frankly worries me from time to time that the Bartonella could just be part of the story with this). Within this " Bart-A " product - I do know that Grapefuit Seed Extract can be particularly brutal on gut flora. It literally kills EVERYTHING ! Grape seed " alcohol " is new to me - but I do know that grapefruit seed " extract " does help with down-regulating VEGF. (in fact I have a list of foods and supplements which down-regulate VEGF from some cancer research publications, which I should post on the forum here for the benefit of anyone else who might be struggling with Bart. - i'll dig it up and post it) I guess the remaining balance of ingredients if not specific for " Bartonellae, et. al. " pathogen might be for Lymph support ?(but please note: another one of the contents listed for this " A-Bart " product - called Pokeweed (or Poke " root " ) as indicated on the link can also be a dangerous herb - FOSTER/DUKE state that it " can damage chromosomes " , and that " all parts are poisonous " - and I suspect specifically recommends Red Root for lymph support instead for some good reasons). Probably the remaining balance of ingredients are generally designed for common symptoms ? The wonderful thing about 's book (I feel) - is that there are individual herbs, and recommended dosages which allow a person to try one at a time - to test for reactions, plus there also are 34 pages of referenced supporting studies in the back of the book. ---- as opposed to experimenting with a sort of " black box " proprietary formula ? That said - I have not looked at some of these ingeredients individually before as potentially helpful things, and I certainly appreciate the tip ~ I'll look at it closely and let you know what I conclude. Probably should have joined this forum a long time ago. - > > > > Hi - my name is , and I live in Southern NJ. > > > > I am a huge fan of Buhner and have owned many > > of his books (in addition to the Healing Lyme book) for > > a few years now. > > > > I just started the specific protocol for Bartonella outlined in the book, after having gone thru a full year of convention medical treatment, which consisted of 12 months of antibiotics (8 mo's of which > > was via IV). > > > > This treatment was stopped only when tests turned negative - and then a period of no treatment ensued for roughly 6 months (although symptoms had hardly improved). > > > > However - just about 3 weeks ago I tested positive again via an Igenix Bartonella-FISH test (which is only a newly available test, but is stated to be a direct detection of the rod shaped organisms via a blood smear, but is non specific in term of which of 4 types of Bartonella species I could have). > > > > Needless to say - after 10 montsh of antibiotic treatment - the new positive test was rather devastating news to receive, but at the same time now does give me something to re-focus treatment on to deal with all of these symptoms. > > > > Additionally - I have blood currently being cultured at the Intracellular Pathogens Research Lab - NC State University; College > > of Veterinary Medicine, which should yield results in early December. > > > > Since beginning the Buhner protocol roughly 3 weeks ago I am really happy to report that certain nagging symptoms have improved - specifically chronic IBS wich has plagued me for the past 5 years. > > I am working my way up dosage and am roughly at 1/2 dose - with the whole-herb Knotweed, Red Root, and Boneset. - I have never used these herbs before this. > > > > It is not entirely clear that I obtained the infection from > > a tick - but I suspect so. > > > > However - if the above is not enough on it's own - about 10 days ago I found a fully engorged male Lonestar Tick embedded near my ankle. This tick is currently being analyzed - and we are awaiting results (upon finding this I immediately proceeded with the " early bite " protocol from the Buhner text) and as a preventative am now also taking 150mg of Doryx 2x/day. > > > > My interest in joining the forum here has to do with that I would be especially appreciate input if anyone has dealt with chronic or relapsing Bartonella with any success ??? - and also if there are additional herbs that have been helpful beyond the core protocol in the book. > > > > I suspect I will probably be maintaining the protocol, and also resuming with a new anti-biotic (which my LLMD is researching for me) for the Bartonella, the current Doryx is simply for preventative reasons for this recent Lonestar tick bite, considering that I am already immuno-suppressed, and can't afford to be taking any risks. > > I am freankly terrified at the prospects of Bartonella infecting my heart vavles if I were to become even more ill with any new TBI's. > > > > Thanks much for reading all of this - and I hope I can add some positive things, become an asset to what appears to be a really wonderful forum here. > > > > Regards > > > > > Quote Link to comment Share on other sites More sharing options...
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