Guest guest Posted October 12, 2007 Report Share Posted October 12, 2007 -- It's great to hear of a success story! Can you give me the details on your abx treatment? oral or IV? all doxy or also antivirals? Was your doc .. sam donta by chance? I know he is big on long term doxy. When did you get your amalgams out? I'm not familiar with Andy Cutler..do you have a link etc on his information? (Selma #2 in US) -- In , " DeMarco " <@...> wrote: > > In the month that I've been chelating, I am feeling better and better. > I already felt quite well, but now, I feel like I'm in my 20's again. > Unbelievable. I'm skipping and jumping and laughing out loud, > working full time, and finally starting to catch up on long-ignored > projects. > > I've been able to cut my herbs in half, so am now taking just 2 grams > each daily of cat's claw, sarsaparilla and knotweed. I've been able > to discontinue red root and boneset. I still take milk thistle, and a > bunch of other supplements. > > For chelation, right now I'm taking 25 mg of DMSA every 3 to 4 hours, > 3 days on, 4 days off. In two months, I'll add alpha lipoic acid, and > shorten the time between doses to 3 hours or less. I could probably > add it now, but I'm trying to be patient and chelate very slowly and > safely. Seems to be working. > > This is amazing. Many thanks to my LLMD and 18 months of > doxycycline, which took me well down the road to recovery. And kudos > to Buhner, who took me through the next 8 months, and Andy > Cutler who is taking me to the finish line. Too bad neither really > believes in the other's work. But at least we can take what we need > from each of them. > > If I had it to do over again, I'd get my amalgams out first. But who > knows if that would have worked any better? I have no regrets in my > treatment choices, just endless curiosity about what might have worked > more quickly. > > Take care, All. > > D. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2007 Report Share Posted October 12, 2007 -- nice to hear you're feeling better! I tried the link and it didn't work. Got another? I'm interested in reading what the chelation groups have to say. Also, I have mercury fillings and I'm not going to be getting them out anytime soon, so I hope whatever the chelation folks are doing still fits for people who still have their amalgams.-- Robin ************************************** See what's new at http://www.aol.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2007 Report Share Posted October 13, 2007 " y093666 " <y093666@...> wrote: > > -- > > It's great to hear of a success story! Can you give me the details on > your abx treatment? oral or IV? all doxy or also antivirals? All oral - doxycycline during the fall/winter, amoxicillin during spring/summer. I did a stint with zithromax and mepron, but that, and the amoxicillin, did not help nearly as much as the doxy. Was your > doc .. sam donta by chance? I know he is big on long term doxy. No. It was Dr. M in Epping, then Hampton. He's closing his Lyme practice at the end of this month. > When > did you get your amalgams out? The last of them came out in July. I used Groton Dental Wellness Spa. They're nearby and follow IAOMT safety protocols. > I'm not familiar with Andy Cutler..do > you have a link etc on his information? (Selma #2 in US) The frequent dose chelation group is dedicated to discussing his protocols. The adult metal chelation group discusses his, and other protocols. I did a lot of research, followed a lot of people through their chelation, listened to the horror stories associated with some other protocols, and decided this was the safest way to go. There's summary information on Andy's protocol at http://home.earthlink.net/~moriam/Andy_dose_sched.html. But it's best to read his book. It's not an easy read - poorly organized, a challenge if you're brain-fogged. The chelation groups will help. Best of luck, D. > > > -- In , " DeMarco " <@> wrote: > > > > In the month that I've been chelating, I am feeling better and better. > > I already felt quite well, but now, I feel like I'm in my 20's again. > > Unbelievable. I'm skipping and jumping and laughing out loud, > > working full time, and finally starting to catch up on long-ignored > > projects. > > > > I've been able to cut my herbs in half, so am now taking just 2 grams > > each daily of cat's claw, sarsaparilla and knotweed. I've been able > > to discontinue red root and boneset. I still take milk thistle, and a > > bunch of other supplements. > > > > For chelation, right now I'm taking 25 mg of DMSA every 3 to 4 hours, > > 3 days on, 4 days off. In two months, I'll add alpha lipoic acid, and > > shorten the time between doses to 3 hours or less. I could probably > > add it now, but I'm trying to be patient and chelate very slowly and > > safely. Seems to be working. > > > > This is amazing. Many thanks to my LLMD and 18 months of > > doxycycline, which took me well down the road to recovery. And kudos > > to Buhner, who took me through the next 8 months, and Andy > > Cutler who is taking me to the finish line. Too bad neither really > > believes in the other's work. But at least we can take what we need > > from each of them. > > > > If I had it to do over again, I'd get my amalgams out first. But who > > knows if that would have worked any better? I have no regrets in my > > treatment choices, just endless curiosity about what might have worked > > more quickly. > > > > Take care, All. > > > > D. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2007 Report Share Posted October 13, 2007 sfrobink@... wrote: > -- nice to hear you're feeling better! I tried the link and it didn't > work. Got another? Sorry. The period at the end of the sentence attached itself. http://home.earthlink.net/~moriam/Andy_dose_sched.html > I'm interested in reading what the chelation groups have > to say. Also, I have mercury fillings and I'm not going to be getting them > out anytime soon, so I hope whatever the chelation folks are doing still fits > for people who still have their amalgams. No. Please do not chelate with amalgams in place. Do not believe anyone who says it's OK. Many people get damaged that way. Andy's book has recommendations for those who still have amalgams - supplementation to help to minimize the effects of chronic mercury exposure. There is some supplement information here. Just follow the links. http://home.earthlink.net/~moriam/ANDY_INDEX.html#supplements Hope this helps. D. