Re: Re: 15yo son-no antibiotics but on Protocol for 5 weeks need advice/encouragement?

[Guest guest]

" Another note: if the tick was NOT engorged I think it is unlikely that your son

got Borrelia infection from this one, because it requires the tick to be

engorged for a least 15 minutes or so (and even after 8-12 hours engorgement the

risk of getting Lyme is still relatively low). Some coinfections can be

transferred quickly though, and maybe he was infected through another byt that

wasn't noticed. "

I just want to say that this was not the case with us. My daughter's tick was

attached for less than 4 hours and was not engorged, yet here we are........The

tick does not need to be engorged nor attached for a certain amount of time

prior to exposure. At the most recent ILADs conference, one of the presenters

(maybe Horowitz, can't remember) stated that some ticks can transmit a

particular Lyme strain within as little as 15 minutes of attachment--pretty

scary!--and definitely true in our case, unfortunately!

Mira

[Guest guest]

PLEASE, PLEASE see a LYME LITERATE DOCTOR IMMEDIATELY. they will give the

correct dosage which is usually HIGHER and for a LONGER DURATION and test

for COINFECTIONS. all the alternative books i have read do not dispute the

effectiveness of ANTIBIOTICS IN EARLY TREATMENT. this is IMPERATIVE. I see

a naturopathic lyme specialist and i am totally alternative thinking but

this is not something to mess with. antibiotics DO HAVE A PLACE in medicine,

health, and healing and LYME IS THAT PLACE IN THIS SITUATION. i just hope

you are not to late.

best wishes,

danielle

On Fri, Oct 22, 2010 at 12:26 PM, skrobison@... <

shannontex6@...> wrote:

>

>

> After speaking to our doctor today on the phone (we see an alternative

> doctor who is an MD) and explaining what has been going on, he said he wants

> our son to go on 30 days of Doxycycline 100 mg (I will know how many times a

> day when I pick it up in a little while) alongside the Buhner Protocol. At

> the end of the 30 days I am to call again. At that time, we will discuss

> retesting him through IGeneX.

>

> Oh and someone asked about the tick being engorged? Apparently (according

> to all of the other members of our family who saw it) it " was " engorged. I

> guess I was wrong. & thank you everyone for your feedback thus far.

>

>

>

[Guest guest]

Dose amount usually depends on weight - about how much does your son weigh?

[ ] Re: 15yo son-no antibiotics but on Protocol for 5

weeks need advice/encouragement?

After speaking to our doctor today on the phone (we see an alternative doctor

who is an MD) and explaining what has been going on, he said he wants our son to

go on 30 days of Doxycycline 100 mg (I will know how many times a day when I

pick it up in a little while) alongside the Buhner Protocol. At the end of the

30 days I am to call again. At that time, we will discuss retesting him through

IGeneX.

Oh and someone asked about the tick being engorged? Apparently (according to all

of the other members of our family who saw it) it " was " engorged. I guess I was

wrong. & thank you everyone for your feedback thus far.

[Guest guest]

,

all i am saying is that he might be going by guidelines that are not what a

lyme specialist would go by. if this is not his specialty i am almost sure

of this. there is a set of guidelines you can google and print out to get an

idea, they should address the dosage for early infection as opposed to late

infection, if there is a difference. it is called dr. burrascano's

guidelines. maybe that will help. if not you could try calling or having

your dr. call a lyme literate dr. to see what their recommendation would be.

you can email me privately if you want referral names i can get out my

insights into lyme disease book that has interviews with dr.'s here and in

europe.

best wishes,

danielle

On Sat, Oct 23, 2010 at 5:09 AM, skrobison@... <

shannontex6@...> wrote:

>

>

> le,

>

> Are you saying that you do not agree with what our doctor prescribed? On a

> Friday afternoon, I was so pleased to actually 'talk' to our doctor

> personally on the phone and get the antibiotics called in and started last

> night. Thank you for your guidance.

>

>

>

> >

> > PLEASE, PLEASE see a LYME LITERATE DOCTOR IMMEDIATELY. they will give the

> > correct dosage which is usually HIGHER and for a LONGER DURATION and test

> > for COINFECTIONS. all the alternative books i have read do not dispute

> the

> > effectiveness of ANTIBIOTICS IN EARLY TREATMENT. this is IMPERATIVE. I

> see

> > a naturopathic lyme specialist and i am totally alternative thinking but

> > this is not something to mess with. antibiotics DO HAVE A PLACE in

> medicine,

> > health, and healing and LYME IS THAT PLACE IN THIS SITUATION. i just hope

> > you are not to late.

> > best wishes,

> > danielle

>

>

>

[Guest guest]

Great to hear that! Note that Dr Burascono (speeling?) guidelines recommends

six week after the appearance the last symptom for early treatment of Acute

Lyme. See www.ilads.org for more info.

www.lyme-resource.com

You can lead a person to a fact, but you can't make them think! -

[ ] Re: 15yo son-no antibiotics but on Protocol for 5

weeks need advice/encouragement?

After speaking to our doctor today on the phone (we see an alternative

doctor who is an MD) and explaining what has been going on, he said he wants

our son to go on 30 days of Doxycycline 100 mg (I will know how many times

a day when I pick it up in a little while) alongside the Buhner Protocol.

At the end of the 30 days I am to call again. At that time, we will discuss

retesting him through IGeneX.

