Guest guest Posted October 15, 2010 Report Share Posted October 15, 2010 Hi Christie, I'm just wondering what type of adrenal support you are taking. Thanks, Kate [ ] ROCEPHIN 6 months & NOTHING at all....Ditto Zithro IV [ ] Re: More IV antibotics or Natural Treatment I'm in the same boat, after two months on rocephin, insurance is cutting me off. I had a tiny improvement in that time nothing significant...how much did you improve? > > I am testing IGM and IGG positive for Erlichiosis, positive for EBV, CMV, HPPV6. Global hypoperfusion and white T2 abnormalalities. I've finally been diagnosed with chronic lyme after maybe 20 years! Unexplained ITP, NK cells (3) and CFS - 15 years ago! > > I've been on antibotics with my LLMD Dr. B (albany) for 1.5 years. I had IV cef for 5 months and went off due to finances (relapsed 2 weeks after the 5 months). I now have the financial resources to continue IV and my LLMD is recommending another 6 mths - 1 year of IV cef. > > Here is my questions and quandry - for all you chronic lyme patients who have been on IV for long periods of time (6 mths - 1 year) did it make you better? And, how fast did time wise did you relapse. > > I appreciate all of your help answering this question. It is a very difficult painstaking decision to make! Not to mention health consequences and the possible complications! > > Please just answer the following 2 questions and suggest recommendations from your experience. > > Time on IV cef or Rocephin? > How fast did you relapse? > Would you recommend and do it again? > > Sincere Thanks, > > - very chronic sufferer > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2010 Report Share Posted October 15, 2010 I read that Buhner recommends a version of his Hep C formula for XMRV/ CFIDS made by Dry Creek Herb Farm....are familiar with it??? > > > > > > I am testing IGM and IGG positive for Erlichiosis, positive for EBV, CMV, HPPV6. Global hypoperfusion and white T2 abnormalalities. I've finally been diagnosed with chronic lyme after maybe 20 years! Unexplained ITP, NK cells (3) and CFS - 15 years ago! > > > > > > I've been on antibotics with my LLMD Dr. B (albany) for 1.5 years. I had IV cef for 5 months and went off due to finances (relapsed 2 weeks after the 5 months). I now have the financial resources to continue IV and my LLMD is recommending another 6 mths - 1 year of IV cef. > > > > > > Here is my questions and quandry - for all you chronic lyme patients who have been on IV for long periods of time (6 mths - 1 year) did it make you better? And, how fast did time wise did you relapse. > > > > > > I appreciate all of your help answering this question. It is a very difficult painstaking decision to make! Not to mention health consequences and the possible complications! > > > > > > Please just answer the following 2 questions and suggest recommendations from your experience. > > > > > > Time on IV cef or Rocephin? > > > How fast did you relapse? > > > Would you recommend and do it again? > > > > > > Sincere Thanks, > > > > > > - very chronic sufferer > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2010 Report Share Posted October 15, 2010 Hi Kate - I am taking Adrenal Desiccated by Standard Process. I tablet 3x/day. And Adrenevive by Ortho Molecular Products. 1 tablet 1-2 times/day. From: Katenyc5@... Date: Fri, 15 Oct 2010 18:26:58 -0400 Subject: Re: [ ] ROCEPHIN-Christie Hi Christie, I'm just wondering what type of adrenal support you are taking. Thanks, Kate [ ] ROCEPHIN 6 months & NOTHING at all....Ditto Zithro IV [ ] Re: More IV antibotics or Natural Treatment I'm in the same boat, after two months on rocephin, insurance is cutting me off. I had a tiny improvement in that time nothing significant...how much did you improve? > > I am testing IGM and IGG positive for Erlichiosis, positive for EBV, CMV, HPPV6. Global hypoperfusion and white T2 abnormalalities. I've finally been diagnosed with chronic lyme after maybe 20 years! Unexplained ITP, NK cells (3) and CFS - 15 years ago! > > I've been on antibotics with my LLMD Dr. B (albany) for 1.5 years. I had IV cef for 5 months and went off due to finances (relapsed 2 weeks after the 5 months). I now have the financial resources to continue IV and my LLMD is