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2007 Report Share Posted October 13, 2007 HI ! I used Grotton too for my root canals and metals. So you did the chelation on your own ? That is great Did you had co-infection and how long did you had Lyme ? How did you found you had lyme ? What were your worst symptoms ? They all are closing the practice in MA and NH as far as I know..to much preassure ..to bad for us Lymies. VJ:) DeMarco <@...> wrote: " y093666 " <y093666@...> wrote: > > -- > > It's great to hear of a success story! Can you give me the details on > your abx treatment? oral or IV? all doxy or also antivirals? All oral - doxycycline during the fall/winter, amoxicillin during spring/summer. I did a stint with zithromax and mepron, but that, and the amoxicillin, did not help nearly as much as the doxy. Was your > doc .. sam donta by chance? I know he is big on long term doxy. No. It was Dr. M in Epping, then Hampton. He's closing his Lyme practice at the end of this month. > When > did you get your amalgams out? The last of them came out in July. I used Groton Dental Wellness Spa. They're nearby and follow IAOMT safety protocols. > I'm not familiar with Andy Cutler..do > you have a link etc on his information? (Selma #2 in US) The frequent dose chelation group is dedicated to discussing his protocols. The adult metal chelation group discusses his, and other protocols. I did a lot of research, followed a lot of people through their chelation, listened to the horror stories associated with some other protocols, and decided this was the safest way to go. There's summary information on Andy's protocol at http://home.earthlink.net/~moriam/Andy_dose_sched.html. But it's best to read his book. It's not an easy read - poorly organized, a challenge if you're brain-fogged. The chelation groups will help. Best of luck, D. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2007 Report Share Posted October 13, 2007 -, Coincidentally , I live in NH.... and saw the news your doctor was closing his practice..... I also got referred to Groton doc from hal huggins referral site for amalgam revmoval. Did the Groton docs do biocompatability testing for filling materials? I've heard Clifford labs is good for that. My dentist is in Nashua and very good and mercury free, but knows nothing about biocompatibility testing. I know I have to go slowly on the amalgam removal since a crown I had done about 4 years ago.. really made me sick for about a month (not the filling removal. but when they cemented the permanent crown on for some reason). It sounds like there are several of us in from New England. (Selma #2) P.S. I would also like to know how late stage lyme you were.. how long you had it .. did you have deep neuro symptoms i.e eyes, movement etc? -- In , vjollca bardhi <vjbardhi@...> wrote: > > HI ! > I used Grotton too for my root canals and metals. > > So you did the chelation on your own ? That is great > > Did you had co-infection and how long did you had Lyme ? > How did you found you had lyme ? What were your worst symptoms ? > > They all are closing the practice in MA and NH as far as I know..to much preassure ..to bad for us Lymies. > > VJ:) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2007 Report Share Posted October 14, 2007 nancy, i'm so happy for you, very encouraging for us all. nancy wrote: In two months, I'll add alpha lipoic acid, and shorten the time between doses to 3 hours or less. I could probably add it now, but I'm trying to be patient and chelate very slowly and safely. fyi, i strongly encourage you to start very, very low on the ala and to reduce if symptoms--hopefully you'll avoid the major mistake i made this fall. i have not yet been able to type up a memo on my health update. but very briefly, i got a lot better on dmsa alone for 3 months. then i added the ala at 25mg and after ONE dose had return of one of severe symptoms that had cleared. but i was not clearheaded enough to stop or reduce dose until 3 rounds later, when all the symptoms that had cleared came back. so i totally stopped the ala and back to just dmsa 25mg. as the mercury group so often says: the major mistake people make is to increase dose too fast and too high. i just did it. trying to rebuild. learning, painfully, slowly, kendra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2007 Report Share Posted October 14, 2007 - Really glad things are good for you now. I am having the remaining 3 teeth (bridge) extracted in the next few weeks. After reading your post I am thinking I should be doing something to mop up toxins, possibly before and after the extractions. I looked at the chelation thread and some of the items are not for people which are sulfa sensitive - which I am. Any thoughts? elle DeMarco wrote: > > > Sorry. The period at the end of the sentence attached itself. > http://home.earthlink.net/~moriam/Andy_dose_sched.html > <http://home.earthlink.net/%7Emoriam/Andy_dose_sched.html> > > > I'm interested in reading what the chelation groups have > > to say. Also, I have mercury fillings and I'm not going to be > getting them > > out anytime soon, so I hope whatever the chelation folks are doing > still fits > > for people who still have their amalgams. > > No. Please do not chelate with amalgams in place. Do not believe > anyone who says it's OK. Many people get damaged that way. > > Andy's book has recommendations for those who still have amalgams - > supplementation to help to minimize the effects of chronic mercury > exposure. There is some supplement information here. Just follow the > links. http://home.earthlink.net/~moriam/ANDY_INDEX.html#supplements > <http://home.earthlink.net/%7Emoriam/ANDY_INDEX.html#supplements> > > Hope this helps. > > D. