Guest guest Posted September 9, 2010 Report Share Posted September 9, 2010 I support you my friend !!! Thank you again for the call the other day You made my whole week. Hugs, love and prayers and remember to call me ANYTIME. Hey we should get a phone tree thing going people...thoughts? From: firstmenders <Euodiau@... <mailto:Euodiau%40aol.com> > Subject: [ ] Re: Being Alone <mailto: %40> Date: Monday, August 23, 2010, 11:50 AM Hi Josie, Yes, the isolation can be scary. I've also thought that if I died in the night it would be days before I would be found because everyone had deserted me. I felt so bad I used to fill my dog's and cat's food and water bowls very high so if I died and it took days before I was found they would have a few days ration to carry them over. I would always go to bed in clean new PJ's so I wouldn't be found in the old ragged ones. (Even though the raggy ones are the most comfy.) I've also had friends desert me. One of my best friends of 5 years terminated our friendship one day at lunch when she informed me " I can't spend anymore time with you because you've gotten too negative! " I wasn't " negative, " I was dying. That was two years ago and I haven't heard from her since. I can laugh about it now but it cut me to my soul sitting there across the table from her that day and needing help and support so desperately. It's been comforting to know there are other people who can appreciate all you've been through and who care even if they aren't right there with you. Sharing anything I can to help others gives me a way to feel like I can make a difference and be helpful. I was so sick when I first got on the Lyme groups that I barely had the energy to read the posts but reading them helped me know I wasn't alone and I felt part of a community who cared about each other and it was engouraging to know other people were getting well. I've had Lyme for many years and I'm getting better each day. It took a long time for me to be diagnosed and finally find the cure that's working for me. I'm not taking any abx. I'm following the Buhner protocol. There is a right cure for everyone. I think getting the right diagnosis is the hardest part of healing Lyme. After that it's a matter of fine tuning the remedy. Blessings of good health Barbara Buy Healing Lyme: Natural Healing And Prevention of Lyme Borreliosis And Its Coinfections by Buhner at one of these locations: http://tinyurl.com/3bgm5d Switch to: Text-Only, Daily Digest . Unsubscribe . Terms of Use .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2010 Report Share Posted September 10, 2010 I refused to read the original post and replies for the longest time because I thought the matter didn't apply to me. But, after all, it does. Since I basically looked well and functioned, people didn't believe me every time I came down with a new affliction from shingles to pneumonia to partial paralysis to multiple fractures, the list goes on and on...all in the span of 2 years. They also thought I was being a snob because I was always too tired for happy hour and really couldn't hang out with colleagues. When I do have the strength to be social, no one is available or they think I'm going to back out at the last minute, so I really have only my family left to count on (and, unfortunately, they're not always that sympathetic). Over the summer I bounced back and made 2 really close acquaintances. One is surprisingly sympathetic and doting and, I hope, sticks around for once. The other has recently disappeared (I'm not upset about it at all) - he suffers from major depression and I was a very trusty and reliable companion, by his side during some dark moments. Recently I scaled back on our reunions because I recognized that I simply needed more rest and time for myself if I was to stay well. He didn't like that news, but accepted it. Last week, I helped him out by picking him up from work, saving him time and money. I felt I could handle it because I had a long weekend coming up to rest and could use the company. In the end, I waited in frigid A/C for him to be ready before retreating to my car, which wasn't that much warmer. That it was midnight, I'd been up since 5:45 am, and was getting a severe headache seemed to mean something to him, but not a lot. The next day, he invited me for an outing, which I accepted but stated I needed to run some errands first, to which he pretty much replied, " Fine, have a nice life. " Of course, I was glad I wouldn't be accompanying him anywhere - but, the clinker is, I got walking pneumonia, which I always get after exposure to cold, explained to him that I was sick, never heard condolences, and he just dropped of the face of the earth. This is not a love interest or anything, so I'm not bummed, simply floored by how callous a person, depressed or not, could be in light of all the favors I did for him. I get tired of helping people out when I really need that precious time and energy for myself, thank you very much. I wish people could understand and respect my limitations, but it's hard when you don't look like you're at death's door. The only time I got some understanding was when I was recently bound my a cast on each leg thanks to a double fracture. And, yes, all my frequently occurring afflictions are a result