bad situation

[Guest guest]

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> Wow, your situation is really bad. Talk about being stuck between a rock and a

hard place....so I guess I shouldn't push to have LD recognized here cuz it

obviously isn't any help at all, just more reason to kick us to the curb!!

the situation is bad almost everywhere. Almost all developed countries base

their guidelines on the US IDSA garbage. The scientists that advise our CDC etc.

work very closely with Wormser, Steere, Klempner etc. so what can you expect ...

Only in some countries that are said to have a bit outdated medical systems

(like former Eastern Block countries) they take LD more serious. I also see some

good research starting now from countries like Brazil (they have 'LD-like

disease'). Of course our own medical systems are the ones living in medieval

times, when it comes to LD ...

The Dutch Lyme patients organisation managed to get a petition to Parliament,

asking their attention to the problem and trying to change things. The petition

got delayed for a few months because of premature elections and now the waiting

for a new government.

I don't have high hopes for what comes out, because we have a strong IDSA-style

lobby here just as well. But apparently our version of the CDC and some

politicians are getting worried by now, because of all the noise in the press

and complaints from patients. They 'need to do something' and maybe we can use

the momentum to make some changes, like pushing for a bit better guidelines, an

LD expertise centre or pushing scientific research in the right direction.