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2007 Report Share Posted October 14, 2007 Hi, VJ, That's great! Have you seen Dr. Luby? I went to one of his Monday night information thingies, and I was impressed with him. I've had Lyme since, at least, 1988 - diagnosed two years ago. At my worst, I was in horrible pain, was stopping at green lights and kinda checking out, ending up places I had no memory of driving to, and no idea where I was or which way was home, having panic attacks, aural hallucinations, horrible mood swings, anger, constant sweats, electric shock sensations, loss of balance and coordination, exhaustion, insomnia... I suspect Bartonella co-infection, but never did test for it. I'll continue the herbs for at least 18 months - probably will take a low dose forever. That and my hot tub. Today, the chelation is kicking my ass just a bit. I still feel good, but I have a, um, productive cough, and hoarseness, and a bit of muscle weakness. The hot tub nearly wiped me out. Otherwise good, though. I was able to do some demolition this afternoon - took down some fencing and my chicken run with a sledge. Plus shop vac'd water from the basement and carried gallons and gallons of water up the stairs. I'm wiped! I'm staying up for my next dose of DMSA, then crashing. D. vjollca bardhi <vjbardhi@...> wrote: > > HI ! > I used Grotton too for my root canals and metals. > > So you did the chelation on your own ? That is great > > Did you had co-infection and how long did you had Lyme ? > How did you found you had lyme ? What were your worst symptoms ? > > They all are closing the practice in MA and NH as far as I know..to much preassure ..to bad for us Lymies. > > VJ:) > > DeMarco <@...> wrote: > " y093666 " <y093666@> wrote: > > > > -- > > > > It's great to hear of a success story! Can you give me the details on > > your abx treatment? oral or IV? all doxy or also antivirals? > > All oral - doxycycline during the fall/winter, amoxicillin during > spring/summer. I did a stint with zithromax and mepron, but that, and > the amoxicillin, did not help nearly as much as the doxy. > > Was your > > doc .. sam donta by chance? I know he is big on long term doxy. > > No. It was Dr. M in Epping, then Hampton. He's closing his Lyme > practice at the end of this month. > > > When > > did you get your amalgams out? > > The last of them came out in July. I used Groton Dental Wellness Spa. > They're nearby and follow IAOMT safety protocols. > > > I'm not familiar with Andy Cutler..do > > you have a link etc on his information? (Selma #2 in US) > > The frequent dose chelation group is dedicated to discussing his > protocols. The adult metal chelation group discusses his, and other > protocols. I did a lot of research, followed a lot of people through > their chelation, listened to the horror stories associated with some > other protocols, and decided this was the safest way to go. > > There's summary information on Andy's protocol at > http://home.earthlink.net/~moriam/Andy_dose_sched.html. > > But it's best to read his book. It's not an easy read - poorly > organized, a challenge if you're brain-fogged. The chelation groups > will help. > > Best of luck, > > D. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2007 Report Share Posted October 14, 2007 Hi! Yup - kinda late stage - just wrote about it in the last post. And yes - Groton did do biocompatibility testing. I had forgotten about the eyes - lousy vision, practically no night vision, and high pressures - they thought I had glaucoma. That part got better really quickly with doxycycline. D. " y093666 " <y093666@...> wrote: > > -, > Coincidentally , I live in NH.... and saw the news your doctor was > closing his practice..... I also got referred to Groton doc from hal > huggins referral site for amalgam revmoval. Did the Groton docs do > biocompatability testing for filling materials? I've heard Clifford > labs is good for that. My dentist is in Nashua and very good and > mercury free, but knows nothing about biocompatibility testing. I > know I have to go slowly on the amalgam removal since a crown I had > done about 4 years ago.. really made me sick for about a month (not > the filling removal. but when they cemented the permanent crown on for > some reason). It sounds like there are several of us in from New > England. (Selma #2) > P.S. I would also like to know how late stage lyme you were.. how long > you had it .. did you have deep neuro symptoms i.e eyes, movement etc? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2007 Report Share Posted October 14, 2007 I'm sorry, Kendra, You have really had a rough time of it. This 25 mg may be too much for me after all. Day one, Wow! Awesome! Day two, I'm feeling a teeny bit disoriented. I didn't realize it until I went to a meeting this evening, and realized I had trouble understanding what people were saying. At first I just thought my ears were plugged, but it was more of a cognitive thing. And the room seemed to have the contrast setting turned up. Oops. So I'll back off to 12.5 next round. Slow and steady. I was so excited to be able to take a whole capsule instead of splitting them - it's so much easier to take with me. But, not yet. Thank you so much for the warning. I will heed it. D. " kendra " <kendraz@...> wrote: > > nancy, i'm so happy for you, very encouraging for us all. > > nancy wrote: > In two months, I'll add alpha lipoic acid, and shorten the time between > doses to 3 hours or less. I could probably add it now, but I'm trying to be > patient and chelate very slowly and safely. > > fyi, i strongly encourage you to start very, very low on the ala and to > reduce if symptoms--hopefully you'll avoid the major mistake i made this > fall. i have not yet been able to type up a memo on my health update. but > very briefly, i got a lot better on dmsa alone for 3 months. then i added > the ala at 25mg and after ONE dose had return of one of severe symptoms that > had cleared. but i was not clearheaded enough to stop or reduce dose until 3 > rounds later, when all the symptoms that had cleared came back. so i totally > stopped the ala and back to just dmsa 25mg. as the mercury group so often > says: the major mistake people make is to increase dose too fast and too > high. i just did it. trying to rebuild. > > learning, painfully, slowly, > kendra > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2007 Report Share Posted October 14, 2007 Interesting you got your vision better with Doxy. All doxy did for me was make my stomach more painful. The only thing that really helped my vision was and is Devil's Claw. Jim. ### DeMarco <@...