Oh and someone asked about the tick being engorged? Apparently (according to

all of the other members of our family who saw it) it " was " engorged. I

guess I was wrong. & thank you everyone for your feedback thus far.

------------------------------------

Buy Healing Lyme: Natural Healing And Prevention of Lyme Borreliosis And Its

Coinfections by Buhner at one of these locations:

http://tinyurl.com/3bgm5d

[Guest guest]

That's part of anti-inflammatory diet and is also just plain good all around

anyways. I am glad he is willing to do that.

[ ] Re: 15yo son-no antibiotics but on Protocol for 5

weeks need advice/encouragement?

Thank you Jeff for you thoughts.

Funny you should mention this. I eat a gluten-free, dairy-free, sugar free

diet. I told my son yesterday that for at least the next 30 days he needed

to eat what I eat (or like I do) and give his body the best shot at healing.

He is agreeable and feels best on a gluten-free diet. Thanks again!

>

> 1. Diet is absolutely key in controlling/minimizing symptoms. This

is

> your second most powerful tool. He should avoid sugar for certain,

> and probably gluten and casein (milk protein). He may become

> sensitive to other foods, which you will discover by trial and error.

> Do not underestimate the power of diet: you may find that eliminating

> certain foods will make a huge difference in how he feels. I hope it

does!

>

------------------------------------

Buy Healing Lyme: Natural Healing And Prevention of Lyme Borreliosis And Its

Coinfections by Buhner at one of these locations:

http://tinyurl.com/3bgm5d

[Guest guest]

To clarify: I meant that the antibiotics should continue for at least 6

weeks past the last appearance of any symptoms. This is no guarantee this

won't stop it from going from acute (curable) to chronic (incurable). But

it's a good step in the right direction.

ph Burrascano's guidelines

(http://www.turnthecorner.org/LYMDXRX_2008-October.pdf)

[ ] Re: 15yo son-no antibiotics but on Protocol for 5

weeks need advice/encouragement?

After speaking to our doctor today on the phone (we see an alternative

doctor who is an MD) and explaining what has been going on, he said he wants

our son to go on 30 days of Doxycycline 100 mg (I will know how many times

a day when I pick it up in a little while) alongside the Buhner Protocol.

At the end of the 30 days I am to call again. At that time, we will discuss

retesting him through IGeneX.

Oh and someone asked about the tick being engorged? Apparently (according to

all of the other members of our family who saw it) it " was " engorged. I

guess I was wrong. & thank you everyone for your feedback thus far.

------------------------------------

Buy Healing Lyme: Natural Healing And Prevention of Lyme Borreliosis And Its

Coinfections by Buhner at one of these locations:

http://tinyurl.com/3bgm5d

[Guest guest]

Hi ,

I heaved a huge sigh of relief when I read that you were able to get your

son started on the doxy right away. Well done!

Regarding the dosage. Here is what Dr. Burrascano had to say in his most

recent (2008) guidelines:

There are four types of antibiotics in general use for Bb treatment. The

TETRACYCLINES, including

doxycycline and minocycline, are bacteriostatic unless given in high doses.

If high blood levels are not attained,

treatment failures in early and late disease are common. However, these high

doses can be difficult to tolerate.

For example, doxycycline can be very effective but only if adequate blood

levels are achieved either by high

oral doses (300 to 600 mg daily) or by parenteral administration. Kill

kinetics indicate that a large spike in blood

and tissue levels is more effective than sustained levels, which is why with

doxycycline, oral doses of 200 mg

bid is more effective than 100 mg qid. Likewise, this is why IV doses of 400

mg once a day is more effective

than any oral regimen.

He's saying that doxycycline will only limit the growth of bacteria, rather

than killing them, unless given in high doses. Also, higher, less frequent

dosages are better at killing bacteria than lower, more frequent doses, i.e.

200mg twice daily is more effective than 100mg four times a day. Since

doxycycline has a half-life of about 16 hours, I think it should be given at

least twice a day, but I'm not a doctor! I would expect 100mg twice daily

to be a safe dose for a 140lb. person, having taken 200mg twice daily in the

past for a month or more at a time without issues (before Lyme!), but

everyone is different.

No matter what dosage you decide upon, the doxycycline is merely an interim

measure to impede the progression of the infection until you can get your

son to an LLMD. I agree with le - he should be seen by someone who

has prodigious experience treating acute Lyme and/or coinfections

successfully with antibiotics.

Until then, if you have not read Dr. Burrascano's guidelines, they're packed

with useful information, and the price is right! They can be found here:

http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf.

Don't forget the probiotics. Dr. Burrascano's guidelines discuss probiotics

as well. They should be taken away from the doxycycline, of course.

Keep us posted. we're all pulling for him!

Jeff

From:

[mailto: ] On Behalf Of

skrobison@...

Sent: Saturday, October 23, 2010 7:14 AM

Subject: [ ] Re: 15yo son-no antibiotics but on Protocol for 5

weeks need advice/encouragement?

He weighs about 140. The label says 100mg 1x a day, but there are 2 refills?

I am considering doing one 2x a day and then I will call the dr's office on

Monday, to clarify what the dosage/duration is.

>

> Dose amount usually depends on weight - about how much does your son

weigh?

>

>

[Guest guest]

Can't one of the herbs cause a discoloration of stool?

Connie

[ ] Re: 15yo son-no antibiotics but on Protocol for 5

weeks need advice/encouragement?

My son just came to me this afternoon and said he has bloody stool. He has never

had this in his life. WDYT?