Re: cowden 70% effective

[Guest guest]

The more I read one can't help but become discouraged with the long term

prognosis of treating Lymes and Bartonella. It sounds like it's a life long

battle and no one ever really cures it. I'm trying to listen to the optimistic

side of my brain and be patient with results and believe that we will all cure

this. It gets so frustrating at times. Is there anyone on this board that can

share a full success story with the Bruhner Protocol?

Cassano

VT PBiS Coach

802-236-6637

snowgirlvt@...

PRIVACY &

[Guest guest]

Knotweed,

Have you been studying Byron White protocols?

Jazzman

[ ] cowden 70% effective

>

P.S. regarding the Cowden protocol being 70% effective: I think this is similar

to what Buhner says for his protocol, and probably to what many ILADs docs state

for their ABX protocols. You often hear that about 25% has a total cure or

nearly full recovery, 50% or so has significant improvement and maybe 25% has no

improvement or continues to get worse.

Even some very alternative protocols (where IMHO it is very unlikely that they

could do anything against Borrelia) make such claims. Of course, some protocols

claim even 100% recovery but I won't comment furter on those here

This suggests to me that none of the protocols may be very effective (in

general, they could still be effective for individual cases). If you don't do

anything and wait long enough, maybe you get similar percentages of 'cured',

'improved' or 'no benefit'. We don't know, because almost every patient tries

something...

Maybe the group that sees full recovery were less ill, or had a less persistent

Bb strain. Maybe the group that sees no benefit has multiple infections or an

extra-naughty Bb strain, or an additional medical problem. We simply don't know

and unfortunately, the same goes for almost all the research on treating LD with

ABX

[Guest guest]

My observation: we're all different. The treatment(s) that work for us, work

for us. If they're good enough, they are our own successful treatments. That's

what each of us have to find. Some find it with IV rocephin, some with oxygen

dives, some with stem cell injections. Etc. Me, I'm doing well on clindamycin

abx right now. Plus mangosteen juice for my eyes, noni juice and grapeseed

extract to successfully stop lipoma tumors - yes, we're rather interesting

frontline medical experiments here. - Robin

Re: [ ] cowden 70% effective

Knotweed,

Have you been studying Byron White protocols?

Jazzman

[ ] cowden 70% effective

>

P.S. regarding the Cowden protocol being 70% effective: I think this is similar

to what Buhner says for his protocol, and probably to what many ILADs docs state

for their ABX protocols. You often hear that about 25% has a total cure or

nearly full recovery, 50% or so has significant improvement and maybe 25% has no

improvement or continues to get worse.

Even some very alternative protocols (where IMHO it is very unlikely that they

could do anything against Borrelia) make such claims. Of course, some protocols

claim even 100% recovery but I won't comment furter on those here

This suggests to me that none of the protocols may be very effective (in

general, they could still be effective for individual cases). If you don't do

anything and wait long enough, maybe you get similar percentages of 'cured',

'improved' or 'no benefit'. We don't know, because almost every patient tries

something...

Maybe the group that sees full recovery were less ill, or had a less persistent

Bb strain. Maybe the group that sees no benefit has multiple infections or an

extra-naughty Bb strain, or an additional medical problem. We simply don't know

and unfortunately, the same goes for almost all the research on treating LD with

ABX

[Guest guest]

On Mon, Nov 22, 2010 at 1:03 PM, knot_weed <tek0nik@...> wrote:

>

>

>

>

>

> >

>

> P.S. regarding the Cowden protocol being 70% effective: I think this is

> similar to what Buhner says for his protocol, and probably to what many

> ILADs docs state for their ABX protocols. You often hear that about 25% has

> a total cure or nearly full recovery, 50% or so has significant improvement

> and maybe 25% has no improvement or continues to get worse.

>

> Even some very alternative protocols (where IMHO it is very unlikely that

> they could do anything against Borrelia) make such claims. Of course, some

> protocols claim even 100% recovery but I won't comment furter on those here

>

>

> This suggests to me that none of the protocols may be very effective (in

> general, they could still be effective for individual cases). If you don't

> do anything and wait long enough, maybe you get similar percentages of

> 'cured', 'improved' or 'no benefit'. i would have to highly disagree with

> this statement considering most lyme patients decline and in my case almost

> deteriorate while waiting just for a diagnoses which for some can and has

> taken years and they do not get better by doing nothing but get worse. We

> don't know, because almost every patient tries something...

>

> Maybe the group that sees full recovery were less ill, or had a less

> persistent Bb strain. Maybe the group that sees no benefit has multiple

> infections or an extra-naughty Bb strain, or an additional medical problem.

> We simply don't know and unfortunately, the same goes for almost all the

> research on treating LD with ABX

>

>

>

[Guest guest]

I was on the Cowden Modified Protocol (alternating samento and cumanda and put

some banderol in at the end), for 8 months. It was the treatment that made my

lyme go into remission.

Before the CP, I had an IV port put into my arm that emptied into my top heart

valve. I pumped 2 grams of rocephin through this port for 28 days and 3 weeks

after the treatment was over, the lyme arthritis and fever returned. This

" treatment " also cost $19,000.00, while the CP was very reasonably priced.

After only 3 weeks on the Cowden Modified Protocol, all my bones including my

heel bones stopped hurting. I began to feel alive again, run and wear

fashionable shoes.

May all of you find a treatment that works for you. Take

care,

[Guest guest]

>

> Knotweed,

>

> Have you been studying Byron White protocols?

no, never heard of it.