of Tick Borne Illnesses. As someone once posted, " I am a walking collection of illnesses " . I'm pretty stubborn and never ask for anyone to help me out - so the nurturing in my friendships is pretty one sided. So here I lay writing, coughing, nose blowing, trying to figure out who my real friends are and reminding myself that eventually some new companions will come around who can deal with my limited availablilty. I, too, consider prepping my 3 pets for the worst every night. Should I leave them extra food and water in case I don't wake up tomorrow? How much extra? How long would it take someone to rescue them? How else can I keep them comfortable? All of this thinking started last month...I was surprised to know that someone else thinks similar thoughts. Got oil? www.crudethemovie.com www.H2oildoc.com ________________________________ From: MG <goddess_mystic@...> Sent: Thu, September 9, 2010 4:17:07 PM Subject: RE: [ ] Re: Being Alone....phone tree? I support you my friend !!! Thank you again for the call the other day You made my whole week. Hugs, love and prayers and remember to call me ANYTIME. Hey we should get a phone tree thing going people...thoughts? From: firstmenders <Euodiau@... <mailto:Euodiau%40aol.com> > Subject: [ ] Re: Being Alone <mailto: %40> Date: Monday, August 23, 2010, 11:50 AM Hi Josie, Yes, the isolation can be scary. I've also thought that if I died in the night it would be days before I would be found because everyone had deserted me. I felt so bad I used to fill my dog's and cat's food and water bowls very high so if I died and it took days before I was found they would have a few days ration to carry them over. I would always go to bed in clean new PJ's so I wouldn't be found in the old ragged ones. (Even though the raggy ones are the most comfy.) I've also had friends desert me. One of my best friends of 5 years terminated our friendship one day at lunch when she informed me " I can't spend anymore time with you because you've gotten too negative! " I wasn't " negative, " I was dying. That was two years ago and I haven't heard from her since. I can laugh about it now but it cut me to my soul sitting there across the table from her that day and needing help and support so desperately. It's been comforting to know there are other people who can appreciate all you've been through and who care even if they aren't right there with you. Sharing anything I can to help others gives me a way to feel like I can make a difference and be helpful. I was so sick when I first got on the Lyme groups that I barely had the energy to read the posts but reading them helped me know I wasn't alone and I felt part of a community who cared about each other and it was engouraging to know other people were getting well. I've had Lyme for many years and I'm getting better each day. It took a long time for me to be diagnosed and finally find the cure that's working for me. I'm not taking any abx. I'm following the Buhner protocol. There is a right cure for everyone. I think getting the right diagnosis is the hardest part of healing Lyme. After that it's a matter of fine tuning the remedy. Blessings of good health Barbara Buy Healing Lyme: Natural Healing And Prevention of Lyme Borreliosis And Its Coinfections by Buhner at one of these locations: http://tinyurl.com/3bgm5d Switch to: Text-Only, Daily Digest . Unsubscribe . Terms of Use .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2010 Report Share Posted September 16, 2010 I always remember; some people are takers, some are givers. The takers will take as much as you give and some will expect more. Yesterday, I again heard - " but you look so good " which is nice, but....comes from folks that haven't seen me when I feel like crap - somewhere between a hangover and the flu. So I hide when I feel horrible and try and get out when I don't. And I agree with the " more time to rest " thing. Lost a boyfriend over that one. Like you, I need more rest; more down-time; more quiet time watching a movie. Have to have it. Learned to fight for it. Hang in there and keep us posted! Today is a good day; but when they're not, the cat stays outside... _____ From: [mailto: ] On Behalf Of Ma Huang Sent: Friday, September 10, 2010 8:34 PM Subject: Re: [ ] Re: Being Alone....phone tree? I refused to read the original post and replies for the longest time because I thought the matter didn't apply to me. But, after all, it does. Since I basically looked well and functioned, people didn't believe me every time I came down with a new affliction from shingles to pneumonia to partial paralysis to multiple fractures, the list goes on and on...all in the span of 2 years. They also thought I was being a snob because I was always too tired for happy hour and really couldn't hang out with colleagues. When I do have the strength to be social, no one is available or they think I'm going to back out at the last minute, so I really have only my family left to count on (and, unfortunately, they're not always that sympathetic). Over the summer I bounced back and made 2 really close acquaintances. One is surprisingly sympathetic and doting and, I hope, sticks around for once. The other has recently disappeared (I'm not upset about it at all) - he suffers from major depression and I was