recommending another 6 mths - 1 year of IV cef. > > Here is my questions and quandry - for all you chronic lyme patients who have been on IV for long periods of time (6 mths - 1 year) did it make you better? And, how fast did time wise did you relapse. > > I appreciate all of your help answering this question. It is a very difficult painstaking decision to make! Not to mention health consequences and the possible complications! > > Please just answer the following 2 questions and suggest recommendations from your experience. > > Time on IV cef or Rocephin? > How fast did you relapse? > Would you recommend and do it again? > > Sincere Thanks, > > - very chronic sufferer > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2010 Report Share Posted October 15, 2010 No, can you tell me which one it is? I was just on the site and it looks like there are 4 options. Thanks! From: laceyinbh@... Date: Sat, 16 Oct 2010 00:09:41 +0000 Subject: [ ] Re: ROCEPHIN-Christie I read that Buhner recommends a version of his Hep C formula for XMRV/ CFIDS made by Dry Creek Herb Farm....are familiar with it??? > > > > > > I am testing IGM and IGG positive for Erlichiosis, positive for EBV, CMV, HPPV6. Global hypoperfusion and white T2 abnormalalities. I've finally been diagnosed with chronic lyme after maybe 20 years! Unexplained ITP, NK cells (3) and CFS - 15 years ago! > > > > > > I've been on antibotics with my LLMD Dr. B (albany) for 1.5 years. I had IV cef for 5 months and went off due to finances (relapsed 2 weeks after the 5 months). I now have the financial resources to continue IV and my LLMD is recommending another 6 mths - 1 year of IV cef. > > > > > > Here is my questions and quandry - for all you chronic lyme patients who have been on IV for long periods of time (6 mths - 1 year) did it make you better? And, how fast did time wise did you relapse. > > > > > > I appreciate all of your help answering this question. It is a very difficult painstaking decision to make! Not to mention health consequences and the possible complications! > > > > > > Please just answer the following 2 questions and suggest recommendations from your experience. > > > > > > Time on IV cef or Rocephin? > > > How fast did you relapse? > > > Would you recommend and do it again? > > > > > > Sincere Thanks, > > > > > > - very chronic sufferer > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2010 Report Share Posted October 15, 2010 Christie...The CFS herbs are not on the site. You have to call them and they will make it custom. Basically, it's the " C " formula minus a couple of the liver herbs. Buhner says, it might take a year, but you will recover. Just watch out for Astragulas, if you have chronic Lyme. Or you can email Buhner on Planet thrive, with the specifics of your illness, and eventually he will answer. > > > > > > > > > > > > > > I am testing IGM and IGG positive for Erlichiosis, positive for EBV, CMV, HPPV6. Global hypoperfusion and white T2 abnormalalities. I've finally been diagnosed with chronic lyme after maybe 20 years! Unexplained ITP, NK cells (3) and CFS - 15 years ago! > > > > > > > > > > > > > > I've been on antibotics with my LLMD Dr. B (albany) for 1.5 years. I had IV cef for 5 months and went off due to finances (relapsed 2 weeks after the 5 months). I now have the financial resources to continue IV and my LLMD is recommending another 6 mths - 1 year of IV cef. > > > > > > > > > > > > > > Here is my questions and quandry - for all you chronic lyme patients who have been on IV for long periods of time (6 mths - 1 year) did it make you better? And, how fast did time wise did you relapse. > > > > > > > > > > > > > > I appreciate all of your help answering this question. It is a very difficult painstaking decision to make! Not to mention health consequences and the possible complications! > > > > > > > > > > > > > > Please just answer the following 2 questions and suggest recommendations from your experience. > > > > > > > > > > > > > > Time on IV cef or Rocephin? > > > > > > > How fast did you relapse? > > > > > > > Would you recommend and do it again? > > > > > > > > > > > > > > Sincere Thanks, > > > > > > > > > > > > > > - very chronic sufferer > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.