Re: OT: Room for everyone's comments

[Guest guest]

I value everyone's comments, we're all here to learn. One size does not

fit all. What works for someone may not work for me, but if it helps one

person, that's a good thing.

We all have different styles in how we share our knowledge on the board,

we're all here to share and try to be sensitive to other's needs. I try to

extract the pieces that might be helpful to me. Having Bartonella, I'm

overly sensitive sometimes, someone can say something that will strike a

nerve with me and not bother others.

I've certainly learned a lot from all of you, and I hope everyone

continues to share their information/experiences, knowledge is power!

From:

Connie Blaze <connieblaz@...>

To:

Date:

11/16/2010 04:44 PM

Subject:

Re: [ ] Room for everyone's comments

Sent by:

I agree, I think there is plenty of room for everyone's comments. What

doesn't help one person, might help another. I want to thank everyone for

their input and experiences. I value this forum very much.

Connie

RE: [ ] Room for everyone's comments

I am grateful for the time and energy Knotweed has invested in helping us

to

avoid some of the mines in the minefield of Lyme. I know from painful

experience that trying the wrong intervention can have dreadful (and

sometimes irreversible) consequences.

Thank you Knotweed. I hope you will continue to post here.

Jeff

[Guest guest]

I'm not sure how being negative to every single new idea being raised is

helpful. Please advise. How will that help anybody get well or be creative in

their care?

Jazzman

RE: [ ] Room for everyone's comments

I am grateful for the time and energy Knotweed has invested in helping us

to

avoid some of the mines in the minefield of Lyme. I know from painful

experience that trying the wrong intervention can have dreadful (and

sometimes irreversible) consequences.

Thank you Knotweed. I hope you will continue to post here.

Jeff

[Guest guest]

Helping people to avoid interventions that will make them sicker - possibly

irreversibly - IS helping them to get well.

When you have chronic Lyme, most interventions WILL make you sicker. Have

you noticed? Pointing out some of the mines in this minefield is not

" negative " - it is a great service.

From what I've seen, some list members value this, and some do not. No

problem - if you don't like a certain member's posts, don't read them.

Please put the torches and pitchforks away.

Thank you.

Jeff

From:

[mailto: ] On Behalf Of Jay A. Rovert

Sent: Tuesday, November 16, 2010 4:23 PM

Subject: Re: [ ] OT: Room for everyone's comments

I'm not sure how being negative to every single new idea being raised is

helpful. Please advise. How will that help anybody get well or be creative

in their care?

Jazzman

[Guest guest]

Dude,

He is negative...period!

J

Re: [ ] OT: Room for everyone's comments

I'm not sure how being negative to every single new idea being raised is

helpful. Please advise. How will that help anybody get well or be creative

in their care?

Jazzman

[Guest guest]

>

> I'm not sure how being negative to every single new idea being raised is

helpful.

you are extremely biased because I sometimes comment negatively on some of the

nonsense you keep spreading.

I'm very positive about the Buhner protocol (that's what this group is about

IMHO). I'm even trying to push scientific research in my country in this

direction and I'm spending a lot of my time battling our own CDC regarding lyme

diagnosis and treatment. I guess for some that is 'negative' because it might

prove they don't have lyme at all

I also value many other traditional / herbal treatments, but at the same time I

want to see some evidence for new (often outrageous) health claim. I think it is

good to warn people that they should not believe everything they read on the

internet, especially when it comes to health claims/treatments.

[Guest guest]

Jeff

I concur!!

Enough attacking this person!!

Wishing you Light & Love & Ease of well being

Randy

On Nov 16, 2010, at 8:35 PM, " Jeff Kingery " <JeffKingery@...> wrote:

> Helping people to avoid interventions that will make them sicker - possibly

> irreversibly - IS helping them to get well.

>

> When you have chronic Lyme, most interventions WILL make you sicker. Have

> you noticed? Pointing out some of the mines in this minefield is not

> " negative " - it is a great service.

>

> From what I've seen, some list members value this, and some do not. No

> problem - if you don't like a certain member's posts, don't read them.

>

> Please put the torches and pitchforks away.

>

> Thank you.

>

> Jeff

>

> From:

> [mailto: ] On Behalf Of Jay A. Rovert

> Sent: Tuesday, November 16, 2010 4:23 PM

>

> Subject: Re: [ ] OT: Room for everyone's comments

>

> I'm not sure how being negative to every single new idea being raised is

> helpful. Please advise. How will that help anybody get well or be creative

> in their care?

> Jazzman

>

>

[Guest guest]

Hi all,

Let's not forget that treating this disease often makes one " sicker " due to herx

reactions. Many treatments " fail " because what seems to be making one worse

might actually be effective with the corresponding unpleasant side effects.

That is why so many people abandon them too quickly. Also, keep in mind that

what works for one person may not work for another due to genetics, immune

response, other underlying conditions, and lifestyle (diet, exercise, etc.)

Wish I had posted in advance of last night's teleseminar with guest speaker Dr.

Cowden, hosted by www.lymehope.com. Hopefully there will be an audio recording

of the call posted soon. Check the web site.

Dr. Cowden is the pioneer of what is now called the Cowden protocol (and the

Cowden condensed protocol) using Nutramedix products. (By the way, I have not

done the Cowden protocol but have heard of many of the products used, such as

Banderol, Samento, and Cumanda.) He discussed the severity of some herx

reactions and how they can put you in bed, in the hospital, or worse. (Also,

some treatments require monitoring - liver enzymes for example - by a doctor to

make sure the treatment doesn't damage healthy tissue.) So if a treatment makes

one feel worse, this is not always a bad thing, although herxes need to be

managed so they are not too severe. Cowden's protocol calls for burbur,

parsley, and pinella as some of the detoxers when herxes strike. He suggested

that if one does not detox, replenish nutrients and minerals, and drink plenty

of water, getting well is very difficult. Also, using some elements of a

protocol willy-nilly has shown not to be effective either and thus a person may

discount the full protocol itself without giving it a try.

As a newbie just a year ago, I felt paralyzed by all the negativity about ever

getting well and did not know which way to turn because nothing supposedly

works. I think people come to these groups for hope and become despondent by

negative comments. It flies in the face of what we are trying to accomplish.

There is a way to educate and guide without being negative.

deb

>

> Helping people to avoid interventions that will make them sicker - possibly

> irreversibly - IS helping them to get well.

>

>

>

> When you have chronic Lyme, most interventions WILL make you sicker. Have

> you noticed? Pointing out some of the mines in this minefield is not

> " negative " - it is a great service.

>

>

>

> From what I've seen, some list members value this, and some do not. No

> problem - if you don't like a certain member's posts, don't read them.

>

>

>

> Please put the torches and pitchforks away.

>

>

>

> Thank you.

>

>

>

> Jeff

>

>

>

> From:

> [mailto: ] On Behalf Of Jay A. Rovert

> Sent: Tuesday, November 16, 2010 4:23 PM

>

> Subject: Re: [ ] OT: Room for everyone's comments

>

>

>

>

>

> I'm not sure how being negative to every single new idea being raised is

> helpful. Please advise. How will that help anybody get well or be creative

> in their care?

> Jazzman

>

>

>

>

>

>

>

>

[Guest guest]

Deb,

Very well said. I totally agree. jo

>

There is a way to educate and guide without being negative.

>

> deb

>