> wrote: Hi! Yup - kinda late stage - just wrote about it in the last post. And yes - Groton did do biocompatibility testing. I had forgotten about the eyes - lousy vision, practically no night vision, and high pressures - they thought I had glaucoma. That part got better really quickly with doxycycline. D. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2007 Report Share Posted October 14, 2007 I am glad for you ! Yes I have been to one of the meeting with Dr Luby !Did you started the DMSA on your own or asked for help in the forum.It is kind of dangerous to do that on your own I was told.My levels were vere high.Do you recall which band you have ..Not neuro I guess ,that is the worst and I have that too. Finally you are making it I have too many co-infections....it is going to be long run.I was worst than you ,doing better but a long way to go . VJ:) DeMarco <@...> wrote: Hi, VJ, That's great! Have you seen Dr. Luby? I went to one of his Monday night information thingies, and I was impressed with him. I've had Lyme since, at least, 1988 - diagnosed two years ago. At my worst, I was in horrible pain, was stopping at green lights and kinda checking out, ending up places I had no memory of driving to, and no idea where I was or which way was home, having panic attacks, aural hallucinations, horrible mood swings, anger, constant sweats, electric shock sensations, loss of balance and coordination, exhaustion, insomnia... I suspect Bartonella co-infection, but never did test for it. I'll continue the herbs for at least 18 months - probably will take a low dose forever. That and my hot tub. Today, the chelation is kicking my ass just a bit. I still feel good, but I have a, um, productive cough, and hoarseness, and a bit of muscle weakness. The hot tub nearly wiped me out. Otherwise good, though. I was able to do some demolition this afternoon - took down some fencing and my chicken run with a sledge. Plus shop vac'd water from the basement and carried gallons and gallons of water up the stairs. I'm wiped! I'm staying up for my next dose of DMSA, then crashing. D. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2007 Report Share Posted October 14, 2007 - Hi - I'd like to keep your email since you are in the same region of the country , had similar issues and you are having success. Is your email ponyrubs@...? I've not got to he point of abx yet. Trying a couple of last alternative things (Biogetica)before abx. But I wondered, given the lack of LLMDs in NH (my PCP is wiling to prescribe abx.. but lacks the knowledge), if you could outline the dosage your LLMD used for doxy and amoxicillin? I was thinking about those two as well since they seem the least toxic. Did you have the stomach problems with Doxy that some complain of? Did you have severe herx's ( i work full time from home and tring ot continue to do so) Also , how did you determine to come off of ABX and switch to buhner. Are you using Buhner's core protocol as outline in book? ( iwas on buhner in addition to zhang when my I had huge explosion of CNS issues in July that I am still recovering from). Do you know of any other LLMD's in NH/MA you would trust/recommend? I think some of the dr's on the immunesupport.com recommended site for FMS/CFS are also willing to treat lyme. A friend of mine is working with a naturopath in maine on abx treatment-so far using really heavy hitting/abx and antivirals combined with zhang. 11 months and she says she still has a long way to go. -- In , " DeMarco " <@...> wrote: > > Hi, VJ, > > That's great! Have you seen Dr. Luby? I went to one of his Monday > night information thingies, and I was impressed with him. > > I've had Lyme since, at least, 1988 - diagnosed two years ago. At my > worst, I was in horrible pain, was stopping at green lights and kinda > checking out, ending up places I had no memory of driving to, and no > idea where I was or which way was home, having panic attacks, aural > hallucinations, horrible mood swings, anger, constant sweats, electric > shock sensations, loss of balance and coordination, exhaustion, > insomnia... > > I suspect Bartonella co-infection, but never did test for it. > > I'll continue the herbs for at least 18 months - probably will take a > low dose forever. That and my hot tub. > > Today, the chelation is kicking my ass just a bit. I still feel good, > but I have a, um, productive cough, and hoarseness, and a bit of > muscle weakness. The hot tub nearly wiped me out. Otherwise good, > though. I was able to do some demolition this afternoon - took > down some fencing and my chicken run with a sledge. Plus shop vac'd > water from the basement and carried gallons and gallons of water up > the stairs. I'm wiped! I'm staying up for my next dose of DMSA, then > crashing. > > D. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2007 Report Share Posted October 14, 2007 I can recomend my Dr .She is the one left -2 other LLMD are closing ( preassure in state) .She uses ABX ,and is open to everything and all metods .......very open .....write me at my privat email vjbardhi@... if you want to see her...the longer you had it and the more co-infection the longer the treatment.I had ended up on abx as my neuro CNS was involved since february and I could not avoid the abx no way if I wanted to live , even though I tried Rife ,herbs ,IV blood irradiation ..I guess I was so infected -needed ABX -to stay alive !( HAD NO CHOICE AS I WAS TOO LATE) y093666 <y093666@...