[Guest guest]

>

>

> My observation: we're all different. The treatment(s) that work for us, work

for us. If they're good enough, they are our own successful treatments. That's

what each of us have to find. Some find it with IV rocephin, some with oxygen

dives, some with stem cell injections. Etc. Me, I'm doing well on clindamycin

abx right now. Plus mangosteen juice for my eyes, noni juice and grapeseed

extract to successfully stop lipoma tumors - yes, we're rather interesting

frontline medical experiments here. - Robin

I agree when it comes to Lyme, but this is pretty contrary to normal (western)

medical thought, and suggests that we don't understand the disease, or that LD

is not a normal disease but instead a collection of many somewhat similar

disease processes.

Finding what works for you is impractical and expensive, many lymies have to go

through countless treatments before they find something that works.

An additional problem is that there is a time windows of maybe 6-24 months after

infection where you still have good chances to get rid of the disease

completely. It would be very helpful if people could start the treatment that

suits them within this period ...

[Guest guest]

Knotweed - of course it's contrary to normal Western medical thought that

segments everything into body parts, with medical tests for each. We are a

zebra, not the horse! So it involves a paradigm shift in thinking for the

medical field, and we unfortunately happen to be ahead of them at this point,

altho I don't see why they couldn't be following the medical research that's

going on now with all the bugs to see how they work and could be treated -

that's very scientific ongoing work. when you say it suggests we don't

understand the disease, well, no one does exactly - they're still finding out

how all the bugs work, their various strains, etc. They've just gotten the

complete DNA for 13 Lyme strains, I think.

Finding treatments - I didn't know I had Lyme for 25 years - what do you think

all us fibros were doing? Throwing treatments at ourselves to see if anything

would help. I can report that flower pollen really picked up my energy and

mental clarity. Malic acid and mg picked up my energy. Certain pain alleviation

tools helped. So when I found out what I had, it was no big deal to me when I

heard we'd just have to see what works. Albeit with some bloodwork - that can be

done to see our blood chemistries, like how low we are in Vit D, or how well we

genetically detox.

Exactly re the window of time to treat. We have one doctor here whose office is

offering to get newly bit people in for a low fee to get them on prophylactic

antibiotics. One of the stumbling blocks has been the doctor fees, and alot of

new people don't have the money to go or take a wait and see attitude because of

the expense. This doctor may be the only one I've heard of so far to offer this.

I wish they all would, so we could stop the immediate Lyme infections. Not sure

what they're doing about coinfections. Would be nice if they're stopping those

too right away.

We are this unique universe and we have to find our way through it, learn about

it, educate about it, advocate about it. - Robin

[ ] Re: cowden 70% effective

>

>

> My observation: we're all different. The treatment(s) that work for us, work

for us. If they're good enough, they are our own successful treatments. That's

what each of us have to find. Some find it with IV rocephin, some with oxygen

dives, some with stem cell injections. Etc. Me, I'm doing well on clindamycin

abx right now. Plus mangosteen juice for my eyes, noni juice and grapeseed

extract to successfully stop lipoma tumors - yes, we're rather interesting

frontline medical experiments here. - Robin

I agree when it comes to Lyme, but this is pretty contrary to normal (western)

medical thought, and suggests that we don't understand the disease, or that LD

is not a normal disease but instead a collection of many somewhat similar

disease processes.

Finding what works for you is impractical and expensive, many lymies have to go

through countless treatments before they find something that works.

An additional problem is that there is a time windows of maybe 6-24 months after

infection where you still have good chances to get rid of the disease

completely. It would be very helpful if people could start the treatment that

suits them within this period ...

[Guest guest]

>

> So it involves a paradigm shift in thinking for the medical field, and we

unfortunately happen to be ahead of them at this point, altho I don't see why

they couldn't be following the medical research that's going on now with all the

bugs to see how they work and could be treated - that's very scientific ongoing

work. when you say it suggests we don't understand the disease, well, no one

does exactly - they're still finding out how all the bugs work, their various

strains, etc. They've just gotten the complete DNA for 13 Lyme strains, I think.

Yes, I think we need a paradigm shift here. I don't think LD research will get

much further with just Borrelia genetics or biochemistry (just like knowing your

own genetic code will tell you very little about your personal health). IMHO

Borrelia genetics is just one part of the big puzzle.

Maybe quorum sensing is going to bring new concepts of disease and treatment,

but for now it is a new universe where we now very little.

But it's interesting for me to see that some of the Buhner herbs seem to rely on

quorum sensing for their medical benefit.

[Guest guest]

To all my Lymies Friends,

It is a combination protocol. I use Buhner protocol with Dr Burascano and after

9 months of treatment i started feeling better but not until I started detox

with Welcholl and Cholastarmine. I switch every two hours before I take Buhner

Protocol from antibiotics. But what really help me the most is after my detox, I

started treatment for my Neuro with Neurofeedback. Im looking forward to return

to work not 100% but functional. I have Neuroborroloisis and Bartonella.

I follow Dr Buhners protocol religiously alternating Dr Burascano and

antibiotics. It really depends to your system.

________________________________

From: Blanchard <snowgirlvt@...>

Sent: Mon, November 22, 2010 4:19:44 PM

Subject: Re: [ ] cowden 70% effective

The more I read one can't help but become discouraged with the long term

prognosis of treating Lymes and Bartonella. It sounds like it's a life long

battle and no one ever really cures it. I'm trying to listen to the optimistic

side of my brain and be patient with results and believe that we will all cure

this. It gets so frustrating at times. Is there anyone on this board that can

share a full success story with the Bruhner Protocol?

Cassano

VT PBiS Coach

802-236-6637

snowgirlvt@...

PRIVACY &