Re: Any and all comforting support welcome!

[Guest guest]

18 days of ABX must be the shortest protocol in history...Whether ABX works or

not is debatable, but 18 days is not much of a trial.

Jazzman

[ ] Any and all comforting support welcome!

This past July I was tick bit and ended up with LD and Bartonella. I took the

Doxy for 14 days then switched to amoxi but couldn't stay on it longer than 6

days due to allergic reaction. Then did 4 more days of doxy to finish out

recommended course of abx.

Only problem, I still didn't feel any better. I started a German product called

immun-balance for lymes. Took that for 1 month. Had blood test and still came up

positive for both LD and Bartonella. Is there no end to this dreaded disease.

It's effects are killing me. Extreme exhaustion, aching joints and muscles,

major brain fog and extremed anxiety. Turns out my lymes doc suspects I was

originally infected in '92 but the recent bite made everything explode again.

Great!

I'm stating the Level I protocol this Sunday. I'm exceptionally nervous about

the prognosis and side effects of the protocol. The extreme anxiety and panic

attacks don't help with that nervousness either.

Any words of advice?

[Guest guest]

>

> Turns out my lymes doc suspects I was originally infected in '92 but the

recent bite made everything explode again. Great!

yes, that could be ... if that is the case, you probably need strong ABX

treatment for many months. If you can't stand ABX you might try Buhner herbs

instead (that is what this group is about ...), but don't expect a cure in a few

weeks, zero chance!

There are a lot of different types of ABX; I would suggest trying another class

of ABX first and see of you can use that. It is very unlikely that you are

allergic to all types. Don't stop taking them as soon as you experience some

discomfort though, no pain - no gain!!

Finishing off an amoxy course with doxy sounds stupid to me, doesn't make much

sense. This was just a 4 day doxy course, which is pretty useless and according

to some even dangerous (risk of getting ABX resistant strains).

[Guest guest]

>

> 18 days of ABX must be the shortest protocol in history...Whether ABX works or

not is debatable, but 18 days is not much of a trial.

well, not really. 95% of ABX courses for early lyme in Europe are less than 18

days. Some countries like Germany even use onetime shots (400mg doxy) right

after tick byte with relatively good results (not 100% protection, but the same

probably goes even if you take 2 months of ABX).

I won't claim that two weeks does the job, but statistically the chance of

getting infected after tick byte plus 18 days of ABX is very low. If the lyme

was really a pre-existing condition that flared up due to a new tick byte yes -

in that case 18 days is far too short.

[Guest guest]

Dear ....

Yes, many people with lyme disease and related infections deal with anxiety....I

think it does help to remember that the infections are effecting the nervous

system, and that the energetic discomfort isn't " you " .

I find when the anxiety gets flared, bringing attention to the breath, to this

moment helps a lot.

There are a myriad of resources on line to help with anxiety. Meditation,

mindfulness practices, restful yoga postures....as well as simple mind/body

techniques such as TAT, etc.

I find meditation to be extremely helpful, and lying down is fine if the body is

too weak or in too much pain to sit up.

One of the things that I've noticed about anxiety is that when it starts

spinning the mind can go into some imaginary future (which actually does not

exist) and then the spinning can get really overwhelming.

So just here,

this moment,

this breath.

This cup of tea, this step. This softening in the belly. Here, now.

There is a place for dealing with managing the illness....and my experience is

that learning to relate to (rather than from) the anxiety is the best place to

begin.

That way treatment choices and decisions can be made from a place of clarity.

Peace and ease,

yarrow

>

> This past July I was tick bit and ended up with LD and Bartonella. I took the

Doxy for 14 days then switched to amoxi but couldn't stay on it longer than 6

days due to allergic reaction. Then did 4 more days of doxy to finish out

recommended course of abx.

> Only problem, I still didn't feel any better. I started a German product

called immun-balance for lymes. Took that for 1 month. Had blood test and still

came up positive for both LD and Bartonella. Is there no end to this dreaded

disease. It's effects are killing me. Extreme exhaustion, aching joints and

muscles, major brain fog and extremed anxiety. Turns out my lymes doc suspects I

was originally infected in '92 but the recent bite made everything explode

again. Great!

> I'm stating the Level I protocol this Sunday. I'm exceptionally nervous about

the prognosis and side effects of the protocol. The extreme anxiety and panic

attacks don't help with that nervousness either.

>

> Any words of advice?

>

>

>

[Guest guest]

I am on day 3 of the protocol. I think I experienced my first day of Herxing.

Very sore joints and muscles, headache, insane brain fog, exhaustion. My

digestive system was a mess. How long should I expecting herxing to last? This

is a sign that it's working right?