> wrote: - Hi - I'd like to keep your email since you are in the same region of the country , had similar issues and you are having success. Is your email ponyrubs@...? I've not got to he point of abx yet. Trying a couple of last alternative things (Biogetica)before abx. But I wondered, given the lack of LLMDs in NH (my PCP is wiling to prescribe abx.. but lacks the knowledge), if you could outline the dosage your LLMD used for doxy and amoxicillin? I was thinking about those two as well since they seem the least toxic. Did you have the stomach problems with Doxy that some complain of? Did you have severe herx's ( i work full time from home and tring ot continue to do so) Also , how did you determine to come off of ABX and switch to buhner. Are you using Buhner's core protocol as outline in book? ( iwas on buhner in addition to zhang when my I had huge explosion of CNS issues in July that I am still recovering from). Do you know of any other LLMD's in NH/MA you would trust/recommend? I think some of the dr's on the immunesupport.com recommended site for FMS/CFS are also willing to treat lyme. A friend of mine is working with a naturopath in maine on abx treatment-so far using really heavy hitting/abx and antivirals combined with zhang. 11 months and she says she still has a long way to go. -- In , " DeMarco " <@...> wrote: > > Hi, VJ, > > That's great! Have you seen Dr. Luby? I went to one of his Monday > night information thingies, and I was impressed with him. > > I've had Lyme since, at least, 1988 - diagnosed two years ago. At my > worst, I was in horrible pain, was stopping at green lights and kinda > checking out, ending up places I had no memory of driving to, and no > idea where I was or which way was home, having panic attacks, aural > hallucinations, horrible mood swings, anger, constant sweats, electric > shock sensations, loss of balance and coordination, exhaustion, > insomnia... > > I suspect Bartonella co-infection, but never did test for it. > > I'll continue the herbs for at least 18 months - probably will take a > low dose forever. That and my hot tub. > > Today, the chelation is kicking my ass just a bit. I still feel good, > but I have a, um, productive cough, and hoarseness, and a bit of > muscle weakness. The hot tub nearly wiped me out. Otherwise good, > though. I was able to do some demolition this afternoon - took > down some fencing and my chicken run with a sledge. Plus shop vac'd > water from the basement and carried gallons and gallons of water up > the stairs. I'm wiped! I'm staying up for my next dose of DMSA, then > crashing. > > D. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2007 Report Share Posted October 14, 2007 I really only have a cursory understanding of this stuff. I'd ask on the adult metal group, or the frequent dose group (although the latter group really prefers you read the book before asking questions). I seem to have acquired a cold (darn), so canceled my clients for tomorrow, and may just have time to look for some information for you if the excavator doesn't have me fetching and carrying for him all day. Kendra might chime in if she's doing well enough. She has studied this way more extensively than I - a wealth of information and grace is she. I'll see what I can find. D. daystar@... wrote: > > - Really glad things are good for you now. > > I am having the remaining 3 teeth (bridge) extracted in the next few weeks. > After reading your post I am thinking I should be doing something to mop up > toxins, possibly before and after the extractions. > > I looked at the chelation thread and some of the items are not for > people which > are sulfa sensitive - which I am. Any thoughts? > > elle > > > > DeMarco wrote: > > > > > > > Sorry. The period at the end of the sentence attached itself. > > http://home.earthlink.net/~moriam/Andy_dose_sched.html > > <http://home.earthlink.net/%7Emoriam/Andy_dose_sched.html> > > > > > I'm interested in reading what the chelation groups have > > > to say. Also, I have mercury fillings and I'm not going to be > > getting them > > > out anytime soon, so I hope whatever the chelation folks are doing > > still fits > > > for people who still have their amalgams. > > > > No. Please do not chelate with amalgams in place. Do not believe > > anyone who says it's OK. Many people get damaged that way. > > > > Andy's book has recommendations for those who still have amalgams - > > supplementation to help to minimize the effects of chronic mercury > > exposure. There is some supplement information here. Just follow the > > links. http://home.earthlink.net/~moriam/ANDY_INDEX.html#supplements > > <http://home.earthlink.net/%7Emoriam/ANDY_INDEX.html#supplements> > > > > Hope this helps. > > > > D. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2007 Report Share Posted October 14, 2007 My guess is that there was inflammation from Lyme and Bartonella, and the doxy suppressed them enough so my eyes could heal. I don't think the doxy had a direct effect, but who knows? I was fine on the doxy/stomach thing for a long time. But at about 18 months, I started throwing it up and had to quit. I was planning to go a bit longer, but I guess it was time. D. " R. Bayliss " <jbbigrod@...> wrote: > > Interesting you got your vision better with Doxy. All doxy did for me was make my stomach more painful. The only thing that really helped my vision was and is Devil's Claw. > > Jim. > ### > > > DeMarco <@...> wrote: > Hi! > > Yup - kinda late stage - just wrote about it in the last post. And > yes - Groton did do biocompatibility testing. > > I had forgotten about the eyes - lousy vision, practically no night > vision, and high pressures - they thought I had glaucoma. That part > got better really quickly with doxycycline. > > D. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2007 Report Share Posted October 14, 2007 Hi, VJ, Didja love Dr. Luby? Yes, I am doing the chelation on my own, with help from the forum - saving money and doing a very slow and steady regimen. I plan to see Dr. Luby before I add ALA. That part scares me a bit. I have managed to get labs done at the end of a round, to see how my liver and kidneys are handling it all. So far, so good. I'm trying to remember which bands... I'll have to look for that western blot. One of the positive bands was one of the Lyme-specific ones not used in the CDC version - then lots of indeterminates. That's all I remember. D. vjollca bardhi <vjbardhi@...