FW: [MaineLD] KPU

[Guest guest]

_____

From: MaineLymeDisease

[mailto:MaineLymeDisease ] On Behalf Of Elaina

Sent: Thursday, August 26, 2010 10:03 AM

MaineLymeDisease

Subject: RE: [MaineLD] KPU

Haven't posted on here for awhile but wanted to give everyone an update on

our

Daughter . She has been treated for lyme,babesia,Echerlicka,and

Bartonella.

She has been in treatment for over 4 years now. She was quite bad in the

beginning

Her heart, and all of her muscles were affected and her fatigue level was

pretty bad

and some cognitive were involved.

The last thing we were having A hard time getting under control was

Bartonella but as it

turned out it may not have been that we won't know until we are finished

with the KPU treatment

(you can look it up under doctor Klinghardts protocol.) It is a protein

found in the blood of

Some people with lyme.it is thought to be caused from lyme, or anything

traumatic or possibly

Heredity. It does cause the stretch mark like marks like Bartonella plus it

has many other symptoms.

Her doctor decided to test her because with all the treatment she has had

she still couldn't do

Much exercise without a lot of muscle pain and fatigue. She has been on

treatment for almost

3 weeks and we have seen an improvement. The doctor we are seeing is doing

the test thru

A lab he has spoken to to get the test done so the KPU can be found; his

method of collecting

the urine is different as well. He is finding a good percentage of his

patients with lyme also have KPU.

Most of the labs USA Will not do it the way klinghardt does it over

seas. If your doctor suspected KPU and used another lab

It probably would not be found.

was doing very well last year in school. She is in the top 10 percent

of her class. We are hoping

She will be able to participate in more school activities this year because

her fatigue level is great

And her muscles are getting better. Looking at some colleges a little

further away. she.was to afraid to

Even think about it last year.. Until there is a cure for this horrible

disease at least the tools we have for our daughter are

Working for her and we are very grateful.

Have a Great Week Hugs Elaina and family

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From: MaineLymeDisease

<mailto:MaineLymeDisease%40>

[mailto:MaineLymeDisease

<mailto:MaineLymeDisease%40> ] On Behalf Of Shantiann Daya

Sent: Thursday, August 26, 2010 12:54 AM

MaineLymeDisease

<mailto:MaineLymeDisease%40>

Subject: Re: [MaineLD] Re: no laughing allowed! : )

I finally have an appointment with Dr. Mul-ca-hy on Sept. 2nd, but my

understanding is that he does more herbals. I just found out I'm in the same

boat you're in...or will be anyway. I have about 9 more months of orals

before

they'll even consider me too...which is ridiculous too. Why allow them to

breed

for a full year??? Makes no sense.

I wish I could be of more help, but I will ask Dr. M for you next week if he

knows of anyone for you. Who knows...I may need him too down the road!

Good luck, and again, I'm sooooooooo sorry to hear that this is happening to

you. It's just criminal that's all.

The only thing I know for sure in life, is that I don't know anything for

sure.

by Shantiann Daya

________________________________

From: " bluesky@... <mailto:bluesky%40greennet.net>

<mailto:bluesky%40greennet.net> "

<bluesky@... <mailto:bluesky%40greennet.net>

<mailto:bluesky%40greennet.net> >

MaineLymeDisease

<mailto:MaineLymeDisease%40>

<mailto:MaineLymeDisease%40>

Sent: Wed, August 25, 2010 9:50:18 PM

Subject: [MaineLD] Re: no laughing allowed! : )

I answered Diane's request for someone who treats neuroLyme with long-

term abx.

My doctor does that for me, but I have no idea if he prescribes IV abx.

Sorry.

Blue

On Aug 25, 2010, at 8:34 PM, buker wrote:

> I am on the search for the same thing, Blue I didn't laugh, I

> screamed, and will continue to scream until I get the greatment I

> need, long term IV abx!

>

> On Aug 25, 2010, at 6:21 PM, Diane wrote:

>>

>> Does ANYONE know ANY docs here in Maine that will do long-term abx

>> for neuro Lyme?