Cassano

VT PBiS Coach

802-236-6637

snowgirlvt@...

PRIVACY &

[Guest guest]

Congrats on your herx. Do you have anything to help bind the toxins from the

die-off? Things that come to mind include apple pectin, activated charcoal, and

cholestyramine (this one is by Rx). Take epsom salt baths, drink lots of

filtered water, use a sauna if you have one. Binders do pull minerals and

supplements so they should be taken at different times (2 hours away if

possible).

Digestive system issues are from the die-off toxins as well. Take probiotics to

keep a steady inflow of the good bugs.

deb

>

> I am on day 3 of the protocol. I think I experienced my first day of Herxing.

Very sore joints and muscles, headache, insane brain fog, exhaustion. My

digestive system was a mess. How long should I expecting herxing to last? This

is a sign that it's working right?

>

>

[Guest guest]

I just received a product that my doc recommended called Boluoke. Has anyone

tried this? Supposedly it helps with the die off. I'm also considering taking

apple cider vinegar. Anyone have experience with this?

> >

> > I am on day 3 of the protocol. I think I experienced my first day of

Herxing. Very sore joints and muscles, headache, insane brain fog, exhaustion.

My digestive system was a mess. How long should I expecting herxing to last?

This is a sign that it's working right?

> >

> >

>

[Guest guest]

My opinion - Don't let your body herx too hard. If it gets really painful, back

off the herbs a bit.

Connie

Re: [ ] Re: Any and all comforting support welcome!

I am on day 3 of the protocol. I think I experienced my first day of Herxing.

Very sore joints and muscles, headache, insane brain fog, exhaustion. My

digestive system was a mess. How long should I expecting herxing to last? This

is a sign that it's working right?

Cassano

[Guest guest]

,

What you are experiencing *probably* means that you are herxing (trust your own

intuition on this). If so, then it's working. Sounds a little intense though.

For myself, I believe in an easier balance between healing and pain. When I

began the protocol, I discovered that I had to take a MUCH slower pace than

prescribed by Buhner's book. Using Tim 's encapsulated herbs, I found that

I had to take only one capsule per day, to start. Then, over the course of

weeks, I graduated to one capsule per meal (3 per day). I have now been on the

protocol for 7 months, and I'm up to 6 capsules per meal. For me, I could only

take slow, steady progress because the herx was too strong. Maybe for you too?

There are a lot of " support " herbs listed in Buhner's book that can help (or

sometimes hurt). To see which ones work for you, it usually takes quite a lot

of experimentation. Also, what may work at one point in your treatment might

not work later. So for me, it has become a new lifestyle of health,

experimentation, and awareness.

I hope you find what works for you! Good luck.

Phil

Williston, VT

>

> I am on day 3 of the protocol. I think I experienced my first day of Herxing.

Very sore joints and muscles, headache, insane brain fog, exhaustion. My

digestive system was a mess. How long should I expecting herxing to last? This

is a sign that it's working right?

>

> Cassano

>

> VT PBiS Coach

>

> 802-236-6637

>

> snowgirlvt@...

[Guest guest]

ACV alkalinizesacid from die-off. Baking soda supposedly helps too. Alka

Seltzer Gold does this too.

deb

>

> Does anyone know how apple cider vinegar would assist with the die off and

herx reactions? 

>

> Cassano

>

> VT PBiS Coach

>

> 802-236-6637

>

> snowgirlvt@...

>

>

>

> PRIVACY &

[Guest guest]

Boluoke " thins " the blood to improve circulation (simple answer).

deb

> > >

> > > I am on day 3 of the protocol. I think I experienced my first day of

Herxing. Very sore joints and muscles, headache, insane brain fog, exhaustion.

My digestive system was a mess. How long should I expecting herxing to last?

This is a sign that it's working right?

> > >

> > >

> >

>

[Guest guest]

My LLMD has me on some supplements/tinctures for detox: Futureplex Antitox

Cellular Recharge and Futureplex Antitox Drainage Complex. He also

recommended the Epsom salts baths and walking every day. He told me not to

do any saunas just yet, though. I've never heard that before, but he is an

expert (Dr. P. in Los Altos, CA). I know how uncomfortable those herxes are.

I'm about to do some herxing now, because we're tackling the biofilm.

Be well,

Janet

[Guest guest]

Hi - My LLMD also had me start on the Bolouke. I believe

that it's purpose is to cut thru the biofilm that the critters will

hide under. I had to order it on-line.

I have also tried Hari Taki, the Ayurvedic herb, which might

cut thru the biofilm. I am on ABX now and am on Tim 's

herbs. It's tough when you're told that you will feel worse before

getting better. I have had enough of worse! in Vermont