> wrote: > > I am glad for you ! > Yes I have been to one of the meeting with Dr Luby !Did you started the DMSA on your own or asked for help in the forum.It is kind of dangerous to do that on your own I was told.My levels were vere high.Do you recall which band you have .Not neuro I guess ,that is the worst and I have that too. > > Finally you are making it > I have too many co-infections....it is going to be long run.I was worst than you ,doing better but a long way to go . > > VJ:) > DeMarco <@...> wrote: > Hi, VJ, > > That's great! Have you seen Dr. Luby? I went to one of his Monday > night information thingies, and I was impressed with him. > > I've had Lyme since, at least, 1988 - diagnosed two years ago. At my > worst, I was in horrible pain, was stopping at green lights and kinda > checking out, ending up places I had no memory of driving to, and no > idea where I was or which way was home, having panic attacks, aural > hallucinations, horrible mood swings, anger, constant sweats, electric > shock sensations, loss of balance and coordination, exhaustion, > insomnia... > > I suspect Bartonella co-infection, but never did test for it. > > I'll continue the herbs for at least 18 months - probably will take a > low dose forever. That and my hot tub. > > Today, the chelation is kicking my ass just a bit. I still feel good, > but I have a, um, productive cough, and hoarseness, and a bit of > muscle weakness. The hot tub nearly wiped me out. Otherwise good, > though. I was able to do some demolition this afternoon - took > down some fencing and my chicken run with a sledge. Plus shop vac'd > water from the basement and carried gallons and gallons of water up > the stairs. I'm wiped! I'm staying up for my next dose of DMSA, then > crashing. > > D. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2007 Report Share Posted October 14, 2007 Feel free to keep (and use) my email. Some days I have lots of time to respond. Then weeks go by when I'm a nut case, or our connection is down (we're in the boonies). I can't tell whether the email you posted is correct - probably, but it's munged by . It is ponyrubs at dot com. The doxy was 200 mg AM and PM. I was very careful to take them 12 hours apart. Then Theralac 2 to 3 hours after each dose. Lots of cheeses, but not too soon after the abx. Lots of supplements - I'll have to look them up. Amoxicillin - I think was 3 grams a day? But I'm not sure. I'll have to look that up in my notes (buried in the dead laptop). I think there is a hard copy somewhere. I never had severe herxes. I did have things worsen, but was never sure which was due to abx itself, and which to die-off. So I just trudged on. I had very few days when I could not get out of bed and do *something* productive, and those days were when I tried to combine abx and cat's claw. No problems with abx stomach issues at first, but over time, yes. You have to be really, really good about taking good probiotics and avoiding starches and sugars. I was using Buhner's CP, but could not take andrographis, so stuck with cat's claw, sarsaparilla and knotweed, bulk, mixed into yogurt and eaten (blech). I also used red root and boneset teas. I tried stephania - could not tolerate it. Tried artemisinin - really bad reaction. Same with whole herb, artemisia annua. I could not do Buhner plus abx - my liver rebelled. Can I ask what you were taking with Zhang when you crashed? I keep hearing horror stories on the chelation groups. It has led me to believe that he is very good in some areas, but potentially dangerous in chelation. Just my current sense, subject to change. D. " y093666 " <y093666@...> wrote: > > - > Hi - > > I'd like to keep your email since you are in the same region of the > country , had similar issues and you are having success. Is your email > ponyrubs@...? > > I've not got to he point of abx yet. Trying a couple of last > alternative things (Biogetica)before abx. But I wondered, given the > lack of LLMDs in NH (my PCP is wiling to prescribe abx.. but lacks the > knowledge), if you could outline the dosage your LLMD used for doxy > and amoxicillin? I was thinking about those two as well since they > seem the least toxic. Did you have the stomach problems with Doxy that > some complain of? Did you have severe herx's ( i work full time from > home and tring ot continue to do so) Also , how did you determine to > come off of ABX and switch to buhner. Are you using Buhner's core > protocol as outline in book? ( iwas on buhner in addition to zhang > when my I had huge explosion of CNS issues in July that I am still > recovering from). Do you know of any other LLMD's in NH/MA you would > trust/recommend? I think some of the dr's on the immunesupport.com > recommended site for FMS/CFS are also willing to treat lyme. A friend > of mine is working with a naturopath in maine on abx treatment-so far > using really heavy hitting/abx and antivirals combined with zhang. 11 > months and she says she still has a long way to go. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2007 Report Share Posted October 14, 2007 Let me know please when you see him and the costs...I have too much on my plate and my Dr does not want me to use DMSA or DMSP right now as she does nto want to incourage the yeast b/c of so many abx I am taking.My bart ,babs and -neuro lyme are very active.My Ehrlichia is gone finally .( we use muscle testing as all the test come negative-except igenex) .But she fights the co-infections and she finds them still there.I hate Bart ,I think this is the worst....I am treating it as this makes neuro stuff worst.. Let me know how you do with Dr LUBY! I went with my husband there when he had this evenigns meetings about mercury( actually I had read the andrew cutlers book and already knew the stuff ) ...I am done with metals in my mouth -since january of this year.Dr E . did a great job . Also which blood works he need before he decides to move you to ala.I know it is scary .I have been there when I did mop up program from HULDA CLARCK before I self diagnose myslef that I had lyme ( never knew about it in my life as I came from europe 8 years ago ) ...went through the detox with l-cystine--thought as almost lost my mind .My left kidney was shutt down and my Dig track as I had no idea that I was killing lyme and they released metals.Somebody from that office recomended me to a DR in Quincy that helped me survive and clear my body from the die off -changing and switching all the detox and herbs to support my body to survive..when Lyme came back with a vantage in a months b/c of Babs and other co-infections ...4 times stronger -nightmare ;( while my pcp send me home -saying I have permanent damage and it was too late for him to do anything to help .He denied lyme and said that tremors and kidneys and everything -loss of balance was from mercury in my mouth.But I knew better.