Guest guest Posted March 31, 2004 Report Share Posted March 31, 2004 , I too have LQTS (acquired) and would be interested in info about the support group. Could you supply a link for that? Thanks. Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2004 Report Share Posted March 31, 2004 Hi , don't know if I've " spoken " with you before, but I also have LQTS. My defibrillator is strictly prophylactic since any possible episodes I may have had were years ago. Both of my boys as well as my father have LQTS as well. They are only on Betas. I'm sorry to hear about your recent shocks. I hope things will go better soon. Do you belong to the LQTS support group on ? They are a great group of people. > <<<Long QT syndrome is a disorder of the heart " " s electrical system, which > can be inherited or acquired. The syndrome’s name comes from an elongated QT > interval on an electrocardiogram. People with LQTS are prone to develop an > extremely rapid heart rhythm, often brought on by exercise, emotion or loud noise. > This improper rhythm interferes with blood flow to the brain and can result > in fainting or cardiac arrest. > Beta-blockers can also slow the heartbeat and prevent arrhythmias in LQTS > patients. However, about a fourth of patients continue to experience symptoms > while on the medication. If beta-blockers do not work or cause serious side > effects, or if a person has already experienced near sudden death, doctors can then > implant a defibrillator>>>> > This is me......especially the highlighted parts. It explains why I had my 3 > shocks on Saturday. > > M in CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2004 Report Share Posted April 1, 2004 This talks about loud noise . . . I was in a room with an air hammer recently and thought it was going to kill me. It HURT. But I think it was the rythm more than the loudness. Has anyone else ever experienced anything liek that? Bridget > <<<Long QT syndrome is a disorder of the heart " " s electrical system, which > can be inherited or acquired. The syndrome’s name comes from an elongated QT > interval on an electrocardiogram. People with LQTS are prone to develop an > extremely rapid heart rhythm, often brought on by exercise, emotion or loud noise. > This improper rhythm interferes with blood flow to the brain and can result > in fainting or cardiac arrest. > Beta-blockers can also slow the heartbeat and prevent arrhythmias in LQTS > patients. However, about a fourth of patients continue to experience symptoms > while on the medication. If beta-blockers do not work or cause serious side > effects, or if a person has already experienced near sudden death, doctors can then > implant a defibrillator>>>> > This is me......especially the highlighted parts. It explains why I had my 3 > shocks on Saturday. > > M in CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2004 Report Share Posted April 1, 2004 The address for the LongQT support group is: longqt/ > , I too have LQTS (acquired) and would be interested in info about the > support group. Could you supply a link for that? Thanks. > Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2004 Report Share Posted April 1, 2004 We have it here too...my mother had it, My daughter, grandson, grand daughter and myself..to date three of us have ICD's and are all on beta blockers. I think I was a member of LQTS group in but forgot how to get there . Debbie >From: Hope4843@... >Reply- > >Subject: Re: Re: Long QT >Date: Wed, 31 Mar 2004 21:11:56 EST > >, I too have LQTS (acquired) and would be interested in info about the > support group. Could you supply a link for that? Thanks. > Barb FREE pop-up blocking with the new MSN Toolbar – get it now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2004 Report Share Posted April 1, 2004 Check out the ZAPPER NEWS PAGE! Breaking information about surgical treatment for Long QT!! http://www.ZapLife.org.zap2.htm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2010 Report Share Posted November 9, 2010 Thanks for responding. I am aware of the problem with CFS and such, just not sure if it was caused by ABX's over the years. I am off all drugs that can cause it for the time being...see a cardiologist in a few weeks. Eileen Quote Link to comment Share on other sites More sharing options...
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