a very trusty and reliable companion, by his side during some dark moments. Recently I scaled back on our reunions because I recognized that I simply needed more rest and time for myself if I was to stay well. He didn't like that news, but accepted it. Last week, I helped him out by picking him up from work, saving him time and money. I felt I could handle it because I had a long weekend coming up to rest and could use the company. In the end, I waited in frigid A/C for him to be ready before retreating to my car, which wasn't that much warmer. That it was midnight, I'd been up since 5:45 am, and was getting a severe headache seemed to mean something to him, but not a lot. The next day, he invited me for an outing, which I accepted but stated I needed to run some errands first, to which he pretty much replied, " Fine, have a nice life. " Of course, I was glad I wouldn't be accompanying him anywhere - but, the clinker is, I got walking pneumonia, which I always get after exposure to cold, explained to him that I was sick, never heard condolences, and he just dropped of the face of the earth. This is not a love interest or anything, so I'm not bummed, simply floored by how callous a person, depressed or not, could be in light of all the favors I did for him. I get tired of helping people out when I really need that precious time and energy for myself, thank you very much. I wish people could understand and respect my limitations, but it's hard when you don't look like you're at death's door. The only time I got some understanding was when I was recently bound my a cast on each leg thanks to a double fracture. And, yes, all my frequently occurring afflictions are a result of Tick Borne Illnesses. As someone once posted, " I am a walking collection of illnesses " . I'm pretty stubborn and never ask for anyone to help me out - so the nurturing in my friendships is pretty one sided. So here I lay writing, coughing, nose blowing, trying to figure out who my real friends are and reminding myself that eventually some new companions will come around who can deal with my limited availablilty. I, too, consider prepping my 3 pets for the worst every night. Should I leave them extra food and water in case I don't wake up tomorrow? How much extra? How long would it take someone to rescue them? How else can I keep them comfortable? All of this thinking started last month...I was surprised to know that someone else thinks similar thoughts. Got oil? www.crudethemovie.com www.H2oildoc.com ________________________________ From: MG <goddess_mystic@... <mailto:goddess_mystic%40> > <mailto: %40> Sent: Thu, September 9, 2010 4:17:07 PM Subject: RE: [ ] Re: Being Alone....phone tree? I support you my friend !!! Thank you again for the call the other day You made my whole week. Hugs, love and prayers and remember to call me ANYTIME. Hey we should get a phone tree thing going people...thoughts? From: firstmenders <Euodiau@... <mailto:Euodiau%40aol.com> <mailto:Euodiau%40aol.com> > Subject: [ ] Re: Being Alone <mailto: %40> <mailto: %40> Date: Monday, August 23, 2010, 11:50 AM Hi Josie, Yes, the isolation can be scary. I've also thought that if I died in the night it would be days before I would be found because everyone had deserted me. I felt so bad I used to fill my dog's and cat's food and water bowls very high so if I died and it took days before I was found they would have a few days ration to carry them over. I would always go to bed in clean new PJ's so I wouldn't be found in the old ragged ones. (Even though the raggy ones are the most comfy.) I've also had friends desert me. One of my best friends of 5 years terminated our friendship one day at lunch when she informed me " I can't spend anymore time with you because you've gotten too negative! " I wasn't " negative, " I was dying. That was two years ago and I haven't heard from her since. I can laugh about it now but it cut me to my soul sitting there across the table from her that day and needing help and support so desperately. It's been comforting to know there are other people who can appreciate all you've been through and who care even if they aren't right there with you. Sharing anything I can to help others gives me a way to feel like I can make a difference and be helpful. I was so sick when I first got on the Lyme groups that I barely had the energy to read the posts but reading them helped me know I wasn't alone and I felt part of a community who cared about each other and it was engouraging to know other people were getting well. I've had Lyme for many years and I'm getting better each day. It took a long time for me to be diagnosed and finally find the cure that's working for me. I'm not taking any abx. I'm following the Buhner protocol. There is a right cure for everyone. I think getting the right diagnosis is the hardest part of healing Lyme. After that it's a matter of fine tuning the remedy. Blessings of good health Barbara Buy Healing Lyme: Natural Healing And Prevention of Lyme Borreliosis And Its Coinfections by Buhner at one of these locations: http://tinyurl.com/3bgm5d Switch to: Text-Only, Daily Digest . Unsubscribe . Terms of Use .. Quote Link to comment Share on other sites More sharing options...
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