( he found I was doing alternatives -which he hated ) and I left his office and never went back to him ! DeMarco <@...> wrote: Hi, VJ, Didja love Dr. Luby? Yes, I am doing the chelation on my own, with help from the forum - saving money and doing a very slow and steady regimen. I plan to see Dr. Luby before I add ALA. That part scares me a bit. I have managed to get labs done at the end of a round, to see how my liver and kidneys are handling it all. So far, so good. I'm trying to remember which bands... I'll have to look for that western blot. One of the positive bands was one of the Lyme-specific ones not used in the CDC version - then lots of indeterminates. That's all I remember. D. vjollca bardhi <vjbardhi@...> wrote: > > I am glad for you ! > Yes I have been to one of the meeting with Dr Luby !Did you started the DMSA on your own or asked for help in the forum.It is kind of dangerous to do that on your own I was told.My levels were vere high.Do you recall which band you have .Not neuro I guess ,that is the worst and I have that too. > > Finally you are making it > I have too many co-infections....it is going to be long run.I was worst than you ,doing better but a long way to go . > > VJ:) > DeMarco <@...> wrote: > Hi, VJ, > > That's great! Have you seen Dr. Luby? I went to one of his Monday > night information thingies, and I was impressed with him. > > I've had Lyme since, at least, 1988 - diagnosed two years ago. At my > worst, I was in horrible pain, was stopping at green lights and kinda > checking out, ending up places I had no memory of driving to, and no > idea where I was or which way was home, having panic attacks, aural > hallucinations, horrible mood swings, anger, constant sweats, electric > shock sensations, loss of balance and coordination, exhaustion, > insomnia... > > I suspect Bartonella co-infection, but never did test for it. > > I'll continue the herbs for at least 18 months - probably will take a > low dose forever. That and my hot tub. > > Today, the chelation is kicking my ass just a bit. I still feel good, > but I have a, um, productive cough, and hoarseness, and a bit of > muscle weakness. The hot tub nearly wiped me out. Otherwise good, > though. I was able to do some demolition this afternoon - took > down some fencing and my chicken run with a sledge. Plus shop vac'd > water from the basement and carried gallons and gallons of water up > the stairs. I'm wiped! I'm staying up for my next dose of DMSA, then > crashing. > > D. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2007 Report Share Posted October 14, 2007 I have the same exsperience.My eyes got better ..I use Doxy ,but I deciced to take it 400mg all together ...and yes I think bart and lyme make is worst..my sugestion ....I did not split the dosage as my Dr said as I use Rifampin that interacts with Doxy ..at 400 mg one time a day ...I have a perfec vision now ( Docy in high level reaches the blood barriers) -through my glasess that I was put on 4 years ago for nearsighted ..Now I know that I was infected 5 years ago ( can not ignore that I had 1st infection 1988 as NANCY and was assymptomatic ) .. I have used buhners at the same time, and stephania root....decoction also...cat`s claw and all the otehrs stuff also . DeMarco <@...> wrote: My guess is that there was inflammation from Lyme and Bartonella, and the doxy suppressed them enough so my eyes could heal. I don't think the doxy had a direct effect, but who knows? I was fine on the doxy/stomach thing for a long time. But at about 18 months, I started throwing it up and had to quit. I was planning to go a bit longer, but I guess it was time. D. " R. Bayliss " <jbbigrod@...> wrote: > > Interesting you got your vision better with Doxy. All doxy did for me was make my stomach more painful. The only thing that really helped my vision was and is Devil's Claw. > > Jim. > ### > > > DeMarco <@...> wrote: > Hi! > > Yup - kinda late stage - just wrote about it in the last post. And > yes - Groton did do biocompatibility testing. > > I had forgotten about the eyes - lousy vision, practically no night > vision, and high pressures - they thought I had glaucoma. That part > got better really quickly with doxycycline. > > D. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2007 Report Share Posted October 15, 2007 Boy, I guess that was time. I had all I could do to take it for one month. Jim. ### DeMarco <@...> wrote: My guess is that there was inflammation from Lyme and Bartonella, and the doxy suppressed them enough so my eyes could heal. I don't think the doxy had a direct effect, but who knows? I was fine on the doxy/stomach thing for a long time. But at about 18 months, I started throwing it up and had to quit. I was planning to go a bit longer, but I guess it was time. D. " R. Bayliss " <jbbigrod@...> wrote: > > Interesting you got your vision better with Doxy. All doxy did for me was make my stomach more painful. The only thing that really helped my vision was and is Devil's Claw. > > Jim. > ### > > > DeMarco <@...> wrote: > Hi! > > Yup - kinda late stage - just wrote about it in the last post. And > yes - Groton did do biocompatibility testing. > > I had forgotten about the eyes - lousy vision, practically no night > vision, and high pressures - they thought I had glaucoma. That part > got better really quickly with doxycycline. > > D. > --------------------------------- Fussy? Opinionated? Impossible to please? Perfect. Join 's user panel and lay it on us. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2007 Report Share Posted October 15, 2007 - I started zhang in December 2006 ( after a couple of months of garlic/oregano oil etc on my own). I started with the babesia treatment which included zhang artmesia the first 3 months.. than you switch out that for HH (some chinese herb that kills lyme) after that while you take the other stuff (allicin, cirulcation herbs, autoimmune herbs if you have eye symptoms/AI stuff). I didn't have a problem until summer. I started Buhner cat's claw in May (had a herx reaction).. then added reserveratrol/sarsarpillain June and then andrographis/chlorella on July 1. I also continued the zhang. I notices at the summer progressed start i june more neuro symptoms.. foot drag occasionally when I walked, eyes hurt more, eyes watered more, lightheaded all the time (previously the lightheaded would come and go). Then in july. .thumb twitching.. more lightheaded..all hell broke loose mid july when I lost balance, depth perception, muscles jerking, muscle twitching, insominia. intense brain fog to the point of nausea. I don't think it was zhang.. so it was either the buhner/too much for my body or the fact that it was summer which I think could point to autoimmune. My optic neuritis/neuropathy was diagnosed the previous July which points to the summer connection. Previous to that with my FMS diagnosis, my good time was the summer and I loved the heat! Long story short, I don't think it was the zhang stuff. I was disappointed that after 8 months on zhang I could have the worst set of symptoms I've ever had. I would have thought if it was working, it would have been sooner in the cycle. Even zhang himself said to stop his herbs and get consultation for MS(negative thank god) or abx. > > > > - > > Hi - > > > > I'd like to keep your email since you are in the same region of the > > country , had similar issues and you are having success. Is your email > > ponyrubs@? > > > > I've not got to he point of abx yet. Trying a couple of last > > alternative things (Biogetica)before abx. But I wondered, given the > > lack of LLMDs in NH (my PCP is wiling to prescribe abx.. but lacks the > > knowledge), if you could outline the dosage your LLMD used for doxy > > and amoxicillin? I was thinking about those two as well since they > > seem the least toxic. Did you have the stomach problems with Doxy that > > some complain of? Did you have severe herx's ( i work full time from > > home and tring ot continue to do so) Also , how did you determine to > > come off of ABX and switch to buhner. Are you using Buhner's core > > protocol as outline in book? ( iwas on buhner in addition to zhang > > when my I had huge explosion of CNS issues in July that I am still > > recovering from). Do you know of any other LLMD's in NH/MA you would > > trust/recommend? I think some of the dr's on the immunesupport.com > > recommended site for FMS/CFS are also willing to treat lyme. A friend > > of mine is working with a naturopath in maine on abx treatment-so far > > using really heavy hitting/abx and antivirals combined with zhang. 11 > > months and she says she still has a long way to go. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2007 Report Share Posted October 15, 2007 Vjolla/Vjbardhi- I sent an email to vjbardhi at dot comm and it was rejected.. can you tell me email id in words? edits it out.. i want to get details for your doctor. thx. > > > > Hi, VJ, > > > > That's great! Have you seen Dr. Luby? I went to one of his Monday > > night information thingies, and I was impressed with him. > > > > I've had Lyme since, at least, 1988 - diagnosed two years ago. At my > > worst, I was in horrible pain, was stopping at green lights and kinda > > checking out, ending up places I had no memory of driving to, and no > > idea where I was or which way was home, having panic attacks, aural > > hallucinations, horrible mood swings, anger, constant sweats, electric > > shock sensations, loss of balance and coordination, exhaustion, > > insomnia... > > > > I suspect Bartonella co-infection, but never did test for it. > > > > I'll continue the herbs for at least 18 months - probably will take a > > low dose forever. That and my hot tub. > > > > Today, the chelation is kicking my ass just a bit. I still feel good, > > but I have a, um, productive cough, and hoarseness, and a bit of > > muscle weakness. The hot tub nearly wiped me out. Otherwise good, > > though. I was able to do some demolition this afternoon - took > > down some fencing and my chicken run with a sledge. Plus shop vac'd > > water from the basement and carried gallons and gallons of water up > > the stairs. I'm wiped! I'm staying up for my next dose of DMSA, then > > crashing. > > > > D. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2007 Report Share Posted October 16, 2007 my email is vjbardhi@... y093666 <y093666@...> wrote: Vjolla/Vjbardhi- I sent an email to vjbardhi at dot comm and it was rejected.. can you tell me email id in words? edits it out.. i want to get details for your doctor. thx. > > > > Hi, VJ, > > > > That's great! Have you seen Dr. Luby? I went to one of his Monday > > night information thingies, and I was impressed with him. > > > > I've had Lyme since, at least, 1988 - diagnosed two years ago. At my > > worst, I was in horrible pain, was stopping at green lights and kinda > > checking out, ending up places I had no memory of driving to, and no > > idea where I was or which way was home, having panic attacks, aural > > hallucinations, horrible mood swings, anger, constant sweats, electric > > shock sensations, loss of balance and coordination, exhaustion, > > insomnia... > > > > I suspect Bartonella co-infection, but never did test for it. > > > > I'll continue the herbs for at least 18 months - probably will take a > > low dose forever. That and my hot tub. > > > > Today, the chelation is kicking my ass just a bit. I still feel good, > > but I have a, um, productive cough, and hoarseness, and a bit of > > muscle weakness. The hot tub nearly wiped me out. Otherwise good, > > though. I was able to do some demolition this afternoon - took > > down some fencing and my chicken run with a sledge. Plus shop vac'd > > water from the basement and carried gallons and gallons of water up > > the stairs. I'm wiped! I'm staying up for my next dose of DMSA, then > > crashing. > > > > D. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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